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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
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Hi, Suspect Cd
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4 posts in this topic

Hi. My name is Jennifer. I have a 2.5 year old son who I think might have this. Let me give you a little back ground info.

Brayden has always been a "sick" child. He has had ear infection on top of ear infection. Finally at 1 year of age, we had tubes placed. Which are still there today. Going on two years! Unusual to say the least. This cured the EI problems, for the most part, but not others. At 9 months of age he was yanked off formula totally and put on regualr soy milk. We saw a slight improvement with the "reflux." Since one year of age we have had three to four different EI's, Exzema, and numerous cases of conjunctivitis. I realized a deeper problem was the underlying cause of all this. I had him allergy tested at 2 years of age. He came back with a 0/1 or 1 on most of the seasonal and envior. allergens. However, his IgE score was way above a normal one. So, I had them run the foods. RAST Test. The Dr. called me back as soon as he got the reults. His advise get him off dairy..ASAP! He told me he was also allergic to wheat, egg white and coconut. But I did not need to difcontinue use of them. About 6 months ago, right after we got Brayden off the dairy, I noticed his stools were very loose and stinky. I chalked that up to the fact he was stricly on soy products now. Then, I noticed that he had watery, mucosy stools every 3-4 days. That has since progressed to him vomitting and now severe stomach cramping. I called the ENT/Allergist and he referred me to a pedi GI. At first he was reluctant to do it as he thoguht Bray had a bug. But, I have told him, D does not last for months and months. So, he told me to scale back on the wheat and Gluten, and he will make an appt. with the GI specialist.

So, last nite, I gave him some chicken tenders, they had wheat in them. With in 1 hour he was having cramps and the big D. He even paces and cries now. I am sure that he has this, or some form of a gluten protein allergy or disease. I just want my normal happy child back. Then one I lost when he was 9 weeks old. LOL!!!

I am not sure if I should take him compltetely off gluten, as we have not seen the specialist, or wait till after they do blood work to see. I hate the fact that I am putting him in pain when I have an idea, very good one, of what is causing it. He won't even go to the potty anymore b/c of this.

Also, his behviour....OMG.....it is awful. And not, it is not normal 2 year old behviour. He bites for no reason at all. I had thought that maybe he was Autistic b/c of the biting social interaction, etc. But, I am thinking he is biting b/c he is in pain and does not want to be messed with.

Thank you for "listening", and please, share experiences with me. Let me know if I am way off base, or have hit the nail on the head! Thanks! :)

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If you want the best shot at accurate tests for celiac do NOT take him off gluten. See if somebody will run the blood tests immediately. All they have to do is take blood and send it to a lab that does the celiac panel. Your regular doctor could do this.

It certainly sounds like he could have it.

richard

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Yep, it sounds like it BIG TIME!! Poor baby! Tell your doctor you want the tests done immediately. There is no excuse for the testing process to be dragged out. Keep harping at your doctor, if you have to. Your son's health is at stake!

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Thank you. I will be calling the Dr. today. I gave him some toast this morning....before coming here. sitter just called. He was in the back ground screaming in pain saying his tummy hurt. She made a comment on how bloated his tummy is. She said he had a super stinky BM and was pacing. I told her he is gonna have anotehr one, and sure enough, while on the phone with me, he did. He poots, and bam, the smell hits you, and he had a loose, mucousy stool, that stink to hi heaven, and he is fine. However, he won't eat now cuz he says it make shim sick.

It i slike this has been building up, and now all of a sudden, I can't stop it. However, I got y'alls list....I was lurking through soem post's, and have it printed off. One for me, one for the istter, and one for his Step Mother. Yes, I am single! LOL!! :)

Thanks!

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    • I do have a referral to another GI at one of the top hospitals in North Carolina. I'm just waiting on the call to schedule an appointment. 
    • OK, that's good news, not the milk in the cabinet, that you've not cut gluten! Stick with it and wait for the test results. If they're positive then it will be another endoscopy, but this time with the biopsies. If negative, don't despair. Your GP may still refer you but if not you can try the gluten free diet for yourself. Keep a food diary and follow all the instructions here in the newbie thread and establish for yourself if it's the problem. If it is, don't stress overmuch about a diagnosis. I tested negative but gluten is a big problem for me and many others. The good news is the diet worked for me and it may still for you. In the meantime, try and eat as well as possible and take a good quality B vitamin and multi vitamin to try and boost those levels. Good luck!
    • No I havent cut out any gluten. I cut out stuff I knew hurt me. Like watermelon. Which sucks because I LOVE watermelon.  There are days that I cant even get words out. I can think a sentence and just cant get it out. I constantly stumble and feel drunk in my head. I'm hoping these daily shots of B12 I'm getting will start to help some.  Yesterday I put the milk in the cabinet    
    • Hello, I am new to the glutten-free diet FOR ABOUT 6 WEEKS because I am trying to find a way to clear up my seborrheic dermatitis that I have since I was a teenager. Recently, it is all over my face as well, usually after light sun exposure. The dandruff is annoying and I was checking to see if it because of gluten. I really do not notice any difference with my skin. It has not helped. Should I give it more time? Is 6 weeks enough time to start seeing results? I don't want to be on any medicines. Shampoo's help, but not with my face. Any help would be appreciated. Thanks,    
    • Hello and welcome Its good that your doctor has ordered the celiac test, not sure why your GI didn't, as you say perhaps he was presupposing IBS... You mention cutting out food, you haven't tried cutting gluten yet have you? That can throw the results of any testing. You are best to stay on it for now at least, once testing is done it would be worth trying the gluten-free diet regardless of results. Dont lose heart, be persistent, get those answers and best of luck!
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