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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Mouth Blood Blister
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30 posts in this topic

Today I have woken up with a lovely mouth blood blister (1/4") that has appeared over night. I have never had one of these so has just made me wonder if its another one of those hundereds of symptoms of celiac disease. Any ideas anyone?

Jason

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WOW! I thought I was the only one!

I searched high and low for an answer, but found nothing. I'm figuring it's pretty darn rare. Anyway, I get them when I eat certain foods, and they appear right while I'm eating, like in minutes. Mostly on the inside of my cheeks. Usually it's one, but sometimes two or more, though they tend to be smaller. Typical size is around that of a green pea, though much larger have happened. Thus far, it seems that any food which is both crunchy and particularly yummy will do it. The more I enjoy the food, the more likely they tend to appear :blink:

I have yet to find any other correlation between the foods that do it, which include tortilla/potato chips, some varieties of apples, and crunchy biscuits. Once it happened with plain boiled vegetables though, so the crunchiness might not be all important. That would leave the yumminess, which I am hoping is NOT an indicator that I'm allergic to my own saliva!

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WOW! I thought I was the only one!

I searched high and low for an answer, but found nothing. I'm figuring it's pretty darn rare. Anyway, I get them when I eat certain foods, and they appear right while I'm eating, like in minutes. Mostly on the inside of my cheeks. Usually it's one, but sometimes two or more, though they tend to be smaller. Typical size is around that of a green pea, though much larger have happened. Thus far, it seems that any food which is both crunchy and particularly yummy will do it. The more I enjoy the food, the more likely they tend to appear :blink:

I have yet to find any other correlation between the foods that do it, which include tortilla/potato chips, some varieties of apples, and crunchy biscuits. Once it happened with plain boiled vegetables though, so the crunchiness might not be all important. That would leave the yumminess, which I am hoping is NOT an indicator that I'm allergic to my own saliva!

Hi RiceGuy,

Thanks for the post, do u think it may be related to being vitamin deficient. I am going through the early stages of the gluten free diet and feel really run down. Did you get these whilst eating gluten? The only thing i can say i have eaten that you suggest is last night i had spinach, potatoes, cabbage and broccili chicken and rice.

mind you over the last couple of days i have eaten a few sugary items when i usually dont eat sugar.

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Hi RiceGuy,

Thanks for the post, do u think it may be related to being vitamin deficient. I am going through the early stages of the gluten free diet and feel really run down. Did you get these whilst eating gluten? The only thing i can say i have eaten that you suggest is last night i had spinach, potatoes, cabbage and broccili chicken and rice.

mind you over the last couple of days i have eaten a few sugary items when i usually dont eat sugar.

I don't know if there's a relation to vitamin deficiency, but if it was a common symptom I'd think it would be documented someplace by now. I didn't get these blisters before going gluten-free. Though I can't currently eat nightshades, if I had the meal you describe, it wouldn't give me any blisters. Potatoes that aren't crunchy (and likely salted) wouldn't do it. At first I thought it was the salt, but when it happened with the apples that rules out the salt.

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I used to get mouth ulcers before I was gluten-free. But, I haven't had any since. Did you consume some gluten accidentally?

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I think that mouth sores must be associated with celiac disease, most likely gluten exposure, because when I took my son to the gastroenterologist he directly asked if he has ever gotten a mouth sore.

Hope you feel better. :)

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I think that mouth sores must be associated with celiac disease, most likely gluten exposure, because when I took my son to the gastroenterologist he directly asked if he has ever gotten a mouth sore.

Hope you feel better. :)

Thing is, this isn't a sore. It's an obvious blood blister, and I actually never got them before going gluten-free. Plus, none of the things that do it contain gluten. The reaction is strikingly fast too - like if I eat a crispy biscuit, the blister(s) can start forming with the very first bite! However, if the biscuit is soft, nothing happens at all :huh: If it was a reaction to an ingredient, then it would occur with various other stuff I bake. I make everything from scratch too. Then there's the apples, which is quite a bit different from biscuits. I never get any blisters from applesauce either.

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Thing is, this isn't a sore. It's an obvious blood blister, and I actually never got them before going gluten-free. Plus, none of the things that do it contain gluten. The reaction is strikingly fast too - like if I eat a crispy biscuit, the blister(s) can start forming with the very first bite! However, if the biscuit is soft, nothing happens at all :huh: If it was a reaction to an ingredient, then it would occur with various other stuff I bake. I make everything from scratch too. Then there's the apples, which is quite a bit different from biscuits. I never get any blisters from applesauce either.

Oh, sorry for misunderstanding. That is very strange and I am glad I've never had one of those.

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Just an update, after waking up with the blood blister in my mouth it has completely disappeared the following morning.

The only thing i did different that day was get a large intake of vitamins in the form of a smoothie and later the same day some Vitamin B complex, calcium and zinc.

I wonder if the intake of vitamins helped?

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Just wanted to say that I get these too! Interestingly, I had one tonight that showed up right after eating some crunchy potato chips...hmmmm, maybe RiceGuy is on to something. Anyway, sorry I don't have more to add, but am glad to know that it's not just me :)

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Hi all.

We have so many common symptoms. My mouth ulcers also bleed, and they stay with me for about 2-3 weeks. I've noticed that when I go on gluten-free diet they dissapear faster, and they don't come back.

These things are a pain. I have them since I was kid. I guess is another lovely give from celiac. (basura) means garbage in spanish.

I don't know if is a vitamin deficiency or not. All I know gluten-free diet helps.

Take care.

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Yup I get them too and I also get the mouth sores. My mouth sores are much better now that I am gluten free, but I still do get the blood blisters from time to time. Interestingly enough I just found out I have pernicious anemia so I'm severely B12 deficient, and so the vitamin deficiency thing may have something to do with it. Mine don't go away that fast, but I don't leave them either lol!! I pop them because I can't stand having lumps in my mouth lol!!

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Just an update, after waking up with the blood blister in my mouth it has completely disappeared the following morning.

The only thing i did different that day was get a large intake of vitamins in the form of a smoothie and later the same day some Vitamin B complex, calcium and zinc.

I wonder if the intake of vitamins helped?

Most times the ones I get will disappear fairly soon, though usually take more than a day. Usually they dwindle away over a period of maybe 3-5 days or so. The best way I have found to get relief from them is to pop them! Yeah, I know - disgusting. But when they're large and painful, I find I have little choice. Thankfully I seem to be avoiding them for the most part.

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Today i got one out of no where, i had thought it was jsut a bump so i played with it and blood came gushing out, it kinda freaked me out. I have no idea why i got it tho. This morning i was eating pistachios, so i guess it could be that, but im not sure. It is gone now, but it kinda caught me off guard.

paula

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I get them from dairy.

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I am SO glad I saw this post! I thought I was the only one who got those tiny blisters. I'm very strict on my diet, no cheating. But I do get one little blister on the roof of my mouth every once in a while, usually after very spicy or acidic food. It usually goes away in a day or so. I used to get them in greater frequency before going gluten-free. Glad to know I'm not alone! :P

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I get them from dairy.

Im casein, gluten and soy free, so im really lost why i got one

paula

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...usually after very spicy or acidic food.

Ditto.

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Hi, I'm new and although I don't (to my knowledge anyway) have celiac, I too suffer from blood blisters in my mouth. It usually happens while I'm eating something crunchie and/or salty. They don't last more than 1 -2 days, I usually lance the blister as soon as it happens and it's gone the next day. I've been absolutely baffled by these for the last 5-6 months, and have started to worry that there is something wrong (maybe celiacs, since my sister and a brother have this disease, although they never complained about blood blisters in their mouth).

I'm so glad to find out that I'm not the only one with this problem.

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I get them, too! I don't know what from, though? They appear and then disappear quickly. They are painless. Does anyone that get them have an overall sore mouth, sore oral tissues, sore tongue or sensitive teeth? NOT canker sores...just sore...like irritated sore or burning sore?

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Wow, me too! Though I haven't gotten one since going gluten-free and they were related to my period. So, I guess that really doesn't help the guys!

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I get them when I eat certain foods, and they appear right while I'm eating, like in minutes. Mostly on the inside of my cheeks. Usually it's one, but sometimes two or more, though they tend to be smaller. Typical size is around that of a green pea, though much larger have happened.

This describes my blood blisters exactly. They always appear as I'm eating the offending food...or very soon after. Sometimes I'll get a big one (pea size) but usually they're pretty small. I typically will only get one or two....usually on the inside of my cheek but sometimes on my tongue or on the inside of my lip.

They arent bothersome...they dont hurt at all...they just pretty much make me aware that what I'm eating isnt a good choice for me.

I never figured out exactly what triggers them but for me its definately not gluten. I've narrowed it down to 3 possibilities....the most likely being vitamins. Most of the time when the blisters appear I've eaten something that has added vitamins....foods that have been "enriched". I had an IV of vitamins sometime last year and immediately after my IV I had a blood blister in my mouth. :huh:

Since then I've pretty much been convinced that its the vitamins causing it. I have to eat enough of the food to cause a reaction though...just a small amount wont do it. I dont know which vitamin is causing the reaction.

The other possibilities were salt and sulfites. Most of the things I ate which caused blood blisters did contain salt...but I eat lots of foods which contain salt and they do not all cause a reaction.

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Potato and tortilla chips seem to cause them for me. They appear suddenly and are ususally gone the next day. I do not have any vitamin / mineral defficiency (to the best of my knowledge, I get tested regularly). Also white wine causes the mouth sores on an odd occasion - so it follows what the others have said about salt and sulphites :rolleyes:

Mentioned it to my GI and he just rolled his eyes.

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Today I have woken up with a lovely mouth blood blister (1/4") that has appeared over night. I have never had one of these so has just made me wonder if its another one of those hundereds of symptoms of celiac disease. Any ideas anyone?

Jason

My husband got these a lot before he went gluten free

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I get these too; seems like it comes from sugary or salty foods.

I get small ones on my cheeks sometimes and other times I get larger ones on my tongue - those are usually bigger and deeper and take several days to heal. It's weird - they just seem to appear instantly.

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