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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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I have been having problems for about 1 1/2 years. It seemed to come on suddenly and about the same time my doctor switched my blood pressure meds. The diarrhea got so severe the only thing that helped was a huge dose of flagyl. I was fine for a month. My GI runs every test in the book. Evidently I am a very healthy person! I am by this time so ill I am losing weight and missing alot of work. He runs a IGG, IGA panel and everything is normal but IGG is 34. He does a biopsy (2) and they come back negative but I have GERD, hiatal hernia. He tells me it is not celiac. Now I have diarrhea at least 12 times a day. I have sweats and can not walk because of the pain. I have a CT scan, normal except for very small fibroids (I am 42). My gyn says it is normal but gives me flagyl for 20 days because she can see I have an infection. I feel good for about 2 months. I called the GIs office and they tell me, over the phone by a nurse that I am borderline celiac and give me a prescription to a dietian. Now my blood pressure starts to rise and my PC doctor doubles my beta blockers. I was so ill I insisted they switch me to something else. Now I am on a medication that does not have diarrhea as a side effect. I tried to eat some crackers, bread, etc. No reaction. I went back to my GI and he basically shrugged his shoulders, says he thinks it might be bacterial overgrowth and come back in a year. Oh and don't take any more antibiotics. I really do not know what to do. I felt fine until last night. I was gluten free for 3 months with problems now not gluten-free and problems but less. I know no one can give me medical advise but I am so frustrated. This is the time of my life when I should be traveling to exotic places and having so much fun but I can not even go to a dinner party without the fear of "it" happening.

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I know where you are and understand your frustrations. ;) All I can say is hang in there, stay after the doctors. You know something is wrong with your body and you need to be persistant, don't take NO for an answer.

I have similar problems and currently being checked for Lupus. Several of my test have come back positive but I do not have a diagnosis yet. My last GI doc thinks some of my abdominal pain and tenderness is due to inflammation of my intestinal wall, I guess some of the other probs can be related to that as well (diarrhea, nausea, etc).

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If you are going to the bathroom 12 times a day, it sounds like you have Colitis. Microscopic Colitis is not detectable without a colonoscopy including a biopsy (several biopsies, actually) so if you haven't had a colonoscopy yet, I'd say that's the next step. You might want to consider asking the doctor if a round of steroids would be appropriate at this time. Entocort is a steroid that's used for intestinal problems and does not have as many side effects as prednisone. I know how miserable you must be--I've had many health problems over the last 2 years myself and they are hard to handle, especially when it feels like no one is listening. Good luck to you.

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I had a colonoscopy and everything came back normal. Jhmom, I am really curious since I think my tenormin might be a huge problem. It is listed as a drug that can cause drug induced lupus. I started getting joint pain, leg cramps, etc. I asked my pc and she says, get this, "Those are not symptoms of lupus". She doubles my medication and I was so sick I could not leave the house. She also keeps telling me it is just IBS and won't refer me to another GI. Needless to say I am looking for two new doctors. I am tempted to ask my gyn to be my primary care since she is the ONLY one who will even try to treat me and she can refer to me some one else.

Thank goodness for this board. Sometimes just venting can make you feel better!

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I started taking Atenolol, which I believe is Tenormin, right? about a month ago. I had no idea it could cause serious problems, but I have not felt well since beginning it, despite the fact I'm on a very low dose. Could you tell me more about your experience with this beta blocker? I'm taking it for tachycardia.

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Hi! I would like to refer you to some posts by red345 (Kevin) about taking the type of products you are discussing. Posted around Sept. 21. My posts were nos. 17722 and 17716. I printed out that discussion, but don't have it with me, and can't remember what the title of the discussion was. Ruth

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    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
    • See: http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Take a copy of that with you or mail it to the doc. How many endoscopic biopsies did they take? Those with dh tend to have patchier damage than "normal" celiacs.
    • Ironictruth, I think that is a very insightful thought. since different antibodies present for different body systems all the ways gluten affects the body is still not well understood. Here is a case of presumably someone who had the gut damage of a celiac but also had neurological damage. http://www.nature.com/nrneurol/journal/v3/n10/full/ncpneuro0631.html entitled "A case of celiac disease mimicking amyotrophic lateral sclerosis" so it has happened in the literal but since this is not well understood people don't make the connection today. I would also point you to this hindawi article on the "Lesson's learned from Pellagra" but I am afraid we haven' learn't yet. https://www.hindawi.com/journals/cggr/2012/302875/ notice specially the 2.1 section clinical feature of pellagra and all the neurological symptom's once associated with a Pellagra patient. quoting "The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." which tells me doctor's don't recognize pellagra today when they see it because they haven't seen it in 75+ years. ***this is not medical advice but read the hindawi journal on lesson's learned and I think you will see yourself in their many descriptions of all the way Pellagra presents itself to doctor's and patients still suffering today and you can see why it (like celiac) is hard to pin down today because it presents in so many ways it can be soo overwhelming and since vitamins are not a focus anymore today (especially b-vitamins) that today I believe we are doomed to repeat history's lessons unless the current generation learns again all the ways pellagra presents itself today. good luck on your continued journey. posterboy by the grace of God,  
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