• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

Different Reactions To Different Glutens?
0

5 posts in this topic

I admit, I have not been 100% compliant. I am finding it very hard to adjust my mental attitude, since I used to be able to eat everything.

I have found that if I ingest some barley (I assume it was barley in the Steak n Shake milkshake, anyway), I have a terrible reaction--immediate cramping, diarrhea, etc. If I have wheat, however, it doesn't affect me right away, or even at all, as far as I can tell.

Do other people experience different levels of reaction to different glutens?

I suppose it's too much to hope for that I actually only have a barley intolerance, isn't it.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Depends on your tests? I suppose you could only be allergic to barley, if your intolerance test results weren't positive. But otherwise, I'm surprised, but still believe you. :-) (The reason I'm surprised is that the peptide chain that celiacs respond to is the same between the barley and wheat. Who knows... maybe it's more accessible in horedin than gliandin depending on your digestive system?)

0

Share this post


Link to post
Share on other sites

WOW, what a timely thread! I am in the middle of dealing with a major "accident" this morning, and I am about 90% sure that barley was the culprit that cross-contaminated my freshly-purchased bag of soy flour.

When I realized that I have celiac disease, I was virtually wheat-free already for the sake of my breastfeeding baby, so all of my reactions were from barley--or the barley scum left on my grain-cooking pot, as I reacted even to rice until I bought a new pot. Now, all gluten-free grains are fine for me. My reactions consisted of rotten-egg burps, waves of nausea, and dark brown liquid diarrhea (with severe cramping if I had actually eaten barley itself). Since I replaced my grain-cooking pot, I can remember only one such reaction, to a Walnut Acres brand juice (I suspect there was some barley malt in there somewhere; it makes more sense than wheat, I think)--until this morning.

My reaction to wheat is not so predominantly intestinal, although my stools do get quite loose and orange and burn as I pass them. Instead, I get a migraine (immediately, even before I finish eating the cross-contaminated meal), a massive outbreak of cystic and regular acne, and severe mood swings that set in three or so days later. (I have been keeping a mood/food chart, or I would never have recognized the connection between gluten and my mood swings.)

I am actually taking a double hit today, as I had a minor wheat-type accident on Oct. 7 (and so am in the mood-swing phase right now) AND I had a major barley accident yesterday that showed up first thing this morning. It's not looking like it's going to be a very good day!

--Sarah

P.S. In case anyone is wondering whether these are separate allergies, I strongly doubt it: the incident that got me looking at celiac disease in the first place was my baby's reaction to a 100% rye cracker!

0

Share this post


Link to post
Share on other sites

There are 2 gluten-free Luna Bars that the company told me about. They are Peppermint Stick and Chocolate Covered Cherry. They do have some oats so if oats bother you then I would be careful.

The Luna Glow bars however are gluten-free according the company. They just don't taste as good in my opinion.

My GI told me that it is not possible to ingest gluten and have a reaction w/in a matter of minutes or even hours because it takes a few days for food to get to the lower intestines. I argued with him briefly because I swear I had a reaction one night after immediately eating gluten. But what he says made sense. I could have had a mental stress reaction which induced my own fears about ingesting the gluten and thus created my own pain.

0

Share this post


Link to post
Share on other sites

it certainly doesn't take a few _days_ for food to get through a normally functioning intesting. average clearing time for the human is 18-36 hours. Definitely less than two days. And _plenty_ of us respond to gluten very quickly.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,050
    • Total Posts
      934,025
  • Member Statistics

    • Total Members
      64,634
    • Most Online
      3,093

    Newest Member
    manjeet singh
    Joined
  • Popular Now

  •  

  • Topics

  • Posts

    • 1. Check post date this is 10 years old.  2. Addressing a few things from this, I react badly to animal fats, they float and cause to throw up, I also have digestion issues with tough meats, where they do not break down in my stomach and either get puked up or pooped out still looking like meat. Fish, crab, and lean meat like longhorn when cooked til it dissolves on your tongue into a paste are edible to me.   3.   I live off of fats. nuts, seeds, avocado, coconut oil, I am ketogenic and I do not eat carbs but only fat and protein.
    • i do take iron and b12 tablets as well but i think it depends on the person and what your levels are at but definitely keep at eye on it thats so exciting! where are you moving to? i'm from sydney, i havn't ate out yet but i know there are alot of options. the grocery stores carry lots of gluten free options so i wouldn't worry too much especially if you are going to a major city it will be easy. also all our processed foods have to be at 0ppm to be considered gluten free as opposed to 20ppm in the US so it makes me feel safer haha
    • i usually buy pre made falafels as the majority i've found are gluten free and vegan. they are really good on a wrap with hummus, lettuce, tomato/salads or even the same on a sandwich. i also eat them with a salad or as a side with a curry. the only recipe i've made from scratch is from http://www.hotforfoodblog.com/recipes/2015/05/04/baked-falafel-sliders-with-maple-tahini-sauce also their cheese sauce is really great, i make it with sweet potato and almond milk, its so easy and you can swap or leave out a few ingredients and it tastes just a good. i eat cheese but i still make that to have with tacos or nachos as well.
    • Hello thanks for answering , yes they did a biopsy , received the results and can't understand a thing in medical terms . Is the waiting that is irritating me . 😒  There was written among other things that the villus architecture is well preserved is this only sentence that confuses me . I will ask of course my doctor just wondered if any of you knows what it means . As for celiac blood work panel I will ask . I Know that they did some blood tests which I had to wait two weeks as here some blood tests they have to make them outside our island .
    • Hi  I live in the US. we use Corn flour and amaranth flour to make roti. There is any other flour to make roti. bcoz amaranth is a little expensive for us. and being punjabi we eat roti a lot and parantha too. so if anyone knows in US. from where we can get flour to make roti on cheap price. or any other website from where we could get all flour on good price.
  • Upcoming Events