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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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OK, How many have had positive dietary changes with inconclusive CD tests? How many have been formally diagnosed with CD?  

9 members have voted

  1. 1. OK, How many have had positive dietary changes with inconclusive CD tests? How many have been formally diagnosed with CD?

    • Diagnosed with CD
    • Positive Dietary Changes Only
    • Inconclusive CD Results but Positive Dietary Changes

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I just received my test results back after 2 1/2 months of being gluten-free and the GI did not find any evidence of Celiac Disease so I don't know if I have healed so they couldn't see any damage or if I am actually just intollerant of:





Soy Bean

Vinegar (but not wine)

and was curious about everyone elses' diagnoses.

Thanks in advance...Kate

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I was gluten-free for two weeks before testing, never had severe symptoms, and don't have many of the complicating factors that would suggest malabsorption (hence, there's likely not as much intestinal damage for me as others may have). My test results were negative aside from the anti-reticulin IgA. The gluten-free diet made me feel better, and I did a dietary challenge after 1 month gluten-free (and may do another one, since that one included dairy), which had positive results.

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I did Enterolab stool tests 2 months after going gluten-free and STILL showed both gluten and casein antibodies/intolerances. When I tried to subsitute soy for dairy, my BODY told me (with symptoms similar to my 'dairy' symptoms) that I also don't tolerate soy products. I also limit acidic stuff (tomatoes, citrus, acidic condiments) now, because I just feel better (less reflux, gas, bloating, cramping). My initial symptoms were EXCRUCIATING abdominal pain, bloating, gas, constipation, steatorrhea, fatigue and other less obvious ones. Eliminating gluten relieved the excruciating pain and some of the bloating and gas. Eliminating dairy relieved the constipation, steatorrhea, menstrual like pains, bloating and gas. Avoiding soy prevented the last 3 symptoms. So avoiding gluten/dairy/soy DEFINITELY relieved my symptoms.


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