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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Hi to all. My name is Heather, and I am expecting to get a celiac disease diagnosis shortly. I had some tests done at the beginning of the year, the IgA and IgG were mildly positive, but the tTg and the rest were neg. At that point I had no symptoms other than a vitamin B deficiency for years and years. I have in the last 6 months developed what appears to be DH - it looks exactly like the pictures I've seen. It comes and goes, but seems to be staying for now. Based on what I've read, I think my case is relatively mild since it's only a little itchy. I'm going in to see my GP on Friday to ask for a referral to the gastroenterologist. I don't think it's necessary to have the skin rash biopsied, since most things seem to be pointing to celiac disease. I also have T1 Diabetes which I understand is a risk factor.

Does anyone think I should see a dermatologist as well?

Much as I would rather not have ever heard of celiac disease, I have learned that it's best to face up to health problems and deal with them straight up. I look forward to becoming an active member and making some new friends.

Oh, and that's my Jinxy in my avatar, ain't he a handsome fellow?

Jinxy's proud mom

Heather

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Actually, a DH diagnosis might be less expensive, easier and less invasive. According to all the celiac experts, if you have DH you have or will have celiac. The recent NIH consensus conference on celiac even wrote into its report that a biopsy is not necessary for anybody diagnosed with DH because that in itself is a diagnosis of celiac. And the prescription is the same -- go gluten free.

richard

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That's interesting, Richard, thank you for your reply.

I'm obviously not as informed as others, but I'm concerned because I've read that quite a few folks get misdiagnosed from skin biopsies not being done correctly. Right now the rash isn't too bad, but I want to get rid of it as soon as possible. When I ended things w/ the GI earlier this year, he wasn't opposed to an endoscopy and I kinda feel like it'd be best to have a concrete diagnosis, plus, who knows how long this has been going on? What if there are some cancer cells in there? Wouldn't it be wise to check just in case?

Jinxy'sMom

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If your doctor wants to do the endoscopy to check for other things as well that would be between you and him.

A warning that the small bowel biopsy isn't always accurate either. Doctors take too few samples or the samples they do take miss the damage or the lab can even misread what they get.

richard

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Definitely food for thought. I have to wonder, though, if my ins will cover my gluten-free sessions w/ my dietician if there's not an absolute dx of some kind.

Guess we'll see on Friday. This'll be pretty much the first time I've met this doctor.

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