• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Walk For Celiac
0

6 posts in this topic

This might be a bit extreme, but I just gave money towards a walk for HIV and it made me think, "why can't there be a walk for Celiac?" Does anyone know how one would even go about organizing something like this? I think it would be a great way to raise awareness and maybe get some donations for research. Even if there were only a handful of us from different states maybe we could make a difference. What does everyone think? We could pick a day and make it Celiac awareness day and do a walk for Celiac? I live in the Philadelphia area and would be more than willing to try to set something up here. Am I crazy or do you think something like this is possible? I would love to hear what your opinions are and if anyone has any other suggestions/ideas/concerns. :P

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


YIPPEE---I will be on the bandwagon next year. I think we will be hearing more about this in the future as people make the connection between eating gluten free and how it will help with joint pain, ADD/ADHD, autism and other ailments. This is just the tip of the iceberg. Barbara

0

Share this post


Link to post
Share on other sites

Yeah, I didn't make it to the one in San Diego this year, but they've been holding it annually for a little while.

0

Share this post


Link to post
Share on other sites

There is also one in Sacramento California. For Celiacs and friends.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Indiana Chapters of CSA had their first walk this July. Their website is www.glutenfreeindy.com Contact Diane or Joyce through that site, I am sure they would love to share from their planning experience. I hope to organize a 5K run next year in my area - a fund and awareness raiser. I think it is a super idea!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,783
    • Total Posts
      932,394
  • Member Statistics

    • Total Members
      64,259
    • Most Online
      3,093

    Newest Member
    BFerris
    Joined
  • Popular Now

  • Topics

  • Posts

    • The year to recover?  It seems pretty standard around here despite some literature  stating it only takes months for villi to recover.  That may be true, but most celiacs have systemic issues.  Neurological issues are usually the last to resolve, if at all.   And let's not forget that the gluten-free diet has a steep learning curve that can delay healing.   I have read sites that promote a Whole Foods diet without gluten in an attempt to calm down inflammation or improve an autoimmune disorder.  It works for some but not all, but it is certainly worth considering.  For me, I was undiagnosed for years like so many celiacs.   I also have Hashi's which was diagnosed 20 years ago.  Since going gluten-free, after my celiac disease diagnosis, my thyroid has shrunk and my nodules are gone.  However, this past winter, I had a tooth infection, the flu, a cold and now my thyroid antibodies are high again.  I also developed autoimmune hives (like clockwork, they appear at 3:00 pm) as a result (I think).  My immune system is constantly running on high alert.  I have allergies to so many things.  But....what is a girl to do? Beside a cocktail of antihistamines, I  move forward.  I am "healthy".  I can still ride my bike, swim and run.  Maybe not as fast (who am I kidding...not fast at all) as when I was younger in my 30 and 40's.  I have Type 2 diabetes despite being thin.  Like celiac disease, diabetes is genetic.   Read the Newbie 101 under coping.  Make sure everything is gluten free.  you would be surprised at hidden sources or dealing with cross contamination.  I know your family has celiac disease, but unless you walk the walk daily, you do not get it.  But...maybe you do!  
    • Does he run a lot? On hard ground? My ferritin started at 74 and is now 20. My rbc count was normal but showed mild anemia after an 18 hour fast.   I initially also thought it might be due to malabsorption, and it may be, although my gut doesn't show a ton of damage. Coincidentally I started running around  all of this, with A 6 month break in between, and have also recently read that Runners Who log a lot of miles generally are pretty low on ferritin if they don't supplement.  I only do between 6-15 Miles per week.  I eAt a mixed green salad about 5 times a week, red meat a couple times a week, and then a lot of other high iron foods.  lamb stew is a tremendous source of iron, as well as mussels. I am a big fan of garden lights chocolate zucchini muffins as well each mini muffin contains 20% of the daily value.  I Like to eat Two for breakfast with my coffee.  if he stopped eating gluten about a month ago you might still be able to get the blood test done. I'm sure you have read by now that you need to be eating gluten to be tested.  antibody start falling Right away but for some people it takes a long time.   I'm not a doctor but I would think that if you have enough damage to mal absorb iron then it would take a lot longer than just 4 weeks for you to  fix that kind of damage And reabsorb it again.    did they order a total iron binding capacity?  and was the iron panel done while fasting? You don't really need to fast for a ferritin but serum Iron can easily be elevated With food.  Although symptoms vary depending on the individual I have read quite a bit online that When ferritin drops below 40 people can start getting symptomaTic.  so you are likely correct that his feeling better is related to his ferritin level increasing.  giving up gluten means giving up certain nutrients as well. So if he's already vegetarian he needs to really pay close attention to what nutrients he might be missing in his diet now if he's giving up whole grains.  
    • Thank you! I will look into it! 
    • You would honestly think that after you body goes nuts attacking your insides trying to kill the gluten after 2 days of food poisoning yourself with it the damn antibodies would show up in insane levels in your blood Life is not that easy though.
    • Some days I have 3 pieces of bread, other days I just can't handle more than 1.  I had to take a day of gluten rest after the first week.  I felt too aweful. Now I'm almost done with week 2 and I feel like I need another break.  Just so hard to do something to yourself that you know will hurt.  They just don't know how much and for how long.  There was a recent study that looked at gluten challenges in folks actually diagnosed with celiac and some took months to have elevated antibodies.   Just one day at a time.  I hope things go well for you. 
  • Upcoming Events