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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Gluten Depression Mood Swings

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Guest maybe I have celiac

I think that after all of these years of depression and anger, I think that I have found out what has been going on. It is interesting that grains can causes these symptoms. I have some gastro symptoms, protruding gut, some diarreha, but most have been neurological. I notice that when I cut out grain, these symptoms dissappear. It make sense the more I read, grains have been in our diets for only thousands of years, not millions like meat, veggies and fruits. Although I have not been diagnosed, I believe I have been continually misdiagnosed. The more I read, the more I find out that gluten is an amino acid that can cross the blood-brain barrier and wreak havoc with ones thoughts. Over the past two weeks, I think my waist has decreased 2 inches.

Dont get me wrong, in no way do I consider myself a slacker, I have a Masters degree, but have always had problems motivating myself and looking forward to the future. I think now I do, but time will tell.

Anyone with similar experiences as me? :o

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I think that after all of these years of depression and anger, I think that I have found out what has been going on. It is interesting that grains can causes these symptoms. I have some gastro symptoms, protruding gut, some diarreha, but most have been neurological. I notice that when I cut out grain, these symptoms dissappear. It make sense the more I read, grains have been in our diets for only thousands of years, not millions like meat, veggies and fruits. Although I have not been diagnosed, I believe I have been continually misdiagnosed. The more I read, the more I find out that gluten is an amino acid that can cross the blood-brain barrier and wreak havoc with ones thoughts. Over the past two weeks, I think my waist has decreased 2 inches.

Dont get me wrong, in no way do I consider myself a slacker, I have a Masters degree, but have always had problems motivating myself and looking forward to the future. I think now I do, but time will tell.

Anyone with similar experiences as me? :o

My experiences mirror yours. I have been treated for depression for years, but have seen a lot of improvement lately now that I am off of wheat gluten. When you speak of a lack of motivation, I can really relate to that, too. Many times I would just sit and sit without any will to move from my chair. I, too, have a degree- a Bachelor's- and have been a teacher for the past 26 years. My attendance has always been good, because my job is the one thing into which I direct my energy. My house is in a constant state of disaster. I am hoping to really get organized with school letting out, but it's going to take awhile, as this has been going on for years. Thankfully, it's mainly clutter, so it's not a health hazard. :rolleyes:

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The same stuff happened with me until a year ago, when I ran across an ad on a website and then everything made sense. Going gluten free has changed my moods, gotten rid of most of the depression, made the neuropathy symptoms lessen, etc.

The depression comes back if I get glutened, plus a bunch of other things. I've had this for a long time because I can't remember a time in my life when I wasn't in the bathroom 20+ times a day.

I just wish my hair would grow back. I was lucky to get super thick and curly hair, it's not quite as obvious that I've lost 2/3 of my hair because it's still thick looking. I have PCOS too, so that causes hair loss and problems, so the hair probably is gone for good. :(

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Guest maybe I have celiac
My experiences mirror yours. I have been treated for depression for years, but have seen a lot of improvement lately now that I am off of wheat gluten. When you speak of a lack of motivation, I can really relate to that, too. Many times I would just sit and sit without any will to move from my chair. I, too, have a degree- a Bachelor's- and have been a teacher for the past 26 years. My attendance has always been good, because my job is the one thing into which I direct my energy. My house is in a constant state of disaster. I am hoping to really get organized with school letting out, but it's going to take awhile, as this has been going on for years. Thankfully, it's mainly clutter, so it's not a health hazard. :rolleyes:

THis article really helped me:

http://news.bbc.co.uk/2/hi/health/4610998.stm

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Guest maybe I have celiac
My experiences mirror yours. I have been treated for depression for years, but have seen a lot of improvement lately now that I am off of wheat gluten. When you speak of a lack of motivation, I can really relate to that, too. Many times I would just sit and sit without any will to move from my chair. I, too, have a degree- a Bachelor's- and have been a teacher for the past 26 years. My attendance has always been good, because my job is the one thing into which I direct my energy. My house is in a constant state of disaster. I am hoping to really get organized with school letting out, but it's going to take awhile, as this has been going on for years. Thankfully, it's mainly clutter, so it's not a health hazard. :rolleyes:

THis article really helped me:

http://news.bbc.co.uk/2/hi/health/4610998.stm

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Yes, this is me. I have had minor, low-level, constant depression - mainly expressed as laziness - for 30 years. I, too, have a Masters, which I finished two years ago while working full-time. It's not that I don't get things done, I just feel like it's such an effort. But it's cost me some good jobs, where I left because I was perceived as lazy.

I had a few instances of moderate depression, mostly revolving around the pregnancy and birth of my two kids. Meds didn't help the time I tried them.

I've been so much better gluten-free, although it is a big learning curve and I think my accidental glutenings are slowing my reovery.

I think that after all of these years of depression and anger, I think that I have found out what has been going on. It is interesting that grains can causes these symptoms. I have some gastro symptoms, protruding gut, some diarreha, but most have been neurological. I notice that when I cut out grain, these symptoms dissappear. It make sense the more I read, grains have been in our diets for only thousands of years, not millions like meat, veggies and fruits. Although I have not been diagnosed, I believe I have been continually misdiagnosed. The more I read, the more I find out that gluten is an amino acid that can cross the blood-brain barrier and wreak havoc with ones thoughts. Over the past two weeks, I think my waist has decreased 2 inches.

Dont get me wrong, in no way do I consider myself a slacker, I have a Masters degree, but have always had problems motivating myself and looking forward to the future. I think now I do, but time will tell.

Anyone with similar experiences as me? :o

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My husband's depression was severe and went on for years. He found he could not take anti-depressants as they gave him extreme shaking - even while he was sleeping. They all affected him neurologically like this. Then we found out he has celiac and the majority of his depression is gone (still there, but it's due to situational issues).

He used to have bouts of unexplicable anger. Once we were in supermarket & I wanted to buy Crisco as I was going to make something (bake cake or something) and he argued with me over buying "butter flavored" crisco...as if he really cared. I had to leave the store as I was angry in response. He finally came to his senses and said he couldn't figure out why he was carrying on over something stupid like this.

Those outbursts have stopped now that he's gluten free and he's more steady in his mood. He still can't take anti-depressant side effects.

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Guest Doll
I think that after all of these years of depression and anger, I think that I have found out what has been going on. It is interesting that grains can causes these symptoms. I have some gastro symptoms, protruding gut, some diarreha, but most have been neurological. I notice that when I cut out grain, these symptoms dissappear. It make sense the more I read, grains have been in our diets for only thousands of years, not millions like meat, veggies and fruits. Although I have not been diagnosed, I believe I have been continually misdiagnosed. The more I read, the more I find out that gluten is an amino acid that can cross the blood-brain barrier and wreak havoc with ones thoughts. Over the past two weeks, I think my waist has decreased 2 inches.

Dont get me wrong, in no way do I consider myself a slacker, I have a Masters degree, but have always had problems motivating myself and looking forward to the future. I think now I do, but time will tell.

Anyone with similar experiences as me? :o

I have Celiac, and when accidently glutened (CC only), I sometimes get "immediate" severe depression and suicidal thoughts. I get completely whacked out for the night. I don't think the TV is talking to me :P , but my perception is altered. This goes away the next day, and seems to get better after I get sick and get it "out of my system". I had panic attacks prior to Dx, which cleared right after going gluten free.

Especially if you have GI symtpoms, get tested.

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Guest maybe I have celiac
I have Celiac, and when accidently glutened (CC only), I sometimes get "immediate" severe depression and suicidal thoughts. I get completely whacked out for the night. I don't think the TV is talking to me :P , but my perception is altered. This goes away the next day, and seems to get better after I get sick and get it "out of my system". I had panic attacks prior to Dx, which cleared right after going gluten free.

Especially if you have GI symtpoms, get tested.

Thank you Doll!

I would have mild depression, but sometimes I would get severely depressed and have suicidal ideations. It seems to help now that I have eliminated gluten and casein, I have read the two have similar chemical structures and can wreak havoc crossing the blood brain barrier. Mine too isnt bad that I think the TV is talking to me.

I think I was Glutened by either Tuna Tar Tare and/or the crab cake that I ate in Baltimore. I was very depressed the day after but have been feeling better the past threedays. I am thinking of getting Enterolab. Say hi to everyone in MB and SK, I have relatives on my dad's side of the family up there!

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Guest Doll
Thank you Doll!

I would have mild depression, but sometimes I would get severely depressed and have suicidal ideations. It seems to help now that I have eliminated gluten and casein, I have read the two have similar chemical structures and can wreak havoc crossing the blood brain barrier. Mine too isnt bad that I think the TV is talking to me.

I think I was Glutened by either Tuna Tar Tare and/or the crab cake that I ate in Baltimore. I was very depressed the day after but have been feeling better the past threedays. I am thinking of getting Enterolab. Say hi to everyone in MB and SK, I have relatives on my dad's side of the family up there!

Warning: the following is pretty candid!

Just glad to know that there are others like me! :D I swear, gluten makes me want to crawl out of my skin! I was *very* sick just before my Celiac diagnosis, and I would come home and just fall down and cry. I was so weak and depressed that I honestly almost did myself in. All I could think about was how sick I was and how I was going to end it. I actually sat on my bed with a syringe fillled with 50 units of rapid acting insulin (probably 5 units and no food for me would put me in a coma) contemplating. Needless to say, I'm glad I didn't go ahead with it and that I pushed to be diagnosed.

OK, scary stuff over! :D

Anyway, you know what you need to do, and I am so glad that you are here. If you ever feel the need to talk when depressed and glutened, PM me....I know what it's like.

That is awesome you have relatives in BOTH MB and SK!! :D Love the prairies except for the tornados! :o:o I went home to Winnipeg for the weekend and we had 6 (!) jus outside the city in less than a 48 hour period!

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This is me too. I got depressed, ever since I was young. Nothing major, occassionally for a week at a time I would be a bit weepy, but usually it was quite minor. I think it might've been there for an absolute age, but like being sick with undiagnosed coeliac you get used to it and you loose your reality of what is normal for yourself. Now that I am gluten free, I don't get the niggly depression, but when I eat something with gluten I get a hard time with my feelings etc. as well as the stomach issues. I probably find it hard to put things into context and know what to worry about, and instead I worry for the sake of worrying. I am a worrier. But once the gluten has cleared my body I am usually okay, and the forboding sense of doom and gloom lifts.

I can remember previous to finding my new husband, sitting in bed at night, or lying in bed, thinking my kids are getting older, and soon will be off my hands and leading their own lives. What would I have to live for then with no partner and just on my own struggling to keep on top of things. Life for me had been tough, bringing up four sons on my own with the minimum of help and support from their father. I told myself that if things got too tough after I wasn't needed I could do away with myself and get away from the pain. That would've been my escape route, and it gave me a sense of relief that if things got too hard, I had given myself the permission to find a way out. I know it is not nice, and very selfish.

But now being gluten free and finding husband number 2, things are different. He is a gem, and very supportive and he gives me a reason to keep going. We just never know what is around the corner.

Cathy

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Guest maybe I have celiac
Warning: the following is pretty candid!

Just glad to know that there are others like me! :D I swear, gluten makes me want to crawl out of my skin! I was *very* sick just before my Celiac diagnosis, and I would come home and just fall down and cry. I was so weak and depressed that I honestly almost did myself in. All I could think about was how sick I was and how I was going to end it. I actually sat on my bed with a syringe fillled with 50 units of rapid acting insulin (probably 5 units and no food for me would put me in a coma) contemplating. Needless to say, I'm glad I didn't go ahead with it and that I pushed to be diagnosed.

OK, scary stuff over! :D

Anyway, you know what you need to do, and I am so glad that you are here. If you ever feel the need to talk when depressed and glutened, PM me....I know what it's like.

That is awesome you have relatives in BOTH MB and SK!! :D Love the prairies except for the tornados! :o:o I went home to Winnipeg for the weekend and we had 6 (!) jus outside the city in less than a 48 hour period!

Hey Doll!

TOrnados are definitely not the first thing I think of when I think of WInnipeg as opposed to the winter temps. :o

I am so glad I dont have a gun, there have been countless times that I was ready to do myself in, glad I didnt know you then or I would have encouraged you to inject me up, too; the insulin thing is a new one to me, very creative. I wish I would have caught this at the age you were diagnosed. I am convinced that the disease runs on my dad's side (Canadian) of the family. My Grandma was a very anxiety laden woman and my Aunt had the same neurological problems as me. Grandma died of colon cancer, and I am trying to make my Aunt listen to me to avoid grains to get off the Anti-depressants.

Congratulations on your marriage, you could not have picked a better day, my parents will be celebrating their 40th on December 21.

Well off to see my cousin, of all things, get married in Minnesota, if I had more time I would drive the 400 miles to see my relatives in Selkirk, Great-grandad (RIP) use to be the lighthouse keeper on the Red River! :lol:

I definitely will PM you, especially with you being Pre-med., and feel free to PM me anytime! Are you going into the GI field?

Jim

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Guest maybe I have celiac
This is me too. I got depressed, ever since I was young. Nothing major, occassionally for a week at a time I would be a bit weepy, but usually it was quite minor. I think it might've been there for an absolute age, but like being sick with undiagnosed coeliac you get used to it and you loose your reality of what is normal for yourself. Now that I am gluten free, I don't get the niggly depression, but when I eat something with gluten I get a hard time with my feelings etc. as well as the stomach issues. I probably find it hard to put things into context and know what to worry about, and instead I worry for the sake of worrying. I am a worrier. But once the gluten has cleared my body I am usually okay, and the forboding sense of doom and gloom lifts.

I can remember previous to finding my new husband, sitting in bed at night, or lying in bed, thinking my kids are getting older, and soon will be off my hands and leading their own lives. What would I have to live for then with no partner and just on my own struggling to keep on top of things. Life for me had been tough, bringing up four sons on my own with the minimum of help and support from their father. I told myself that if things got too tough after I wasn't needed I could do away with myself and get away from the pain. That would've been my escape route, and it gave me a sense of relief that if things got too hard, I had given myself the permission to find a way out. I know it is not nice, and very selfish.

But now being gluten free and finding husband number 2, things are different. He is a gem, and very supportive and he gives me a reason to keep going. We just never know what is around the corner.

Cathy

Hello from the other side of the world! My symptoms are mostly neurological, but now looking back I would have to go to the bathroom half a dozen times a day, so I think I am starting to connect the dots.

I would also be incapacitated in my bed just thinking of worse case scenarios about everything. I agree I am not use to thinking what it is like to have a controlled happiness, being depressed and thinking the glass is half empty is normal to me after 33 years. I owuld have similar depression waves as you - two weeks on, two weeks off is usually how it worked.

You kiwis kicked some butt against the Swiss in the America's Cup!

Thank you

Jim

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Guest Doll
Hey Doll!

TOrnados are definitely not the first thing I think of when I think of WInnipeg as opposed to the winter temps. :o

I am so glad I dont have a gun, there have been countless times that I was ready to do myself in, glad I didnt know you then or I would have encouraged you to inject me up, too; the insulin thing is a new one to me, very creative. I wish I would have caught this at the age you were diagnosed. I am convinced that the disease runs on my dad's side (Canadian) of the family. My Grandma was a very anxiety laden woman and my Aunt had the same neurological problems as me. Grandma died of colon cancer, and I am trying to make my Aunt listen to me to avoid grains to get off the Anti-depressants.

Congratulations on your marriage, you could not have picked a better day, my parents will be celebrating their 40th on December 21.

Well off to see my cousin, of all things, get married in Minnesota, if I had more time I would drive the 400 miles to see my relatives in Selkirk, Great-grandad (RIP) use to be the lighthouse keeper on the Red River! :lol:

I definitely will PM you, especially with you being Pre-med., and feel free to PM me anytime! Are you going into the GI field?

Jim

Hey! That's awesome your GG used to be the lighthouse keeper on the Red and that I will share a wedding date with your parents! That's too cool! B)

Feel free to PM me should the need arrise! I plan to work in the ER, although you just never know! ;)

Take care and have a good trip!

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Hey! That's awesome your GG used to be the lighthouse keeper on the Red and that I will share a wedding date with your parents! That's too cool! B)

Feel free to PM me should the need arrise! I plan to work in the ER, although you just never know! ;)

Take care and have a good trip!

Thank you, I'm back, had a great time! Back to reality :(

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The same stuff happened with me until a year ago, when I ran across an ad on a website and then everything made sense. Going gluten free has changed my moods, gotten rid of most of the depression, made the neuropathy symptoms lessen, etc.

The depression comes back if I get glutened, plus a bunch of other things. I've had this for a long time because I can't remember a time in my life when I wasn't in the bathroom 20+ times a day.

I just wish my hair would grow back. I was lucky to get super thick and curly hair, it's not quite as obvious that I've lost 2/3 of my hair because it's still thick looking. I have PCOS too, so that causes hair loss and problems, so the hair probably is gone for good. :(

Not necessarily so. Check out the drug spironolactone (if you are a woman). Also great ,but very expensive hair treatment by Jan Marini with spironolactone in it. Hope this helps

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Forgive me for being naive but what is PCOS?? :) I have lost about 50% of my hair this last year (I am 35) . I suffer like you Doll, suidical all day every day. I find exercise helps a teeny bit, and I have not yet had the tests for Celiac so I am on wheat right now...and don't have any experiences about NOT being on wheat. I have been suffering, however, for 11 years.

I was in college when I first began reacting to foods. And I started to get diahrrea and started having crazy nightmares (I called them acid dreams.. very lucid and wild and colorful) I began having moodswings 3 days up 4 days down, I began to react to vitamins and medicines. So my dr sent me to a shrink, who told me it was all in my head.. and stuck me on some different "mood stabilizers" and they all made me even more suicidal... I tried Wellebutrin, same thing. He thought I was lying to him so I didn't have to take meds... what an egotystical ***. I hate drs anyways... I get so angry when people challenge my integrity you know... I too am college educated and I was floored. and emotionally drained.

So anyways after 11 years of misdiagnosis and sheer misery I can't live like this anymore I have been feeling very desperate. So a few months ago my Grandmother said she thought I was allergic to wheat. (She was an er nurse for 45 years) I decided to do an elimination diet. And sure enough we hit the jackpot! And I picked up a magazine from the health food store that happened to have an article about Celiac in it, I was bored and read it, and sure enough I have ALL the symptoms including the neurological ones, itchy skin rashes, sores in my mouth, depression, diahrrea, constipation, severe bloating, and just being tired and weak and I get bruises easily. And my teeth are starting to get dull I noticed so I am getting tested soon! I have been too sick for too long. And now it's like a HUGE ray of hope. I am NOT the only one and now I have something to look forward to finally

thx guys and good luck with your journeys

sickchick

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It's good to know that I'm not crazy and it's probably due to Celiac that I was so depressed and b%$@#y all the time. My roommate actually noticed a difference in my moods when I started going gluten-free. He said I was a lot easier to be around and everytime I mention cheating and eating a burger or something he reminds me how much nicer I am now. I always had a problem with depression for as long as I can remember. I started taking antidepressents when I was 17 and I finally stopped taking them last year (I'm 25 now). I don't really notice a lot of symptoms when I get glutened (I don't throw up or get the big D) but one thing that does happen is depression. Now it makes sense. I think I will start paying close attention to my moods and use that to gauge if I have eaten something I shouldn't have.

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Guest maybe I have celiac
It's good to know that I'm not crazy and it's probably due to Celiac that I was so depressed and b%$@#y all the time. My roommate actually noticed a difference in my moods when I started going gluten-free. He said I was a lot easier to be around and everytime I mention cheating and eating a burger or something he reminds me how much nicer I am now. I always had a problem with depression for as long as I can remember. I started taking antidepressents when I was 17 and I finally stopped taking them last year (I'm 25 now). I don't really notice a lot of symptoms when I get glutened (I don't throw up or get the big D) but one thing that does happen is depression. Now it makes sense. I think I will start paying close attention to my moods and use that to gauge if I have eaten something I shouldn't have.

Yeah, sometimes I wonder if I have Celiac b/c my symptoms are mostly behavioral and not your typical ailments. I had some chicken tenders last Sat. and became totally whacked the next day. I am fine now, much better today, dont feel like jumping off a cliff :) I agree that meds mask the symptoms and dont fully work. There are some interesting articles about gluten crossing the blood-brain barrier on the web, some that includes very detailed research and how it can f up a persons mental functions...

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Wow, what an interesting thread. I've only just been diagnosed with celiac and as soon I was diagnosed, I stopped taking the antidepressants I was prescribed (by various doctors) because I had 'post-natal' depression.

Should I continue taking them? I have yet started fully on gluten-free diet but waiting to see my doctor.

My partner always jokes he has 3-4 of me, one day happy, the next bad, so should eating gluten-free elimate this behavior? And if I cheat and have something with gluten in it, will I get the mood swings back? We're talking about lethargy, snappy agressive moods, lack of interest in everything (inlcuding my three kids) and frustration. I turn a bit psycho for a couple of days.

thanks and hello from the other side of the world too! :D

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Guest maybe I have celiac
Wow, what an interesting thread. I've only just been diagnosed with celiac and as soon I was diagnosed, I stopped taking the antidepressants I was prescribed (by various doctors) because I had 'post-natal' depression.

Should I continue taking them? I have yet started fully on gluten-free diet but waiting to see my doctor.

My partner always jokes he has 3-4 of me, one day happy, the next bad, so should eating gluten-free elimate this behavior? And if I cheat and have something with gluten in it, will I get the mood swings back? We're talking about lethargy, snappy agressive moods, lack of interest in everything (inlcuding my three kids) and frustration. I turn a bit psycho for a couple of days.

thanks and hello from the other side of the world too! :D

G'Day Mate from the capital of the free world, Washington DC! One day I will travel to Aust. I have had all of your symptoms, lack of motivation, depression, aggression. Did you know wheat is one of the eight most common food allergies. As far a getting off of meds, I have come off mine, so I am only speaking from personal experience. You have to go with what you think is best for yourself. But I feel fine, I start to get crazy with anything that has gluten.

Are you feeling better?

Jim

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Wow, what an interesting thread. I've only just been diagnosed with celiac and as soon I was diagnosed, I stopped taking the antidepressants I was prescribed (by various doctors) because I had 'post-natal' depression.

Should I continue taking them? I have yet started fully on gluten-free diet but waiting to see my doctor.

My partner always jokes he has 3-4 of me, one day happy, the next bad, so should eating gluten-free elimate this behavior? And if I cheat and have something with gluten in it, will I get the mood swings back? We're talking about lethargy, snappy agressive moods, lack of interest in everything (inlcuding my three kids) and frustration. I turn a bit psycho for a couple of days.

thanks and hello from the other side of the world too! :D

Chances are, once you truly go 100% gluten free, you'll feel healthy enough that you won't WANT to cheat! For most people, once you're gluten free, the reactions get worse! I don't know what to say about the meds... I'm generally against meds unless they are absolutely necessary, but that's me. You know your body the best.

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    • The reason I think it was the shampoo? Process of elimination. Our house is almost entirely gluten free (except for this shampoo which slipped through the cracks until I read the ingredient label). My husband has bread that he eats at lunch, but he practices something that resembles aseptic technique from the lab when he's making his sandwiches. He's been doing this for years now and I've never been glutened from within my home. The previous week I hadn't eaten out, I cooked all my food, I don't eat processed food and I never eat something from a shared facility.  Usually if I get glutened it's a single dose sort of thing and it follows a very predictable course, to the point where I can estimate when I got glutened within 24 hours of when it happened. However, this time, I was feeling achy and arthritic and moody for about a week before it got bad enough for me to recognize it as the result of gluten exposure, at which point we went searching and found the shampoo (and conditioner, which does leave more of a residue than shampoo), which he immediately stopped using. Within three days I was feeling back to normal (which is the usual course for me).  Sure, it could have been something else, but I know how sensitive I am, and, as silly as it sounds, it was the only thing that made sense. The other thing you said: You're correct, mine was not a rock solid celiac diagnosis, but I have no doubt that gluten is the problem. I was SICK. I went through two different gluten challenges in an effort to get a more straightforward diagnosis during which I was a barely functioning human being. Consuming gluten may not have given me blunted villi or elevated antibodies, but it did inflame my gut, and actually started to damage my liver. If you look at my diagnosis thread, I had elevated liver enzymes, which have been correlated with celiac disease in the past. There was no alternative explanation for the liver enzymes, he checked EVERYTHING.  I too am a scientist and I have spent a lot of time with the literature trying to make sense of my condition.  https://www.ncbi.nlm.nih.gov/pubmed/26150087 I also have no doubt that gluten was damaging my intestines in some way, as any prolonged gluten exposure in the past has inevitably been followed by a severe FODMAP intolerance that goes away once I've eliminated the gluten and given myself a month or so to heal.  I also had a very fast diagnosis following the onset of symptoms (~1 year) so it's possible that the disease never had a chance to manifest as full celiac. I wasn't willing to eat gluten long enough to find out. As a result of my diagnosis, hazy as it was, I am *meticulously* gluten free. It is not a fad for me. I don't occasionally cheat. It is my life, for better or worse. All of that being said, I'm not sure what my diagnosis has to do with your question. You say you're not trying to be rude, but when you bring up my diagnosis in a thread that has nothing to do with diagnostics, it seems like you're trying to undermine the validity of my disease or the validity of my input in this forum. If I'm being hypersensitive, I apologize, but that's how you came across on my end. I'll admit that the fact that my diagnosis wasn't more straight forward does make me a bit defensive, but I promise that even if I didn't have a solid diagnosis, I interact with the world as though I did, and I'm not out there giving people the wrong idea about celiac disease by not taking it seriously. If there was a connection between your question and my diagnostics that I missed I would appreciate you giving me the chance to better understand what you were asking. 
    • I am just curious.  As a scientist (and I am not trying to be rude), how can you determine if hydrologized wheat protein from your husband’s shampoo was actually the culprit?  If I recall at your diagnosis, you were seronegative, Marsh Stage I, gene positive,  but your doctor still  suspected celiac disease.  You improved on a gluten diet.  Other than observation, how do you really know?  Could it not be something else that triggered your symptoms?   I firmly believe that even trace amounts of gluten (under 20 ppm), can impact sensitive celiacs.  But traces of a protein within a shampoo from someone else’s hair that was rinsed?    
    • I also can't have dairy but through a series of experiments and a lot of research I think I've pinpointed my problem. It may or may not be the same for you, but I thought I'd share.  There are two kinds of beta-casein protein A1 and A2. We'll call A1 "bad casein" and A2 "good casein". The two proteins differ only in a single amino acid, but this is enough to make it so that they are processed differently in your guy. Bad casein is actually broken down into a casomorphin, which is an opioid peptide. That does not mean that milk gets you high, or is as addictive as heroin, or anything like that, it just means that it can interact with opioid receptors (which the gut has a bunch of). It's worth noting that opioids cause constipation due to their interaction with the opioid receptors in the gut, and that a lot of people feel like cheese and dairy slow things down, but any connection between the two is pure speculation on my part at this point.  Now here's where things get weird. The vast majority of milk cows in the western world are derived from Holstein-like breeds, meaning black and white cows. In a few select places, you'll see farms that use Jersey-type cows, or brown cows (Jersey cows produce less milk than Holsteins, but many connoisseurs feel it's a higher quality milk, particularly for cheese).  Holstein-like cows have A1 and A2 casein (bad and good), however, Jersey-type cows only have A2 (good casein), unless their genetic line involved a Holstein somewhere in the past, which does happen.  A company in New Zealand figured out how to test their cows for these two genes, and selected their herd down to cows that specifically produce ONLY A2 (good) casein. You might have seen it in the store, it's called A2 milk. Some people have had a lot of luck with this milk, though it still doesn't solve the problem of cheese.  I have suspected, due to trial and error and a few accidental exposures, that I have a problem with A1 casein, but not A2. In line with this: I am able to eat sheep and goat dairy without any difficulty, so at least I can still enjoy those cheeses! I am also fortunate because I'm apparently not too sensitive, as I can still eat cow-milk butter. The process of making butter removes *most* (read: enough for me) of the casein.  However, if I eat cow cheese or a baked good with milk, I get really sick. It's a much faster reaction than if I get glutened. Within minutes I'm dizzy and tired and my limbs are heavy. I have to sleep for a couple of hours, and then, over the next couple of days, I'm vulnerable to moodiness and muscles spasms and stomach upset just as though I'd been glutened (though the brain fog isn't as bad). I actually haven't tried A2 milk yet, mostly due to lack of availability (and motivation, I don't miss milk, I miss CHEESE). However, last year, when I was getting ready to go on a trip to Italy, I had a thought. Once, in the recent past, when I'd been testing dairy, I'd had a slice of parmesan cheese. Miracle of miracles, I was fine. I didn't feel a thing! I was so excited that I ran out and got some brie to eat as a snack. That did not go so well... Turns out parmigiano reggiano is made from the milk of the Reggiana variety of cow which is, you guessed it, a brown cow (they say red). I did a little more research and found that dairies in Italy predominantly use brown cows. So I decided to try something. As some of you may know, Italy is something of a haven for celiacs. It's one of the most gluten-free friendly places I've ever been. You can say "senza glutine" in the smallest little town and they don't even bat their eyelashes. You can buy gluten free foods in the pharmacy because they're considered a MEDICAL NECESSITY. If travelling-while-celiac freaks you out, go to Italy. Check out the website for the AIC (Italy's Celiac society), find some accredited restaurants, and GO NUTS. While I was there, I decided to see if I could eat the dairy. I could.  Friends, I ate gelato Every. Single. Night. after that. It was amazing. Between the dairy being safe for me and the preponderance of gluten free options, it was almost like I didn't have dietary restrictions. It was heaven. I want to go back and never leave.  So that's my story. Almost too crazy to believe.  TL;DR: Black and white cows make me sick, brown cows are my friends.
    • I'm a scientist, and I did a little research into the study. Looks valid and it was published in a respected journal.  http://www.gastrojournal.org/article/S0016-5085(17)36352-7/pdf The science looks solid. As someone who didn't have a super clean cut diagnosis before going gluten free, I'd love to see something like this become available. Then again, there's no doubt in my mind that I can't have gluten, so any additional testing would be purely academic. But like I said, I'm a scientist. I can't help myself. 
    • Update: I have tried calling the company several times and have emailed twice. I have yet to talk to a person on the phone and no one has emailed me back.    I did a little research and they were are already involved with a class action lawsuit about being labeled as salt free and one of the first ingredients is sodium chloride.  I am done with this shampoo because this whole company seems a little shady now! 
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