• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.
  • Celiac.com Sponsor:
    Celiac.com Sponsor:

Need Advice On Type Of Doctor
0

2 posts in this topic

I need to find a new doc but am totally confused as to what kind to start with and need some advice. I moved to a new area and have a BAD history with getting good help so I've been putting off finding a new doctor. I have been gluten free for about a year with super results, the issues I need help with are ongoing dizziness/lightheadedness, energy level and steadily dropping low blood pressure.

I never got an "official" diagnosis and I am NOT willing to go back eating gluten to get one. My blood tests were negative but I had been gluten-free for months before I was tested so I will never know if it was accurate. I am afraid to try a GP because my last one said she never would have suspected gluten since I wasn't anemic. Even though I had come to the office multiple times with malapsorbtion, vommiting and bloating... explaining that it seemed much worse after I ate bread - she said bread doesn't make you sick... has to be coffee or something. I had and allergist say she would run the blood tests for wheat realated illness... to find out later she just ran test for wheat allergy. I found a Naturopath who seemed to listen at first and caught the Allergist's mistake with the gliadin test, but wouldn't test me for anything until I spent months using her expensive Mercury cleansing program (which is dangerous and my levels weren't even that high).

Anyway, I generally (like many others here) don't have much faith in doctors and don't know where to start. What kind of doctor do you see for dizziness and low blood pressure? I am afraid I will start fainting soon if I don't see someone. Should I just try a new GP? I have no referrals around here and don't know where to start looking or even what type of doc I should be looking for. I thought maybe some of you had similar symptoms at some point and would have some advice for me. Any advice is super appreciated!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I would try to find the local celiac support group in your area and ask them who is good to see. I'm sure you will get some good suggestions there.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,031
    • Total Posts
      933,910
  • Member Statistics

    • Total Members
      64,597
    • Most Online
      3,093

    Newest Member
    Connie Harrison
    Joined
  • Popular Now

  •  

  • Topics

  • Posts

    • My numbers are right at the lower border of in range. I don't know if that's significant. Hemoglobin 12.7.  When I had surgery a year ago it was 10.3 afterwards.  I have heard of testing ferritin. Does low ferritin but normal CBC indicate anemia? I'm also wondering how quickly a CBC rebounds versus low ferritin if you have compromised iron absorption. 
    • Hello everyone I just received a call from my doctor's office that the Celiac lab work they drew returned 3 positive results.  I asked her to check me for Celiac as it was a suspicion of mine. I don't see the GI until next week. Can someone tell me what these lab numbers mean. I have tried to figure it out, but I'm not getting it. Can these numbers signal 'weak' chance or is it you have it or you don't? I am 37 years old. I have vitiligo (since 12 years old), chronic autoimmune related hives, thyroid removed from Graves disease at 20 years old, chronic anemia (last ferritin was 2). I've had meningitis and shingles. I had my gallbladder removed 1.5 years ago and the chronic pain in my URQ has never left. CT scan last August shows only cysts on ovaries, which I also have recurrent problems with. Stomach pains now for months and months, cramping, burning. Joint pain, headaches, anxiety, etc. Any advice please!? I am not so concerned about having to cut gluten as I am hoping that this may finally make me feel human again.
    • Only you can make a decision on whether to do a challenge or not.  My hubby went Gluten Free 12 years before I was officially diagnosed.  He refuses to do a challenge, because we need to pay our bills and we know that gluten makes him sick.  Why would anyone remain gluten free for more than 16 years if they did not need to?   He does tell me that I have received way more support from medical, family and friends.  It also has helped other members in my family (easy to ask for a celiac screening for my kid).   Good luck!  Do what is best for you.  
    • A CBC would check for size of blood cells, number of blood cells and hemoglobin levels, etc.  If you are within range, you probably would not be considered anemic.  A ferritin test (iron stores) can be checked too.  If very low, it starts to create symptoms.   https://en.m.wikipedia.org/wiki/Anemia  
    • https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5292331/  
  • Upcoming Events