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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Agitation When Glutened?
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Hey Ryan,

Agitation is actually one of my son's biggest and most problematic systems. It lasts a couple weeks for him where as the stomachache is gone in a couple days. He just seems to be so angry I can only think to compare it to severe PMS (not sure that helps you relate). Mad at the world because he feels so miserable.

But I would have to say that yes, after you get good and cleaned out, your reactions do seem more severe. And I have heard the creepy crawly scenario before.

Best wishes to you and Alex.

Gina

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I recognize that as well, although in my case it's often more of a sudden angry madness, or a sudden drop into a depression... but I also have that not bearing to be touched. It's weird because at the same time I'd really like to be comforted and reassured but I just can't bear any sudden touching...my husband can hug me if he does it very slowly and gently.

For me the worst usually passes in a couple days, but my mood is affected for a couple weeks after, I'm a bit more down than usual. I've learned to just live with it and accept that it's not me, it's the after effects of gluten, and it will pass.

Pauliina

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Ryan,

When I get glutened, I get really anxious. I freak out about all kinds of things, more worried than angry, but irrational.

I don't think it was symptom, but all my symptoms have gotten dramatically stronger since going gluten free.

Geoff

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Thanks for letting me know that the anxiety and agitation are somewhat typical symptoms of gluten ingestion. I guess I should never underestimate the evil power of gluten. I thought Alex's symptoms were confined to GI issues but I guess not. The combination of exhaustion and insomnia seems particularly evil and unfair.

I'm hoping the effects don't last too long and that it is a long, long time before she gets glutened again. We had done so well had avoiding gluten for almost 5 months! Thanks again, it's good to know what she's going through is "normal".

Ryan

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You just described my reactions! Want to be held, but also feel the need to crawl out of my own skin. Absolutely nothing helps me to calm down. Everything seriously agitates me. The quick temper and agitation seem to take forever to go away. I could deal with the intestinal problems, but the skin thing and agitation just drive me crazy. I take motrin and it helps some. I assume something must be flared up and bugging me when I get angry for no known reason. Gotta love the side effects!

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My son also displays a great deal of agitation and depression shortly after glutening. We actually discovered his gluten intolerance because of his behavior changes. He was on a candida/ allergy elimination diet this past winter. During this time he became a pleasant, affectionate (hugs daily from son a very big plus)

able to focus, and a much better friend. Wheat was the first food we tried to add back in, I just never imagined he would react to it or that it was the cause of so much of his behavior for so many years. Within a 1/2 hour of eating wheat he was angry, paranoid, totally spaced out, and generally annoying. Then later the diareha started in. I can usually tell now within an hour or so if he has had any gluten just by his behavior alone. It really has made such a huge difference in our lives. I have more patience and worry less that my son is heading down the wrong road forever. My son feels better because he is finally more able to control himself and when he has chosen to gluten he is beginning to really see the consequences for himself. Knowledge is key when parenting.

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Anxiety is a *big* issue with me, and when I experience a food intolerance it sets in about four hours after i eat. I also can get very impatient and irritable. I continue to have some residual anxiety problems. I do not know if this is caused by an undiagnosed thyroid issue or not at this point, but I am planning on looking up a doctor shortly.

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I can totally relate. In the past before I was gluten free and when I get glutened now, I feel very agitated, like I want to jump out of my skin. Since the warmer weather arrived and I've been gluten free, I had forgotten how much I was bothered by freshly shaven legs until yesterday. I felt almost like my legs were buzzing with electricity. I know it sounds really bizarre, but it's true. Fabrics, tags in clothing, etc. could nearly drive me mad. Argh!

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Ive only been gluten free for a short time, but I got glutened tonight while out to dinner (ugh, I haven't been this uncomfortable in a while). My husband started telling the kids to hurry up because we had to go home ASAP and I thought he was completely nuts. He knew I ate something before my stomach knew it! He said I get very irritable and snappish when I don't appear to be in a complete fog before I get sick. I really thought he was exagerating, but now that I read this I guess I have to admit he is on to something.

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I love when there's a thread like this that is so timely to what I'm going through!

My DD spent the night at my FILs this weekend, and although FIL and SMIL have tried to "get it" about gluten they still just "don't." My SMIL even said she didn't understand how "something like a crumb of bread could cause such damage." Unfortunately, I forgot to use the analogy of, "You wouldn't eat just a little rat poison, would you?"

Anyway, she went to the movies yesterday and had a Sprite and some popcorn (which I'm thinking is the problem--I would have brought our own if I had taken her but I didn't know they were going to go until after all was said and done) and came home not with tummy symptoms but totally in emotional meltdown-mode and her skin felt creepy-crawly.

She's still feeling a little "off" today emotionally and was complaining this morning of tummy troubles (her breakfast at home was Cream of Rice and gluten-free dried apricots). She says it doesn't feel like she got "glutened" and blames the apricots (liklihood of CC is low).

Before going gluten-free she had HUGE issues with becoming an emotional wreck and has definitely been more stable since eating gluten-free. To me her emotional state is WAY more noticeable when she gets glutened than any other symptom (and I thought she was just a drama queen...)!

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I can totally relate. In the past before I was gluten free and when I get glutened now, I feel very agitated, like I want to jump out of my skin. Since the warmer weather arrived and I've been gluten free, I had forgotten how much I was bothered by freshly shaven legs until yesterday. I felt almost like my legs were buzzing with electricity. I know it sounds really bizarre, but it's true. Fabrics, tags in clothing, etc. could nearly drive me mad. Argh!

I used to get that too, I started using an electric razor and it went away. Turns out I just have really sensitive skin, that doesn't handle a razor well. The only other way I'm able to shave is in a bath and pour a bunch of cocoa butter oil or baby oil or something in and shave under water, it keeps the blade from cutting you. Unfortunately I no longer have a bathtub, so I'm stuck with the electric. Hope that helps.

(sorry off-topic!)

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    • Hi Stephanie, I'm also from the UK, I've found this site more helpful than anything we have!  As already mentioned above, in my experience it could depend on what and where you were drinking. Gluten free food and drink isn't always (not usually) 100% gluten free as you may know, maybe you have become more sensitive to even a trace of gluten that is probably in gluten free food/drink. Is it possible you have a problem with corn, particularly high fructose corn syrup that is in a lot of alcoholic drinks? This was a big problem for me and the only alcoholic drinks I can tolerate are William Chase vodka and gin. I contacted the company last year and all their drinks are 100% gluten and corn free, made the old fashioned way with no additives, so maybe try their products if you like the occasional drink and see how you get on. If you drink out, not many pubs sell their products but I know Wetherspoons do and smaller wine bars may too. l was never a spirit drinker but I must say their products are absolutely lovely! Very easy on a compromised gut too considering it's alcohol. I second the suggestion on seeing a natural health practitioner. I've recently started seeing a medical herbalist, as I've got nowhere with my now many food intolerances since going gluten free last year and I've noticed a difference in my health already. 
    • Sorry for the very late reply and thanks for the replies, I didn't get a notification of any. In case anyone else comes across this and has been wondering the same as I was, I did try a vegetable broth and I did react to it in the same way as if I'd eaten the vegetables.  As for the candida, I've been using coconut oil and am seeing a medical herbalist for this and leaky gut. It's only been a few weeks but I've noticed an improvement all round.
    • What did you drink and where did you drink it?   NOTE if you drink something at a bar using their glasses your asking for trouble BEER IS EVERYWHERE in most bars and a CC hell.   If it was at home and a non grain based liqour then I would be really concerned that it might just be alcohol. I personally can not really drink much of anything any more. I love rum, and I cook with it sometimes in sautes. I also have rum extract/butter rum extract/and rum emulsion I use in shakes, homemade keto pudding/ mixed into dishes. and even add some to drink to give it a rum flavor lol.
    • I can only think of two things, 1 something you put on your potato was contaminated like the butter container could have crumbs in it or something like that as mentioned before, and you could be having a reaction to dairy or what ever was put in it.......IF it was just plain potato and you reacted with bloating and cramping you might have a carb issues, tad rare and most associated with additional auto immune diseases but could be in which case a diet of fats and protein would be your answer much like it is for me now days. What all have you eaten in the privous 8 hours including beverages, condiments, spices and foods?
    • They are gluten-free.  Did you use butter that might have gluten crumbs on it?  For me , it takes more than 2 hours to feel the effect of gluten- maybe something you ate before?  Maybe  stomach virus?
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