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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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JUST WANTED TO LET ALL KNOW

I WENT TO BUY THE NEUTROGENA DAILY T/GEL SHAMPOO AND IT IS

NOT gluten-free!!!!!!!!!!!!!!!!!1

SOMEBODY AT NEUTROGENA GOOFED.!!!!!!!!!!!!!!!!!!

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JUST WANTED TO LET ALL KNOW

I WENT TO BUY THE NEUTROGENA DAILY T/GEL SHAMPOO AND IT IS

NOT gluten-free!!!!!!!!!!!!!!!!!1

SOMEBODY AT NEUTROGENA GOOFED.!!!!!!!!!!!!!!!!!!

What is the offending ingredient?

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Please post more information on this. It is not very helpful to anyone right now. It will help everyone if the ingredients were posted.

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What is the offending ingredient?

There is a wheat protien in the daily t/gel formula.

Lynn

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Please post more information on this. It is not very helpful to anyone right now. It will help everyone if the ingredients were posted.

Amanda,

I had written them regarding the Neutrogena T/Gel dandruff therapy shampoo and conditioner. The answer I had received was to get the Daily T/Gel shampoo.

But when I went to buy the Daily T/Gel formula it has wheat protien in it..

lynn

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Lynn, why don't you write the company and demand a clarification. Perhaps that might change their listing. We all need to be proactive. I will do it.

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Note that Neutrogena's so called "gluten free list" is ONLY a wheat free list -- they haven't checked for the presence of barley, rye and oats. I find it astonishing that a company could be so misleading in their allergen list labeling -- if they don't want to disclose all gluten, that is their choice, but it is misleading to title their list "gluten free" when it is only "wheat free". I had some go rounds with the company about this a number of months ago, then gave up. Some products are tested for rye, barley, oats, so if you call their rep on a particular product, they can tell you if it has only been checked for wheat, or whether it has been checked for all gluten containing ingredients. However, I wouldn't rely on their list for anything.

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Note that Neutrogena's so called "gluten free list" is ONLY a wheat free list -- they haven't checked for the presence of barley, rye and oats. I find it astonishing that a company could be so misleading in their allergen list labeling -- if they don't want to disclose all gluten, that is their choice, but it is misleading to title their list "gluten free" when it is only "wheat free". I had some go rounds with the company about this a number of months ago, then gave up. Some products are tested for rye, barley, oats, so if you call their rep on a particular product, they can tell you if it has only been checked for wheat, or whether it has been checked for all gluten containing ingredients. However, I wouldn't rely on their list for anything.

Hi, thanx for the help. No, it was not a list. It was an actual email and it was incorrect also!!

I am going to have to call them..

Thanx,

lynn

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I've had conversations in the past week with several different customer service people at Neutrogena.

The first lady actually denied the exsitence of a gluten-free list (!). (In the 2 years I've been on this board, I've only seen it posted about a half dozen times <_< ) She said that her supervisor told her that we had to call about individual products, and they would check on them for us. After hearing my question as to whether their defination of gluten-free meant gluten or just wheat, she put me on "hold" and eventually the call was disconnected....

The gentleman I spoke to after this was very nice. He said that there "was" a gluten-free list (but he used a tone that sounded like it was something he was not supposed to tell me about), and that he would email it to me (he never did). He told me that they test for gluten "as in wheat, oats, barley and rye."

A day or two later, I called and asked about 2 products that I wanted to try. One was deemed gluten-free, and one wheat free. I asked this lady about gluten vs. wheat and she said that not all of their products were checked for gluten--some are, but some are just tested for wheat. I asked her if any gluten ingredients, such as oats, would be clearly listed and she said that they would.

Each conversation yielded slightly different information. I would suggest calling them about any product that you are considering and talk to them about the ingredients.

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I have no experience with Neutrogena. But I was just wondering. Is there some reason to not just move on to other companies? Unless they have something really special over everyone else's products, they honestly sound like they don't need/want our business. They don't sound very professional.

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I have no experience with Neutrogena. But I was just wondering. Is there some reason to not just move on to other companies? Unless they have something really special over everyone else's products, they honestly sound like they don't need/want our business. They don't sound very professional.

Know what? I think you are right. I will just have to look for something else to use on her. Thats is all. Maybe I will write a "real" letter and let them know about their "poor" customer service in helping people that "really" need their help.

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What I don't understand is why the whole thing is so darn hard! The way I look at it EVERYONE should havelists available to consumers concerning major allergy issues. It is not as isolated as people seem to think it is. It's hard enough for me to shop for food since I don't understand all of the hidden gluten yet. I haven't even started going through my make up and other things yet. I find this all VERY time consuming, frustrating, and anger producing. I thought with having Cerebral Palsy I was treeted like a second class citizen but this just makes it worse in some respects!

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What I don't understand is why the whole thing is so darn hard! The way I look at it EVERYONE should havelists available to consumers concerning major allergy issues. It is not as isolated as people seem to think it is. It's hard enough for me to shop for food since I don't understand all of the hidden gluten yet. I haven't even started going through my make up and other things yet. I find this all VERY time consuming, frustrating, and anger producing. I thought with having Cerebral Palsy I was treeted like a second class citizen but this just makes it worse in some respects!

Crystal, I really liked your response. It is true, they should provide lists about everything. :)

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Crystal, I really liked your response. It is true, they should provide lists about everything. :)

It's just so hard! I know I'm still new to everything but I mean sheesh! I'm southern. I love food and it's such a darn chore to go to the store now! I dread it!!!! It would be easier if lists were readily available. I get tired of peoples attitude already! It's not like we do this because we WANT to. This stuff really makes us sick. It's just as serious as Dieabetes! I'll get off the soap box now! (Sorry I'm in the anger stage right now!) I'm not angry at my diease or my diet change. I'm very thankful to have an answer. I'm angry at others in general for making it so hard or not caring at all. Even when we can find something we can eat we have to worry about CC all the time. EEERRRRR

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Crystal, I really liked your response. It is true, they should provide lists about everything. :)

Dear Crystal,

Sorry to hear about the CP, any way you are right, they should have lists. We are one of the few countries I found out that do not test for this disease at birth. I saw Dr. Green speak at a gluten-free fair in April, and Alot of countries test for it when children are born. And, he was telling us that if you go to some other countries, there are gluten-free menues right there with the regular menus, and in some fast food type restaurants, they have them right up on the wall and you don't even need to ask. Just order.

Is that cool or what?

Good Luck, and BTW if you have any questions, just ask them here and I guarantee 9 out ot 10, you will get an answer. I wish I could send you copies of the lists my daughters doctors gave me of safe and unsafe foods and additives. It helps me so much.

Agan, good luck.

you have my email if you have questions.

YOU SHOULD LOOK FOR A CELIAC GROUP IN YOUR CITY.

ASK IN THESE BOARDS. LOOK FOR THE BOARD THAT MENTIONS CELIAC GROUPS.

LYNN

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Dear Crystal,

Sorry to hear about the CP, any way you are right, they should have lists. We are one of the few countries I found out that do not test for this disease at birth. I saw Dr. Green speak at a gluten-free fair in April, and Alot of countries test for it when children are born. And, he was telling us that if you go to some other countries, there are gluten-free menues right there with the regular menus, and in some fast food type restaurants, they have them right up on the wall and you don't even need to ask. Just order.

Is that cool or what?

Good Luck, and BTW if you have any questions, just ask them here and I guarantee 9 out ot 10, you will get an answer. I wish I could send you copies of the lists my daughters doctors gave me of safe and unsafe foods and additives. It helps me so much.

Agan, good luck.

you have my email if you have questions.

YOU SHOULD LOOK FOR A CELIAC GROUP IN YOUR CITY.

ASK IN THESE BOARDS. LOOK FOR THE BOARD THAT MENTIONS CELIAC GROUPS.

LYNN

There is a support group here but they usually meet for dinner once a month and I don't drive because of the CP so there are places I can't get to. I'll figure everything out it just takes time. I go see my GI in the morning so I'll see what he has to help but this is the one who doesn't think I have celiac disease.

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Dear Crystal:

Were you looking for makeup? If so, Mary Kay has some gluten-free products, but the following has alot. The name of the company is NU SKIN. web: www.nuskinusa.com or you can Call Kathy at 757-206-7140 her web is www.executive-concepts.com Tell her that somebody gave you the info from the Gluten Free Fair at SUNY FARMINGDALE COLLEGE IN NY. They have tons of gluten-free products. I am ordering lipstick for my daughter, even some for myself because I really liked some of the colors they have.

Good luck. Lynn

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Right now I'm looking at everything. I just bought gluten-free living for dummies last night. I haven't read much of it yet but should have some time this weekend. I just need to gather things up and start call manufactures. My problem is finding time since I'm out of the house from 8am to 7pm and can't really get things done at work. Plus now that I'm feeling better I can resume my weekend actvites which means alot of time I'm on the go for 7 to 14 days without a break. I'm just thankful I'm healthy enough and getting comfortable enough with the diet to go further away from my own kitchen!!! (I did however make a booboo by not asking the cook at Waffle House to clean off the grill before my food was made. I'm still recovering from that one!!!) Thank you for the encouragement. Right now I'm worrying about food and as the other things need to be replaced or as I can afford to replace them I will. I've decided to take things one step at a time and not to overly stress myself. Next on the list is shampoo and conditioner. (I don't wear makeup daily and have no need to wear it for the next couple of weeks so I'll worry about that once I get all the bills payed.lol)

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Right now I'm looking at everything. I just bought gluten-free living for dummies last night. I haven't read much of it yet but should have some time this weekend. I just need to gather things up and start call manufactures. My problem is finding time since I'm out of the house from 8am to 7pm and can't really get things done at work. Plus now that I'm feeling better I can resume my weekend actvites which means alot of time I'm on the go for 7 to 14 days without a break. I'm just thankful I'm healthy enough and getting comfortable enough with the diet to go further away from my own kitchen!!! (I did however make a booboo by not asking the cook at Waffle House to clean off the grill before my food was made. I'm still recovering from that one!!!) Thank you for the encouragement. Right now I'm worrying about food and as the other things need to be replaced or as I can afford to replace them I will. I've decided to take things one step at a time and not to overly stress myself. Next on the list is shampoo and conditioner. (I don't wear makeup daily and have no need to wear it for the next couple of weeks so I'll worry about that once I get all the bills payed.lol)

Dear Crystal,

Feel free to tap my brain. And of course anybody else's here. Any question you have can be answered. Ok for Soap, Tone is gluten-free, right now, dove is gluten-free, Alot of people say they use Aussie for shampoo. I also let my daughter use it. Where do you live? Or at least what state? That helps also. You can put up a message stating where you live and can anybody help you for shopping in the area you live in. You may have to travel to shop. It stinks, I know, but to get what you need is what you have to do. You also have to do the change slowly, dont let anybody fool you about doing it all at once. The quicker the better, but its very hard to do all at once. Cookies? Pamela's, enjoy life, pasta? My daughter likes the Tinkydaya. It is made of Stone ground Rice and water. That is all. Land o Lakes butter is gluten-free. Skippy if gluten-free. Welches jelly. If you can not call a company, email them. Most will answer promptly. If you want, send me a letter here, with your email and i will send you any info that i have. MOST Orida fries are gluten-free, Some Friendlies Ice Creams, Some Edys, and alot of companies will also send you coupons if you ask for them and they have them. Columbo yougart, Yo Crunch w/ M& M's and reeses pieces are the gluten-free. The other Yo Crunch are not. NO Nestles'. Hersheys choc syrup is gluten-free, plain hersheys choc is gluten-free. Know what? Email me and I will send all info I have. Ok? Good Luck. OH as summer is here, I am told that Coppertone is gluten-free....

Good Luck,

sincerely,

Lynn :D

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