• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Gf, Weightloss, Lack Of Appetite
0

19 posts in this topic

Hi, new to this section. I am slowing determining that I may be gluten intolerant. I do know I've felt like a normal person going gluten-free for a week. Back on gluten in hopes I can get a biopsy done soon!

I've lost weight since the onset of my stomach upset (diarrhea) and going gluten-free. But during my episodes such as today with abomdinal pain, I am finding I lose my appetite. This is extremely unlike me as I was typically a very big fan of food, particularly carbs. Now I have no actual apptetite (i.e., stomach hunger) and no mental desire to eat. I eat, because I know I need to have some sort of fuel.

Has anyone else run into this, lacking an appetite altogether? Does the gluten-free diet help with that? Although I can stand to lose 10-15lbs, and only dropped 4lbs in 2 weeks, my body has never shed weight at this pace w/o excessive exercise. So this is very unusual for me and even received raised eye brows from my doctor. I am not terribly concerned as I do not seem to have a massive weight loss (40lbs etc) as I've read of other Celiacs. But it is concerning a few around me if this continues. Any suggestions?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I also lose my appetite when I'm bloated or in pain from gluten/casein/soy 'slips'. But when I recover, stick to my gluten-free/CF/SF foods, I feel better and more interested in eating. I think that when my body is suffering a food intolerance reaction, it's not too interested in handling MORE food, so loss of appetite allows it to focus on healing. However, if I'm not hungry and I eat or I overeat when I am hungry, I feel awful afterwards--LOTS of indigestion AND pain. :blink:

If you 'can stand to lose 10-15 pounds', just enjoy those loss of appetite periods while they last. You might have lost some 'water weight', since consuming excess carbs will influence water retention. Excess weight certainly doesn't help your body anyway ... there are soooo many conditions associated with excess weight. Perhaps you will learn to only eat when you are truly hungry only enough food to satisfy hunger as you use the gluten-free diet to recover from celiac damage. That's the most natural and easiest long term weight control technique anyway. ;)

BURDEE

0

Share this post


Link to post
Share on other sites

Burdee,

Thanks. Oh trust me I will revel in any future weight loss. My real issue is my doctor and boyfriend being overly concerned about it. I've reminded them I won't waste away! :) Glad to know I'm not alone.

Thanks.

0

Share this post


Link to post
Share on other sites

Hi dbuhl79 and Welcome :D ,

I am there with ya! I too have no appetite and have to force myself to eat. I also lost 40lbs 2 years ago and recently lost another 10lbs in just a months time. My doctors do not seem to be very concerned but like you, it worries me and my husband. All of my friends and family are concerned too, I can't tell you how many times I hear "you are getting too thin, you are going to blow away".

Unfortunately I think I have other problems in addition to "gluten sensitivity" due to the fact I have been gluten-free for going on 14 months with little improvement. Just keep an eye on your weight and try to eat as often as you can and notify your doctors if you lose a lot of weight in a short time.

Good luck to you and take care.

0

Share this post


Link to post
Share on other sites

For me, my appetite seems to revolve around my cycle. :-) The week before my period, I'm often ravenous - after that, as long as I'm busy, I'm not hungry. :-) But I'm not particularly underweight, so only make myself eat enough to make sure I don't experience hypoglycemic symptoms.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I always loose my appetite when I get gluten because it hurts my sromach and I know it is bad for me so I just don't eat when I get gluten posioning because it just makes me more sick

0

Share this post


Link to post
Share on other sites

Tiffany,

May I ask what your hypoglycemic symptoms are when not eating enough?

Thanks,

Dana :)

0

Share this post


Link to post
Share on other sites

I have this problem..used to have a size 12 waist before I got sick last Jaunary, now have a size 5 waist..I dropped about 45 pounds, gained 20, now I've lost 10 again. I usually only eat when I FEEL like eating. Most of the time I have no appetite..It sucks :P

Its also a real pain in the butt to hear people tell me how tiny I am..

~lisa~

0

Share this post


Link to post
Share on other sites
Its also a real pain in the butt to hear people tell me how tiny I am..

I know...I hate that...I already know that I'm thin without being told......I'm making progress, though. I'm almost 14 and I used to be 5' and 65-70 lbs. Now, 8 months later, I've gained 20 pounds, grown 2 inches, and increased 1 1/2 shoe sizes :D .....I have a little ways to go, but at 85 pounds, I don't look too different anymore. I remember hating when people said that in the past, though.

0

Share this post


Link to post
Share on other sites

dbuhl79,

I went gluten-free 6 months ago and was at about 165 pounds with my "ideal" weight being around 135 pounds. I am like you where I never lost weight unless I was doing a lot of excersise. Now I was between 135-140 pounds. I feel good and am not doing a lot of excersise. My theory is that because I was gluten intolerant the gluten had the opposite effect on my body than a lot of people with it. Instead of loosing weight it actually caused my body to store fat. Now that I am gluten-free and getting the correct foods, my body is about to burn what it needs instead of storing what is toxic to it.

This is my theory as I am now close to my ideal weight. And I too have had people say "you are too thing..." "You don't need to lose any more weight..." I think three things of people who say these things to me:

1) They care about me and are conserned

2) They themselves probably need to lose weight but can't so when the look at me they realize what they wish they could do but can't

3) They haven't ever seen me this thin, and are used to the heavy me instead of the thin me. And if they met me for the first time now they probably wouldn't think much about how thin I am.

0

Share this post


Link to post
Share on other sites
:D exactly taneil---your theory is correct---my borther in law has been working hard dieting and he is looking very good, but is thinner then we have ever seen him--my mom said just what you said---"steve, you are getting too thin" and he looks great and he feels great--that's the thing-----dont worry what others are thinking, you know your body and you need to take care of it----they will adjust--deb :D
0

Share this post


Link to post
Share on other sites

Taneil/Deb,

Thanks to both of you. Its comforting, and I quite honestly, know I'd like to lose this weight. My ideal being under 130, and losing 15lbs will be fine. My concern is losing it now, being on gluten, is a sign of malabsorption(sp) and lacking the necessary nutrients. I would be delghted to go gluten-free and lose the necessary weight.

Luckily I know my own family will be supportive as they know I have struggled (along with them) to maintain a appropriate weight. So it lifts my hopes that Taneil you are right about my body processing burning the calories more appropriate!

My significant other and family will have to adjust. I'll keep your 3 ideas in the forefront of my thought process. As they come from a very southern, good cooking, "keep meat on them bones" kind of family.

Thanks for the helpful comments from everyone. I had a rough weekend with this so, its definitely a pick me up for Monday!!

Dana :D

0

Share this post


Link to post
Share on other sites

I have also lost weight since going gluten-free (15 lbs). I'm now down to 135 (which I once considered my ideal weight). However, I'm still as chubby as I ever was, which I think is weird. I know people that are my height and my weight, that don't have anywhere near the same build as I do. My pants may be fitting a tiny bit looser, but other than that, I can't really tell. I think it's really weird and kind of worries me.

0

Share this post


Link to post
Share on other sites

cynicaltomorrow--- ;) give yourself more time--i am not sure of your age--i know that my body changed over the years and i know now that i will never have that same body i had at 17--i would love to get it back--but i had 5 babies and things have changed----muscle tone changes--i have lost 60# andi do look so much different and i would love to lose at least another 30#--i have been sitting here at this weight for months now--at least i am not going up :rolleyes:--i feel so different now and after losing the 60# things moved--i may not have lost more, but i have become more defined--i have shoulders again :P and a neck :rolleyes: i have bones :lol: it will happen for you too--just give it time--deb :D

0

Share this post


Link to post
Share on other sites
I have also lost weight since going gluten-free (15 lbs). I'm now down to 135 (which I once considered my ideal weight). However, I'm still as chubby as I ever was, which I think is weird.

We are our own worst critics! I learned some years ago that no matter what I weigh, when I look at myself in the mirror I look like me. Sounds silly, but I see no weight loss when I lose. I see no weight gain when I gain. I always look slightly overweight with blobby hips. :rolleyes: Now, I'm about 140 lbs, 5'9" and am a size 6 to 8, the least I've weighed since high school. Friends tell me I look great while my mother is concerned that I'm not eating (and she's currently staying with me so she knows exactly what I'm eating and I am NOT starving. :lol:)

This kind of unrealistic, unobjectiveness is the reason some girls/women become dangerously anorexic. They still see themselves as "fat" even though they are nothing but skin and bones. Knowing this about myself, I use clothing as a guide rather than some magic number on the scale. Even though I love the idea of losing more (it's almost like a strange addiction, losing weight...) I just accept that a 6 is a bit too light for me, an 8 being perfect. I based this on friends and others of approximately my same height and build. Could it be this is the same for you?

Also, remember, for women over 30, being just a bit too thin easily adds 10 years to how you look. :ph34r:

0

Share this post


Link to post
Share on other sites

I have a hard time telling that I'm losing (or gaining) weight by how my pants fit, as I wear baggy guy jeans. B) I'm almost 20, a little over 5'4, and probably wear a 12 or 14 jeans even though I only weigh about 135 lbs. Just a little confusing for me. And, you're right; losing weight is addictive. I never even think about it until I notice that I'm losing weight.

0

Share this post


Link to post
Share on other sites
:lol: i have been reading these posts and one thing is certain--we all look in the mirror and see ourselves and we dont see the difference----i do see a difference now compared to before gluten-free--i told my sister-- :P i have a neck, collarbones, and my chest is hard now, not cushy and wow, i am not a member of the itty bitty titty club anymore :P they were hiding in that other fat :lol:----she tells me that i am more "defined" now, developing definition :P whatever--hehe--------what i do notice---when i see pics of myself, i do see a thinner person and if pics add 10#--well yeha :lol: --i will never be skinny, but i am so much better then i was--i know people laugh when you say you are big boned, but some people are--i am big boned--when i married at 17, i looked too thin and i was wearing a size 14 then--size doesnt matter, it's where we are comfortable being us ;) learn to be comfy :D deb
0

Share this post


Link to post
Share on other sites

Symptoms of zinc defiency would include loss of taste and appetite (anorexia),delayed healing, increased susceptibility to infection, retarded growth, and hair loss.

Laura

0

Share this post


Link to post
Share on other sites

I just need to vent! :(

I know I've "glutened" (as some may call it) myself this past week. I've only suffered mild abdominal discomfort, but the last 3 days I've noticed feeling woozy in the afternoons and back to NO appetite. Which concerns my significant other who insists I eat. Don't get me wrong, I'm forcing myself to take in food. Now normally back in my dieting days, I would love this! But when it makes me feel light headed, woozy, and hunger pains its so hard when everything just does not look appealing. All I've gotten down today is 2/3rds of a gluten-free muffin and two rice cakes w/ peanut butter. Everything is so unappealing, its like someone has been asking me to eat all the foods I detest, even though I know I like these! AGHH! To top it off, all I want to do is sleep!! Oh well..thanks for letting me vent! Can't wait until the work day has ended!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,421
    • Total Posts
      930,469
  • Member Statistics

    • Total Members
      63,848
    • Most Online
      3,093

    Newest Member
    glutenfreekiddo
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hello Anonymous, and if nobody has said as much yet, welcome Don't worry (difficult to do when it can cause anxiety :P) it's very early days and you have a lot of healing to come.  If you've not already seen it there's advice and further info here:    It gets easier over time as checking becomes routine, you know your 'safe' products and your eating pattern changes. You'll get there  Maybe start a thread of your own if you'd like some input from others? Finally, back on topic. My Aunt has narcolepsy and although she's fiercely resistant to giving up gluten she has now made a connnection to eating bread and it's onset. As often, not conclusive but suggestive...
    • Hello again   Well first thing is the - Usual disclaimers apply... and this is something you have to follow up with your doctors as you know. But it's helpful sometimes to get another perspective so here's this layman see's from outside.  What I have seen from the various results posted here is that people's numbers vary wildly and, just as important, the numbers often don't bear any direct relationship to the level of intestinal damage revealed via endoscopy. Ultimately although you're not scoring much above positive, you are scoring a positive  and there are a couple of other risk factors you've mentioned that are suggestive if not conclusive - you have another autoimmune which raises the odds of having another one for example.  You've had two tests that are positive. The purpose of taking the second test was either to invalidate or confirm the first. I'd suggest it's achieved the latter, at least inasmuch as a GI may want to check you via endoscopy. That's still the 'gold standard' of celiac diagnosis and would give you an idea if there's any intestinal damage. I suspect with 2 positive tests and the history above that's what they'll suggest.  If your doctor or GI doesn't want to proceed with that you have a decision to make. Push for a second opinion or new doctor or if you're done with testing give the gluten free diet a proper try. Make a journal and see if some of those subtle things you reference may actually be symptoms. Fwiw, there are a lot of people here whose thyroid issues improved dramatically once they were gluten free, so whether celiac or gluten sensitive you should certainly give the diet a try. Only however once the testing is completed and remember: 
    • Hi! I've just been recently diagnosed as Celiac through the whole biopsy-shebang, and I have a little bit of insight on the whole diagnosis thing and how I was eventually diagnosed, and my advice for you. Brace yourself, this might be a bit long, but it might be worth the read and I promise I will eventually get to the point. If you don't want the huge story, skip to the long line of capital As: I first saw my doctor when I had a few problems swallowing. I've compared it to when you're nervous and you feel like you have a lump in your throat - but after I eat and (sometimes) drink. I just mentioned briefly it to my family doctor when I was addressing another issue, but right away he referred me to a gastroenterologist and ordered a barium swallow x-ray test. The x-ray came back completely normal, and so the g.e. then suspected GERD, put me on acid blockers to see if they would work, no harm done sort of thing. The only thing I got out of the acid blockers were the side effects, so it was back to square 1. The g.e. said that the next test he could do was an upper endoscopy with biopsies. (hint: the celiac test!) Wanting to find a solution to my problems, the endoscopy was scheduled. Pretty painless, I was in and out in a day, but the results took much much longer. Biopsies, or the little pieces of my esophagus, stomach, and small intestine, were sent to the lab, and they came back clean. I didn't really go back to the g.e. for a whole year after that because life became busy, I wasn't prompted to follow up, and I just dismissed the swallowing problems the best I could and went on my way. Now, I've never been huge on the gluten, big bread-y sandwiches or croissants or pies were never foods that I super "enjoyed". I wouldn't feel bad after eating them, I just didn't like the taste of bread so much, but I loved cookies, cake and a lot of other things that do have gluten in them. I lead a lowish gluten life but I wasn't really monitoring it that way. Everything changed when I got really nasty (systemic) poison ivy. My eyes were swollen shut, and the rash was everywhere. I almost went to the hospital, but cooped out at the family doctor's place and got a script for prednisone (a steroid). But, I found that after I had tapered off the steroids, I had magically become lactose intolerant. So back to the family doctor again probably because I broke my toe or something, but we also got to talk about this magical lactose intolerance business (because I love anything dairy and it was indeed devastating). He was surprised as there is literally no correlation between steroids and becoming lactose intolerant. He asked me if I still had the swallowing problems, which I did, and so it was back to the g.e. for round 3. because my family doctor "does not believe in coincidences". Meeting with the G.E., he mainly addressed the swallowing problems telling me that he had done what he could to diagnose with the technology that we had at the highly specialized hospital that we were at, and I would have to travel about 3 hours away to see a different doctor who would do some tests involving the muscles in the esophagus. But right before I was about to leave, we started talking about lactose intolerance. He brought up other foods that I was avoiding (if any), and then the conversation went to gluten. I mentioned that I had an aunt that was gluten-sensitive. He advised that I do the blood test that can show an indication of celiac whenever in the future. I decided to do it that day. At this point in time, I was not eating much gluten because of the fact that it was personal preference. The normal range for values in this test is from 0 to 20. A few weeks later, I learned that I scored a 35. A second upper endoscopy with biopsies was scheduled, but this time I was told to eat a moderate amount of gluten everyday before the procedure. I ate about two slices of bread per day, which is more than I normally would. I was normal for the first two-three weeks of the gluten plus diet, but then I became really sick. I started getting the normal celiac symptoms, like diarrhea and extreme tiredness. Near the end, I had debilitating stomach pain and I was 2 times more asleep than awake each day. I couldn't do the 2 pieces of bread a day some days, but the pain was still there. I knew that I wouldn't ever have to force myself to eat bread for a test ever again. I was called a few days before my endoscopy telling me that a kid in a worse state than me had to take the OR during my time. I forced myself to eat more bread for another month and a half. The day finally came. I was diagnosed celiac, which I have concluded to be initiated by (1) the steroids/poison ivy and (2) the gluten binge fest.  AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA Celiac Disease isn't completely understood yet. Most of the time if you weren't showing symptoms when you were a baby (so your case) it means that celiac was/could be triggered by an event in your life that causes stress on the body (like stress, physical injury, etc.).  The positive result that you got from the blood test doesn't automatically mean celiac, but it could. Here's some options: Talk to your doctor (or a different doctor) or even a specialist gastroenterologist (you can get a referral from a family doctor (general physician)) and see if you can do the blood test again, you have to have some kind of gluten for this to work in advance, so if you don't want to break your gluten-free streak, than don't really invest in this option. If you feel comfortable, you could even ask to do this test under a few scenarios (no gluten (now) and after a gluten binge, compare results). If you do this test and your indication is low off gluten and then high after gluten, I'd probably skip the biopsy. That's a strong enough sign that you don't need to put yourself through the painful-gluten binge. Maybe this is what that first doctor just assumed. But having that test when you haven't had any gluten could make the difference - it acts as a control. Go straight to the biopsy. You could do this, but I'd probably do the blood test first. I went through a lot of stress with the gluten-binge that you have to do to get an accurate result, you would also be breaking your gluten-free diet that may/may not be helping you right now. Do nothing, stay on your gluten free diet hoping that it is helping you. But if you are not celiac or gluten-sensitive (celiac before it starts to wreck your small intestine), going gluten free isn't healthy - you can do some research on this if it interests you. If you feel bad/unhealthy after going gluten free it's probably a sign. Good luck, also know that you might come to a point of stress in your life that can start celiac's destructive path. Ultimately, it is your body, and you should not feel forced or hesitate to act on health issues that impact you.
    • I'm sorry that life is so hard right now. Really.  I can't imagine working 3 jobs and trying to manage this terrible illness.  I think about American society and their obsession with food often.  Whenever you look at the internet, there are all these fabulous gluten-free recipes, but when you don't have time or money to cook these things, a simple gluten-free lifestyle is just that - simple. There isn't a lot of variety, so it's kind of boring. But, I guess I have gotten used to being boring. I just eat corn chex and fruit or yogurt for breakfast. I eat a lot of eggs, beans, rice, corn tortillas, nuts, chicken, fruit and veggies.  A loaf of gluten-free bread will last me 4-6 months in the freezer.  I buy a bag of dried beans for $1.29, I soak them overnight, and put them in the crockpot the next day. I add different spices, sometimes chicken and Voila! - dinner is ready when I get home from a long day. Family gatherings are miserable and I haven't quite figured out the best way to deal yet. If my grandmother were still alive, I imagine she would be a lot like yours - well-meaning but not really able to understand the nitty-gritty.   I just reassure my family that I am fine and that they really shouldn't do anything special for me. I bring a bag of Hershey's kisses or other gluten-free candy I can nibble on along with my meal and then I try to treat myself to a nicer home cooked meal later in the week when I have time to cook - because who has time to cook during Christmas???? And, I agree with knitty knitty. If someone else in your family/friends were gluten-free for medical reasons, it would make socializing a bit easier. One of my husband's good friends is NCGS. When we get together as a group, we can make each other special dishes and it helps to feel less isolated.  Good luck!  
    • Hi!  Um, please forgive my quirky sense of humor..... Celiac Disease is genetic... All first degree relatives of people diagnosed with Celiac Disease should be tested for the disease, too.  Gall bladder problems are often associated with Celiac Disease.  Your diagnosis might save your whole family from further medical problems as they age and the disease progresses... You need to set a good example if relatives are similarly diagnosed.... and then everybody will have to eat gluten free at family gatherings....  
  • Upcoming Events