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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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lradtke

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Hello everyone,

I am new to this site and now sure if I am posting in the correct area, however here is my story, hope someone can help?

I have never had any health problems except the one surgery to remove my tonsils and adnoids when I was in the 5th grade. Over the course of the past 10 years (I am 39) I have had Vertigo, which came out of nowhere, severe bouts of "food poisening" or so the Dr.'s thought. And ongoing severe cramping, diahrea (sp?), loose stool and with this comes a seizure like reaction which I end up fainting. It only happens when I am going to the bathroom and after writing down everything I ate for a month there was never any one thing we could pinpoint this reaction coming from. One time I passed out and broke the front teeth out of my mouth (2 months before my wedding, nice) another time I was home alone with my 4 year old and passed out off the toilet face first onto the ceramic tile floor and looked like I had been in a bar fight. I also get lightheaded and dizzy if I sit too long getting up and walking around seems to help. I have no other pain, no joint pain, a little arthritus in my knees and the occassionaly achy bones feeling but it goes away and isn't occuring enough to cause me any issues.

I recently changed Dr.'s and my new Dr. found that I have tested positive for an auto - immune disease. Which one is the question. I had a positive ANA blood test which led him to this conclusion. Now I have been referred out to a Rhuematologist. We live in a small town and we only have one Rhuematologist and I can't get in to see him until the end of September. I have had a CAT SCAN, MRI, EEG, EKG, and loads of bloodwork. The positive ANA blood test was the only thing to turn up. My Dr. said I am in for a load of more tests because it is so difficult to diagnose auto immune diseases. A friend suggested I check into Celiac Disease or having an allergy to wheat. My symptoms sounded similar so as I have researched online it does seem to have similarities. I was hoping someone out there might have some of the same symptoms or be able to tell me how to get tested for Celiac Disease and do I have to wait for the Rhuematologist or is this something my family practioner can handle? Would love any input anyone could offer, thanks for listening.

Northern Michigander

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You can get a celiac panel done by your general practitioner. Be sure he does the whole panel, not just the IgA.

Also, you may want to get a Lyme test (because of the knee pain and vertigo). Be sure it's done by IGeneX. I had the test kit sent to my house, then took it to my doctor so that I was sure it was done by this particular lab (www.igenex.com).

I'd also have them test your B12 levels.

Have you had your iron levels checked?

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Crohn's or ulcerative colitis are also a possibility. Have you had a colonoscopy done?

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    • This could be related to nutrient deficiencies such as multip B-vitamins, magnesium, primarily with some others to consider like vitamin D E and iron. But my concern with be diabetes also, it is a fact that diabetes and celiac go hand in hand often. AND if you eat gluten free processed food often you are eating a ton more starch, carbs, and sugars then you need to which could make this worse. I would really suggest seeing a doctor about this as it seems to be a really serious issue. Discoloration is a blood flow issue normally.....this could lead to complications and loss/amputation of you your extremities. Again my main concern would be diabetes, if you want to help keep track of this get a glucose monitor from walmart and check you blood glucose before and a at the 30, 60, 90, 120min mark after a meal for a week monitor the results and see about taking them to a doctor. If your seeing large spikes and drops between and after meals this could be a sign of something. (again observational data not a doctor here  but info to help). You can try supplementing B-vitamin complexes and magnesium also help but PLEASE talk to a doctor on this issue. Change to a whole foods only diet for awhile and see about cutting out processed foods, sugars, and going easy on the carbs.
    • Celiac disease is a bit like a chameleon in symptoms with over 500 known combinations (someone else said this number). It being a autoimmune disease it would not be unheard of it effecting the lymph nodes and in fact early on my first signs of a CC was tightening and swelling of the ones in my neck. I have not noticed this with my past few encounters in the past 2 years. But as I said it is a chameleon in symptoms. You will need to be eating gluten daily for about 12 weeks for the celiac blood panel which is the standard for testing with this disease. And keep eating it for 2 weeks prior to a follow endoscope and biopsy to check for intestinal damage. You can read up more in the link http://www.cureceliacdisease.org/screening/
    • Hi there, I was recently diagnosed with Celiac after having dramatic weight loss, extreme fatigue, digestive issues, and a variety of other things. The blood test and biopsy both came back positive so I have been following a strict gluten free diet.  I have been experiencing muscle spasms, frequent face redness all over, and as of lately my toes and fingers have been turning different colours. The most concerning would be my toes as they will go purple. Each toe looks like it has a bruise on it. Is this symptomatic of celiac? I followed up with my family doctor but his only suggestion was to see a dietician, and out I went.  My antibody came back positive, and the titre was high and speckled. Is this related to the celiac? Not much has been explained to me, and I am just trying to understand further! If anyone has any advice, or comments I would be glad to read them!    Thank you  
    • You should get the lymph nodes checked. You need to be eating a regular gluten containing diet to get the best & most accurate results for celiac disease.
    • try ragu double cheddar sauce
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