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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Closed Throat/ Lump In Throat Feeling
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10 posts in this topic

Hi, recently diagnosed with wheat, oat, barley, eggs, soy allergies. Allergist didnt mention celiac term to me at all.

I have cut out all of the aforementioned products and the vicious rash and diarrhea went away.

Acupuncture really helped with rash.

Now I am dealing with this annoying and constant lump in my throat feeling. No reflux, heartburn, etc issues.

This feeling will not disappear! So annoying- not sleeping, constantly swallowing, ick!!!

Not sure what my next step should be.

Going to a new GP/ gastro guy next week- terrified of drs btw...

Any suggestions for blood tests, etc would be greatly, greatly appreciated.

thanks,

Jill

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Jill,

Make sure you get checked for things like infected tonsels, swollen glands and epiglottis infection, even tumors (heaven forbid). Don't assume it is allergy/celiac related. An ENT (ear, nose and throat) doc might also be a good avenue to explore if your other docs don't come up with good ideas.

Steve

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Hey Steve, thanks for the advice. I am not feeling at all sick in any way but I won't discount your suggestions. Since I am more aware of how I am feeling these days, I do notice that this closed up feeling has occurred in the past and I am trying to pinpoint as to when it might be happening and if it is related to an allergy/food reaction-issue.

thanks again,

Jill

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Thyroid....

Make sure you get a full Thyroid Test done. That includes Free T4, Free T3 and Thyroid Antibodies. Go to www.stopthethyroidmadness.com I had that lump as you describe. Dr did all the cancer checks and had no reasons for it. She kept telling me my Thyroid was 'normal'. I eventually got copies of my tests , and found she had been testing ONLY ...TSH.... So make sure you get all the tests done, and get your paperwork and make sure that your results are completely normal and don't just take a Drs opinion of it. Drs can be wrong .... And most Drs don't understand Thyroid. I have had 3 Endos and 10 Drs over a 30 years time span that did not understand my autoimmune Thyroid - so be aware.... My current Dr is great - she has Hashimotos Thyroid herself, and had to train herself off the Internet and with expensive Conferences AFTER she was a dr. The Endos also gave her the run around when she was trying to get diagnosed..

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GERD also causes that feeling as well. I would get it checked it out though.

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I forgot to say that my throat is fine now. Eventually I had the full thyroid blood tests and an ultrasound that showed an enlarged multinodular thyroid ( goitre). It took about 8 weeks of changing Drs and getting appts etc - to reach this stage. All that time I could barely swallow and my voice was husky. I could only eat rice... After going onto Armour Thyroid - the Goitre eventually went away and a ultrasound done a couple of months ago showed that the swelling had gone and that all the nodules had disappeared. Luckily I started Armour before the nodules grew large. :)

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My DD has been diagnosed with eosinophilic esophagitis which is inflammation in her throat, probably caused by an allergic reaction. Diagnosis involves multiple biopsies taken in different areas of the esophagus to rule out GERD and to count the number of eosinophils in each area. This is a relatively rare disease but is being diagnosed more each year. Not all GI doctors know about this disease and it can be tricky to do the biopsies the correct way. Most often, they put you on reflux medicine prior to checking for EE to see if that may be causing the problem.

www.apfed.org has information on eosinophilic esophagitis.

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reflux can cause that sensation in your throat----even if you don't get heartburn. i deal with this on a regular basis.

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I used to get that feeling too. I had a goiter and was put on synthroid. My thyroid was like 3 times the normal size. It is much better now.

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Hi, recently diagnosed with wheat, oat, barley, eggs, soy allergies. Allergist didnt mention celiac term to me at all.

I have cut out all of the aforementioned products and the vicious rash and diarrhea went away.

Acupuncture really helped with rash.

Now I am dealing with this annoying and constant lump in my throat feeling. No reflux, heartburn, etc issues.

This feeling will not disappear! So annoying- not sleeping, constantly swallowing, ick!!!

Not sure what my next step should be.

Going to a new GP/ gastro guy next week- terrified of drs btw...

Any suggestions for blood tests, etc would be greatly, greatly appreciated.

thanks,

Jill

My haital hernia is giving me a sore throat , strachty feeling, lost of voice, pressure on my left breast. I didn't realize how swollen my throat was until I change my blood pressure medicine. At that point my throat swelling changed. For awhile it was thought it was the cause of my problem. Alas, it turned out to be my hernia is back. The endoscope did not show the hernia; but a barium swallow did.

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