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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Oxalates And Nightshades
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JUST FOUND THIS ON LIST SERV........

I CAN'T VALIDATE ANYTHING ON HERE BUT SINCE FLORECE WAS LISTING SUPPLEMENTS. THOUGHT YOU GUYS MIGHT FIND THIS HELPFUL. I CAN'T TAKE THIS DUE TO SHELLFISH ALLERGY..

IF.........SOME ARE WRONG :ph34r: .........PLEASE LET ME KNOW AND I'LL TAKE THEM OFF.

JUDY

Thank you to everyone who responded to my query on gluten-free glucosamine.

One member said that "all vitamins MUST list all ingredients on label....so it is easy to check."

I had several people write to say that the Member

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hi all

hope you all are having a great time during this busy holiday

just went on to Susan's LOD site and she's doing a 'dumping poll'

put a link up to it

hope it works.

http://health.groups.yahoo.com/group/Trying_Low_Oxalates/message/20607

hugs Judy

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Flor    0

Hey you all, happy holidays!

Anyone know anything about this "ox bile" stuff? There's discussion of it over on the LOD yahoo group and I turned up this info:

http://www.drlwilson.com/Articles/gb3.htm

It seems to tie together a bunch of issues -- copper/mercury toxicity, gut damage, sulfur issues, adrenal and liver weakness, and then this issue of "slow oxidizer" people. I can't figure out if it's the same as "slow metabolizers".

Anyway, I'd love to know what people think or if anyone has experience with this stuff?

Best to you all!

Florence

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Flor    0

Hi all,

I wanted to put an update here and to hear from other folks who have been following the LOD.

I've learned a few things in the past month (and am at about month 5 on the LOD):

1. The candida piece had to be dealt with head-on in my case. Some people report yeast issues clearning up on the LOD on their own. But I'm a month into a strict anti-candida diet and it's made a HUGE difference for me.

2. The progress I initially made on the LOD, in the first month, disappeared in the face of new symptoms -- oxalate and candida. In my case, I think the huge amounts of calicium I was taking was contributing to yeast problems. AND that I was eating more fruit and white rice on the LOD.

3. I did NOT notice the first time I looked through the yahoo low oxalate group materials that we were supposed to start into this diet SLOWLY and work down from medium to low oxalate eating over time. I read a lot of their materials and didn't see this anywhere. SO I went low oxalate abruptly and I think mobilzed oxalates that have stored themselves elsewhere in my body. For example, for the first time in my life I have occasional vulvar pain and kidney pain. My shins burned constantly on LOD until I started eating medium oxalate foods again. SO, I think it's imperative to work down gradually to a LOD. I wish I'd known!

4. The dramatic improvement in my hip joint and finger joint pain seemed to happen after starting LOD, so I think the LOD may have helped heal my leaky gut, but I was still bloated/gasy/diarrhea until I started on the anti-candida diet. And a side note: while my joints don't hurt (finally!), my knees click when they never did before. This happened after going LOD. Another woman on the LOD yahoo group reported this as well. I think it's oxalate-related also.

5. So, here's a quick summary of my current diet and the progress I've seen in the last month:

I'm cow diary free (limited goat and sheep cheese and yoghurt); gluten free; soy free; no pork; only grass-fed beef; no nightshade vegetables; no high oxalate foods; no refined sugar or fermented products and limited fruit; few grains (no more white rice! -- gluten-free oatmeal and some brown rice); no corn products. (note on corn: I think for me it's the corn products that are a problem -- I can eat fresh corn, but do so rarely -- processed corn anything is definitely a problem).

To all the other supplements I was taking on LOD (biotin, zinc, arginine, NAC, glutamine, COQ10, fish oil, Vit E, etc etc) I've made these changes: I'm taking Threelac instead of VSL3 and do think it's better, I've way reduced my intake of calcium citrate, and I've added: raw garlic, fresh lemon, daily fiber, activated charcoal, flax seeds, Solaray's YeastCleanse, milk thistle, red clover tea (those last two to support the liver in detoxing), and intermittent echineceae/goldenseal. I think the raw garlic is hugely helpful. I've been focusing much more on clearing out the intestines. If I were brave I'd go get a colonic, but I'm not brave.

I had two pretty miserable weeks after I started on the anti-candida diet, worse symptoms in every way plus nausea. And then the clouds parted and for about a week and a half I've been much much better. First time in over two years I've had close to normal digestion. My energy is coming back. There are still "die-off" days but they seem to last a day now rather than days.

How are you all doing?!?

Florence

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Hi Florence.

I'm thrilled to see your post esp..after i begged :lol: you to do so.

I'm sorry i didn't write back faster but have been having a rough day.

i promise i'll try to put my list up for you and others to see.

From some of my friends i talk too it seems so many have found improvement and are still learning new and helpful info.

I'll ask Robbin to check in also as she's such an expert on this topic and Patti i think is finding new hopful info.

i'll sure try to get all the stuff lined up tomorrow and post.

thanks again for the time.

judy

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Yellow Rose    1

Hi Everyone,

I have not been on for a while due to holidays and moving. Moving was hard on the body!!! After cutting out nightshades in October and the first two weeks of November I started adding them back in starting with mashed potatoes and giblet gravy as well as fresh tomatoes that were on a relish tray at Thanksgiving. Hurt so bad for the rest of the weekend that I thought I was gonna die. It sure convinced me that I was on the right track. Processed tomato sauces are also giving me problems. My daughter moved back in with us for a month, she just left on Tuesday, with her boyfriend and two grandchildren. They were not used to a gluten, corn, soy, nightshade free diet so we sucked it up and ate alot of everything but gluten. Amazingly I only got glutened once while they were here. But I did notice that everytime I ate something with a nightshade in it I did not feel good the next couple of days. I had lots of swelling in my hands and fingers and a lot of pain. So I am now going back to no more nightshades and am starting the sugar free yeast killing plan that I was going to start at the beginning of January. Only a month late. I will keep everyone posted as to how it goes. One other thing that I did start that seems to be helping is some strengthing exercises that my DD taught me. I have more stamina and am feeling stronger.

I have enjoyed reading the last two pages and am glad that everyone is back on and writing again.

Yellow Rose

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gOOD MORNING.

WORKED LAST NITE ON MY LIST STILL NOT DONE.

LOVE THESE REPORTS AS THEY ARE THE SAME AS MY FINDINGS.

THE NIGHT SHADES ARE KILLERS FOR ME TOO.........WHO WOULD HAVE KNOW

IF I GO LOW AND MED OXALATES WITH THE CALCIUM CALTRATE D- 600 WITH EACH MEAL IT SEEMS TO REALLY HELP

I HAVE FOUND .........BILE SALT 'D' ............HAS BEEN A REAL BIG ISSUE FOR ME.

SO TAKE THE POWDER ( I CAN NEVER SPELL) BUT WILL GET IT UP HERE.

ALSO PRILOSEC IN THE AM FOR NAUSEA SO NOW THAT I CAN EAT AGAIN...WITH THE NITE POWDER.........I HAVE BEEN OK FOR 20 DAYS EXCEPT FOR 2 DAYS AGO WHEN I DIDN'T TAKE POWDER..........

THANKS AND PRAY TOO WE CAN KEEP THIS THREAD UP AND RUNNING ON THE MAIN VIEW PAGE.

IT HAS REALLY HELPED ME SOOOOOOOOOOOOOO. MUCH

JUDY

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Well finally done and maybe this was a good idea for me anyway.........so i have it all in writing in one place. I hope that this will help some you. There may be some repeats on here but i just can't go back and re read it all. I have so much to get done today thus the late start.... ;) but at least i feel like doing it today and have the energy FINALLY :D

Here is my up date.

I had a horrible bout of uncontrolled 'd' over this Christmas holidays and quit taking the powder for 3 days and it didn't help so went back on it at nite. I think what was happening was I was also having a dumping of the oxalate's with the 'd'-- Black flecks, sandy stools. At times I had the oxalate crystals floating on top.............. UCK but I think -- from what I've read

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Matilda    1

Hi Everyone,

I thought this was interesting:

http://www.gutresearch.com/VitaminK.pdf

This is about using vitamin K to reduce oxalates and improve calcium homeostasis in autism. It's a very different approach to oxalates compared to the low oxalate diet.

There's a yahoo group posting about their experiences.

I wonder if this is the unifying theory?

Best wishes to all,

Matilda

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