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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Fast Can A Reaction Occur After Consuming Gluten?
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30 posts in this topic

I had tortilla chips yesterday and within a few minutes I started reacting. I'm only just learning that even corn chips can have hidden gluten (I'm newly diagnosed), but to have a reaction so quickly seems a little unreal. Is that possible?

Thanks!

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*Generally* Celiac has always been regarded as a "delayed" reaction. But many on this board report immediate or fairly immediate responses. I think there is no real standard. Within 20 minutes seems common. I'm sure others out there will be able to give you their own "glutening schedule". :P Some may be within a minute, others may be within hours. Some people react instantly, as soon as it touches their mouth (I suspect they must have a wheat allergy).

I personally react within minutes with a full blown reaction. I have had delayed reactions as well, but they are not common and I have no idea why those particular reactions were delayed (i.e. 3 hours later). I also was just diagnosed with an IgE wheat allergy on top of Celiac, which in my case may explain my "severe" reaction. I may also be a "sensitive "Celiac as well.

That said, you *do not* need to have a wheat allergy on top of Celiac in order to have an immediate and severe reaction, but if you do, it might be worth having allergy testing. If positive, you may need to carry Benadryl and an Epipen just in case.

Take care! :)

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Hi,

I personally don't begin to react for about 2 hours or so. :)

It's highly individual, though. I've read here of people reacting right away, and others a day or more later.

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My mouth gets irritated after about half an hour. After that, I get a series of GI symptoms.

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In some instances, I've noticed my stomach burning within just a few minutes. However, 20-30 minutes is the norm for me. Recovery time can be anything from a few hours to a couple of days. Depends on the severity.

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My mouth gets irritated after about half an hour. After that, I get a series of GI symptoms.

Here we go...I FINALLY found someone who gets mouth irritations!!! Can you please tell me what happens to your mouth?

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What kind of oil were the chips fried in? Gluten usually hits me in about 20-30 minutes. Cottonseed oil gives me the same reaction, at least it feels like it. Cottonseed oil is used in a lot of things, there may something in the chips apart from gluten that you don't tolerate. Once I went gluten free I became much more sensitive to foods.

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What kind of oil were the chips fried in? Gluten usually hits me in about 20-30 minutes. Cottonseed oil gives me the same reaction, at least it feels like it. Cottonseed oil is used in a lot of things, there may something in the chips apart from gluten that you don't tolerate. Once I went gluten free I became much more sensitive to foods.

Yes, I'm finding this, too... especially with dairy. I'm not sure what the chips were cooked in, but I've checked with the manufacturer and the chips are not on their gluten-free list, so gluten is possible. It's good to know that there might be other explanations than just gluten and I will definitely pay close attention to cottonseed oil. Very interesting! Thanks!

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Yes, I'm finding this, too... especially with dairy. I'm not sure what the chips were cooked in, but I've checked with the manufacturer and the chips are not on their gluten-free list, so gluten is possible. It's good to know that there might be other explanations than just gluten and I will definitely pay close attention to cottonseed oil. Very interesting! Thanks!

I have this with chips, too. Everytime I go to El Belazo and get their chips...thinking they are okay, I wake up with the worst left-sided pain the next day. And I'm always nauseated in the morning. Also, I'm wondering about something else you all said...."once you went gluten-free, you developed many more sensitivities." Why is this? There are so many things I cannot tolerate now. While a lot of my gastro symptoms went away, I have others that came and others that just linger and linger and linger. Does anyone have any good articles or knowledge about why this is?

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Hi all,

I'm 2yrs Totally Gluten Free, I recently 'Glutened' myself rather stupidly,

last Thursday evening i was shopping in my local Supermarket with a neighbour and there was

sampling of smoked salmon on brown bread.

.

My neighbour sampled some from the plate and said it was lovely,

when the lady asked me would I like to try,

I explained that I was Coeliac and couldn't eat anything with gluten in it.

.

She said my nephew is Coeliac, I know you can eat the smoked salmon,

just sample that, so she cut a large piece of salmon lifted it up on the knife and i eat it.

.

It was only then I noticed that was the same knife she used to spread and cut the bread !!

I thought to myself, it can't possibly do much harm,

.

'BOY WAS I WRONG'.

.

Within 4 - 5 hrs I had severe cramping and then the big 'D'

I had it all day Friday and most of Saturday and I was afraid to leave the house,

even though i'd taken 'Imodium Tablets'.

.

This is one guy who won't sample at the Supermarket again.

.

Best Regards,

David

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I have this with chips, too. Everytime I go to El Belazo and get their chips...thinking they are okay, I wake up with the worst left-sided pain the next day. And I'm always nauseated in the morning. Also, I'm wondering about something else you all said...."once you went gluten-free, you developed many more sensitivities." Why is this? There are so many things I cannot tolerate now. While a lot of my gastro symptoms went away, I have others that came and others that just linger and linger and linger. Does anyone have any good articles or knowledge about why this is?

I suspect that I've had my other sensitivities all along, but could never distinguish them because gluten was so pervasive in my diet and I was constantly having problems. I wonder, though, if htere is more to it....

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Were they tostitos? I don't know how many people know this, but Tostitos can have CC. Because of those new "Multigrain" chips. <_< not fun. My mom found that out a few months ago. They won't SWEAR that their products are gluten-free. *eyelidtwitch*

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My reaction usually starts about 2 hours after eating offensive foods. The effects usually last 24 - 48 hours. I've spent whole weekends recovering from a Friday night glutening. Yuk.

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My reaction usually starts about 2 hours after eating offensive foods. The effects usually last 24 - 48 hours. I've spent whole weekends recovering from a Friday night glutening. Yuk.

It usually takes at least two days fo rme to react, as far as I can tell, and itlasts from 2 weeks to a month depending on how much gluten I got.

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Yes, I'm finding this, too... especially with dairy. I'm not sure what the chips were cooked in, but I've checked with the manufacturer and the chips are not on their gluten-free list, so gluten is possible. It's good to know that there might be other explanations than just gluten and I will definitely pay close attention to cottonseed oil. Very interesting! Thanks!

Indeed, dairy is tough, I had to go dairy free as well as gluten free. It's been 7 months and I still cannot handle dairy.

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Here we go...I FINALLY found someone who gets mouth irritations!!! Can you please tell me what happens to your mouth?

what kind of mouth irritations do you get? I have been gluten-free for almost 2 weeks (still eating some by accident i think) and the last couple days i have 1) been soooo hungry and 2) my mouth feels really sensitive. you know when u eat heaps of salty or sugary things and your tongue feels sensitive and your teeth feel razor sharp on your tongue? its been like that for days but i havent been eating anything that would normally cause it.

btw this forum has been so helpful to me in the last few weeks. i was only diagnosed about 6 weeks ago, had the biopsy to confirm 2 weeks ago and am struggling with the new gluten free life! its very isolating hey? luckily friends family and workmates are being understanding, and theres a lot of info out there.

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Here we go...I FINALLY found someone who gets mouth irritations!!! Can you please tell me what happens to your mouth?

My son and I both get the mouth irritations, sometimes within 5 minutes (Have to check into the allergy part...I am allergic to grass and hay.)

I do get mouth ulcers after glutening, but usually a day or two later. I got them for years, pre-diagnosis, and thought they were "normal". Now I don't get them unless I've been glutened.

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It usually takes at least two days fo rme to react, as far as I can tell, and itlasts from 2 weeks to a month depending on how much gluten I got.

I'm so sorry. That's an incredible amount of time. It's too bad those who see gluten-free as a 'diet choice' don't realize how serious this is.

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I'm so sorry. That's an incredible amount of time. It's too bad those who see gluten-free as a 'diet choice' don't realize how serious this is.

Yes, apparently I'm "special". :)

Yeah, my brother in law still makes fun of me. It's starting to wear on my nerves.......

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I glutened myself last week, i read the hot dog chili sauce can 2 times, didn't see anything that i was familiar with, btw i've only been gluten free for a month and a half, so i put a drizzle of chili on my hotdog, about 30 minutes later, i could feel my head fogging up, then the migraine started, i got real tired..it only lasted that evening, thank god, but boy did i no i ate something i shouldn't have. so i went and pulled the can out of the trash..and there it was in plain sight, FLOUR. So now i have my husband read ingrediants to me out loud LOL.

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what kind of mouth irritations do you get? I have been gluten-free for almost 2 weeks (still eating some by accident i think) and the last couple days i have 1) been soooo hungry and 2) my mouth feels really sensitive. you know when u eat heaps of salty or sugary things and your tongue feels sensitive and your teeth feel razor sharp on your tongue? its been like that for days but i havent been eating anything that would normally cause it.

btw this forum has been so helpful to me in the last few weeks. i was only diagnosed about 6 weeks ago, had the biopsy to confirm 2 weeks ago and am struggling with the new gluten free life! its very isolating hey? luckily friends family and workmates are being understanding, and theres a lot of info out there.

My mouth irritations:

I have this irritating pain in my mouth...mostly the sides of my tongue, mid-tongue and the roof of my mouth. I have been treated for Thrush because the dr said, "just in case." Well, I did NOT have thrush...this was 2 years ago. I have continued to have a chronically annoyed and sore tongue.

I have gone gluten free for awhile now, and there are some days when "mysteriously" my tongue is better. Most days, though, still annoyed. Does this sound like your tongue?

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My mouth irritations:

I have this irritating pain in my mouth...mostly the sides of my tongue, mid-tongue and the roof of my mouth. I have been treated for Thrush because the dr said, "just in case." Well, I did NOT have thrush...this was 2 years ago. I have continued to have a chronically annoyed and sore tongue.

I have gone gluten free for awhile now, and there are some days when "mysteriously" my tongue is better. Most days, though, still annoyed. Does this sound like your tongue?

Do you have any other symptoms? Were you checked for Pernicious Anemia or a dietary B12 deficiency (this can be treated with oral B12, whereas PA requires B12 injections for life). A sore, "beefy" tongue is a common symptom.

Do you regularily replace your toothbrush? Did you replace your brush as soon as you were treated for "thrush"? Do you drink a lot of sodas?

Do you have sores, itchiness, etc, in your throat or aside from your tongue? If you've had unprotected oral sex, did your doctor screen you for oral STI's? They happen! :o

Of course, it could just be plain old allergies....but it doesn't really sound like it. Is there swelling? Or maybe a really stubborn yeast infection, or you may have unknowingly reinfected yourself. Or, good old irritation from acidic foods, etc.

Hmmm....this is a good one! Time to call House! ;) Lol!

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Here we go...I FINALLY found someone who gets mouth irritations!!! Can you please tell me what happens to your mouth?

I don't know about anyone else, but I ate some gluten containing foods the other day and my mouth has several small ulcers.. Usually they are on the inside of my cheeks. Today they are on the inside of my mouth just under my lips. They are only small, but they hurt a lot. Especially tonight as I ate at a hotel and they mistakenly served me worcestershire sauce, instead of balsamic vinegar.

Joss

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Here we go...I FINALLY found someone who gets mouth irritations!!! Can you please tell me what happens to your mouth?

I also get mouth, or should I say tongue, irritations. I have a geographic tongue and when I get a trace amount of gluten - such as second hand beer from kissing, my tongue gets circles and ridges and it is tender. This is always my first and sometimes only sympton of being glutened.

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Do you have any other symptoms? Were you checked for Pernicious Anemia or a dietary B12 deficiency (this can be treated with oral B12, whereas PA requires B12 injections for life). A sore, "beefy" tongue is a common symptom.

Do you regularily replace your toothbrush? Did you replace your brush as soon as you were treated for "thrush"? Do you drink a lot of sodas?

Do you have sores, itchiness, etc, in your throat or aside from your tongue? If you've had unprotected oral sex, did your doctor screen you for oral STI's? They happen! :o

Of course, it could just be plain old allergies....but it doesn't really sound like it. Is there swelling? Or maybe a really stubborn yeast infection, or you may have unknowingly reinfected yourself. Or, good old irritation from acidic foods, etc.

Hmmm....this is a good one! Time to call House! ;) Lol!

I like all of the questions you pose.

Yes, of course I have other symptoms. I used to have a ton of alternating C&D. Then, when I went gluten-free, that went away. Yesterday I hit a huge wall of being fatigued...my body gets like a deadweight...this is occassionally. If I know I've been glutened I will get dizzy and right eye twitches and just not feel right. BUT....all of this resolves generally EXCEPT for the mouth.

I am not anemic. Never been check for PA. I do switch toothbrushes frequently. I do not drink soda...except for when I drink, which is about once every other week and consists of Vodka/Sprite.

I do not have sores, itchiness, ect in my throat. Well, my throat has been burning for the past few days, but I overall feel crappy. I actually had my tonsils removed about 3 years ago. I had them removed because I had chronic tonsillitis...so them and my adenoids came out. It was shortly after they came out that the tongue/mouth thing started happening. This is not from an STI...no oral sex here recently AND there is nothing VISIBLE in my mouth. When I was younger I used to get cracks in the corners of my mouth and more canker sores....that was like in High School and early college.

My tongue does not swell. The Densist said my mouth/tongue looks normal...and that's who first brought it to my attention about the food allergies. Here is a typical day of food for me:

(I don't change it much) If you see any QUESTIONABLE things...let me know!

1. Gluten free apple sausage links from whole foods

2. Tofu

3. Apples w/ cinnamon

4. Starbucks light roast coffee

5. 2 packs splenda

6. Blue Diamond Almond milk vanilla unsweetened

7. tuna

8. lettuce

9. brocolli

10. cauliflower

11. carrots

12. quinoa

13. olive oil

14. flax seed oil

15. pear

16. grilled chicken

17. strawberries

18. brussel sprouts

19. small red beans

20. burts bees chapstick on lips

22. vitamins, which are all gluten-free

I'm seriously going nuts with my mouth. It makes me frustrated and want to cry.

If anyone else wants to comment...please feel free to chime in!!!

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