• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Medication-gluten Digesting Enzymes
0

9 posts in this topic

:( Has anyone been able to get the pills that are supposed to digest gluten ? I know about it from an article on this celiac.com website that I read about a year ago. Some medical place in the state Maryland was the one that mentioned it , and I'm sure it exists , but no one seems to want us to have it, or else it would have been offered to us all. I think it was brand new when it was mentioned last year. Maybe they have to test it or something. I wouldn't use it all the time like people think -I would use it occasionally when I eat pizza,pretzels,doughnuts,and Christmas bread stuffing,which isn't every every day,more like every two months. AND I wouldn't have to worry abouting eroding my small intestine and such.
0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I believe you're talking about AT-1001, from a company (Alba Therapeutics) started by a U of Md Dr.

It's in testing now.

I was surprised to find that they're measuring its effectiveness with a test for the extent of permeability in leaky-gut.

From what I've read, it's more a treatment for leaky-gut - both repair & prevention I believe - than something more directly related to celiac or gluten, tho I do think leaky-gut is directly related to celiac. Uh-oh, that doesn't make as much sense as I'd hoped it would.

Anyway, it may turn out to be a very helpful drug in recovery from celiac damage, but is probably at least a couple yrs away. I've seen mention of it as a potential "cure", but to me, that's highly misguided.

0

Share this post


Link to post
Share on other sites

A pill to toterate gluten would be a miracle pill. I hope it would be more effective then the lactose enzyme pills that we lactose suffers have to take.

0

Share this post


Link to post
Share on other sites

I don't think that any pill that breaks down gluten is a practical solution to celiac disease. Celiac disease is not like lactose intolerance! If Lactaid does not digest 100% of lactose consumed the worst that will happen is stomach cramps and diarrhea. If the gluten digesting pill does not digest 100% of the gluten, then it will set off an autoimmune response in the body. I very much doubt that any drug company will guarantee you that any enzyme supplement is 100% effective. With all the complications that can arise when a person with celiac disease continues to eat gluten, there's no way I would ever consider giving it to my son, unless he accidentally ate some gluten. (We usually don't even know he's had gluten until the next day, so the pill would still be of little value.)

I just needed to vent! :rolleyes:

0

Share this post


Link to post
Share on other sites
A pill to toterate gluten would be a miracle pill. I hope it would be more effective then the lactose enzyme pills that we lactose suffers have to take.

You may be sensitive to casein and not to lactose, in which case the lactose enzyme pills are not going to help at all. You may need to eliminate casein and not lactose, not easy I know cause I am there right now. There are lots of replacements for cheese and stuff that are lactose free but even a lot of stuff that says dairy free has casien.

As to the enzyme pill, my health food store has a product called something like glutenese digestive enzymes. It states clearly on the bottle that it is not for celaic. I don't take them but my DH does. He eats breakfast out almost every day and while he is knowledgeable about CC issues he does not like to mention the need for seperate cooking etc and just orders his eggs off the grill. He was getting CC constantly which effects him more neurologically than GI wise. He does not take it to be able to eat gluten but he does seem to be much less 'twitchy' from CC lately. He is on his second bottle and normally has to be really pushed to even take a vitamin so he must be noticing some difference himself.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Jenny.....couldn't agree with you more! I highly doubt a pill will ever come about for celiac disease because it would have to stop the autoimmune reaction and doctor's just haven't even come close to conquering that monster. Look at the treatment and vaccines for AIDS....they have made strides but the bottom line is the immune system can adapt to meds they try and they are never completely effective.

I sometimes cannot understand why, aside from the money aspect of it, people have such a hard time with going and staying gluten-free. There is just so much good food out there that can replace whatever you crave. I don't know about anyone else but even if there was a complete cure, the thought of eating fast food or a donut makes me want to barf. I was way too sick to ever want to eat that crappy food again! I can't even stand the smell of fast food.

0

Share this post


Link to post
Share on other sites

I know this is an older thread, but I thought I might add my 2 cents...

I used to work with a little girl who was autistic, and her parents had her on a gluten-free casein-free diet, and I could definately see the difference in her when she was completely gluten-casein-free as opposed to when she ate anything with gluten or casein.

Her mom would buy an enzyme from http://www.houstonni.com/ that she would have before having any gluten or casein - such as when they ordered pizza and or went out to eat. She would keep as much gluten or casein out of her diet as possible, but these enzymes helped.

They didn't cure her, but I remember it helping.

I also found this site http://www.enzymestuff.com/dietsgfcf.htm

Which seemed to have some pretty interesting information about studies and stuff.

Then this site: http://www.enzymestuff.com/probiotics.htm#2

Which described the enzymes and probiotics.

I remember writing down the name of the exact enzyme she used, it's just a matter of finding that little piece of paper...

0

Share this post


Link to post
Share on other sites
:( Has anyone been able to get the pills that are supposed to digest gluten ? I know about it from an article on this celiac.com website that I read about a year ago. Some medical place in the state Maryland was the one that mentioned it , and I'm sure it exists , but no one seems to want us to have it, or else it would have been offered to us all. I think it was brand new when it was mentioned last year. Maybe they have to test it or something. I wouldn't use it all the time like people think -I would use it occasionally when I eat pizza,pretzels,doughnuts,and Christmas bread stuffing,which isn't every every day,more like every two months. AND I wouldn't have to worry abouting eroding my small intestine and such.

Candy, from what I've read, it seems as though that pill is supposed to avoid reactions to cross-contamination; it's not a license to eat poison, not even every two months!

Unfortunately for us, there are studies that show that even eating a crumb a month is enough to cause visible villi damage in celiacs. :( That means that every time you cheat, you are triggering your immune system to destroy part of your body.

You can MAKE gluten-free pizza, doughnuts, and Christmas bread stuffing EASILY, and if you use the right recipes, it really does taste as good as the gluteny stuff. And Kinninkinnick makes gluten-free pretzels that taste exactly like--pretzels, and I have to fight my gluten-eating husband for them. Come to think of it, Kinnikinnick also makes really good chocolate doughnuts, too. :)

0

Share this post


Link to post
Share on other sites

From what I know and read about these new discovery, Zonulin, which is still in Human Clinicial Trials, is that it's going to work on the molecular level; it won't work like lactose pills. It's supposed to stop a "t" cell response (or something like that).

http://www.celiac.com/articles/64/1/Protei...ease/Page1.html

http://www.albatherapeutics.com/

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,433
    • Total Posts
      930,545
  • Member Statistics

    • Total Members
      63,864
    • Most Online
      3,093

    Newest Member
    Shanna
    Joined
  • Popular Now

  • Topics

  • Posts

    • I've been seeing my dr for a few weeks now about my stomach issues. We've ruled out the gallbladder and h-pylori and today I had the celiac blood tests done. From the reading I've done the past two days, it seems to me that it's highly likely that I have it. I've had digestive issues for years, but they've gotten progressively worse over the past 6 months or so. Pain and nausea when eating, bloat, eternal constipation, dh rash, at it's worse, tight cramp-like pain in a fist under my sternum, radiating through my back and around my right side keeping me up at night. Also heartburn/reflux and trouble swallowing, etc. 

      Anyway, about 2 months ago, I needed a change. I didn't go to the dr immediately because it seemed pointless. (I've mentioned stomach ache when eating to drs before and been blown off.) So, I started the Whole30 elimination diet (takes out soy, grains, dairy, peanuts, and leaves you basically eating meat & veggies). Figured it would show me what I needed to take out of my diet and hopefully feel better. It worked- I felt great! And it seems that grains and gluten are my biggest offenders. But, now I've been off gluten prior to celiac testing. It's been 7 weeks. After 4 weeks I tested steal cut oats, that I later found out were probably glutened. And then nothing until yesterday. Yesterday I had 2 pieces of bread and a muffin and today I had two pieces of bread and then the blood test. Is this going to be enough to show up on the tests? My dr said that it would probably show up, since I had some yesterday and today and was currently having symptoms. But, google seems to say that I should be glutened for 2 wks straight before testing. Has anyone tested positive after just a little gluten? If it's negative should I insist on doing it again after weeks back on gluten? I feel awful, but do want clear answers. Obviously, gluten's not going to be a part of my life any more either way. 
    • So just to clarify  had not consumed any gluten for about 4 days before testing. I was assured by my allergist that it wouldn't affect the test. But what was alarming was that she retested my food allergies (my most recent reaction was two weeks ago) and every food allergy I have came back negative. I don't understand how that is possible. These food allergies developed when I was 20 and I am almost 24 now.
    • Thanks! You too! I have learned from this experience to take charge of my own health. It's nice at least that we can try the gluten-free treatment without a firm diagnosis or a doctor confirming the disease. I've also felt some of the gluten withdrawal symptoms, and my stomach pain ebbs and flows, but I'm determined to stick with the gluten-free diet to see what a difference it makes. Gemini, thank you! This was really validating and useful for me to hear. I've felt so confused through this process and just want some answers. If the biopsy results do come back negative, I'm going to follow your advice and do the gluten-free diet with repeat blood testing after a while. If they come back positive, well, then I'll have my answer. I'm supposed to get them back next week.
    • I have celiac and eosinaphalic esophagitis.  I was put on a steroid inhaler recently.  I use it like an inhaler but swallow the air instead of breathing it in.  You may want to look into EOE and it's relationship to celiac.  Just a thought. My swallowing and celiac seem to be related.
    • You have eat gluten every single day until after testing. And the celiac blood test is supposed to be done as well.  
  • Upcoming Events