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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Enterolab Results
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6 posts in this topic

It has come to my attention that the wording on the results that Enterolab sends via email can say gluten sensitivity or gluten intolerance or celiac disease. Mine says sensitivity, which, from an ariticle I read free when I went to research the "Living Without" magazine, is the lowest of ways you can have this. What did your results say and how do you interpret all of this? They also say that I have a milk sensitivity/not intolerance. What I do know FOR SURE, though, is that now that I do not eat gluten or milk is that I no longer have tummy tenderness, bloating, rumbling and as of just lately no constipation/diarreah. I would be interested to see what others are getting as reulsts from Enterolab and how they interpret them. How does York state their results?

Barbara

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All 4 of us in my family have tested gluten sensitive and casein sensitive with the Enteorlab tests.

The Enterolabs do not tell you if you have Celiac Disease. They define all positive results as Gluten Sensitivity. In a paper I read by Dr. Fine he states that to him a sensitivity and an intolerance are the same thing. Conventional medicine has decided the only concrete way to diagnose Celiac is by biopsy of the small intestine, and obviously his tests don't do that. The gene tests they do can only tell you if you have the genes that pre-dispose you to the disease. So for our own use, a positive result with Enterolab means that you need the gluten-free diet. Whether or not you call your self Celiac, gluten intolerant, or gluten sensitive is up to you. They are all basically the same. Your body cannot digest gluten properly, so you shouldn't eat it.

Now the milk sensitivity issue is one that is a bit touchy with me and my kids. We miss certain dairy products and although we can live without them, we hope to be able to have them in the future. Dr. Fine says it is not a good idea to go back on them, my kids pediatric GI says they should eventually be able to tolerate dairy again. But then most GIs only accept an intolerance to lactose and that has been proven that you can outgrow that intolerance. I don't know how many studies have been done on casein intolerance. So we are hoping in the future to tolerate dairy, but we know it is not a guarantee...

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Ok, they all mean you can't digest gluten well, but does that mean that all levels of sensitivity will cause villi disruption or is that just celiac. That is why I'm kind of confused but because I find this diet really hard to follow. Thank you.

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Celiac will cause villi damage and I think that gluten/wheat sensitivity just causes symptoms and not villi damage.

I guess with enterolab, the closest you could get to diagnosing celiac disease would be a positive gene test AND a positive gluten sensitivity test. The only way you can be sure is a by having a positive biopsy.

Celaic or not, your body obviously has an issue with gluten so I'd stay away!

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Hi,

I am planning on testing with Enterolab. I have a problem with Gluten

and Dairy. I just saw my GI Doc and we went round and round on these

issues on Monday. He said I could not be casein (dairy) intolerant because

it would have shown up as a baby. He told me to take the Lactaid tablets

but I won't do it because I still get gassy and have numerous BM all day

and all nite, not diarrhea. I asked him to order the ELISA or York

test but he refused, he doesn't like them. He said if I wanted them to

go to an allergist, which I won't do but that's a whole other story.

Then we got onto the discussion of Gluten. Because I don't have the

Celiac gene or damage to the villi he thinks that most of my symptoms

started after a stressful time in my life. He said he just diagnosed an

80 year old woman who had just lost her husband. He said stress triggers it.

My IGA was elevated but has come down and symptoms are less intense.

Right now he thinks my Insomnia is from low serotonin levels which

I sort of agree with because I just had a migraine about a week ago,

the first in over a year. He started me on Lexapro, small dose to get

my levels up, and in 2 weeks I am to eat gluten again and see what

happens.

I want to believe this man, he has good credentials and is a professor

at the University of Pittsburgh. He has diagnosed 250 celiacs in

the last 2 years.Would appreciate your thoughts on this. I am going to

stay gluten-free whether he likes it or not. Thats why I want to do the Enterolab

test.

I want to believe this man because he was the only one of many who

even thought of testing me for Celiac and put me on a course of

Amitryptiline for a year. He said Lexapro won't cause the weight

gain, I have lost 23 pounds but need to lose more. I myself will

probably stay gluten-free, although I will do the test, and I want to prove

to him that I am sensitive to casein and gluten, which is why I

want to do Enterolab. i

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sorry my last post got messed up, I tried to fix it but I can't.

celiac3270, if you are out there can you help?....judy

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    • Well I took test for deficiencies today won't get the results till Tuesday then I can go from there.. road to recovery 
    • Ask them for a copy of your results and find a good gastroenterologist in your area. Go there and give them the results. That's what I did. I didn't even bother with my GP. I got the results from the health fair and called a GI in Denver. My insurance didn't require a referral. My GI was the one who put me on the track to being accurately diagnosed. And regardless, you need to be hooked up with a good GI if you've got Celiac so that they can follow you. 
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    • I work out regularly and I would say NO to working out if you have been glutened or are really tired.  You know what happens to people who work out when they are really fatigued?  They suffer injuries.  I was not well enough to work out until I had been gluten free for 4 years but I am much older than you so I doubt it will take 4 years for you.  Drop the work-outs for now and just go for walks outside when you feel better. The fatigue has to be better before you try to do gym work.  I know you didn't want to hear that but I don't want you to end up injured, on top of everything else. Take care of yourself for now and let yourself heal! 
    • They say you should not work out if your sick or dealing with such issues. I on the other hand do the opposite I will work out even if running a fever, I feel lost if I do not, and the endorphins help me feel fullfilled and relaxed......I have a few other issues as well >.> sitting still causes me to have mini panic attacks. I actually have to be on a stationary bike while on the computer lol. I swear it originates from being stuck in bed for days in the past unable to move, I fear being stuck unable to move my body like it used to sometimes. Got to admit the scariest thing in life is when your own body does not do what you want it to and it turns on you. As for steps, etc....I personally do about 24-30k steps a day or 11-14miles, Most of it pacing lol, anyway everyone is different so I can not tell you what to do just my own exp. Make sure you eat plenty, drink plenty of water and tea, and supplement anything your body might need. I eat constantly throughout the day to keep me going and enough protein and fats that it seems like a body building diet. Be careful and do not push yourself too hard, if you start feeling dizzy, tired or odd lay down for 15-20mins for a power nap. I do this twice a day at least just out of habit.
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