• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Enterolab Accuracy
0

6 posts in this topic

Does anyone know how accurate Enterolab results are? I see everyone on here talk pretty highly about them, but I am concerned that everyone seems to test positive. Does everyone with stomach problems test positive because our bodies are reacting to something we eat or is it truly a gluten reaction? I am skeptical about everything not just this. I was about to place my order for the test and thought I'd see if anyone knew how accurate the test is. Also, which test(s) should I order?

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I had the whole test panel ordered for my family. If you want to save money just get the gene test and try the diet. If you want something on paper (email) then order the full panel (I think it's $250-$350). I forget the exact amount. It includes the gene test.

I think they are pretty accurate as far as your body's responses. If you have underlying problems causing the intolerances it wouldn't tell you that. (ie, metals, fungal issues, lyme etc)

My family's intolerances are more than likely due to metals. We all have celiac genes so we will in no way be going back to a gluten diet.

0

Share this post


Link to post
Share on other sites

There have been people here who have posted negative results, and your question about this has been asked before here on the forum. You might do a search and see.

I think it is pretty reliable after looking up Dr. Fine's background and record, and reading another poster's comments who works in a laboratory and looked over the whole thing. I think it is important to realize that they pick up sensitivity to gluten and other things they test for, but don't diagnose the cause (such as celiac).

This is the test I had, and I am still on the recovery process, but I think it is proving true.

0

Share this post


Link to post
Share on other sites
Does anyone know how accurate Enterolab results are?

Well....it's only anecdotal evidence, but in our case, they seemed to be accurate. Everything the tests "said" was supported by what we saw IRL. My dd was getting very sick, with horrible reflux, gas, bloating, D, decreased energy, pallor, dark circles under her eyes. Her pedi wasn't taking it all that seriously....just wanted to put her on meds for the reflux. On the suggestion of a friend, whose child has celiac disease, we eliminated gluten from her diet. She started to improve immediately. A week later (on suggestion of the same friend) I sent for the Enterolab test. Before the results even came back, we figured out that she was having problems with dairy and eliminated that from her diet as well. Then the results came back positive across the board - she's intolerant of gluten/casein, had an elevated fecal tTg and high fecal fat. Those results only supported what we were seeing with our own eyes.

Later, my ds and I were tested also. I never had major symptoms - lots of vague ones - and my ds's symptoms were all neurological. We both tested positive as well (though not with numbers as high as my dd's.) Both of us are doing so much better off the gluten (and off the casein for me) that it's made a believer out of me. When I get accidentally glutened, I have awful stomach pains, head fog, irratability and C that lasts for several days. As I said before - the Enterolab results bear out what we're seeing and living IRL. That's my only "proof" that the Enterolab tests are accurate.

Rho

0

Share this post


Link to post
Share on other sites

This is what Dr. Fine has written:

https://www.enterolab.com/StaticPages/EarlyDiagnosis.htm

We keep hoping he will publish. Perhaps he is doing long term followup on his patients, is busy, or is dealing with medical journals that have difficulty publishing things that aren't in the regular medical paradigm. (For instance, I just learned about the difficulty getting published that was experienced by the researchers who found that mammograms didn't affect mortality. No one in the US would publish it. So they went to the Lancet finally, which had no problem with the study.)

There are people who test negative. I think we hear more about those who test positive because they are the ones that continue on posting on this board B)

The fact is, you have to look at your alternatives. Blood testing has a rather significant rate of false negatives, plus you have to have been eating gluten for some time for them to be meaningful.

People report here having positive test results, avoiding gluten, and feeling better. I'm another one in that category. Would I prefer to have a diagnosis based upon a test supported by peer-reviewed and replicated research? Yes. But I also want to be well and have to take what is out there now. Given my genes, many doctors would say that I can't have a problem with gluten to begin with, but my body begs to differ.

0

Share this post


Link to post
Share on other sites
Ads by Google:


I had my doubts about the test and the low scores I received but the improvements in my life after finding all my food intolerances has been dramatic. Gluten being the most severe.

I believe elimination of gluten for at least 4 weeks will confirm Enterolab results.

The person who mentored me is the President of the Montana Celiac society; she told me that the diet would be the best test.

I needed more so I did Enterolab and waited seven weeks to start the diet until I got the results back; in retrospect I suffered needlessly and should have started the diet immediately after sending in my test. I went through 8 days of withdrawal and on the 9th day started feeling better.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,435
    • Total Posts
      930,559
  • Member Statistics

    • Total Members
      63,867
    • Most Online
      3,093

    Newest Member
    vprovenzatn
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thank you for posting this I've never been to South America, it's the only continent, bar the poles, I've yet to visit. It's really nice to read that my gluten sensitivity hasn't ruled it out. Maybe I'll get to the land of Luis Suarez yet!
    • I know this post is a year ago... however it is still on the first page of the travel section!  I am from Uruguay, (South America) and I can answer this question for people that may look at it in the future. As a South American -  I can say that the cuisine varies greatly.  In cities, you shouldn't have any more than the normal amount of difficulty finding food.  For example, in Montevideo, the city I am from, you'll have no problem finding dedicated entire Celiac stores.  Meat is a large part of restaurant menus, so parilladas (similar in theory to steakhouses, would be very easy to navigate).  Uruguayans do eat a lot of pastries, and just like in the states... Most mainstream bakeries are not gluten free, but like I mentioned there are places that specialize.  In Uruguay, there is knowledge of Celiac and a large health awareness.  Some of the foods can be costly, cost of living in general is not low. In large swaths of South America, the foods you mentioned - Potatoes, rice, meat, etc are abundant, as are fresh fruits and veggies.  Avoiding corn does make it tricky.  Peru can be a great place for non-gluten eaters. Peru uses very little gluten (they are the original quinoa eaters) but there is a lot of corn in the diet (and since you are corn sensitive, that would be a food you would need to navigate). Latin America spread over two continents! In this area you will find a great variety in cultures, cuisines, and knowledge of celiac.  There is no reason why If you want to experience Latin America, that you have to rule out an entire region of the world because of Celiac.  Navigating it will be different, but it is doable!
    • Recently diagnosed last week does the pain ever get better??
    • George, i am sorry that you are not feeling well!  ☹️  I am not a doctor, but just trying out drugs to stop your symptoms just seems like a band aid  approach.  It sounds like he suspects IBS which is really, in my opinion, "I be stumped".  Has inflammatory bowel disorder (IBD) (more lovely autoimmune disorders) been ruled out?  This includes both Crohn's and Colitis.  My niece was diagnosed with Crohn's finally with a pill camera after all other tests were given.  The damage was not within reach of any scope.  I am just throwing out suggestions.  Hopefully, you and your doctor will figure it out soon!  
    • Celiac disease is an autoimmune disease that happens to have a known trigger -- gluten.  Flare-ups develop  (antibodies) causing damage. Not just in the small intestine, but systemically.  One gluten exposure can cause antibodies to increase for days or months!   Antibodies are being measured during the celiac blood tests.   If there is no gluten exposure, there will be no antibodies.  These antibodies can come down in some people in as little as two weeks.  Recommendations require gluten 2 to 4 weeks daily for the biopsies taken via endoscopy in order to be sure to catch damage, but 8 to 12 weeks for the blood tests.   The endoscopy is considered the "gold standard" in helping to diagnose celiac disease, but there are other things that can damage the small intestine.  So, the blood test helps solidify the diagnosis.   So, if you want a good result on your endoscopy, you need to be eating gluten daily for two week prior at a minimum.  I know it is tough and you are feeling sick.  Wish there was a better way to catch active celiac disease.    
  • Upcoming Events