• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

I Need To Vent
0

Rate this topic

3 posts in this topic

Recommended Posts

I am so angry right now. It seems like the harder I try to stay gluten-free the more I fail. This afternoon i went and got a salad from Subway and then went and bought salad dressing with ingredients that I could actually read, you know all natural stuff. So I am sitting here eating my yummy salad and right when i am done, I read the ingredients again and there is SOY SAUCE in it. How dumb can I be.

I go to all the trouble to tryand eat gluten-free then I fall flat on my face. It is so frustrating.

Then the other night (this one is my fault) I cooked a healthy fish dinner with some good veggies while my husband had some crossiants. When he was cleaning and I was feeding the leftover bread to the dogs, I snuck a piece (it could not have even been a quarter of the whole roll) Then of course 30 minutes later I was sick.

Maybe I should think of that one as a good thing, because I will never cheat like that again, and if I was that sensitive then maybe it because my body is adjusting to a gluten-free lifestyle.

Thanks for reading, I just needed to vent.

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


On top of all that I'd advise you not to eat anything at all at Subway. Too much cross contamination.

richard

Share this post


Link to post
Share on other sites

Anything you don't prepare yourself from scratch from known-to-be gluten-free items runs the risk of getting you sick. That's not to say that's your ONLY choice, but remember it's a choice. There's a risk associate with choosing items someone else has control over, but life is a set of calculated risks anyway. Try not to be angry at yourself; we can't know with 100% certainty the outcome of our choices. Just take it as a learning lesson. (I've been gluten-free nearly one and a half years, and still miss "soy sauce" in things before I buy them, on occasion.)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,112
    • Total Posts
      939,731
  • Member Statistics

    • Total Members
      66,097
    • Most Online
      3,093

    Newest Member
    GlutenMama
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hello and welcome You've found a good site for advice and support.  Google suggests there is a link between EoE and Celiac, but at the moment that seems to be as much as anyone knows: https://www.emaxhealth.com/12410/celiac-disease-increases-risk-eosinophilic-esophagitis https://bmcgastroenterol.biomedcentral.com/articles/10.1186/1471-230X-13-96 Although it's not true that having one means you have the other.  You may want to read this thread for the experiences and ideas of others here who have experienced Burning Mouth Syndrome: https://www.celiac.com/gluten-free/topic/106704-burning-sensation-in-mouth/ There were lots more gluten and BMS articles, so if a direct link hasn't been made, there's food for thought there along with some interesting thoughts on B and Iron deficiencies and possible additional food intolerances. No please don't. If the biopsy is inconclusive they may want a second one or further blood tests (you don't mention if they already did these?). Once you eliminate gluten from your diet these tests are inaccurate. That's not to say you shouldn't trial the diet, just make sure with your doctor you only do so once tests are complete. I'd add that even if you test negative you have nothing to lose from trialling a gluten free diet and as someone who did test negative I highly recommend you do, but only once testing is done! In the meantime, start a food diary. Log what you eat, when, and how you feel. Just short notes but make it a habit and try to capture everything you put in your mouth.  Build a record that you can use to find patterns. Maybe a trigger for the BMS will become apparent over time. Best of luck    
    • Funny you should ask about Lectins because I am currently recovering from a recent run in with some pinto beans.  After reading soaking longer than overnight helps break down those Lectins, I soaked them for twenty-four hours  Then I cooked the spots off them!  And still, they have wreaked havoc in my tummy.  Ugh!   So while recuperating, I did some research.  While cooking can break down some of the lectins, the only way to get rid of them completely is to cook them in a pressure cooker.  I was surprised to find that Lectins are histamine releasers!  Lectins make Mast cells release all their histamine.  Aha!   The red wine and balsamic vinegars and the bottled lemon juice are all high in Sulfites.  Sulfites are histamine releasers, too.  Apple cider vinegar is lower in Sulfites.   Lectins stimulate the autoimmune system: https://www.ncbi.nlm.nih.gov/pubmed/25599185 More on Lectins and autoimmune diseases: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1115436/ And for Enis' affinity for chocolate nibs...(as well as my own)... Chocolate is a source of copper.  Copper deficiency causes neuropathy.   My neuropathy has gotten worse recently and my chocolate cravings have increased.  Hmmmm...... https://www.ncbi.nlm.nih.gov/pubmed/19901719 More info on copper http://lpi.oregonstate.edu/mic/minerals/copper So...I'm wondering if I've neglected taking copper along with my calcium and magnesium.  I'm starting supplementing this week. Is copper in any of your protein powders, Enis?   I hope this helps.
    • I have neuropathy. Mine is worse with cold. My hands and toes get so bad I cry. I don't know what to do to make it better but just wanted you to know you aren't alone. I hate feeling alone with this disease.
    • Just recently found this article about a woman suffering from neuropathy which was caused by copper deficiency caused by Celiac Disease. https://www.ncbi.nlm.nih.gov/pubmed/19901719 Copper deficiency myeloneuropathy due to occult celiac disease. "...the authors suggest that some cases of ataxia associated with celiac disease are likely due to copper deficiency myeloneuropathy."
    • Celiacs and others with gluten sensitivities and allergies can get an abundance of information at the fifth annual Central PA Gluten Free Expo in State ... View the full article
  • Upcoming Events