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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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LoriC

Legs And Feet Hurt So Bad

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My legs and feet have hurt me since late June..i was diagnosed with DH in late August..everytime i tell my doctors my feet and legs ache me so bad..they said either i'm getting old or eat a banana a day..I'm getting a little tired of hearing the "old" thing, i don't think this is normal, i mean its hard for me to get out of bed in the morning thats how bad they hurt and my veins stick out really bad, no discoloring or swelling. Anyone else have this problem? could it be related to being glutened? Thanks, Lori

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This could be PAD parifarial artery desiese. My spelling is bad sorry. Google it and see if your symptoms match.

Yellow Rose

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My legs and feet have hurt me since late June..i was diagnosed with DH in late August..everytime i tell my doctors my feet and legs ache me so bad..they said either i'm getting old or eat a banana a day..I'm getting a little tired of hearing the "old" thing, i don't think this is normal, i mean its hard for me to get out of bed in the morning thats how bad they hurt and my veins stick out really bad, no discoloring or swelling. Anyone else have this problem? could it be related to being glutened? Thanks, Lori

Yep. For me leg pain and balance issues were along with DH were a primary presenting symptom. The pain was excrutiating at times and I was young so they told my Mom it was growing pains. I also lost my reflexes about this time which remained absent until 40 years later when I had been gluten-free for about 3 years. One of the things that will help until you heal a bit more from the gluten will be sublingual B12. When I get glutened now it is not as painful but it still feels like my legs are made of lead and weigh about 50 lbs apiece. Sometimes a nice hot bath and a couple of baby asprin, I take St. Josephs baby chewables, will help to relieve the discomfort.

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I have a lot of problems with something like restless leg syndrome, but it affects my arms, too. I have found that alcohol severely aggitates this. Just something else to consider that could possibly help.

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I have the same problem as offthegrid. Legs and arms. Not so much restless leg syndrome for me, but really bad muscle fatigue with activity. Seems to get worse as the day goes on and the only thing that seem to make it go away are hot baths and lots of resting (laying down).

It's not B12 or iron deficiency, my thyroid is fine, so ???

Anyone have any experience with Myasthenia Gravis? I read that it can be more common in people with celiac disease.

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I have the same problem as offthegrid. Legs and arms. Not so much restless leg syndrome for me, but really bad muscle fatigue with activity. Seems to get worse as the day goes on and the only thing that seem to make it go away are hot baths and lots of resting (laying down).

It's not B12 or iron deficiency, my thyroid is fine, so ???

Anyone have any experience with Myasthenia Gravis? I read that it can be more common in people with celiac disease.

I too have this bad muscle fatigue. We have stairs, my bedroom and the laundry are in the basement! We also have puppies right now so up and down, up and down etc.

The muscle fatigue drives me nuts, my family just looks at me. Last night I just sat down, I was so done. I used to think I was wonder woman and could do it all, mentally I still like to think that but I know it isn't so.

I am so glad you all posted about this, between feeling like I am starving and the fatigue I thought I was having some other issues. It is great to know what it is, now just waiting for it all to heal.

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I too struggled with this until my internal med dr checked my vitamin D levels (all of them) and my vitamin C level. Both were dangerously low. I was prescribed 50000 units of D3 for 8 weeks. and 2000 of C. Felt much better. Now I know when I start getting the same feeling in my legs and arms to up my vitamin D and C. Especially now that it is winter and its harder to get in the sun. I also had very low thiamin levels (formally known as B1). I took 100mg for 8 weeks and now only have to take 15 to 25 mg a day to keep the levels up. Hope this helps. :)

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