• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

New Diagnosis Of Celiac Disease, Just Out Of Hosp.
0

5 posts in this topic

Hello,

My name is Cindy. I just got out of the hospital on Tuesday. I was diagnosed with Celiac disease after a biopsy revealed why my body was going growing crazy.

I have lost a ton of weight and have been having problems keeping food "in". This after just two months ago I had a partial thyroidectomy due to a neoplasm and thyroiditis.

I'm wondering if there is a relationship between the two problems.

Regardless, I am grateful we've found out about the wheat allergy, and I'm ready to be wheat free.

I'd appreciate any suggestions on food recipes. There is an alarming amount of "flour" choices. I live in a very rural part of Kansas and specialty items need to be ordered on-line. Advice on steering clear of the pitfalls would be very, very welcome.

I was in the hospital for 5 days, but I am still tired and my stomach is still not very happy. It probably didn't help that for breakfast I was given cream of wheat (they though it was cream of rice!) and then the rice crispies were not gluten free....ugh... :o) Live and Learn!!!

Somedays, I wonder (as do my family and friends) if I'm EVER going to feel better.

Thanks for listening, and thank you for your help.

Cindy

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Cindy,

Congratulations on your diagnosis! Hopefully this will finally be a turning point for you and you will begin to feel better. I can definitely empathize with you on always seeming to feel ill- out of the 18 years of my life, I've been so ill with what the've always called "Irritable Bowel Syndrome" that I can't even remember a time in my life when I wasn't always feeling ill. After numerous doctors, an 8 day stay in the hospital, 4 endoscopies, a colonoscopy, removal of my gallbladder, and another two years of waiting, they FINALLY diagnosed gluten intolerance. After just two weeks on the diet, I already feel as though I've found the part of me that has been missing for the past 13 years.

To address your question...I've found a few sites with recipes, as well as some very good books, and a couple of online stores that may be of help to you...

Savory Plate- Recipes

Gluten Free Pantry- Online Shopping

Gluten Solutions- More Online Shopping

Excellent list of Gluten Free items

Live Journal Community dedicated to sharing recipes and information about Celiac

Gluten Free Recipe Book Found @ Borders.com

I hope this helps! Good luck!

0

Share this post


Link to post
Share on other sites

Deb,

WOW!!! Thank you so much for the links. I'm off to surf on them!

Is it common for celiacs to have to have their gallbladders removed? Mine was removed 2 years ago....

Thank you again for the well wishes and information!

Cindy

0

Share this post


Link to post
Share on other sites

Hi Cindy,

Yes, it is common for Celiacs to have gallbladder disease and have their gallbladders removed. Soem doctors, if they find the celiac disease before they diagnose gallbladder disease, will wait a while before removing it to see if the gluten-free diet will help the gallbladder fix itself. Unfortunately for most of us, the gallbladder was removed before they found the celiac disease. Mine was removed 4 1/2 years ago, and I found out about Celiac about 2 1/2 years ago, finally diagnosed Nov. 2003 by Enterolab and a biopsy was just done last month. I wonder if I would have been able to keep my gallbladder if they had found the celiac disease earlier, since I have had symptoms for over 25 years...

Hi Deb,

Thanks for the great links. It is the most I've seen in one place for getting food ideas. I have only been gluten free (for good this time!) for 18 days. I am very knowledgable about the disease, but very new to the diet. The links are very helpful.

Mariann :)

0

Share this post


Link to post
Share on other sites

Glad the links were helpful...I have no idea what I would do if it weren't for the internet. I never would have gotten diagnosed, that's for certain. I'm not sure how common it is for Celiacs to have their gallbladders removed--now that I've tested positive for gluten intolerance, I can't help but wonder if it didn't have something to do with it. I've only been gluten free for two weeks and even then only truly gluten free for a week or so--it's darn near impossible to stick to this diet unless you do specialty shopping, I tried--but I've already felt an amazing change.

I will continue to peruse and will let you know if I find anything else.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,433
    • Total Posts
      930,545
  • Member Statistics

    • Total Members
      63,864
    • Most Online
      3,093

    Newest Member
    Shanna
    Joined
  • Popular Now

  • Topics

  • Posts

    • I've been seeing my dr for a few weeks now about my stomach issues. We've ruled out the gallbladder and h-pylori and today I had the celiac blood tests done. From the reading I've done the past two days, it seems to me that it's highly likely that I have it. I've had digestive issues for years, but they've gotten progressively worse over the past 6 months or so. Pain and nausea when eating, bloat, eternal constipation, dh rash, at it's worse, tight cramp-like pain in a fist under my sternum, radiating through my back and around my right side keeping me up at night. Also heartburn/reflux and trouble swallowing, etc. 

      Anyway, about 2 months ago, I needed a change. I didn't go to the dr immediately because it seemed pointless. (I've mentioned stomach ache when eating to drs before and been blown off.) So, I started the Whole30 elimination diet (takes out soy, grains, dairy, peanuts, and leaves you basically eating meat & veggies). Figured it would show me what I needed to take out of my diet and hopefully feel better. It worked- I felt great! And it seems that grains and gluten are my biggest offenders. But, now I've been off gluten prior to celiac testing. It's been 7 weeks. After 4 weeks I tested steal cut oats, that I later found out were probably glutened. And then nothing until yesterday. Yesterday I had 2 pieces of bread and a muffin and today I had two pieces of bread and then the blood test. Is this going to be enough to show up on the tests? My dr said that it would probably show up, since I had some yesterday and today and was currently having symptoms. But, google seems to say that I should be glutened for 2 wks straight before testing. Has anyone tested positive after just a little gluten? If it's negative should I insist on doing it again after weeks back on gluten? I feel awful, but do want clear answers. Obviously, gluten's not going to be a part of my life any more either way. 
    • So just to clarify  had not consumed any gluten for about 4 days before testing. I was assured by my allergist that it wouldn't affect the test. But what was alarming was that she retested my food allergies (my most recent reaction was two weeks ago) and every food allergy I have came back negative. I don't understand how that is possible. These food allergies developed when I was 20 and I am almost 24 now.
    • Thanks! You too! I have learned from this experience to take charge of my own health. It's nice at least that we can try the gluten-free treatment without a firm diagnosis or a doctor confirming the disease. I've also felt some of the gluten withdrawal symptoms, and my stomach pain ebbs and flows, but I'm determined to stick with the gluten-free diet to see what a difference it makes. Gemini, thank you! This was really validating and useful for me to hear. I've felt so confused through this process and just want some answers. If the biopsy results do come back negative, I'm going to follow your advice and do the gluten-free diet with repeat blood testing after a while. If they come back positive, well, then I'll have my answer. I'm supposed to get them back next week.
    • I have celiac and eosinaphalic esophagitis.  I was put on a steroid inhaler recently.  I use it like an inhaler but swallow the air instead of breathing it in.  You may want to look into EOE and it's relationship to celiac.  Just a thought. My swallowing and celiac seem to be related.
    • You have eat gluten every single day until after testing. And the celiac blood test is supposed to be done as well.  
  • Upcoming Events