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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Day 1 No Gluten
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63 posts in this topic

That's good new Tom I really like those nuts, I was hoping to be able to still eat them and was disapointed when I thought I coudn't. I don't have a bag in front of me but the other ingrediants looked pretty basic and gluten-free.

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It's possible there's a different temporary problem w/ the honey-roasted. It is a lot of sugar, and it seems possible to me that w/ the diet changing suddenly and the villi finally not being bombarded by more poison, the whole system is in flux and it should be expected to react differently at different stages of the process.

If i ate them right now i'd get a headache in 10-15 min which would last hrs, and it probably would contribute to nextday intestinal issues (haven't bothered to test - too busy feeling good), tho i still believe i can be fine w/ them in the future. When i started gluten-free, i'd read it could take 6 mos to 2 yrs to fully repair the villi.

And the bone pain does keep going away. Not sure where i mentioned it b4, but of the 5 or 6 worst symptoms for me, the bone pain went away slowest or maybe 2nd slowest to nausea. but the nausea is kinda a diff story cuz it was SO bad right b4 starting gluten-free, 1st it got a LOT better, then continued at a slower pace. The bone pain reduction has been steady.

Today was the day i shot some hoops again for the 1st time in forever. Surprised at how weak the arms were for longer shots, but just moving around, jumping, shooting felt fantastic.

:D

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Hey Tom glad you're feeling better, me Too!!! I feel like a million bucks. My nausea is much much better, bone pain a hair better maybe, my insides feel way better! I'm sleeping about 10 hours a night, real tired, but overall about 50 times better than 9 days ago. I feel like I'm waking up from a nightmare. I think I might have a peanut allergy, had just a little peanut butter last night and it did not sit great, leaving peanuts alone for a while. I had a couple migrane episodes after eating the nuts over next 2 days (or the cheese which I am also avioding). Lots of rice and beans, I'm getting creative with them, lots of olive oil, fresh garlic, onion, tomatoes, cayenne pepper, not bad. My head is clearing up also, I feel my anxiety going away and I'm much more able to have clear thoughts and do things. I realize now how bad I had gotten the last 2 months, I wasn't far from bedridden, it came on so slow I didn't even really see it. I was living 95% of the time between my bed and bathroom for a couple months. There is no doubt the gluten party is over though, I'm getting so much better. Many thanks to all who have helped me get this far.

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:D great mcdougall---so glad you feel so well---but, now that you think you need to stay away from peanuts--you probably should be careful of anything with soy in it--soy is a close relative of peanuts--just be careful--ok--i can have peanuts but have to be very careful with the soy---tuna packed in water often contains soy---read, read, read--keep up the good work------deb :D
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Hi McDougall!!

That sounds wonderful that you have undergone such a change in such a short period of time. You can be pretty guaranteed that you have found the source of your problems. It never ceases to amaze me how doctors continue to have blinders on when it comes to celiac disease. I wish they would wake up and make the connection to celiac when they have patients whose symptoms scream out "CLASSIC CASE OF CELIAC!!!!!" Perhaps in the not too distant future, the medical establishment will finally realize how widespread celiac is.....

You sound like you have made amazing progress... Be very diligent - gluten is hidden in the most unlikely sources.... You are doing a great job though!!!

Have a great day!

Karen

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Ater reading your post I see so many similarities. I'm sure we all do. I am still in the learning stage but would not mind sharing information with you. I see that you are from Pompano Beach. I live in Aventura and do not have a doctor here yet so if you find someone please let me know. I'm originally from NY and have only been here about 2 years...I have yet to find a good GI dr. The dr who find the gluten intolerance is up in NJ....I felw up to see him about a month ago out of desparation. It was right there in one of my old blood tests that I brought along. I am still trying to work out the diet and medications but I have to say that I feel better when I do NOT have gluten. I've also discovered other intolerances.

Email me anytime...

Mel

mela14@bellsouthnet

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Speaking of unlikely sources, it might be good to mention again these: envelope and stamp glue and communion wafers.

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.. .. . just a little peanut butter last night and it did not sit great, leaving peanuts alone for a while.

I ended up finding out the sugar in my former fav peanut butter (skippy superchunk) was giving me trouble, so now i'm putting the all-natural (peanuts, salt) pb on a big fluffy slice of breadmachine gluten-free bread. (yes i said fluffy and i MEANT IT!)

Oh and looking back at last couple months pre-gluten-free makes me think i was just plain crazy to let things get that bad. I'd see those scooter ads for the elderly and feel i'd have to use one by the time i was 44. I still can get emotional just thinking about it.

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:D I'm so pleased you're doing and feeling so well McDougall. Great job!

Maggie

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Do you think it could be the peanut butter?

when I first started on the gluten-free diet (3 weeks ago) I went to a dietician and she wrote down the things that I could have and gave me a book to keep a food diary. It is the BEST thing I am doing. I have found so many food intolerances this way. Peanuts and soy are definate NO-NOs for me. When I look back in my food diary I can clearly see what I ate...the time I ate it..and the emotion I had afterwards. There is no guessing ( as I have done in the past).....maybe it's this...maybe it's that!

Yesterday I started with Almond butter. I didn't use that much because I was afraid but I think it was OK. I'll try it again today.

Still trying to figure it all out but at least I have a direction now!

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What do you do when you crave things you know are bad for you? I really feel like a lamington....

 

easy fix...buy the Patties brand gluten-free Lamingtons in the freezer aisle from Woolworths.  They are surprisingly very nice!

 

Obviously not a super healthy snack, but one is ok to fix a craving.

 

mlspattieslam.jpg

Here are the ingredients:

Patties Lamingtons Ingredients:

Water, Sugar, Strawberry Jam [sugar, Strawberries, Pectin, Citric acid], Dessicated Coconut (8%) [Coconut, Preservative (220-Sulphites)], Rice Flour, Maize starch, 

Margarine [vegetable fats and oils, emulsifiers (322 - Soy, 471), antioxidant (306-Soy), Colours (160b, 100)],

Egg solids, Cocoa (2.5%), Potato starch, Sodium bicarbonate, Fruit fibre, Acidity regulator (450), Thickeners (415, 412), Humectant (420), Emulsifier (471, 475 - Soy), Natural Flavour.

Contains: Egg, Soybean products and added sulphites.

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Hi Simon, Welcome to the forum. 

 

This thread you are replying to is ten years old.  Any information has probably changed since then, so please be aware of that, and also the people from the original discussion may not be around any more.  It is a good idea, especially when using the search function to look up specific things, to take note of the date.

 

I wish I was in Australia, though, because those patties look tasty :)

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Ok Laura, thanks for the heads up - I might do a separate post on these as they super delicious!

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