This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
What if my doctor won't listen to me?
An Open Letter to Skeptical Health Care Practitioners
Where can I buy gluten-free stuff?
Support this site by shopping at The Celiac.com Store.
Some people will always test negative on the blood test, odd and rare but it happens. You also have to be eating gluten on a daily basis for the antibodies to show up for it in the test for at least 12 weeks. You can follow up with a endoscope and biopsy, if your having gut issues this might be a great idea to rule out other issues. I might also suggest a colonoscopy to rule out Ulcerative Colitis or other digestive issues there.
Other thoughts you could have SIBO or NCGS. NCGS can not be diagnosed...heck I was writing up a bit of a summary page for someone else about it might as well make use of the partially filled out notepad here. Forgive any typos or misinformation still working it out for various sources.
1. Acne, Flushed Skin, or Rashes
Non-Celiac Gluten Sensitivity can manifest itself as a chronic skin condition such as a rash, acne, or red/flushedcheeks, but these conditions could also be hormonal. On the other hand Celiac disease also has Dermatitis herpetiformic or DH, which is characterized by rashes and chronically itchy, elbows, knees, buttons, and back.
2. Distended Stomach or Bloating
A distended or bloated stomach applies especially after gluten consumption and is a fairly clear sign of gluten sensitivity. A distended stomach is also characteristic of malnutrition as well of celiac disease.
3. Diarrhea, Gas, or Constipation
These three symptoms can simultaneously occur after eating gluten and may be a sign of intolerance because,especially the former, is a way for the body to expel harmful allergens or other substances. Often, diarrhea(frequent loose or liquid stools) occurs with gas, resulting in a “feeling of a full or tight abdomen” as put by the NFCA. Constipation, essentially the antithesis of diarrhea, is also a symptom of non-celiac gluten sensitivity and is characterized by infrequent, hard, painful bowel movements from lack of physical activity or poor diet,namely a diet high in refined carbs rich in gluten. This can be made worse if one has a magnesium deficiency, does not get though hard fiber, or drink enough water. All of which can be made worse by the feeling of bloat/gas making one feel too full to need to drink or eat high fiber foods.
4. Brain Fog or Migraines
Brain fog is a major characteristic of non-celiac gluten sensitivity. Chronic or debilitating migraines goes hand in hand with the idea of brain fog and results in depression or irritability. These again can be made worse by deficiencies, like B-vitamins.
5. Joint Pain or Numbness in Extremities
Tingling, pain, or numbness in the joints or extremities is abnormal and should be a clear sign of a health problem like gluten intolerance or celiac disease. Colloquially, this tingling is described as “pins and needles” or a limbbeing “asleep.” If this happens frequently for no apparent reason, it could be a sign of gluten intolerance. Again these can help be alleviated and be made worse by deficiencies in Magnesium, B-vitamins
Total elimination of the gluten protein for an extended period of time, say two weeks or a month, is the only true way to identify if these symptoms are linked to gluten intolerance, and even then, it would not be certain. If the protein is eliminated and any of the above symptoms dissipate, then it should be noted that gluten intolerance may be an issue, but be sure to consult a professional for solid proof."
I have a friend who reacts to raw oranges, apples, and bananas. Funny thing is they are fine with cooked foods using them and pasturized orange juice. Some odd food allergy that gets broken down with heat.
SIDE NOTE. I just reintroduced iceberg lettuce, and romaine after not having any in 4 months......I HAVE A NEW INTOLERANCE. even just plain iceberg organic, pieces from the core without chemicals make me horrible sick and vomiting....they used to be fine....WTF?! Oh well spinach is fine and the canned stuff is cheaper and more nutrient dense....but really WTF?! Yeah I tried 2 brands and even the organic one.
I had to research today from last night's reaction. Never thought oj would be a problem. I see from past posts some have had concerns about orange juice . I've joined the club.
Myself and DS are reacting to something in pure premium. Just wanted to share info I found in case one day someone else has this experience. While I can't say it is gluten cc we also are corn and milk free, just know we are having a reaction and we just opened a new pure premium that we both drank from. It is possible I'm sensitive to chemicals the flavors / scent added after processing possible culprit. Sad as oj has the vitamin c good for immune system. Which is disheartening if DS is as sensitive as mom didn't appear to be until now. I'm not sure but felt the need to put this out there for those concerned with labeling and who are sensitive.
Edit: one more link
Maybe today is a coffee day?
first time posting here. After years of feeling chronically exhausted, depressed, irritable, bloated (the list goes on and on...) and with a family history of autoimmune disorders, I finally convinced my doctor to test for Celiac and autoimmune disorders. All my results came back negative.
My celiac results were as follows
TTG IgA <1.2 unit/mL
reference range: <4.0 (negative)
Gliadin IgA (Deam)
< 10.0 units
reference range: < 20.0 units (negative)
Gliadin IgG (Deam)
< 10.0 units
reference range: < 20.0 units (negative)
Should I have my total IgA checked to rule out a false negative? Or is Celiac ruled out since all three tests came back negative?
I don't see my doctor again for another two weeks to go over the results. I was convinced that I would test positive but since I did not, I want to make sure that I know if there is any other tests I should ask my for.