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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Well, I'm reacting to something. Given the timing and the fact that everything else I've eaten recently was at home and has been safe for me before, I think it was from a party Sunday night. I had raw veggies (no, I didn't think to check on whether she used a CC'd knife), nuts from a bowl, and corn chips & salsa. And wine :D

I suppose that people could have had glutened crumbs on their fingers (heaven knows, there was plenty of gluten around) which got transferred to the chips and nuts. But I was curious if it might be the corn chips themselves that contained gluten, or something else I can't have (like casein or soy -- I can't imagine they would have egg).

Boy, this sucks. I was so happy that there was stuff (I thought) I could snack on, as opposed to the last party I went to.

I guess, thinking about it since starting this thread, CC from gluten crumbs from fingers seems more likely, unless someone tells me, "Oh yes, there is this problem with X brand corn chips." No, I don't know the brand used at the party.

I suppose the wine could have had a fining agent (like casein or egg) that I'm reacting to. I've never tried that brand before.

I'm not feeling totally awful, just a little headachy & spacey, and the contents of my intestine suddenly turned into concrete (the clear sign of a glutening in my system). So you don't need to feel bad for me suffering terribly on Christmas or anything B) Just trying to figure all this out.

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I've never encountered gluteny corn chips- I consider those my "safe" foods at parties. However, it is entirely possible that they could have contained soy, either as a preservative or they could have been fried in soybean oil. Same is true of the nuts. And of course, CC's always an issue especially at parties!

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The last time I looked, Tostitos corn chips are made in soybean oil. I've also seen the "may contain traces of . . ." statement on some chips. We also avoid casein and soy in my house and there are only a few types of chips I will buy.

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I definitely react to some corn chips. Mission tortilla chips are the only ones I have been able to eat consistantly without getting sick.

I have had reactions to Fritos and others numerous times. For some reason I have been able to eat lays potato chips with no problems, but the fritios and tortilla chips have caused reactions more times than not.

I carry a bag of Mission chips with me to parties.

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I was going to say soy also...do you have a problem with soy? Unfortunately Tostitos started frying their chips in soybean oil...grrr! They were great before...but not anymore.

Also, it could have been a CC problem.

Mission I believe actually say gluten free on the bag--wait, maybe that's Kirkland brand that says that...can't remember.

Hope you feel better soon!

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Were they Fritos brand corn chips?

Lays products have a CC problem -- they're made on shared lines with gluten-containing products. I was having a gluten problem that I eventually traced to Lays potato chips

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I was going to say soy also...do you have a problem with soy? Unfortunately Tostitos started frying their chips in soybean oil...grrr! They were great before...but not anymore.

Also, it could have been a CC problem.

Mission I believe actually say gluten free on the bag--wait, maybe that's Kirkland brand that says that...can't remember.

Hope you feel better soon!

I didnt know that about tostitoes, ughhh no wonder i had an upset stomach last time i ate them. Im glad once the first of the yr comes im off of chips lol

paula

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Hathor said: " I'm not feeling totally awful, just a little headachy & spacey, and the contents of my intestine suddenly turned into concrete (the clear sign of a glutening in my system). So you don't need to feel bad for me suffering terribly on Christmas or anything cool.gif Just trying to figure all this out."

I laughed at this one. Don't know about the spacey side of it. I've never been aware of this in myself. Then again, this could just be a constant state of affairs for me...so who knows. But the contents of your intestines turning to concrete! Geez...is that ever my story! And I am so amazed at how small an amount of gluten can do this and for how long it can last!

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While I am not specifically sensitive to corn, I have to be careful with it. I limit myself to very small amounts of chips etc. because otherwise, they definitely do upset me.

I suspect corn is another of those things all people probably would do better without.

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.....I suspect corn is another of those things all people probably would do better without.

Where in the world would you get an idea like that? Corn is good. Corn is our friend. Sure there are a few people intolerant of it, just like any other food. But whole societies have subsisted primarily on corn. Look at Mexico, corn and beans have been staples for hundreds of years, maybe thousands.

Corn is one of the Celiacs very best friends. We can't have wheat, please don't take away our corn too. :D

best regards, lm

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I'd guess that it was general CC from lots of people and lots of gluten. I don't eat food at parties for this reason unless I've taken it straight from the bag. And especially with your other intolerances, you have to be absolutely 100% sure of the ingredients before eating.

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Thanks everyone. For some reason this topic wasn't showing up in my inbox or when I searched for new posts until right now. I wasn't ignoring everyone on purpose :(

Yes, I should know better than to put stuff in my mouth when I don't know what all it is or crumbs could be there. I'm not good at handling parties yet. (I need to get out more :lol: ) I even ate before I went. But give me a glass or two of wine and then I begin to believe my husband when he thinks I'm being paranoid. With everyone grazing through this spread of food I wanted to also.

I hope it wasn't soybean oil that is my problem. I don't usually have products with much oil so I don't know if I react to it, or just the protein. Some folks allergic to soy, anyway, don't react to the oil. I'm going to an Indian restaurant tonight for New Year's Eve (multiple courses, Bollywood videos playing, bellydancers, etc.) and I talked to the chef when we made the reservations. He uses soybean oil. However, the soybean oil is probably used for stuff I won't be eating. I'll talk to him tonight too --- and I'm gearing myself up to be high maintenance. From going before I know some courses are served on large platters where everyone helped themselves scooping up the food with bread. ACK! Bring me a separate plate, a spoon to serve myself, and a fork, thank you. I shudder just thinking about it.

Better think about it now before I start drinking the wine and bopping along to the videos :rolleyes:

I hope all of us manage to traverse New Year's Eve with our health intact :D

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There was a post about Tostitos a while back...

Quote:

I called Frito-Lay today and got the "scoop" on Tostitos (sorry - bad joke). They now also process flour chips with the other products. The way to know if your bag has been processed in the same plant (and potentially on the same lines) is the product code. This code is found directly under the price stamp.

***If the 2nd and 3rd numbers in the series of numbers is either 71 or 45 they have been made in the plant with flour.

This took some investigating - the info came straight from the nutritionist.

Hope this helps! Now I know why one bag made react, while another didn't. Mystery solved!

Holly

At a recent Christmas party at work, I happened to see the can of nuts as they were being scooped into a bowl on the table. Sure enough, the nuts contained wheat. There is another girl I work with who has Celiac. I went to her office and she was on the phone. I slipped her a note saying "DON'T EAT THE NUTS!"

I also made sure that all of the bowls and platters on the table had scoops or tongs in them, hoping that nobody would reach in with their hands.

I haven't been able to convince people not to put cheese and crackers on the same plate. (Although I would still be afraid that they had touched the crackers and then touched the cheese.)

Cindy

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There was a post about Tostitos a while back...

At a recent Christmas party at work, I happened to see the can of nuts as they were being scooped into a bowl on the table. Sure enough, the nuts contained wheat. There is another girl I work with who has Celiac. I went to her office and she was on the phone. I slipped her a note saying "DON'T EAT THE NUTS!"

I also made sure that all of the bowls and platters on the table had scoops or tongs in them, hoping that nobody would reach in with their hands.

I haven't been able to convince people not to put cheese and crackers on the same plate. (Although I would still be afraid that they had touched the crackers and then touched the cheese.)

Cindy

Yeah, come to mention it, I remember that Tostidos post now. I guess I blanked it out of my memory banks because I don't want to believe it.

Nuts with wheat? What will they think of next? Were these some sort of flavored nuts or something? Sounds weird.

Do you think it is a valid concern with people reaching into bowls and having gluteny hands? I tend to think so, but my husband thinks I'm being paranoid.

Fortunately (?) I can't have the cheese OR the crackers so I'm safe there. Except for the folk who eat the crackers, then put their hands in what I do eat. Assuming I'm not paranoid B)

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I read "somewhere", (I'm always reading something :rolleyes: ) that the corn has been hybridized so that it is not the same corn the Indians used to eat. Our corn is not necessarily what the Mexicans ate. And that's why people are going back to heirloom varieties.

My goats, who are supposed to be able to eat all kinds of grains, will get sick if they eat too much corn. One goat in particular gains weight so fast if eating corn, that I really have to watch how much she eats. The goats will quit eating until their stomach settles down and that can take a day or two.

I have never had a problem with corn but then I never ate a lot of it to start with.

While I am not specifically sensitive to corn, I have to be careful with it. I limit myself to very small amounts of chips etc. because otherwise, they definitely do upset me.

I suspect corn is another of those things all people probably would do better without.

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