Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Should My Whole Family Get Tested?


Waldz1

Recommended Posts

Waldz1 Newbie

Hello. I just got diagnosed with Celiacs this week. I'm 28 and the oldest of 6 kids. No one in my family had even heard of this disease before now, and apparently it's genetic. We've had our share of indigestion and gas, I suppose, but no one besides me showed any real symptoms. Should they all be getting tested?

Josiah

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cruelshoes Enthusiast

Hi, Josiah. Yes, all your first degree relatives should be tested (parents, siblings, children). Their chance of having celiac disease is approximately 1 in 22. General population has a chance of 1 in 133. I had my children tested after I was diagnosed. My daughter was negative, but my son was positive. He had no obvious symptoms other than a slowdown in his growth. He had no GI symptoms other than occasional "D". Absence of symptoms is not necessarily a good indicator of having the disease.

I haven't been able to convince my parents or sister to get tested yet. I hate that I am not the boss of them! :(

Link to comment
Share on other sites
happygirl Collaborator

Yes. All Celiac experts recommend that all first degree relatives, regardless of symptoms, are tested via bloodwork.

Something to keep in mind....just because they test negative now doesn't mean they are "free" of Celiac for life. If symptoms arise later, it is worth it to be tested again.

Here is some info you might find helpful, from a very well respected source. Open Original Shared Link

"Q: Why do my family members need to be screened for celiac disease?

When the diagnosis is established in one family member, their first- degree relatives (parents, siblings and children) should have blood tests for celiac disease. This is because at least 10% of family members will have the disease, even if they are asymptomatic. Screening is also recommended for second-degree relatives (grandparents, grandchildren, aunts, uncles and cousins) as they are also at an increased risk for celiac disease. Family members who already have an autoimmune disease are at a greatly increased risk to have celiac disease (25%).

The reasons to diagnose family members prior to the development of symptoms include the prevention autoimmune diseases and malignancy."

Link to comment
Share on other sites
nikky Contributor

yes you should get everyone in you imediate family screened and it would be a good idea to get less imediate family checked as well (cousins, aunties uncles)

experts say that if one person has coeliac every one in ten people in that family will also have it.

and as for not having many symptoms i was asymptomatic until about a month before i was diagnosed the only sign that i had coeliac was anemia

Link to comment
Share on other sites
  • 3 weeks later...
gabby Enthusiast

Here's another great reason for your family members to get tested now: it will provide some baseline test results, which can be used as a reference point in the future. So if in a few years, new health problems crop up, or current mild symptoms become more problematic, doctors can do new tests, and then compare them with the old 'baseline' tests and see if things are better, worse or the same.

Hope that helps!

Link to comment
Share on other sites
Chris28806 Newbie

When I was diagnosed within a few months after my mom also tested positive. Shortly after, her sister and daughter tested positive. Neither of which showed signs of celiac. The sooner the better.

Link to comment
Share on other sites
  • 2 weeks later...
mismalw/cealiac Newbie
Hello. I just got diagnosed with Celiacs this week. I'm 28 and the oldest of 6 kids. No one in my family had even heard of this disease before now, and apparently it's genetic. We've had our share of indigestion and gas, I suppose, but no one besides me showed any real symptoms. Should they all be getting tested?

Josiah

YES! Get your family tested! It is very important. When i got cealiav disease we got my family tested and my sister had it. we were both a symptomatic but we so felt better after we started the diet. it doesn't hurt to get tested.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rikki Tikki Explorer

YES YES YES! My brothers and mother were tested after I was diagnosed, they didn't have symptoms but had all the damage that comes with it, villi were gone, bones were affected, so have them tested

Link to comment
Share on other sites
  • 1 month later...
ThatlldoGyp Rookie

Yes, you should have all first degree relatives tested and they should continue to be re-tested should they have any symptoms, ever.

Also, if anyone else comes up positive, then make sure they contact all members of that side of the family that may be at risk. Thanks for being so careful!

And when you have kids one day, treat them as though they are gluten intolerant, breast feed as long as possible, and then test when reccomended by your GI. My GI said my kid had to test his kids one day since he is a carrier.

Link to comment
Share on other sites
CarlaW Newbie

I agree with everyone on testing, but if your family is resistant to testing right now (perhaps for financial or denial reasons) and they have symptoms, I would challenge them to eat gluten free with you for 3-6 months and see how their health changes. I would also encourage them to keep a diet calendar and write down food intake and symptoms every day. As you and your family will see, reading labels and checking out restaurant gluten free menus are a must to truly be successful in this project. Even if they are not celiacs, doing this diet will help them understand you better. My non-celiac family members did and they appreciate what I go through alot more than they did before.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Julie Riordan replied to Julie Riordan's topic in Traveling with Celiac Disease
      3

      Any ideas for travelling

    2. - trents replied to SuzanneL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Weak Positive Test

    3. - SuzanneL posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Weak Positive Test

    4. - Scott Adams replied to Braver101's topic in Coping with Celiac Disease
      2

      Constant sweating with celiac disease

    5. - Scott Adams replied to Julie Riordan's topic in Traveling with Celiac Disease
      3

      Any ideas for travelling


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,495
    • Most Online (within 30 mins)
      7,748

    Zofosho
    Newest Member
    Zofosho
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Julie Riordan
      I am going to France in two weeks and then to Portugal in May   Thanks for your reply 
    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
    • SuzanneL
      I've recently received a weak positive tTG, 6. For about six years, I've been sick almost everyday. I was told it was just my IBS. I have constant nausea. Sometimes after I eat, I have sharp, upper pain in my abdomen. I sometimes feel or vomit (bile) after eating. The doctor wanted me to try a stronger anti acid before doing an endoscopy. I'm just curious if these symptoms are pointing towards Celiac Disease? 
    • Scott Adams
      I'm sorry to hear about what you're going through. It must be really frustrating and uncomfortable. Have you talked to your healthcare provider about these sudden sweating episodes? It might be helpful to discuss this with them to rule out any other underlying issues or to see if there are specific strategies or treatments that can help manage this symptom. Additionally, staying hydrated and wearing breathable clothing may provide some relief. 
    • Scott Adams
      I am not sure where you are going, but we have articles in this section which may be helpful: https://www.celiac.com/celiac-disease/gluten-free-travel/ 
×
×
  • Create New...