• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Osteoporosis
0

6 posts in this topic

I am a 46 year old woman who has scoliosis (not too bad - 40 degreee top/36 degree bottom). About a year ago my spine doctor told me to go get a bone density test done because they've found that people w/ scoliosis have a higher prevalence of osteoporosis. So I did. My gynocologist told me I had the worst levels he's seen in someone my age. I have severe osteoporosis in my hips (-3.1) and osteopenia in my spine. I have NOT GONE through MENOPAUSE yet... Anyway, I was told to go to an endocrinologist because the osteo was so extreme. She ran a battery of tests and was baffled because she suspected Celiac or a problem w/ my parathyroid but her tests, other than a weak positive for the IGG came back negative. She told me to go to see another endocrinologist in NYC at Columbia Presbyterian Hospital. I had more tests done for this new endo. & just went this past Tuesday. Although I didn't test positive for the basic IGG & IGA tests, my vitamin D (hydroxy test) was very high and my parathyroid level high too... making her suspect Celiac. She then had more blood taken for the Prometheus Celiac Serology.

Other than osteoporosis, I don't have concrete stomach issues... I'd often been constipated... but I thought that was due to my diet (too much cheese here and there, not enough roughage, etc.). I have often gotten bloated... but thought that was not too unusual.

Anyway, anyone else out there have osteoporosis for not the "typical reason" such as menopause, being anorexic, taking certain drugs, not having normal periods, etc? ANYONE HAVE OSTEOPOROSIS DUE TO celiac disease?

I actually hope I have Celiac... then I will know WHY I have osteoporosis so bad at only 46!

Thanks!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


If you have osteoporosis, there is a very good chance you also have celiac. Osteoporosis is one common long-term effect of gluten on a celiac's body.

0

Share this post


Link to post
Share on other sites

Hello,

Low bone density prior to menopause can certainly happen and could certainly be related to celiac disease.

I discovered I have celiac disease about 9 months ago. I am now 28. At the age of 22, a dexa scan demonstrated osteopenia in my lower spine. I was told that I was 1/2 a standard deviation away from osteoporosis at 22. I suspect that my low bone density is related to undiagnosed celiac disease. This is quite a scary problem, as celiac disease was not determined for an additional 6 years. Who knows how much further my bones have deteriorated b/c I was not able to absorb nutrients properly. I am currently checking out the status of my bone density.

I've been taking a fabulous Calcium supplement - Calcium Apatite. It is expensive, but it is one the best out there. Certainly, there are prescription medications that you can take, such as fosomax. Good luck and take care.

Sara Gardiner

Philadelphia

0

Share this post


Link to post
Share on other sites

Hi Sara... yes I too am taking a great calcium supplement - but as for Fosomax, it is definitely NOT RECOMMENDED for premenopausal women! My new endocrinologist (a metobolic bone disease specialist at Columbian University Med Ctr in NYC) expressed her anger and frustration of doctors prescribing Fosomax to women not yet in menopause.

Thanks,

Lisa

0

Share this post


Link to post
Share on other sites

Hi there. My mother is also Celiac and she has the worst case of Osteoporosis her Doctor said he has ever seen. She has fractured her back on two occasions just from odd movements and in one case sneezing too hard. She is still able to walk, but she is currently on Morphine for pain. Take your Calcium folks!!!

0

Share this post


Link to post
Share on other sites
Ads by Google:


It is my understanding that osteoporosis is common in celiacs, due to the malnutrition that is characteristiic of the disease. I have been diagnosed as having osteoporosis, although my bone mineral density is improving with calcium supplements, vitamin supplements and Fosamax. I am a male, age 50, who was diagnosed as celiac four and one-half years ago, after many years of incorrect diagnoses. The clue to osteoporosis was a triple compression fracture of the lower back. My doctor said that should happen to a man my age :o

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,749
    • Total Posts
      932,173
  • Member Statistics

    • Total Members
      64,206
    • Most Online
      3,093

    Newest Member
    Nati
    Joined
  • Popular Now

  • Topics

  • Posts

    • King Arthur Flour has excellent mixes and gluten free recipes if you enjoy baking.  If you live in a city, there are bound to be bakeries and cafes that make gluten free items and some groceries stores that stock them as well.  
    • You could have the full celiac panel done to see if any other numbers come up high. TTG IGA and IGG, DGP IGA and IGG, EMA. If your doctor is not a gastroenterologist then you can try going to one. They know what to test for. You could also simplify your diet and start a food log. Gradually introduce foods and when stomach pains start you can see what you ate in the last two days to cause a problem.  
    • I had the same issue with stomach pain after diagnosis and it turned out to be soy protein that was causing it.  I never ate much soy before diagnosis and gluten was keeping me constantly ill so I never realized it was an issue till I stopped going with foods with soy on the suggestion of good freind. Not saying that is the problem with you but thought I would throw it out there as a possibility. If you are eating oats you may want to drop those for a bit also since some of us will react to those even if they are gluten free. In addition is there any way you can avoid eating oput for a month or so? You may be getting glutened but not enough to show on the TtG. I could be wrong but I think the DGP tests are the preferred ones for checking with dietary compliance. You should also consider dropping dairy for a bit. Add it back in when you are feeling better starting with stuff like hard cheeses, yogurt and butter that have low amounts of lactose. Hopefully you will be able to figure out what is going on soon and get some relief.  
    • I was diagnosed with celiac 2 years ago and since have been gluten-free. When I started my ttg was 88. I just recently visited the doc because I still seem to suffer from almost daily stomach pain. My ttg came back at 4. The doc suggested I try Metamucil and next week give lactaid a try as I still eat dairy.  The metamucil I took one day and I had such bad stomach pain and loose bowel movements I felt too miserable to try it again. I haven't tried the lactaid yet but in the past I have and didn't see much difference.  Heres the other thing: I do eat out a lot. I try to stick with safe places but every now and then I play the odds. So I usually manage to get sick once a month (lately it's been more) so I went to the doc and had my ttg level tested to see if my body is still getting gluten and this is why I still feel horrible. But my levels came back at 4, so now I'm just wondering... what the heck? I'm feeling super discouraged and doomed to a life of unexplained stomach pain.    The annoying part is all my dr did is give me the results. Like "oh you're continuing to improve." Ok, but I'm in paid so what's going on? No answers, ever. It seems like I get suggestions, but they never do anything and I'm so fed up with my body. I'm tired of waking up frequently wondering what I could have ate that is bothering me. I had no idea two years later I'd still be struggling. Lately the stomach pain has increased and it's daily now again. I've been taking pepto for it and it helps a bit, but I don't want to live life digging in my purse for pepto everyday.   any advice or suggestions from anyone who has been through this are appreciated.  I get that celiac may not be the only problem but I don't know where to go anymore as I've been searching for 2 years.      
    • I agree that this article is a scare tactic.  Looks like this child was starved to death. Note the article states the parents did not seek medical help. Millions of children and adults have food allergies and intolerance but do not have this happen. Following a medical diet is a healthy choice for quality and quantity of life. These types of articles have no value in this place of healing.
  • Upcoming Events