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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

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Hi, I'm very new to celiac disease (actually the testing is next week, but Dr. pretty sure) and wondering if anyone has gained weight prior to finding out--I've put on around 30 pounds but have all the other symptoms of celiac disease.

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celiac3270    4

That could be from stress...some people gain a lot of weight when they're stressed, as you might be before finding out if you have celiac.

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CindyK    0

Hi! You may want to be sure you do not have hypothyroid. It is commonly associated with Celiac and can cause weight gain. I gained some weight prior to learning I have hypothyroid. Once diagnosed and regulated on Synthroid I had no trouble dropping the weight.

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darlindeb25    5
;) sometimes we celiacs are different then others--i was heavy before going gluten-free--from what i understand--some of us react differently--when the gluten and our bodies are fighting each other, some of us dont lose weight--our bodies feed off of the fat we take in and we gain--i lost 60# once i found out i had to go gluten-free--my bf often asked me why i was overweight on what i ate and it baffled me too--i have never been a heavy eater--i guess it was just the way my body reacted--hope this is a little comfort to you--deb

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lpowmacback    0

Darlindeb, that's very interesting that you lost weight once on the gluten-free diet...some background info on me: I am 46 and not too long ago found out I had severe osteoporosis (-3.1 in my hips) and I have not gone through menopause yet and don't have any of the typical reasons (anorexia, steroid use, etc.) to have such bad osteoporosis. In any event, celiac disease is highly suspected by my metabolic bone disorder endocrinologist. due to the fact that I've got high vitamin D and high parathyroid levels in my blood... She doesn't think it's due to my parathyroid being faulty... but all due to celiac disease. I took the Prometheus Lab Celiac Serology test last week and am waiting for the results. She actually advised me to continue eating gluten until I've had a biopsy, but after all of the reading, I've decided it was vital to stop ingesting toxic substances (gluten) just in case!!! So, I've been gluten free and have also lost weight EASILY!!!! I haven't been too overweight in my adulthood (althoug quite pudgy as a youth/teen). As an adult I ate very little and had a had time losing the 5 pounds I really should have lost!

I think something is up with gluten being removed from a diet and then being able to eat more normally and maintain a better, more healthy appropriate weight. I wonder how many others have lost weight (in a good way) after going gluten-free.

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    • This - I agree with all of this. I have also twigged that if oats are a problem then certified processed gluten free food is out. And I got really sick from drywall. It's such a relief to hear this as there was a time when I was feeling like an alien for thinking these things. Well I agree 99.9%. I had a skin problem, possibly DH, which got better when I gave up gluten, improved further when I gave up processed foods but it wasn't until I stopped eating dry beans that I stopped getting any flares. I am also sensitive to egg though (although that does something different to my skin) so I'm a bit a skin-reactive person. Could be worth cutting it out just to see if that helps?
    • Hi Celiac4762, The carbs I eat are sweet potato, parsnip and squash plus loads of fruit. With rice I'm ok if it's from a reputable source. Once I get glutened I steer clear of it for a month to give myself an extra break and then go back to it in smallish quantities. I have carbs once a day rather than every meal to save time. I can hear in your tone this tired, fed up tone that I recognise so well from when I get glutened. I know what it's like to dream of living in a far away gluten free bubble. I felt like that but after a couple of months (which were a hard adjustment) I got to a stage of knowing what I needed to do. Your medical background will help you methodically work out what you need to cut out and what is safe and you will get there. Stick with college. Don't let this crappy stage take that away.   The thing that saved me though over everything was finding this article: https://bmcgastroenterol.biomedcentral.com/articles/10.1186/1471-230X-13-40
    • Thanks to both of you. Ok, so I was feeling not great and went grain free for 5 weeks. Then slowly started to introduce grains. All seemed ok, then I had an issue after 3 weeks, with blood in my stool. Celiac wasn't on my radar. In fact, rice and oats are what seem to bother me most. But the Dr added on the celiac test and it was indeterminate. So I was sent for endoscopy and colonoscopy. I consumed gluten for just over two weeks, then went back to my grain free, dairy free diet. I saw my Dr this am and she said my bowels were healthy, that the Dr had taken 'several' samples and that all is well on both ends.  (No celiac, but also not H Pylori, crohn's, etc). She is running all kinds of other bloodwork, because I am still feeling terrible, and obviously the assumption I had made was that it was celiac. I'm going to stay off gluten for now, in hopes that I'll start to feel better. My GI symptoms are worse this week than they have been in ages...so something is up, but apparently I'm healthy??! I am pretty sure my Dr. would not refer me to another GI. She's not the best, but it's very hard to find another Dr. here, especially if you already have a Dr. (Canada) I am going to ask her for a copy of the report though, as well as the rest of the bloodwork she's sending me for. 
    • This is exactly what I'm wondering also.
    • I'm confused. You don't have celiac? Have you had a blood test or biopsy? Have you been diagnosed with DH?  What were you diagnosed with 9 years ago? If it was celiac or DH why have you only been gluten-free for 6 months? We need a better picture of what's going on here to help you more successfully.
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