Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Hot Flashes


wowzer

Recommended Posts

wowzer Community Regular

I've been gluten free since January 1, 2007. I'm sure the night sweats I had for years were probably from gluten. I do take synthroid for thyroid. I quit taking estrogen about a year ago. I ended up stopping cold turkey and didn't notice any difference at the time. I really wonder if I was even absorbing the stuff. I am 53 and I have notice more hot flashes lately, so it could be menopause. I sure hope that I'm not getting glutend this often. Can you tell the difference between the two?

Wendy

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I am only 25, and I used to be cold all the time, I sweat more now gluten free than I ever did. I used to wear sweaters but not I have dwindled my collection and everything. I even get very toasty at night sometimes, they aren't night sweats nor do I get soaking wet, but sometimes I put shorts on or take all the covers off which is unusual to me.

Link to comment
Share on other sites
ravenwoodglass Mentor

If you go to your OB-GYN they have a blood test that will tell you where your hormone levels are. That will tell you if you are experiencing hormone related hot flashes. Celiac took away my periods at around 40 before I went gluten-free, I was having almost constant hot flashes then. They continued for a long time but after I went gluten-free they decreased to once a night at about 2 am. Why always the same time I have no idea. I do know that when glutened they do seem to occur during the day also but that only lasts a day or two.

Link to comment
Share on other sites
Lisa Mentor

Raven had the answer to knowing if you are in menopause, get your hormone levels checked. And perimenopause can last up to ten years before the full onset of the big "M". I started at 35 and not sure it was related to Celiac or not.

Oh, forgot to add, that after I was diagnosed I would often break out into a sweat during a meal or snack. I finally figured out that I was reacting to dairy in any form. It stopped after about two years gluten free. I did not eliminate dairy, just dairy light for a short period of time.

Link to comment
Share on other sites
Gemini Experienced
I've been gluten free since January 1, 2007. I'm sure the night sweats I had for years were probably from gluten. I do take synthroid for thyroid. I quit taking estrogen about a year ago. I ended up stopping cold turkey and didn't notice any difference at the time. I really wonder if I was even absorbing the stuff. I am 53 and I have notice more hot flashes lately, so it could be menopause. I sure hope that I'm not getting glutend this often. Can you tell the difference between the two?

Wendy

If you are in your 50's and having hot flashes, then it's menopause. Hot flashes can start years before you actually go into full blown menopause and last for a long, long time. They can also start and stop without warning. That is very common.

As for testing, forget blood draws for hormone levels....very unreliable. Saliva testing is the way to go but you may need to see a less mainstream physician for that. Blood levels tend to be what's stored in your cells and may not be what's floating around for use by your body. That's why many women go and have their blood tested and are told their hormone levels are fine...when they have flaming symptoms of menopause.

I never had any gluten related hot flashes and am not convinced they are from gluten anyway.

It may be that before diagnosis of celiac disease, a person is very run down, adrenally, and this could cause temperature shifting. Hot flashes are generally a hormone mediated response and can occur for years around menopause. If your hormone levels are in flux, for whatever reason, you'll have a hot flash.

It may be a better idea to use bio-identical hormones, in cream form, for any hormone replacement. They are prescribed by a physician and obtained through a compounding pharmacy. As they absorb through the skin, there is no worry of mal-absorption problems. They are safer to use than mainstream pill hormones too.

Look on the bright side.....your heating bills should go down once the hot flashes gear up! :P

Link to comment
Share on other sites
jerseyangel Proficient
As for testing, forget blood draws for hormone levels....very unreliable.

I agree with this--during perimenopause, especially, hormone levels can change daily.

Link to comment
Share on other sites
wowzer Community Regular

I do know that I need to get my hormone levels checked. It is a little harder for me to figure out, since I was born without a uterus, I've never had periods. My one lonely ovary does still ovulate, but I think that is happening less now.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nmw Newbie

It does sound like meno. I get hot flashes when glutened as well as with hormonal shifts. To answer your question, for me the hormonal ones pass quickly with little, if any residual effects, and the glutened ones are more like a toxin reaction and are accompanied by all my other gluten symptoms.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,072
    • Most Online (within 30 mins)
      7,748

    SherryT
    Newest Member
    SherryT
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...