• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
mama2two

Son Complains Of Leg Pain

Rate this topic

Recommended Posts

anyone else's child complain of leg pain? my son has been complaining of this for several days now and I am not sure what to make of it. he has no other symptoms but is now complaining of symptoms of a UTI, I let them have a bubble bath a couple weeks ago. I am taking him to the pedi today. I am wondering if it's not enough calcium, they drink almond milk, but he does not drink much, he is still nursing a little. one reason it really concerns me is that my cousin had compliants of leg pain at 5yrs and he was diagnosed with leukemia, but he also had fever and could hardly walk on his. my son walks well, but I have noticed him with a slight limp once and he was stiff legged today, just in the morning. any thoughts or similiar experience?

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Even tho I never had them, all my kids have had varying degrees of 'growing pains.' My daughter would wake in the night with pains in her legs. It was the muscles, and massage and heating pad would cure it. my first son's pains were in his tendons. Only ibuprofen fixed that. He also had ongoing pain in his legs during the day, and it got worse and worse. Eventually we ended up at a physical therapist who said one of his tendons was just really tight, and gave him some excercises which really helped. My 4 yo just falls asleep better if I massage his legs a bit.

So it could be a sprain, or growing pains, or a bruise even - dont worry too much!

Share this post


Link to post
Share on other sites
anyone else's child complain of leg pain? my son has been complaining of this for several days now and I am not sure what to make of it. he has no other symptoms but is now complaining of symptoms of a UTI, I let them have a bubble bath a couple weeks ago. I am taking him to the pedi today. I am wondering if it's not enough calcium, they drink almond milk, but he does not drink much, he is still nursing a little. one reason it really concerns me is that my cousin had compliants of leg pain at 5yrs and he was diagnosed with leukemia, but he also had fever and could hardly walk on his. my son walks well, but I have noticed him with a slight limp once and he was stiff legged today, just in the morning. any thoughts or similiar experience?

Commercial bubble baths are prime sources of UTI. Pour whatever you use to wash him with under the running water as the tub fills up and it should provide safer bubbles.

I had lots of leg "growing" pains as a child and have learned here that I could have been gluten intolerant as far back as then! :o

You'll know more after seeing the doctor.

Share this post


Link to post
Share on other sites

There is no such thing as growing pains. I had those leg pains as a child, but it was because I cannot eat wheat, rye, oats, or barley. I was also anemic. We were also poor & did not have medical attention, & my mother said that I just had growing pains. I have double DQ1 genes, so am classified as gluten intolerant. I found out I was severly allergic to barley & oats when I was 25, I am 61 now. Too bad I did not find out there was something called gluten... I also cannot have dairy.

I hope you get your child checked for anemia & also check to see that he is not getting CC from some of the gluten free grain replacements, like Diamond Nut thin crackers, or Quacker Rice Cakes, that sort of stuff...

Share this post


Link to post
Share on other sites

My son has been getting growing pains too. As a child I used to get UTIs all the time. Avon has a bubble bath that I could use it is supposed to be very gentle.

Share this post


Link to post
Share on other sites
Ads by Google:


my son had pains in his legs until going gluten free. he would wake up crying most nights. it only took a few days of him being gluten free for his leg cramps to stop completely.

Share this post


Link to post
Share on other sites
anyone else's child complain of leg pain? my son has been complaining of this for several days now and I am not sure what to make of it. he has no other symptoms but is now complaining of symptoms of a UTI, I let them have a bubble bath a couple weeks ago. I am taking him to the pedi today. I am wondering if it's not enough calcium, they drink almond milk, but he does not drink much, he is still nursing a little. one reason it really concerns me is that my cousin had compliants of leg pain at 5yrs and he was diagnosed with leukemia, but he also had fever and could hardly walk on his. my son walks well, but I have noticed him with a slight limp once and he was stiff legged today, just in the morning. any thoughts or similiar experience?

If you suspect a UTI, you may want to look into getting a D-Mannose supplement. It is a powder made from the ingredient in cranberries which prevents UTI's. You can mix it in water or juice.

My dd got dx'd with a UTI last year. We did not have to take antibiotics as a combination of D-Mannose and probiotics cleared it up in about 48 hours. I did get a prescription for our doctor "just in case". Luckily, I had read that D-Mannose was one of the most effective things to give someone with a UTI, not only to treat it, but to prevent it.

As for the leg pain....there are several vitamin deficiencies which could cause it. Somehow, I suspect that this isn't a problem with calcium, more likely Vitamin A, possibly magnesium.

Share this post


Link to post
Share on other sites

Last year my daughter had severe leg pains that at times she would not even walk on them. After 7 doctor visits, we figured out she was anemic. The iron supplementation helped.

Then just recently in the last 2 weeks, they started again. Checked her blood and once again she is anemic. She has been gluten free and mostly dairy free for about 1 1/2 years or so.

I don't believe in growing pains. I think that is an answer to a problem that doctors don't know the answer to. I wonder if in many of those cases had they checked iron levels they may have come back low.

Lead in the tissues can displace iron. Malabsorption in the gut can cause iron deficiency. Mold exposure can mess up iron levels as well.

Share this post


Link to post
Share on other sites
anyone else's child complain of leg pain? my son has been complaining of this for several days now and I am not sure what to make of it. he has no other symptoms but is now complaining of symptoms of a UTI, I let them have a bubble bath a couple weeks ago. I am taking him to the pedi today. I am wondering if it's not enough calcium, they drink almond milk, but he does not drink much, he is still nursing a little. one reason it really concerns me is that my cousin had compliants of leg pain at 5yrs and he was diagnosed with leukemia, but he also had fever and could hardly walk on his. my son walks well, but I have noticed him with a slight limp once and he was stiff legged today, just in the morning. any thoughts or similiar experience?

Well, his urine was OK, no uti. My pedi said to wait a week and see if he continues to complain and keep a record of it, what leg, etc. She said we may do an xray and blood work if it continues. He went two days with no complaints and today he has complained twice, but one time he was sitting on his legs. We will see, but I am leaning towards getting the diagnostics done at the end of the week regardless of how many times he complains. I want to rule out the bad stuff. I will keep you posted.

Share this post


Link to post
Share on other sites

i apologize ahead of time but did not read other replies...

i know i had a run in with unepxected glutenening there a couple months ago and my legs started breaking down all over the place as they had just before going g;luten free; everything was starting to come back; maybe there is a sneaky gluten getting in somewhere. crazy as it sounds, mine was Bob's Red Mill. just happened again this past week here. determined me...gotta find foods though; gotta go through them a few times then stop then go back...gotta figure out how they will work for me

Share this post


Link to post
Share on other sites


Ads by Google:


I had TERRIBLE "growing pains" as a child. I was tested for everything from RA to leukemia, all negative. i was told it was in my head and to deal with it. "Take a tylenol and you'll outgrow them." At 29 I still had them. My daughter was born and I went gluten-free while nursing her because of suspected (later confirmed) celiac disease. After a few months of her thriving I noticed that I was not hurting for the first time in my life. When I now get an accidental glutening, the pain is almost unbearable. A friend has the same symptoms and went gluten-free with the same miraculous results. I never would have suspected gluten, but there is no doubt it was to blame for my lifetime of pain. good luck in assessing the problem with your son. It could be anything, but it was gluten for me.

Share this post


Link to post
Share on other sites

My son gets terrible leg pains. I think they are probably dietary(he is not gluten free yet) and vitamin related.

I don't believe in growing pains, BUT the medical field says growing pains NEVER happen during the day. That is a definate sign of more. Even they realize it shouldn't happen during the day, but I think it shouldn't happen at all.

When I was growing rapidly as a child I had them horrible, but then I continued to have them after I stopped growing. I also was vomiting, had D, and skin rash, and terrible awful moods. All gluten intolerant symptoms-for years. The Drs diagnosed me with stomach bugs and growing pains. UGH. That led me to not trust them at a young age, they never listened to me or validated me at all.

I have had joint and muscle pain my entire adult life, but it has gone away since going off gluten :D

I got accidentally gluttened and my shoulder hurt a bit.

Not sure if that was helpful, but good luck. I am hoping when I take my son off gluten they will stop(it's his only symptom,but it was my first)

Share this post


Link to post
Share on other sites

What worked for me is magnesium. I also started taking a sublingual methylcobalamin (B12), and vitamin D, both of which I believe have been important factors.

Share this post


Link to post
Share on other sites

My DD Jiselle has had chronic leg pain since October '06( since she was 4 years old). She can not even walk up the stairs without being in pain.

She was dignosed with Celiac in Jan '07. She got her first - bloodwork 6 months ago and she still has terrible shin pain. We just met with Endocrine 2 days ago and after several tests and scans,he has dignosed her with juvenile ostoperosis (sp?). He tells me that her leg pain could be caused by her very low bone density.

Share this post


Link to post
Share on other sites

Leg pains can have many causes. My grandson (who is also gluten and nightshade intolerant) gets dreadful leg pains from red food dye. So, it can be caused by things other than gluten.

I had 'growing pains' for over fifty years, until I went off gluten, lectins and salicylates.

I like Rice Guy's suggestions for extra magnesium and vitamin B12 (a B complex is good on top of taking B12, because the B vitamins work together). Anemia is another possibility. And hopefully it isn't osteoporosis (which isn't too likely with a child that young).

I also don't believe in growing pains. When doctors don't know what causes pains in young kids, they'll 'diagnose' growing pains, and in adults it is psychological. Whatever.

Don't give up on looking for the cause, because if you look long enough, you'll eventually find it.

Share this post


Link to post
Share on other sites
I had 'growing pains' for over fifty years, until I went off gluten, lectins and salicylates.

Ursa,

what are these things more specifically. i guess i am wondering which foods you eat or which you avoid to avoid lectins and salicytates?

Share this post


Link to post
Share on other sites

Scotty, I am in Mexico right now and don't have my bookmarks, of course. I will answer your question with links to follow when I am back home (we are flying tomorrow).

Share this post


Link to post
Share on other sites
Scotty, I am in Mexico right now and don't have my bookmarks, of course. I will answer your question with links to follow when I am back home (we are flying tomorrow).

great

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,955
    • Total Posts
      943,655
  • Member Statistics

    • Total Members
      67,261
    • Most Online
      3,093

    Newest Member
    Floris
    Joined
  • Popular Now

  • Topics

  • Posts

    • Gemma......if you are ever in London, please check out this place.  It is a 100% gluten free bakery and the food is out of this world!  I can't get bread like this in the States and it certainly is worth a road trip for anyone living in the Uk, within reasonable distance from London.  It will easily satisfy all of your bakery cravings and I bet the bread freezes well. http://www.beyondbread.co.uk/
    • Celiac disease can be dormant for years til a strain/stress to the immune system makes it come out. Many of us have had this issues, your infection run in might have triggered the dormant genes for the disease if you had them. I would follow up with the testing, see about getting a full celiac blood panel if you can, you have to be eating gluten for 12 weeks daily prior to testing. http://www.cureceliacdisease.org/screening/

        If not celiac it could be another food intolerance/sensitivity I suggest keeping a food diary and tracking what you eat, seasonings, how it is cooked etc. And how you feel later. Change up our diet more and look for patterns.  Here is stuff to read up on. https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
    • Yeah , i will look into getting tested - like you say there is no harm in it . What I found very interesting is the part where you say "Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflamed tissues pressing on nerves." - I also started to get chronic sciatic nerve pain on the right side over a similar time period and am wondering if its the same kind of thing. If I could solve both those things it would be life changing for me
    • Hi ,  i was thinking that an intolerance and allergy were about the same thing really but sorry if im wrong. I know celiac is an autoimmune disease but was thinking that is different again, more serious and was erring on the side of my possible issue not being that but more of the intolerance type. Clearly im just guessing though and dont know about this stuff , hence the posting for advice, The problem with trying to get tested is that in bolivia there are very limited tests and doctors are unreliable so you have to rely on yourself to certain degree. I have heard of a test here and was planning on looking into that but it made sense to try to get some opinions and advice online first so Im in a better position to understand if any tests here are actually reliable enough. I dont think there is an issue with travel parasites etc as I have already taken the medications thats would kill them like a course of albendazol and praziquantel and that was after a 2 week anti parasite cleanse. That did feel like it got rid of anything and the only issue I have been left with is this pain as described.
    • Karen's point about parasites etc is a good one. They can cause a lot of symptoms similar to celiac /ncgs as you probably know.  At 11 I had my appendix removed following pain in the lower right side of my torso. On waking up the surgeon told me that it was actually ok, when I asked what caused the pain I think they said it was probably glandular - they didn't know. Later I got pains in the stomach, usually a dull ache although I could get a fierce stabbing pain there too. When I went gluten free those pains stopped. as did my chronic sciatic backache which Ive subsequently realised was probably due to inflammed tissues pressing on nerves. I would ask the Bolivian doctors if they can get any celiac blood testing done. The standard ttg may not be beyond their labs. can't hurt to ask? Give your diet my guess is you've had a lot of gluten for a long time. If its an issue for you expect a bumpy ride when removing it.  Best of luck!  
  • Upcoming Events