• Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

I Have My Enterolab Results
0

Rate this topic

9 posts in this topic

Recommended Posts

Hello all

I finally tested myself thru Enterolab and here are my results. I am not taking this as my offical diagnoses, but it helps me to understand what is going on with me.

Fecal Antigliadin IgA 21 units Normal <10 units

Fecal Antitissue Transglutaminase IgA 13 units Normal <10 units

Qunatitive Microscopic Fecal Fat Score <300units Normal range <300

Fecal anti-casein (cow's milk) IgA antibody 12 units Normal <10

HLA - DQB 1 Molecular analysis, Allele 1 501

HLA - DQB 1 Molecular analysis, Allele 2 501

Serologic equivalent HLA - DQ 1,1 (subtype 5,5)

Ok so I have two copies of a gene that predisposes me to gluten sensitivity. Having two copies of a gluten sensitive gene means that each of my parents and all of my children will possess at least one copy of the gene. Two copies also means there is an even stronger predisposition to gluten sensitivity than having one gene and ther resultant immunologic gluten sensitivity may be more severe.

Ok from what I can understand on this I don't have the main gene for celiac spruce but I have 2 copies of the main gene for the sensitivity it that what I am understandingn that I got from both of my parents?

Is being gluten sensitive almost the same as have the actual disease or is it just a step down from the disease itself. Is that why if I eat the same gluten thing one time it affects not at all and I may have that same exact glutne thing and I have a full blown affect on me.

Please give my your responses

donna

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I just wanted to point out that Enterolab says that ALL genes except for DQ4 (found in Asians) are gluten intolerant genes. So, pretty much everyone will have 2 gluten intolerant or celiac genes unless they are Asian.

Share this post


Link to post
Share on other sites

No, not all have gluten intoelrance genes, some have celiac genes.

The DQ1 gene you have is associated with neurological problems. You probably won't find intestinal damage (although sometimes some people have it anyway, rarely) but you may have a lot of neurological symptoms like brain fog, ataxia, seizures, depression, anxiety, etc. The Gluten File has more info about this.

Share this post


Link to post
Share on other sites

I do get brain fog, tired alot, can't concentrate no energy when I am eating foods with gluten in it. And on top of that I will get either D or C but that does not hit until the next day. Sometime sooner

Ok so what am I supposed to do with this, watch what I eat and ovoid Gluten sometimes, don't worry about the idea of not eating gluten free and eat gluten, and hope for the best.

donna

Share this post


Link to post
Share on other sites
Ads by Google:


No, not all have gluten intoelrance genes, some have celiac genes.

Right, that is what I said ... essentially everyone has 2 gluten intolerant or celiac genes.

If you get better gluten-free, then eat gluten-free. If your symptoms do not entirely clear up on the gluten-free diet, then start looking for what else might be wrong.

Sometimes the gluten intolerance is secondary to another condition. Mine was secondary to Lyme Disease and once I treated the Lyme, the gluten intolerance went away.

Share this post


Link to post
Share on other sites
I do get brain fog, tired alot, can't concentrate no energy when I am eating foods with gluten in it. And on top of that I will get either D or C but that does not hit until the next day. Sometime sooner

Ok so what am I supposed to do with this, watch what I eat and ovoid Gluten sometimes, don't worry about the idea of not eating gluten free and eat gluten, and hope for the best.

donna

Honestly it sounds like you should avoid gluten period. Unless you want to get cns problems (including depression or worse and short term memory loss and later on dementia) and quite possibly glaucoma, restless leg syndrome, insomnia, weak joints as you age and the rest , not to mention poor health in general and risking becoming more allergic to your foods and general environment.

Share this post


Link to post
Share on other sites


Ads by Google:


Well, if you want to feel well and lose the symptoms, I'd recommend treating this just as if you had a celiac diagnosis. There's a lot we don't know about celiac disease versus gluten intolerance but as far as I'm concerned, I'm treating them exactly alike. At least give it a good honest try for a few months and see if your symptoms clear up.

Share this post


Link to post
Share on other sites
Well, if you want to feel well and lose the symptoms, I'd recommend treating this just as if you had a celiac diagnosis. There's a lot we don't know about celiac disease versus gluten intolerance but as far as I'm concerned, I'm treating them exactly alike. At least give it a good honest try for a few months and see if your symptoms clear up.

I feel great on the Gluten free diet, It helps alot with my bathroom issues, neurological issues, and even in the bedroom area.

I totally understand that the diet helps with everything, I have even lost weight with the diet. I had gotten up to 160lbs and on my 4'11" frame that was a little too much for me to weight.

So I know that the diet helps, it is expensive but it is worth it in the long run,

donna

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,170
    • Total Posts
      940,054
  • Member Statistics

    • Total Members
      66,152
    • Most Online
      3,093

    Newest Member
    Lisa Harris
    Joined
  • Popular Now

  • Topics

  • Posts

    • I asked for their two products yesterday,onion and garlic.Onion powder's package doesnt have starch or wheat on ingredient list but garlic powder has corn starch . I dont have any intolerance to corn by the way. They told me they add starch to two of their products so they are not gluten free. I dont understand why they would put on corn starch on list if it contains wheat starch.I sent another mail to them.  I had nausea last night and this morning but im not sure if it is because of powder or something else.  
    • Well endoscopy done this morning. Said that all looked normal no sign of celiac seen normal duodenal cap and preserved villi. but need to wait for biopsies. Report stated  mild antral gastritis with erythema found  but non specific. Seems like they took a lot of Biopsies. Report stated they took them from lower 3rd and middle 3rd of oesophagus,  the antrum of stomach and area in bulb and 1st,2nd and 3rd part of duodenum. So will wait and see two other children in recovery with us had visible damage on their scope so were told they have celiac disease. Dr review clinic not for two weeks. Thanks for everyone for listening we just want some answers now for her increasing fatigue. But maybe it's not celiac after all.     
    • Look at carreggenan. I am a super sensitive Celiac and have the same auto immune reaction to anything made with seaweed, “the wheat of the sea”, such as MSG, carrageenan, agar and sodium alginate. The food industry is putting it in everything, even so called Misbranded gluten free foods. Even some coconut milk brands now are using it as are nut milks. It is a cheap emulsifier, so we do not have to shake things up! How about shaking up my whole body from it! You may have an iron defiency anemia not being treated or tested. Cookbook doctors treat numbers not patients clinical presentation. I have fired five doctors in eight years for stupidity and dangerous lack of clinical acumen which could have killed me. Do not be afraid to ask questions and confront doctors, you are after all the customer paying for their services.  Eat clean, meaning preparing your own foods. Stay out of restaurants! Gluten free is a joke in most restaurants if you are a celiac. And will cost you weeks of illness. Hang in there. Make bone broth, it has super vitamins and minerals and loaded with pre and probiotics. Go to Dr. Axe’s site. I only do chicken made with feet. I am allergic to beef since being bitten by a deer tick in 2011 and getting Chronic Lyme disease. The chicken feet bone broth is also loaded with calcium and is yummy. Takes a little work, but is well worth it. 😊  
    • Go to the coping section & pinned at the top is the Newbie 101 which will tell you how to prevent cc. Sorry, that's all I have for tonight as it's been a long, long day for me & I am more than ready to turn in. I'll respond further tomorrow. I'm sooooooooo glad to hear you finally have an answer!!!!! 
    • You can buy some Glutino chocolate covered wafer cookies to help with that Kit Kit addiction.
  • Upcoming Events