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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Celiac Society - Philippines, Now Forming!

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Celiac Society - Philippines, Now forming!

We realize that as more and more wheat and wheat by-products are being dumped into the Philippine Market - more and more Filipinos are suffering from Celiac or D.H. or other gluten related illnesses.

Filipinos were at one time considered to be Celiac free. However it is proven that the farther a Filipino gets from the traditionally Filipino Diet, naturally gluten-free and uses "modern" manufacturing the more they are becoming seriously ill with Gluten reactions.

One report was that it is believed that an American diet would give 1 in 97 Filipinos Celiac or D.H. - that is a higher rate than the American Population of 1 in 133.

In order to have a voice in out future, a couple Families have started a Celiac Society ~ Philippines and hope to have a voice in legislation that effects our lives, as well as provide information and helpful support to others in the Philippines that are suffering - so we can all get better together!

It is just a begining but the Celiac Society Philippines Website can be found at:

Celiac Society ~ Philippines

If you are in the Philippines we hope you will join with us in improving the lives of Gluten Reactive People in the Philippines.

Thank You and God Bless You,

aLan Tait

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Celiac Society - Philippines, Now forming!

We realize that as more and more wheat and wheat by-products are being dumped into the Philippine Market - more and more Filipinos are suffering from Celiac or D.H. or other gluten related illnesses.

Filipinos were at one time considered to be Celiac free. However it is proven that the farther a Filipino gets from the traditionally Filipino Diet, naturally gluten-free and uses "modern" manufacturing the more they are becoming seriously ill with Gluten reactions.

One report was that it is believed that an American diet would give 1 in 97 Filipinos Celiac or D.H. - that is a higher rate than the American Population of 1 in 133.

In order to have a voice in out future, a couple Families have started a Celiac Society ~ Philippines and hope to have a voice in legislation that effects our lives, as well as provide information and helpful support to others in the Philippines that are suffering - so we can all get better together!

It is just a begining but the Celiac Society Philippines Website can be found at:

Celiac Society ~ Philippines

If you are in the Philippines we hope you will join with us in improving the lives of Gluten Reactive People in the Philippines.

Thank You and God Bless You,

aLan Tait

I live in Philippines now and have celiac. Is your site active? I'm noticing some problematic links there.

B

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I live in Philippines now and have celiac. Is your site active? I'm noticing some problematic links there.

B

This post is from 2008. The information might not be valid now. Websites change. The person who posted it likely hasn't

checked this site in years.

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This post is from 2008. The information might not be valid now. Websites change. The person who posted it likely hasn't

checked this site in years.

I know, I was just hoping.

B

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The OP was last logged in here on Aug 16, 2008.

Thanks. I wonder if there is anyone else here in Philippines.

B

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    • Hi Johno,  fellow brit here. Crappy uk medical experience is par for the course unfortunately where this is concerned, so don't expect too much help from that sphere. Although with a positive diagnosis you should be eligible for dietician advice and monitoring of nutrient levels.  First, 4 month in is still early days. If you have cracked the diet and are not suffering cross contamination (v easily done) then you still have at least 2 and maybe 8 months of healing to come. So it's little early yet to be thinking that your celiac isn't responding to he diet.  1. Sleep issues. You don't mention what these are, but yes, celiac is definitely linked to sleep disorders. In fact it's linked with just about everything due to the way it impacts the body. Almost all systems can be affected. You may also find if the sleep issues are neurological in origin that they will be the last to go on the diet. I find neuro symptoms are the first symptom and last to go. Note also that although Gastrointestinal is commonly percieved as the major celiac presenting symptom, this isn't the case. So your not alone in not having major tummy issues.  It's not caused by mentality but it sure as hell affects it.  2. How long have you got? I tested negative so I'm in the ncgs category and some won't even accept that my condition exists. Even understanding of celiac is still developing. Research is ongoing as is levels of incidence. It's up 4 times since the 1950s so something is going on, better testing is perhaps revealing more. you have positive diagnosis, so you have good evidence to keep you strict on the diet. Eat as well as you can. Try to keep gluten free processed foods to  minimum  and eat fresh whole foods where possible. Treat this first 6 months as a one off healing period and help your body as much as possible. Take some good quality supplements, regardless of what the tests are saying. B complex, magnesium and a multivitamin are a good safety net if nothing else.  Read the newbie thread on this site and double check your kitchen etc for possible cross contamination sources. Could be seasoning, shared butter etc. You need to develop a sense of vigilance about this whilst staying on the right side of paranoia! finally, a warm welcome to a good site  
    • This disease is like a chameleon and seems to change symptoms on people and everyone is a bit different, heck some have no symptoms til it almost kills them with secondary issues like cancer, lymphoma, rupturing the intestines etc.
      I did not have ht classic D but constipation, I also had a bunch of other signs that I had grown into and considered normal. My big thing was neurological side of it. I had gluten ataxia where it attacked my brain and nervous system compounded by b vitamin deficiency, I had learned about the magnesium deficiency months earlier and was supplementing for that part of it. Anyway my health was getting bad, tired, random gut pains, brain looping on the same thought over and over driving me mad, bouts of anger and rage. I was running a bucket list before they got it diagnosed.
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      There are some mental aspects to it, one part is the effects of vitamin deficiency like the b-vitamins, can be very detrimental to you mental health. Various others have cumulative effects or require others nutrients to work right. SO you have to find your balance and supplement til you heal, or sometimes for life. 

      There is also odd fight or flight responses I have noticed from me and others, your body starts to associate gluten and certain foods with discomfort, once off them starting to smell them or thing they might have contaminated your food brings out a panic like fight or flight as you subconsciously attribute that smell, thought, food, etc. with pain and discomfort.

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    • I just quoted a little part but really much of your experiences could be mine. I won't bore you with it all, but chest pains came from 19, herniated disk came at 21, followed by 20 years of sciatic back pain. Depression at or about the same time. Brain fog little later. There was lots more, primarily neurological. Internally I expected to die in my 30s or maybe reach 40.  Nothing shifted any of it until I changed my diet and inadvertently reduced my gluten consumption. I went back on gluten for testing, confident I'd found my cause only to test negative. I did keep a diary however and that helped me and my consultant decide that gluten was off the menu for life.  Couple of things which may be helpful. There is more than one blood test. You may find that one of the others works for you. I never got them all and wonder sometimes if I would have tested positive on another one. You can post your results here if you would like some help in interpreting them. you mentions feeling relief when you ate less gluten. Are you sure you were eating it up to the test? Removing it may have altered the results. Finally, once testing is complete, go properly gluten free even if you tested negative on scope and blood. For some people, they test negative but still react. That could be you and give how closely some of my symptoms match to yours it may be the case. best of luck, you will find this site full of support and useful info. You are not alone in this. matt  
    • Morning guys.  So long story short. Lost 10 kg back late last year. Stress related I believe. ( I Understand this is a big factor with celiacs) Tested. Found anti bodies in my blood. Doctor states potential Celiacs. Have endoscopy. Doctor who takes procedure doubts I have it. Move to London. Move Doctor appointment. Here nothing from Doctors. Fast Forward from December (endoscopy) to July. Ring up doctos asking what my result were as I hadnt heard anything (While eating gluten) Get told "oh, you have celiacs"...........Ridicolous that I wasnt contacted. But anyway thats not the issue.   Fast forward to Now. Gluten Free diet. I have had 1 day I would say in 4 months that I have had super energised, felt great. Sticks in my mind. Had more bloods for all anemia/deficiencies. Everything is fine. Im still exhausted. Every day. My stomach wakes me up 90 percent of the time. I dont have loose stools. Never really have. My mood was severly low. Im really starting to feel like this Celiac is dealt with so primitively.  There is zero sense to any of this. I have tried everything. I watch these shows of people talking like they are dying. Its just painful, everything about it.   1)Wondering if anyone here has had the sleep issues. Im really starting to think this disease is entirely caused by mentality. 2) Thoughts on the contradictive studies/opinions of this disease?    
    • Getting a celiac disease diagnosis is shocking.  Expect to go through all the stages of grief.  Your best defense is to learn how to read labels, avoid cross contamination and consider eating as few processed foods for a few weeks.  It may speed healing (wish someone would have advised me to do so).  You might keep a food journal because celiacs tend to have leaky guts (this is a real thing) causing food intolerances that often resolve with healing.  Lactose intolerance is probably the most common.  You just have to experiment.   The bottom line is that soon you will feel so much better!  Just be patient.  It took a while for you to get sick and it will take time to recover.  😄 If you need to vent, ask a product question, or whatever, we are here to help!  
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