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Egg Allergy/intolerance After Effect Of Celiac?


Guest Cari5393

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Guest Cari5393

I would first like to say thanks to everyone out there who has helped with all my other questions/issues. You guys are great and really know your stuff!

Well, my new issue seems to be with eggs. I have been gluten free, as a biopsy diagnosed Celiac, since Oct '07. Just in the last 2 weeks I am having HORRIBLE stomach pain and bloating from eating eggs. I burp almost constantly as well. This starts within an hour of eating them and lasts about 2 hours then I am fine. This only happens when I eat eggs as a meal, not when I eat things like cookies with egg in them. I have read a few threads talking in general about other food intolerances coming up after going gluten free and I am wondering if that is what this is. A few things to point out- I did not have to eliminate dairy, I do fine with it. The eggs were cooked all the way. Other people in the house ate them and were fine. While trying to figure out it was the eggs, I also noticed the amount of pain and gas were directly related to the amount of eggs I ate. Lastly, the eggs were plain with just salt and pepper.

Of course after going gluten free I was eating more eggs. Is that what caused this? Will the same happen with rice or soy?? I eat much more now then before being diagnosed. Any advice would be great.

Thanks

Cari

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  • 2 months later...

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huevo-no-bueno Apprentice
I would first like to say thanks to everyone out there who has helped with all my other questions/issues. You guys are great and really know your stuff!

Well, my new issue seems to be with eggs. I have been gluten free, as a biopsy diagnosed Celiac, since Oct '07. Just in the last 2 weeks I am having HORRIBLE stomach pain and bloating from eating eggs. I burp almost constantly as well. This starts within an hour of eating them and lasts about 2 hours then I am fine. This only happens when I eat eggs as a meal, not when I eat things like cookies with egg in them. I have read a few threads talking in general about other food intolerances coming up after going gluten free and I am wondering if that is what this is. A few things to point out- I did not have to eliminate dairy, I do fine with it. The eggs were cooked all the way. Other people in the house ate them and were fine. While trying to figure out it was the eggs, I also noticed the amount of pain and gas were directly related to the amount of eggs I ate. Lastly, the eggs were plain with just salt and pepper.

Of course after going gluten free I was eating more eggs. Is that what caused this? Will the same happen with rice or soy?? I eat much more now then before being diagnosed. Any advice would be great.

Thanks

Cari

Cari,

I just saw this post. Looks like nobody responded yet. I can't eat eggs either, in any amount. It is a frustrating thing to deal with. When I first went gluten-free four years ago, my egg consumption immediately went up and the initial "clouds parting, clear headed" euphoria of going gluten free was replaced with a whole host of new physical complaints--stupefying headaches, dizziness, mild nausea, so-called "adult acne" and hives. I eventually gave up on being gluten-free for a while because I didn't know it was the eggs until I was tested again for everything a couple years later.

Some people who can't eat chicken eggs can eat duck eggs that you can buy from independent local farmers. I tried duck eggs and my reaction was exactly the same after eating two bites of one scrambled egg. I was out of commission for the rest of that day. This may or may not work for you, but it can be risky if you're allergic.

I can also eat dairy, and it is frustrating that many recipes are the "no taste" kind that eliminate everything....

There are a few egg-free recipes over on the baking forum. PM me if you want a few. I don't have many yet but am working on it (in all my spare time, haha). All the ways to replace eggs in baking work OK as far as I can tell, and I happen to prefer flaxseed over tofu. A lot of people have trouble digesting soy.

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scottyfeelsick Rookie
Cari,

I just saw this post. Looks like nobody responded yet. I can't eat eggs either, in any amount. It is a frustrating thing to deal with. When I first went gluten-free four years ago, my egg consumption immediately went up and the initial "clouds parting, clear headed" euphoria of going gluten free was replaced with a whole host of new physical complaints--stupefying headaches, dizziness, mild nausea, so-called "adult acne" and hives. I eventually gave up on being gluten-free for a while because I didn't know it was the eggs until I was tested again for everything a couple years later.

Some people who can't eat chicken eggs can eat duck eggs that you can buy from independent local farmers. I tried duck eggs and my reaction was exactly the same after eating two bites of one scrambled egg. I was out of commission for the rest of that day. This may or may not work for you, but it can be risky if you're allergic.

I can also eat dairy, and it is frustrating that many recipes are the "no taste" kind that eliminate everything....

There are a few egg-free recipes over on the baking forum. PM me if you want a few. I don't have many yet but am working on it (in all my spare time, haha). All the ways to replace eggs in baking work OK as far as I can tell, and I happen to prefer flaxseed over tofu. A lot of people have trouble digesting soy.

I don't think I can really be of any help to you, but I know what your feeling. You described almost exactly how I feel with eggs after about 2 months gluten free. I used to eat tones of eggs, well cooked all the way to raw, and they made me feel good (maybe the protien) but since being off of gluten I noticed feeling really crappy for a couple hours after paoched eggs and spinach for breakfast, so a week later I tried scrambled eggs(fully cooked yolks this time) and the same thing happened! I even showed NO reaction to chicken eggs through an enterolab test. I have not tried duck eggs.

I havn't noticed any reaction to food containing eggs, like baked goods or anything. But I am also still healing and I am on a bit of an intestinal and fatigue roller coaster, so its hard to tell sometimes if I am reacting to something. Sorry I am not of any help. But, trust me I feel your pain.

I am kinda wishing that it might go away after my intestine heals completally. I plan on trying it again in a month maybe. Does anybody have any experience with something like this getting better with time, as your body heals from the gluten damage? kinda like some people have with dairy?

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huevo-no-bueno Apprentice
I don't think I can really be of any help to you, but I know what your feeling. You described almost exactly how I feel with eggs after about 2 months gluten free. I used to eat tones of eggs, well cooked all the way to raw, and they made me feel good (maybe the protien) but since being off of gluten I noticed feeling really crappy for a couple hours after paoched eggs and spinach for breakfast, so a week later I tried scrambled eggs(fully cooked yolks this time) and the same thing happened! I even showed NO reaction to chicken eggs through an enterolab test. I have not tried duck eggs.

I havn't noticed any reaction to food containing eggs, like baked goods or anything. But I am also still healing and I am on a bit of an intestinal and fatigue roller coaster, so its hard to tell sometimes if I am reacting to something. Sorry I am not of any help. But, trust me I feel your pain.

I am kinda wishing that it might go away after my intestine heals completally. I plan on trying it again in a month maybe. Does anybody have any experience with something like this getting better with time, as your body heals from the gluten damage? kinda like some people have with dairy?

I think I was always allergic to eggs, even as a child, and it only seemed to get worse after going gluten-free (the first time) because I was eating more of them. I have to be 100% off both things to feel better. If I'm not, a whole lot more foods seem to bother my stomach and cause other problems. I think when you're poisoning yourself with gluten, you don't know how lousy you feel until you go off of it. Then it becomes readily apparent which things make you feel good or bad.

For me, now it is at the point where I'm discovering which foods actually make me feel really good, compared to other foods that are safe and OK but just neutral. Plenty of raw leafy greens, fresh fruit, and protein seems to be best, but that isn't deterring me from trying to come up with a few muffins to bake at home that I can tolerate and that satisfy the desire for something carby.

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AliB Enthusiast

Although I now seem to be able to tolerate eggs (I couldn't initially after going gluten-free), I don't eat them very often, so perhaps that has helped.

I have a theory though. You know how stuff can cross the body into mothers' milk when breastfeeding - I am sure a similar thing happens to eggs. The longer we get away from gluten the more sensitive we seem to get to it. Last night I had some chicken. Something in it affected my mouth, then my stomach.

I know that there are some that are so sensitive to gluten that they can't even eat meat or poultry that has been grain-fed. I am wondering whether the same thing happened to me and whether I ended up with a slight glutening effect from the chicken.

Mind you, they put so much crap in the feed now, not to mention the drugs and chemical additives, it is a job to know what we are eating! Have you tried eggs from corn-fed chickens? I used to buy eggs from a farm some years back and she fed them with fish meal - the eggs often tasted fishy! But that just goes to reiterate that what is in the feed can get through to the eggs.

Chicken traditionally are fed with grain, so short of buying some and 'growing' your own eggs from chickens fed on grain-free kitchen scraps, there is little way of avoiding it. There's a thing for some enterprising person with a bit of land - breed 'gluten-free' chickens and eggs!

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spunky Contributor

This has happend to me too.

I can't eat eggs. I've been gluten free for 2 years and 3 months. For a while I couldn't eat eggs at all. Now I can eat stuff like mayonnaise made with eggs, eggs baked into something, etc., but the minute I eat just an egg, like for breakfast, then it hits again!

I always could eat eggs until a while after I went gluten-free.

I have no explanation for this... but at least we see it seems to be fairly common for some people.

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huevo-no-bueno Apprentice

For those of you whose intolerance of eggs developed or was discovered post-gluten-free, do you have the same symptoms as an allergy? Eggs hit me a lot faster than gluten ever did.

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MELINE Enthusiast
I would first like to say thanks to everyone out there who has helped with all my other questions/issues. You guys are great and really know your stuff!

Well, my new issue seems to be with eggs. I have been gluten free, as a biopsy diagnosed Celiac, since Oct '07. Just in the last 2 weeks I am having HORRIBLE stomach pain and bloating from eating eggs. I burp almost constantly as well. This starts within an hour of eating them and lasts about 2 hours then I am fine. This only happens when I eat eggs as a meal, not when I eat things like cookies with egg in them. I have read a few threads talking in general about other food intolerances coming up after going gluten free and I am wondering if that is what this is. A few things to point out- I did not have to eliminate dairy, I do fine with it. The eggs were cooked all the way. Other people in the house ate them and were fine. While trying to figure out it was the eggs, I also noticed the amount of pain and gas were directly related to the amount of eggs I ate. Lastly, the eggs were plain with just salt and pepper.

Of course after going gluten free I was eating more eggs. Is that what caused this? Will the same happen with rice or soy?? I eat much more now then before being diagnosed. Any advice would be great.

Thanks

Cari

same thing for me too, with eggs but only the inside. You know...the yellow stuff (I don't know the english word for that). Have you tried excluding that? because it is the most common thing to cause trouble. The white part of the egg seems to be more innocent.

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  • 2 years later...
pqat22 Newbie

I have been on the gluten free diet for 53 years and now I may be allergic to eggs also. I love eggs . I went on a sort of modified vegan gluten free diet for the past three weeks 6 hours after eating two scrambled eggs I feel somebody slugged me ion the gut ;

for 36 hours I have been weak dizzy bloated - the reaction may have been so strong because for three weeks without beef dairy and shellfish I felt terrific ;

for the first time I had tremendous amounts of energy - all these years whenever I had a reaction I thought I had the four hour flu and would lay down several times a day then finally return to work to finish up. I was thinking of trying different brands of eggs . I am now afraid to challenge myself with milk which I also love .

A breakfast of pears , turkey bacon and a rice cracker and ginger tea is just not appetizing day after day. Does anybody think this is becoming more prevalent because of the synthetic feed the chickens might be eating --- so far I do not have a rash from eggs nor hives -- I also have dermatites herpetiformes which is totally different from hives . Help - does anyone know any doctors or scientists who may be investigating this phenomena?

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GFinDC Veteran

Hi PQAT,

I don't know if the chicken feed has anything to do with it or not. I remember seeing stories for a while about anti-biotics fed to chickens possibly causing problems. Seems like that has been in the news for a while though.

The rice crackers I have seen usually have soy in them. Could it be you are reacting to soy? Soy caused me all kinds of problems.

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  • 4 years later...
GraemeH Newbie

I know this is an old thread but I thought I'd share. I was diagnosed with Celiac about 3 years ago and have been feeling better and better. But within the last two months I seem to have developed an allergy/reaction to eggs as well. About an hour or so after eating eggs I develop severe stomach pain/nausea, which sometimes leads to vomiting. I get very gassy and bloated and get lower intestinal "problems" as well. 

I've no problems with dairy, either. I also don't seem to have a bad reaction if the egg is IN something (like gluten-free cake, bread, etc).

Just this morning I experimented and made myself an egg white scramble (no yolks), as I heard that many allergic reactions comes from the yolk of the egg. I'm afraid the experiment failed. I'm sitting here at work fighting bad nausea and the usual symptoms.

So I guess eggs are now on the list of foods to avoid...

 

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Geeky Newbie

I can't eat eggs either.

Also post Celiac dx I can't do milk, corn, oats, amaranth, sorghum, potato, or quinoa. :/

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cyclinglady Grand Master
On November 2, 2015 at 9:53:03 AM, GraemeH said:

I know this is an old thread but I thought I'd share. I was diagnosed with Celiac about 3 years ago and have been feeling better and better. But within the last two months I seem to have developed an allergy/reaction to eggs as well. About an hour or so after eating eggs I develop severe stomach pain/nausea, which sometimes leads to vomiting. I get very gassy and bloated and get lower intestinal "problems" as well. 

I've no problems with dairy, either. I also don't seem to have a bad reaction if the egg is IN something (like gluten-free cake, bread, etc).

Just this morning I experimented and made myself an egg white scramble (no yolks), as I heard that many allergic reactions comes from the yolk of the egg. I'm afraid the experiment failed. I'm sitting here at work fighting bad nausea and the usual symptoms.

So I guess eggs are now on the list of foods to avoid...

 

Sorry, to hear about your newly acquired egg intolerance.  Let's hope that you will get eggs back someday.

Welcome to the forum!  

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mommida Enthusiast

The top 8 allergens are the most complex protein chains to digest.

Learning to cook gluten free and egg free is quite challenging.  I noticed a lot of gluten free cooking relies on the eggs to build more texture.

There are a lot of ways to replace eggs in baking, but keep in mind what you are replaces the egg for.  Texture (light and fluffy), taste, or to hold the food together?

light and fluffy - baking soda - egg replacement powder

tastes- fruit puree - apple sauce, banana

binder - flax seed and water (let it sit and it turns into a slimey texture

I also found using cream cheese in cookie recipes (cream cheese chocolate chip and sugar cookies to roll out and cut )works well if you can have dairy.

Also look up other ingredient words that mean egg/ egg protein like albumin.

Everyone with food sensitivities needs to know the recipe for "crazy cake" or depression era chocolate cake. * Do not double the recipe in a larger pan. It will not get done in the middle!*  Of course you use a gluten free flour substation with xanthan gum or guar gum.

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GraemeH Newbie
On 11/9/2015, 9:50:38, cyclinglady said:

Sorry, to hear about your newly acquired egg intolerance.  Let's hope that you will get eggs back someday.

Welcome to the forum!  

A fellow cyclist! Thanks for the welcome. :)

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  • 8 months later...
Janielle Newbie
On 12/11/2010 at 6:55 PM, pqat22 said:

I have been on the gluten free diet for 53 years and now I may be allergic to eggs also. I love eggs . I went on a sort of modified vegan gluten free diet for the past three weeks 6 hours after eating two scrambled eggs I feel somebody slugged me ion the gut ;

 

for 36 hours I have been weak dizzy bloated - the reaction may have been so strong because for three weeks without beef dairy and shellfish I felt terrific ;

 

for the first time I had tremendous amounts of energy - all these years whenever I had a reaction I thought I had the four hour flu and would lay down several times a day then finally return to work to finish up. I was thinking of trying different brands of eggs . I am now afraid to challenge myself with milk which I also love .

 

A breakfast of pears , turkey bacon and a rice cracker and ginger tea is just not appetizing day after day. Does anybody think this is becoming more prevalent because of the synthetic feed the chickens might be eating --- so far I do not have a rash from eggs nor hives -- I also have dermatites herpetiformes which is totally different from hives . Help - does anyone know any doctors or scientists who may be investigating this phenomena?

Totally relate to the "slugged in the gut" phrase -- I get that and feel like I've been whacked on the back of my head.  Just super 'flu-ish' I do get a DH rash within 24 hours.  At present I cannot eat dairy, eggs, soy, mushrooms, beans or meat.   The meat does not give me celiac reaction, just slows my digestion down so I feel unwell. I still feel so much better than I did before I discovered I had Celiac Disease -- am eating lots of bananas, peanut butter, peanuts, fresh vegetables and fruit.

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  • 7 months later...
Mrsjinx Newbie

I've been consciously gluten-free for 4 months now. A couple of weeks ago I started to get gluten-like reactions to quinoa, and now this week, eggs! The last 2 times I had them (poached, hard-boiled) I got wrenching, painful stomach bloating and gas (sorry). I know this isn't exactly helpful information, but more of a commiseration ;) 

 

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cyclinglady Grand Master
24 minutes ago, Mrsjinx said:

I've been consciously gluten-free for 4 months now. A couple of weeks ago I started to get gluten-like reactions to quinoa, and now this week, eggs! The last 2 times I had them (poached, hard-boiled) I got wrenching, painful stomach bloating and gas (sorry). I know this isn't exactly helpful information, but more of a commiseration ;) 

 

Hopefully, these intolerances will resolve soon!  

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Jmg Mentor
3 hours ago, Mrsjinx said:

A couple of weeks ago I started to get gluten-like reactions to quinoa

I didn't tolerate quinoa well last time I had it: http://www.livestrong.com/article/444005-reactions-to-quinoa/

Quote

Quinoa does not contain gluten, which makes it a good option for anyone diagnosed with celiac disease, wheat allergy or gluten sensitivity. Some types of quinoa contain substances called prolamins, which could trigger an immune response in people with celiac disease, reported the “American Journal of Clinical Nutrition” in August 2012. However, more studies are needed to verify the effect of prolamins, and most types of quinoa do not contain these substances. Quinoa was well-tolerated by celiac patients when it was included as part of a gluten-free diet, according to a study in the February 2014 issue of the “American Journal of Gastroenterology.”

 

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  • 4 months later...
Dixiebutterfly Newbie

I was diagnosed with Celiac in January and was doing pretty well until recently. Im noticing foods that never bothered me before are causing the same reaction as gluten. So far im intolletent to bannanas and Im suspecting eggs. I still nred to determine oats and corn. 

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  • 5 months later...
Betsy Appel Newbie
On 5/6/2008 at 3:45 PM, huevo_no_bueno said:

 

Cari,

 

I just saw this post. Looks like nobody responded yet. I can't eat eggs either, in any amount. It is a frustrating thing to deal with. When I first went gluten-free four years ago, my egg consumption immediately went up and the initial "clouds parting, clear headed" euphoria of going gluten free was replaced with a whole host of new physical complaints--stupefying headaches, dizziness, mild nausea, so-called "adult acne" and hives. I eventually gave up on being gluten-free for a while because I didn't know it was the eggs until I was tested again for everything a couple years later.

 

Some people who can't eat chicken eggs can eat duck eggs that you can buy from independent local farmers. I tried duck eggs and my reaction was exactly the same after eating two bites of one scrambled egg. I was out of commission for the rest of that day. This may or may not work for you, but it can be risky if you're allergic.

 

I can also eat dairy, and it is frustrating that many recipes are the "no taste" kind that eliminate everything....

 

There are a few egg-free recipes over on the baking forum. PM me if you want a few. I don't have many yet but am working on it (in all my spare time, haha). All the ways to replace eggs in baking work OK as far as I can tell, and I happen to prefer flaxseed over tofu. A lot of people have trouble digesting soy.

I am 62 and I was first dianosed with Celiac's when I was about 3 years old. I stayed on a diet for about 5 years and they though I grew out of it , but I away had issues. Then about 23 years ago after babies symptoms came back with a vengeance.

 In the last year I have had problems with chicken eggs and I tried duck eggs and could not tollerate them. However I can eat turkey eggs. Bad news is that they are hard to find and can only get them a few month out of the year.  I do not seem to have a problem  with chicken eggs when they are cooked in other foods. I just can't eat them plain. 

Also within the last  year I have developed a problem with sulfites and ibuprofen. So just when you think it can't get any worst somehow it does   

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Ennis-TX Grand Master
1 hour ago, Betsy Appel said:

I am 62 and I was first dianosed with Celiac's when I was about 3 years old. I stayed on a diet for about 5 years and they though I grew out of it , but I away had issues. Then about 23 years ago after babies symptoms came back with a vengeance.

 In the last year I have had problems with chicken eggs and I tried duck eggs and could not tollerate them. However I can eat turkey eggs. Bad news is that they are hard to find and can only get them a few month out of the year.  I do not seem to have a problem  with chicken eggs when they are cooked in other foods. I just can't eat them plain. 

Also within the last  year I have developed a problem with sulfites and ibuprofen. So just when you think it can't get any worst somehow it does   

Celiac never goes away.....and if you keep eating gluten your immune system and gut gets more messed up where you develop other food intolerance issues, allergies, etc. This is due to various aspects from you immune system getting confused and associated gluten and those other food together and it starts fighting them, enzyme issues, lack of gut flora to work with certain foods, biome changes, and some foods just irritate the damaged gut...other times just completely random. I can not have animal products without taking additional pancreatic enzymes now days...egg yolks are a no but egg whites are no issue.

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Betsy Appel Newbie

Yes, I know that it never goes away but back when I was a child there was very little information on it and my parents just didn't know. Even 23 years ago it was very difficult to manage my diet and even harder to find a doctor to diagnose  my problem. I told them that I had celiac and they kept demising it.  I had to refuse  to take any more tests and demanded they test me for celiac and finally I was re-diagnosed. But that was then and this is now and things are good and I stay on a strict diet. Not that my body gives me much choice. I will try to eat the egg whites and hopefully  they won't make me sick. Thank you for your reply.

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cyclinglady Grand Master
1 hour ago, Betsy Appel said:

Yes, I know that it never goes away but back when I was a child there was very little information on it and my parents just didn't know. Even 23 years ago it was very difficult to manage my diet and even harder to find a doctor to diagnose  my problem. I told them that I had celiac and they kept demising it.  I had to refuse  to take any more tests and demanded they test me for celiac and finally I was re-diagnosed. But that was then and this is now and things are good and I stay on a strict diet. Not that my body gives me much choice. I will try to eat the egg whites and hopefully  they won't make me sick. Thank you for your reply.

Good luck with the egg whites!  Some of my food intolerances, improved (like lactose) and some have not (like garlic/onions).  I keep testing, but no luck so far.  It is hard cooking without garlic or onions.  ?

I developed allergies to ibuprofen, acetaminophen and aspirin, along the way making me wary of trying any medications.  I react in the hospital as well, so each drug exposure can be scary.  You might research Mast Cell Activation Syndrome if you are experiencing allergic-type symptoms (hives, swelling, breathing issues, blood pressure drops, etc.)

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cyclinglady Grand Master

Learn more about Mast Cell Activation from member Jebby who is a medical doctor and has celiac disease:

https://www.celiac.com/gluten-free/blogs/entry/1931-mast-cell-activation-syndrome-madness/

 

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    • Nedast
      I made an account just to reply to this topic. My story resembles yours in so many ways that it is truly amazing. I also suddenly became lactose intolerant, went a little under 10 years attributing all my symtoms to different body parts, never thinking it was something systemic until much later. I had the same mental problems - anxiety, depression, fatigue, etc. In fact, the only real difference in our story is that I was never formally diagnosed. When I discovered that my myriad symtoms, that had been continuous and worsening for years, all rapidly subsided upon cessation of consuming gluten, I immediately took it upon myself to cut gluten out of my diet completely. I live in America, and had lost my health insurance within the year prior to my discovery, so I could not get tested, and I will never willingly or knowingly consume gluten again, which I would have to do in order to get tested now that I have insurance again. But that is not the point of this reply. I also had extreme TMJ pain that began within months of getting my wisdom teeth out at - you guessed it - 17 years old. I was in and out of doctors for my various symptoms for about 5 years before I gave up, but during that time I had also kept getting reffered to different kinds of doctors that had their own, different solutions to my TMJ issue, an issue which I only recently discovered was related to my other symptoms. I began with physical therapy, and the physical therapist eventually broke down at me after many months, raising her voice at me and saying that there was nothing she could do for me. After that saga, I saw a plastic surgeon at the request of my GP, who he knew personally. This palstic surgeon began using botox injections to stop my spasming jaw muscles, and he managed to get it covered by my insurace in 2011, which was harder to do back then. This helped the pain tremendously, but did not solve the underlying problem, and I had to get repeat injections every three months. After a couple of years, this began to lose effectiveness, and I needed treatments more often than my insurance would cover. The surgeon did a scan on the joint and saw slight damage to the tissues. He then got approved by insurance to do a small surgery on the massseter (jaw) muscle - making an incision, and then splicing tissue into the muscle to stop the spasming. It worked amazingly, but about three months later it had stopped working. I was on the verge of seeing the top oral surgeon in our city, but instead of operating on me, he referred me to a unique group of dentists who focus on the TMJ and its biomechanical relationship to teeth occlusion (i.e. how the teeth fit together). This is what your dentist did, and what he did to you was boderline if not outright malpractice. There is a dental field that specializes in doing this kind of dental work, and it takes many years of extra schooling (and a lot of money invested into education) to be able to modify teeth occusion in this manner. Just based on the way you describe your dentist doing this, I can tell he was not qualified to do this to you. Dentists who are qualified and engage in this practice take many measurments of your head, mouth, teeth, etc., they take laboratory molds of your teeth, and they then make a complete, life-size model of your skull and teeth to help them guide their work on you. They then have a lab construct, and give you what is called a "bite splint." It looks and feels like a retainer, but its function is entirely different. This is essentially a literal splint for the TMJ that situates on the teeth. The splint is progressively modified once or twice per week, over several months, in order to slowly move the joint to its correct position. The muscles spasm less, stress is taken off the joint, as the joint slowly moves back into its proper position. The pain reduces each month, each week, sometimes even each day you go in for a visit. The joint has to be moved in this manner with the splint BEFORE the modification to the teeth begins. They then add to your tooth structure with small bits of composite, to keep the joint in its proper place after it has been sucessfully repositioned. Subtracting from your teeth, by grinding down bits of your natural tooth structure, is done very conservatively, if they have to do it at all. This process worked for me - after six months, my face, jaw, neck all felt normal, and I had no more pain - a feeling I had not had in a long time. It also made my face look better. I had not realized the true extent that the spasming muscles and the joint derangement had effected the shape of my face. The pain began to return after a few months, but nowhere near where it had been before. This immense reduction in pain lasted for a little over two years. The treatment still ultimately failed, but it is not their fault, and it is still the treatment that has given me the most relief to this day. Later on, I even went about three years with very, very good pain reduction, before the joint severely destabilized again. This field of dentistry is the last line treatment for TMJ issues before oral surgery on the TMJ. There aren't as many denists around who practice this anymore, and the practice is currently shrinking due to dentists opting for less espensive, additional educations in things like professional whitening, which have a broader marketability. Getting this treatment is also very expensive if not covered by insurance (in America at least). My first time was covered by insurance, second time was not, though the dentist took pity on me due to the nature of my case and charged like a quarter of usual pricing. Most cases seen by these dentists are complete successes, and the patient never has to come back again. But occasionally they get a case that is not a success, and I was one of those cases. A little over a year ago, I began seeing the second dentist who keeps my TMJ stable in this manner. The first dentist retired, and then died sadly. A shame too, because he was a truly amazing, knowledgable guy who really wanted to help people. The new dentist began to get suspicious when my joint failed to stay stable after I was finished with the bite splint and his modifications, so he did another scan on me. This is ten years after the first scan (remember, I said the surgeon saw "slight" damage to the tissue on the first scan). This new scan revealed that I now no longer have cartilage in the joint, on both sides - complete degeneration of the soft tissues and some damage to the bone. The dentist sat me down and had a talk with me after these results came in, and said that when he sees damage like this in cases like mine, that the damage to the joint is most likely autoimmune, and that, in his experinece, it is usually autoimmune. He has sent patients with cases like mine to Mayo Clinic. He said he will continue to see me as long as the treatment continues to offer me relief, but also said that I will probably have to see a dentist for this type of treatment for the rest of my life. He is not currently recommending surgery due to my young age and the fact that the treatment he provides manages my symptoms pretty well. I still see this dentist today, and probably will see this kind of dental specialist for the rest of my life, since they have helped with this issue the most. I did not inform him that I am 100% sure that I have celiac disease (due to my complete symptom remission upon gluten cessation). I didn't inform him because I thought it would be inappropriate due to not having a formal diagnosis. I was disappointed, because I had believed I had caught it BEFORE it had done permanent damage to my body. I had never suspected that my TMJ issues may be related to my other symptoms, and that the damage would end up complete and permanent. Luckily, I caught it about 6 months after my other joints started hurting, and they stopped hurting right after I went gluten free, and haven't hurt since. I of course did the necessary research after the results of the second scan, and found out that the TMJ is the most commonly involved joint in autoimmune disease of the intestines, and if mutliple joints are effected, it is usually the first one effected. This makes complete sense, since the TMJ is the most closely related joint to the intestines, and literally controls the opening that allows food passage into your intestines. I am here to tell you, that if anyone says there is no potential relationship between TMJ issues and celiac disease, they are absolutely wrong. Just google TMJ and Celiac disease, and read the scientific articles you find. Research on issues regarding the TMJ is relatively sparse, but you will find the association you're looking for validated.
    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
    • SuzanneL
      I've recently received a weak positive tTG, 6. For about six years, I've been sick almost everyday. I was told it was just my IBS. I have constant nausea. Sometimes after I eat, I have sharp, upper pain in my abdomen. I sometimes feel or vomit (bile) after eating. The doctor wanted me to try a stronger anti acid before doing an endoscopy. I'm just curious if these symptoms are pointing towards Celiac Disease? 
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