Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Celiac?


erbadger

Recommended Posts

erbadger Newbie

Hi,

I have been having some stomach and intestinal issues for the last nine months. It started off as just nausea, but however has gained some frrequent bathroom trips, cramps, intestinal pains, gas and bloating. My GI and primamry care doc have had me do an extensive series of tests like endoscopy, a barrium swallow, and ultrasound of my gallbladder, an ultra sound of my "girl parts" and random blood and fecal tests (not to mention the initial pregnancy test 9 months ago-thank god I'm not preg, my husband and I would be so upset!)

A few months ago my GI put me on amytriptiline which is an antidepressent (at much higher doses than what I was using) with the positive side effect of decreasing nausea, decreasing migraines (about 2x mo since I was 15) but causes weight gain! I went from about 135 lbs to 155 in just over 8 weeks! (I'm 5'8) I just stopped the medication due to the side effects and that it wasn't working very well.

I have always been a sleepy person (8-9 hrs a night is never enough) and have gone to the doc for exhaustion. But, that medicine made my sleepyness increase but olike 200%. In addition to nausea and migrane prevention, at the same lower concentration is perscribed as a sleep aid! So, needless to say, on the meds, I was drowsy for at least 4 hrs after waking. Now, I am still tired and exhuasted, but not as bad as on that medication!

I started having all these issues about a month after a pretty serious surgical procedure (totally unrelated) and just after being accepted to graduate school, though I wouldn't say I was under a ton of stress. Also, at that time I was doing Atkins, though not as good as I should have been. I was down to about 128-130 lbs (lowest in my life!) By the way, I am 24.

This week, my primamry care doc thought to test me for food allergies and sensitivities, so had me do a blood celiac test and some more stool samples.

I have been on that medicine for so long that I forgot what I felt like without it, that I just wasnt hungry and always sick to my stomach. Since Saturday, I haven't wanted to eat anything, because I always feel worse.

I don't know how long these results take, but do any of you have advice? Part of me wants this to be it so I dont have to be poked and prodded as much, but the majority of me really doesn't want this because I love pizza and chocolate cake and would miss having them ever.

Thanks in advance!

erbadger :D

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Hi erbadger, Welcome to the board!

I too had such nausea that I thought I was pregnant, had my doctor run a pregnancy test too and of course it came back negative but the point is the nausea was so bad and lasted all day and was not normal.

My suggestion to you is: Order a stool panel test from Open Original Shared Link if you receive negative blood results and continue to have the same problems. I had all the same symptoms as you and my blood-work came back negative but my stool panel test came back positive. A lot of times if the disease or intolerance is just beginning it may not register in the blood or has not done any damage to be seen in a biopsy.

A gluten free diet can be intimidating and can be overwhelming at first but there are a lot of foods out there we can eat, you just have to search for them. You mentioned you liked Pizza and cake, well you can still have those. There is a pizza made with Rice crust that is pretty good that is made by Amy's Organic. As far as the cake you will have to get in the kitchen and bake some, I still have not got the cake down pat but I will soon enough :D . The gluten free pantry sells an awesome Brownie mix that is better than the regular ones and for now that satisfies my cake craving!!!

I hope this information is helpful and I do hope you begin to feel better soon!

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    2. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj posted a topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,218
    • Most Online (within 30 mins)
      7,748

    Mcqueen23
    Newest Member
    Mcqueen23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
    • mishyj
      My daughter has celiac disease and has had for a long time. She fell loses strictly gluten-free diet and recently got rid of all cutting boards in any gluten in her house at all. She just had a stool test and it came back showing of gigantic response to gluten in her diet. What could be going on since she doesn't eat any gluten and is very careful about any kind of hidden glue? Help!
×
×
  • Create New...