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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Herbal Remedies/vitamins
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im planning to get pregnant and need to get off of Lunesta, which worries me...and im nervous. as i have SEVERE insomnia. this has been a problem since I was around 7-8 yrs old. [i am now 27].

i have been researching herbal remedies and vitamins to help [also with my migraines].

and am wondering if anyone here takes anything they swear by.

b2 riboflavin?

feverfew...magnesium...valerian...jamaican dogwood... are a few i have learned about.

but id like to hear about some experiences.

thanks in advance!!!

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I take calcium/magnesium and melatonin. It helps me sleep. I took ambien for a while and it did nothing! This seems to do the trick for me. Melatonin helps you stay asleep and calcium/magnesium helps you get to sleep.

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I take calcium/magnesium and melatonin. It helps me sleep. I took ambien for a while and it did nothing! This seems to do the trick for me. Melatonin helps you stay asleep and calcium/magnesium helps you get to sleep.

thats interesting. thank you!

i got the magnesium... to help with my fibro pain and heard about the melatonin as well. ill try this!

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Cheap place to buy supplements: www.swansonvitamins.com 1-800-437-4148 call and ask for a catolog

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Did something happen around the time you were 7 or 8 that started this insomnia I wonder? It almost sounds like maybe it could be something from your past trying to stick around, and manifesting itself that way. Wow...did I just write that new agey stuff?

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I also have sleeping issues and I want to try taking some magnesium to see if it will help-I've heard good things about it. But I have no idea how much magnesium to start out taking? Any suggestions?

If it helps, I do have some trouble getting to sleep but it's not horrible. The real problem is that I spend all night waking up every 1-3 hours. Don't know if that would make a difference on how much magnesium I should take. I am also taking a Vitamin B supplement right now.

Any suggestions would be greatly appreciated.

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I used to use melatonin, but it would not work for me unless it was a slow release tablet. I tried the kind from the health food store and it was terrible. I think the sustained release ones I had were 2 mg. The effect was totally different. It's hard to find the sustained release ones though and you may have to order them on line.

I finally figured out that my sleep issues stem from low vitamin D and low progesterone. If I treat those two things I do pretty well with sleep. Took forever to get it diagnosed though!

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For the magnesium question...I take one 250 mg tablet. (For something other than sleep) It doesn't help with sleep for me. I think you can take as much magnesium as your bowels will tolerate. So start slowly and then once you get watery stools, back off.

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Aside from the magnesium, which I do recommend, I believe you should definitely start taking a sublingual methylcobalamin (B12) supplement. B12 is essential for numerous things, including proper sleep cycles. It turns out that melatonin production is dependent on B12. So I really think that taking melatonin would be sidestepping the true problem.

Other nutrients would also help. Here's an article on the subject:

http://www.holisticonline.com/Remedies/Sle...s_nutrition.htm

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I normally sleep pretty good. But sometimes an emotional issue will keep me up. I like GABA, it calms me down without any side effects.

Addressing any underlying trauma that might have happened around that age (7-8) could help too. (and that isnt new agey......LOL)

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Addressing any underlying trauma that might have happened around that age (7-8) could help too. (and that isnt new agey......LOL)

I don't doubt the possibility that that's when Celiac was triggered too.

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im planning to get pregnant and need to get off of Lunesta, which worries me...and im nervous. as i have SEVERE insomnia. this has been a problem since I was around 7-8 yrs old. [i am now 27].

i have been researching herbal remedies and vitamins to help [also with my migraines].

and am wondering if anyone here takes anything they swear by.

b2 riboflavin?

feverfew...magnesium...valerian...jamaican dogwood... are a few i have learned about.

but id like to hear about some experiences.

thanks in advance!!!

I take my calcium/magnesium supplements before bed and was taking regular melatonin. I would still wake up about 2:00am every night. I started taking time release meletonin made by Natrol and sold at Walgreens, says gluten free right on the bottle. It has helped tremendously. I still wake up to use the bathroom and last night there were thunderstorms, but I stay awake for a much shorter time and feel better when I get up in the morning. Don't know if melatonin is safe for pregnancy though.

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Aside from a multi and other specifics which I can't get my kid to take regularly...

I try: slippery elm (go to Godsherbs.com and it's the stomach and bowel formula #2, I believe)

Pumpkin

Fish oil

Quercetin

Coconut oil (extra virgin organic)

Fresh garlic

Probiotics

Prebiotics

and some others

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After trying a whole list of things that didn't really work for me, what has done the trick was something called Travacor. It is a neurotransmitter support combo that happened to have most of the things that I tested low in. Surprisingly it helped after the first day!

The severe malabsorption caused a lot of deficiences for me...I'd try to get that checked out if the ususal things don't help.

BTW I took as much as 1600 mg of magnesium a day the first few month of gluten-free in order to have BMs. That is a HUGE amount over recommended. My body levels still test low though. I am now giving myself shots of mag. Didn't impact my sleep at all that I can tell.

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After trying a whole list of things that didn't really work for me, what has done the trick was something called Travacor. It is a neurotransmitter support combo that happened to have most of the things that I tested low in. Surprisingly it helped after the first day!

I've tried many things also and found TravaCor to be the best thing that's work so far. It has Taurine, 5 htp (works like typtophan) and Suntheanine (I think this is from green tea that has a calming effect). Then it has all the vit.s to support these three things to make it work better. Those are vir. C, vit. B6, vit.B12, folate, mag., zinc, and selenium.

It's great and I really hope you give it a try. I only take one in the afternoon and one before bed.

Gail

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I also take Magnesium (for migraines) and Calcium Citrate (because calcium is good for me). They seem to be helping I have been told Calcium can help with pms pain and also helps to relax you. My GI doctor said they are fine but keep in mind that magnesium can cause diarrhea if you are taking too much.

my herbal healing book recommends:

lemon balm (make tea), ginger( tea or in food), basil (tea or in food), valarian(sup.), and lavender (oil) as the top herbs for insomnia

although if you get pregnant I would make sure your it is ok with your dr.

good luck!

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My mother swears on her herbal remedies: ginger and lemon balm tea is what she uses herself and gives to all of her friends who have similar problems!

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I normally sleep pretty good. But sometimes an emotional issue will keep me up. I like GABA, it calms me down without any side effects.

I justed started using GNC's GABA (750mg, 2/day) myself. It helps me to sleep better and during the day I have less nervous stomach symptoms.How do you use your GABA? I'm asking because a competitive product from NOW FOODS (also 750mg) suggested using their product 1/day and "best without protein." The GNC label usage is 1-3/day and no respect to protein. My breakfast consists of 12 grams of protein. Therefore, I wait 30 minutes after taking GABA to eat. The GNC label says it meets UPS 2040 for disintegration.

I wonder if 30 minutes is to long or to short in time for sufficient absorption of GABA. How does protein interfere? Any comments would be appreciated.

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I justed started using GNC's GABA (750mg, 2/day) myself. It helps me to sleep better and during the day I have less nervous stomach symptoms.How do you use your GABA? I'm asking because a competitive product from NOW FOODS (also 750mg) suggested using their product 1/day and "best without protein." The GNC label usage is 1-3/day and no respect to protein. My breakfast consists of 12 grams of protein. Therefore, I wait 30 minutes after taking GABA to eat. The GNC label says it meets UPS 2040 for disintegration.

I wonder if 30 minutes is to long or to short in time for sufficient absorption of GABA. How does protein interfere? Any comments would be appreciated.

You are responding to a 4 year old thread, FYI. These posters haven't been around in awhile.

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    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
    • See: http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Take a copy of that with you or mail it to the doc. How many endoscopic biopsies did they take? Those with dh tend to have patchier damage than "normal" celiacs.
    • Ironictruth, I think that is a very insightful thought. since different antibodies present for different body systems all the ways gluten affects the body is still not well understood. Here is a case of presumably someone who had the gut damage of a celiac but also had neurological damage. http://www.nature.com/nrneurol/journal/v3/n10/full/ncpneuro0631.html entitled "A case of celiac disease mimicking amyotrophic lateral sclerosis" so it has happened in the literal but since this is not well understood people don't make the connection today. I would also point you to this hindawi article on the "Lesson's learned from Pellagra" but I am afraid we haven' learn't yet. https://www.hindawi.com/journals/cggr/2012/302875/ notice specially the 2.1 section clinical feature of pellagra and all the neurological symptom's once associated with a Pellagra patient. quoting "The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." which tells me doctor's don't recognize pellagra today when they see it because they haven't seen it in 75+ years. ***this is not medical advice but read the hindawi journal on lesson's learned and I think you will see yourself in their many descriptions of all the way Pellagra presents itself to doctor's and patients still suffering today and you can see why it (like celiac) is hard to pin down today because it presents in so many ways it can be soo overwhelming and since vitamins are not a focus anymore today (especially b-vitamins) that today I believe we are doomed to repeat history's lessons unless the current generation learns again all the ways pellagra presents itself today. good luck on your continued journey. posterboy by the grace of God,  
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