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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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LeahKristen

Nutritionist?

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when first diagnosed with celiac is it beneficial to go to a nutritionist? I'm really afraid of not getting the right nutrition or gaining weight!

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IF you can find a nutritionist who knows celiac, it may be helpful. Most here have found the nutritionist they went to see knows less than they do - they'd hand you a printout of what not to eat that you can get on this site and tell you to eat rice crispies with malt and good luck! I have found that this site is far more valuable than what you can get from most nutritionists. If you're worried about making sure you're getting enough protein, fat, carbs, vitamins then seeing a nutritionist may be worth your time, but if you want to post what you eat here, we'd be happy to make suggestions!

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I think it is very helpful to find a nutritionist who specializes in Celiac Disease. There have been and will continue to be changes in food labeling laws and a nutritionist who is up to date on everything celiac will know how to help you. This site has been extremely helpful for me, HOWEVER, I think it is important to remember that no one chatting here is a doctor and there are many people who will swear that you can not go anywhere near food that have been proven to not have gluten. So be careful what you listen to and do your research, but this site is an incredible resource.

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The Dietitian Community has made many efforts over the past several years to update their members - throw out what we were told 20 years ago and get educated. There is not a certification for Registered Dietitians for celiac disease so, by asking questions and hearing what they have to offer you can determine if they can be helpful to you.

There is a strong family history of celiac disease which has motivated me to become as knowledgable as possible and I began a celiac disease Support Group and I learn a ton from them also. I am fortunate that I can visit this website to learn as much as possible to pass on the the members and all of the outpatient and the public that are unaware and still suffering.

An RD can be extremely helpful with weight management issues and pediatric problems such as failure to thrive with our youngsters suffering from celiac disease.

Marilyn McCall, RD.LD

Iowa

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Hi---

I am switching careers and becoming a registered holistic nutritionist---at least you guys can know there wil be at least ONE nutritionist out there who knows all about celiac!!

:)

-Glutina

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    • One other thought to consider is other food allergies/intolerances you may have that you didn’t know of before that could be causing this change.  Is there any food that you may have added in or increased the frequency of eating since removing gluten from your diet?  I know this has happened with me where I took our gluten, started eating more rice and still getting sick till I figured out I have a rice allergy as well!
    • Hey I’m new here too- but totally get what your talking about! I have some friends that claim to be ‘gluten free’ but if they are hungry will eat a piece of bread and it can be frustrating to have them later complain to you about how hard it is to eat a gluten-free diet!
    • I get how you feel, I was diagnosed almost 5 years ago and still find challenges to overcome especially when traveling with my friends.  I get the feeling that sometimes it can seem to overshadow your life, but for me it has really shown me who some of my closest friends are as well.   My friends always find it funny and joke that I eat my way thru school classes, because I ALWAYS have ‘me proof’ snacks on me to eat so I’m never hungry when I’m away from home for longer than I thought, or can’t get food while we’re on the go!!
    • Sure, you should consider getting tested for celiac disease.  There is no test for Non-Celiac Gluten Intolerance or Sensivity.  However, you have to be consuming gluten daily for at least 12 weeks as ALL celiac tests require you to be consuming gluten.   Learn more about testing: http://www.cureceliacdisease.org/screening/
    • Welcome Isabel!   It is hard having celiac disease, but after a while it does get easier.  Just so you know, I am an adult, but I am a Girl Scout Leader, have a daughter who is 16 and one of my daughter’s friends was just diagnosed with celiac disease just three weeks ago!   Social events can be hard, but you can bring some food that is actually better than just snacks.  If I am going to a friends house, I can bring food and reheat it in the microwave.  I also have a good thermos that I can fill with Spaghetti, chili or soup.  I also bring ice cream and keep it in the freezer.  One of our troop members is really allergic  to nuts and milk, yet all her friends (true friends) accommodate her.  For example, I make some pretty good gluten free, dairy free, and nut free brownies for her.  At our troop meetings or camping, we never bring nuts.  She is never left out.  Now, we are working with our Newbie celiac friend.   My daughter and I took her a care package, so that she can start baking gluten-free chocolate chip cookies.   Short!  That is me.  Not everyone with celiac disease is short.  You may find that you end up growing more, but remember, genetics plays into it too.  My brother grew after high school!   I think that you probably see your doctor often, because they want to insure that you are following the gluten free diet.  Consider yourself lucky because some people do not have access to medical care.  They must manage this all on their own.   Take care and be safe!  Do not give out too much private information (did I say I was a Mom?”)  be patient and some other teens should show up in the other sections, but you can always ask anyone here a question.   P.S. Check out celiac summer camps.  Google it.  Imagine a ton of kids just like you!    I wanna go!    
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