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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Soy Lecithin Test?
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I had a big enough problem w/ soy that I haven't wanted to even TRY soy lecithin, tho I've heard of many for whom soy is off-limits & soy lecithin is fine, since it's not supposed to have any soy protein in it.

Yesterday I found a vitamin I wanted to take but rejected it due to soy lecithin.

My question is this:

Does anyone know of a Gluten-free Casein-free product w/ a LARGE amount of soy lecithin in it?

(I have seen that I can buy a bottle of the stuff, but I'd rather actually eat something)

I just don't want to do the test w/ something that has such a minute amount as to not cause a reaction, leading me to think it's ok, only to find out much later I should've stayed away from the lecithin.

Thanks!! :)

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I suppose you could add a bunch of the granules to something, like a smoothie. But I wonder if there might be a difference in any reaction between the GMO and non-GMO variety.

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Hi Tom--

I've never seen anything that has more than a very small amount of soy lecithin....it's always one of the very last ingredients I think because of what they use it for (emulsifying).

I think the only way to try a bunch of it would be to buy it separately. :)

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I would have to agree with Patti, soy lecithin is usually used in products in a small quantity.

You can buy a package of soy lecithin granules in bulk at the health food store for around $1

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You can buy a package of soy lecithin granules in bulk at the health food store for around $1

Ahhhhhhhh yes!! Great idea. :)

That'll probably be the way to go.

I wonder what I'll put it in. A little when I make salad dressing comes to mind, tho I emulsify just fine already, thank you.

Maybe I can just test it straight.

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Ahhhhhhhh yes!! Great idea. :)

That'll probably be the way to go.

I wonder what I'll put it in. A little when I make salad dressing comes to mind, tho I emulsify just fine already, thank you.

Maybe I can just test it straight.

Have you tried it yet? I'm curious how your experiment turned out!

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I had a big enough problem w/ soy that I haven't wanted to even TRY soy lecithin, tho I've heard of many for whom soy is off-limits & soy lecithin is fine, since it's not supposed to have any soy protein in it.

Yesterday I found a vitamin I wanted to take but rejected it due to soy lecithin.

My question is this:

Does anyone know of a Gluten-free Casein-free product w/ a LARGE amount of soy lecithin in it?

(I have seen that I can buy a bottle of the stuff, but I'd rather actually eat something)

I just don't want to do the test w/ something that has such a minute amount as to not cause a reaction, leading me to think it's ok, only to find out much later I should've stayed away from the lecithin.

Thanks!! :)

So, are there many people that do OK with soya lechithin but can't handle soy? Hubby seems to have a problem, but I am wonderign what the difference is? Thanks!

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So, are there many people that do OK with soya lechithin but can't handle soy? Hubby seems to have a problem, but I am wonderign what the difference is? Thanks!

I have tried soy lecithin and had a reaction to it. I have psoriasis, psoriatic arthritis, and coeliac. I started taking the soy lecithin as I thought it might help the psoriasis and my feet are burning and my toes are inflamed. I was also taking flax seed. Anyone have any information on these products as I don't think I have eaten anything else to cause this reaction. My psoriatic arthritis is normally stable as long as I stay completely gluten-free.

:huh:

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So, are there many people that do OK with soya lechithin but can't handle soy? Hubby seems to have a problem, but I am wonderign what the difference is? Thanks!

I forgot to say I had stopped dairy and started taking soya milk without any bad reaction.

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I have tried soy lecithin and had a reaction to it. I have psoriasis, psoriatic arthritis, and coeliac. I started taking the soy lecithin as I thought it might help the psoriasis and my feet are burning and my toes are inflamed. I was also taking flax seed. Anyone have any information on these products as I don't think I have eaten anything else to cause this reaction. My psoriatic arthritis is normally stable as long as I stay completely gluten-free.

:huh:

I forgot to say I had stopped dairy and started taking soya milk without any bad reaction.

Well, there seems to be a few variables here. The advice of many is to try only one new thing at any given time, and wait several days to see how you feel. Any one of the things you've been trying recently might be a culprit. On the lecithin, I guess I'd suggest trying sunflower lecithin (unless you are allergic).

Also, make sure the soy milk is gluten-free. Some products say gluten-free even when there's a small amount present, so it's always a good idea to look over the label carefully, and also check the company website and/or email them.

Are you taking any supplements? I'm sure there are a number of things which can help with burning feet. Here's the first thing that came up on Google for burning feet:

http://www.herbs2000.com/disorders/feet_burning.htm

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I had a big enough problem w/ soy that I haven't wanted to even TRY soy lecithin, tho I've heard of many for whom soy is off-limits & soy lecithin is fine, since it's not supposed to have any soy protein in it.

Yesterday I found a vitamin I wanted to take but rejected it due to soy lecithin.

My question is this:

Does anyone know of a Gluten-free Casein-free product w/ a LARGE amount of soy lecithin in it?

(I have seen that I can buy a bottle of the stuff, but I'd rather actually eat something)

I just don't want to do the test w/ something that has such a minute amount as to not cause a reaction, leading me to think it's ok, only to find out much later I should've stayed away from the lecithin.

Thanks!! :)

Try using PAM cooking spray. I think soy lecithin is the second ingredient listed on the label.

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