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nikki2008, April 7, 2008
Posted April 7, 2008
Posted April 8, 2008
I used them when first diagnosed and after I visited the nutritionist. At first, they really seemed to help. Then I started feeling really acidy, so I quit taking them, and my digestion stayed fine.
A year later (about a year ago now) I started having big time problems - having to poop quite suddenly, never very friendly ones, usually while walking the dog and nowhere near a bathroom, etc. I went to the doc, nothing wrong. I started taking the enzymes again and got better. Not sure if it was due to that or was just a coincidence. Then I started feeling really acidy and weird again, and quit taking them.
So in general, my experience with them was good. They're strong. They're expensive.
I don't take any enzymes now, but eat about 50% raw, so theoretically shouldn't need them, at least at those meals. Good luck.
p.s. my therapist, who also has celiac, can't take any enzymes - they give him celiac related symptoms.
I made the mistake of getting these for my DH. He eats out a lot a we got them for him to take in those instances. I wish now I had never gotten them for him. They do seem to help with the GI stuff a bit but they do nothing for the neuro stuff he has. He keeps using them but I notice he jerks, twitches and falls asleep in the middle of conversations again when he gets glutened. Personally I wouldn't use them and I wish I had never given them to him. They have, I feel, made him much less cognizant of his glutening and because the upset tummy is relieved a bit he considers them to work. Unfortunately they seem to do nothing to help with the neuro type stuff which leads me to think they don't protect us from the autoimmune effects.
Also they clearly state on the bottle that they are not for the treatment of celiac disease, unless the label has changed recently. They may be useful for folks with leaky gut that don't have celiac but I don't know for sure.
I wonder if you're thinking of the Gluten enzyme one. The digest Gold has nothing to digest gluten in them...they are just a regular digestive enzyme.
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