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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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Wen haircare sounds wonderful. It is a conditioner that cleans your hair. Great concept, the reviews on Amazon are mixed. My hair is long and curly/wavy but it gets super dry on the top layer and the ends but the roots can get dirty fast depending on how much stuff I put in my hair. So this Wen stuff is getting my hair clean and it feels soft but my hair isn't curling and is going flat more then anything. I like my hair to curl and get annoyed at those people that always want to flatten it. It seems that it can take awhile to get used to this product from what I read anyways.

The one I bought does have wheat in it, but it doesn't bother me. Unless.....I cannot use anything on my face that has wheat in it. Shampoo, conditioner, body lotion all fine.

My face today is bright red, blotchy, looks like it is breaking out (but is a rash not acne) and it burns. I have had this happen before, it was an allergic reaction to an inhaled medication.

I am wondering if it is the Wen haircare, if I got some on my face. The only other thing new is I ate at Red Robin yesterday, gluten free as far as I know. I am not sick in any other way, just my face is freaking out :angry::(

So what do you all think? Has anyone tried these products?

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Wen haircare sounds wonderful. It is a conditioner that cleans your hair. Great concept, the reviews on <a href="http://www.Lame Advertisement/Sweet-Almond-Mint-Cleansing-Conditioner/dp/B0006Q0H5G/ref=pd_bbs_1?ie=UTF8&s=hpc&qid=1207957625&sr=8-1" target="_blank">Amazon </a>are mixed. My hair is long and curly/wavy but it gets super dry on the top layer and the ends but the roots can get dirty fast depending on how much stuff I put in my hair. So this Wen stuff is getting my hair clean and it feels soft but my hair isn't curling and is going flat more then anything. I like my hair to curl and get annoyed at those people that always want to flatten it. It seems that it can take awhile to get used to this product from what I read anyways.

The one I bought does have wheat in it, but it doesn't bother me. Unless.....I cannot use anything on my face that has wheat in it. Shampoo, conditioner, body lotion all fine.

My face today is bright red, blotchy, looks like it is breaking out (but is a rash not acne) and it burns. I have had this happen before, it was an allergic reaction to an inhaled medication.

I am wondering if it is the Wen haircare, if I got some on my face. The only other thing new is I ate at Red Robin yesterday, gluten free as far as I know. I am not sick in any other way, just my face is freaking out :angry::(

So what do you all think? Has anyone tried these products?

I use Wen Products and I really like the way they make my hair look and feel. The trick is to use alot unfortunately to achieve desirable results. I go through the containers fast so I order a really big size on Qvc. Unfortunately I can not tell the reaction from getting it on your face as I'm new to all this myself. But if it turns out its not WEN, try it again. Good luck and feel better!

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I have been using it for about a week and I can tell you I will never use it again.

My hair was so soft it was amazing but like I said my hair didn't curl either.

I am so allergic to this stuff it is scary. Shortly after getting out of the shower I could see my face getting red and puffy with spots all over and some blisters. My scalp was burning, the back of my neck and my back where my hair lays was on fire but not as bad as my scalp.

So do I think the product works, yes. Can I use it, NO NEVER

I was using the sweet almond mint and it contains wheat. I have never reacted to mint or almond before so it isn't that.

Originally I had planned on trying this and seeing how I liked it, passing it on to my family and switching to the Fig because it is supposed to be better for curly hair. I don't see anywhere that the Fig lists wheat but I don't see a complete ingredient list anywhere.

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I love Wen- but it does have gluten so I don't use it anymore.

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I love Wen- but it does have gluten so I don't use it anymore.

SIGH and CRY!

I just checked the Chaz Dean website and so far it looks like all the products have wheat in them.

I won't be using them again. Its too bad because the concept is great. Just means I need to keep looking for the ultimate conditioner for my hair.

What are you using now?

I have pantene and redken in my shower. I read that pantene just coats your hair with wax and thats why it feels smooth. I don't need wax I need something to prevent the dryness.

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I forgot to mention- my husband works for the company that markets Wen. He was responsible for the launch of the product.

I told him about our thread and he says that he will advocate for a "sensitive" gluten-free formula- but we have to also suggest it through customer service. Here is the link:

http://www.wenhaircare.com click contact us on the bottom

I plan to let them know that I am interested in a gluten-free product and you should too! :rolleyes:

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I forgot to mention- my husband works for the company that markets Wen. He was responsible for the launch of the product.

I told him about our thread and he says that he will advocate for a "sensitive" gluten-free formula- but we have to also suggest it through customer service. Here is the link:

http://www.wenhaircare.com click contact us on the bottom

I plan to let them know that I am interested in a gluten-free product and you should too! :rolleyes:

I was thinking about doing this earlier. So when I read your post I went asap and wrote to them.

Thanks

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I stopped using Wen shampoo and my skin is better, after a day or more. Then I began using Eucerin Calming Creme for my face, it works no more red skin. When you go to the alergist they do skin testing, so your skin is sensitive to things you are not tolerant of.

Mark

Wen haircare sounds wonderful. It is a conditioner that cleans your hair. Great concept, the reviews on <a href="http://www.Lame Advertisement/Sweet-Almond-Mint-Cleansing-Conditioner/dp/B0006Q0H5G/ref=pd_bbs_1?ie=UTF8&s=hpc&qid=1207957625&sr=8-1" target="_blank">Amazon </a>are mixed. My hair is long and curly/wavy but it gets super dry on the top layer and the ends but the roots can get dirty fast depending on how much stuff I put in my hair. So this Wen stuff is getting my hair clean and it feels soft but my hair isn't curling and is going flat more then anything. I like my hair to curl and get annoyed at those people that always want to flatten it. It seems that it can take awhile to get used to this product from what I read anyways.

The one I bought does have wheat in it, but it doesn't bother me. Unless.....I cannot use anything on my face that has wheat in it. Shampoo, conditioner, body lotion all fine.

My face today is bright red, blotchy, looks like it is breaking out (but is a rash not acne) and it burns. I have had this happen before, it was an allergic reaction to an inhaled medication.

I am wondering if it is the Wen haircare, if I got some on my face. The only other thing new is I ate at Red Robin yesterday, gluten free as far as I know. I am not sick in any other way, just my face is freaking out :angry::(

So what do you all think? Has anyone tried these products?

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I have used WEN for a year and LOVE it. However, a few weeks ago I found I was getting itchy after showers, and even rash like areas occured sometimes. I've never experienced this with any gluten ingestion. I've tested most things in my shower, and since my head and ears (inside) are the itchiest areas, I'm pretty sure WEN is the culprit. Which is SO sad! I've heard there is another way to "wash" hair without stripping it (w/ baking soda)so I might try that. I've written WEN and asked them to develop a wheat free formula.

I'm a bit confused about some of the gluten/wheat allergy stuff so maybe someone can help me? What is "DH" that people keep mentioning? When the people who have had a rash/itch response to lotion/hair products do they also get the usual gluten ingestion symtoms as well(like stomach issues etc.?). Is this itchiness I'm getting a response to wheat allergy or gluten intolerance? Why don't I get itchy from gluten in food as well? Am I gluten intolerant or wheat allergic? Hmmm.. When I eat wheat I have way worse symptoms (sore throat, headache, stuffy nose, tired, constipated) than when I eat rye or barley (constipation). Thanks! Audrey

P.S. I should add that my obvious gluten/wheat issues (constant gas) started 9 months ago, I did an exclusion diet 5 months ago which identified the problem and so I've been trying my best to avoid gluten since.

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The concept is all based on a sulfate-free cleansing system. Google "conditioner washing" or "no poo." There are much cheaper ways to maintain this same effect without relying on a wheat-y, expensive, and somewhat limiting system like the Wen one. All you have to do is eliminate silicone products and you won't need shampoo, only to condition in a scrubbing motion to distribute your natural oils down the hair shaft. I only shampoo a couple times a month with occasional mild shampoo.. and trust me, I don't have greasy hippie hair - I am a cosmetologist, couldn't go around looking like that..

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    • Cross reactivity is a bit of a myth type thing, but we do get food sensitivities and intolerance issues that do creep up and they are always different for each person. A food diary and keeping track of what causes symptoms is what you need to do. Here is a true gluten avoidance list and a article on food sensitivities.
      https://www.celiac.com/articles/182/1/Unsafe-Gluten-Free-Food-List-Unsafe-Ingredients/Page1.html
      https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life
    • Me too. I still get transient lower back pain occasionally when my bladder or colon is full. It goes away immediately on voiding. Regardless of anything other diseases you may have, being wheat free gives you relief so even if not Celiac you are Non Celiac Wheat Sensitive. There are over 200 symptoms that are improved with GFD gluten free diet. Google it. It is an impressive list. In any case, while it is good to have a diagnosis, there is only one treatment, do not eat wheat and deal with the inevitable malnutrition damage.(think Biafra babies 1970.) Most will improve over time. Whatever doesn't improve should be investigated to be safe, but realize that recovery may take years. Wheat flour used should be limited to Paper Mache sculpture and library paste.  
    • Here is a partial list of what I no longer suffer from as a result of not eating wheat. Some like the sleep apnea and gerd and back pain and addiction to alcohol were almost immediate. The foot pain is improved to just numbness sometimes. My long term depression went away when I added vitamin D 10,000 iu a day for a year, but the improvement started almost immediately. Muscle tone and energy improved when I added iodine. one sheet sushi seaweed a day. My Fibromyalgia is controlled with 15 mg oral Prednisone a day. I remember as a kid waking up and having to pick the dried mucuos off the roof of my mouth. That is gone and for the first time in my life I am a nose breather. Drink lots of water to help with the mucous if it is thick. Some mornings mine is like rubber cement. I need to quit smoking now.  You can improve have faith, but healing takes time. Stay the course. A Romaine lettuce salad everyday helped the gut pain. Gerd shortness of breath sleep apnea back pain snoring prostrate hypertrophy contact lens protein buildup night vision improved cataracts reduced head hair growth foot pain sleeping no more than 2 hours at a stretch slow healing no energy. Pretty much bed ridden. 
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    • We use pure cherry juice with our snow cone machine. Makes for a nice dessert after dinner.
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