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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Robink

Gluten And Caesin Intolerant

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Hello, I went to Dr. Stephanie Cave (alternative med) in Baton Rouge, Louisiana about 2 yrs ago. My results showed that I am intolerant to gluten and caesin. Life was pretty hectic and I did nothing about my new findings. I would love to learn how to get on this diet. I know it sounds like gloom and doom, but, honestly, if this lifts the anxiety/depression/adhd at all, I am game. Scared to get my hopes up and miserable at the same time. I'm choosing to try. Anyone? Ty, Robin

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I have, but, not all of the time, IBS and Acid Reflux. I've tried every med for anxiety and depression, each makes me feel worse or does nothing at all. I just feel jittery and uneasy, never quite satisified, moody, I get irritated easily. After being diagnosed wrongly for a few years, my sister was finally correctly diagnosed with Crohns. I want to feel better so badly. Anyone here from Louisiana? Any feedback would make me feel better. I'll at least know someone has heard me, ty, Robin

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Hey! I'm from Louisiana...Walker to be exact...not but about 10 minutes from Baton Rouge.I had my test done at Ochsner in Baton Rouge.I was dx last week with Celiac.I'm giving this diet my best shot. I have been feeling so bad for months now.I spent an arm and a leg on Medical costs and I lost so much time with family and friends lately....because I felt bad all the time.If this helps...it will be worth it...hard ...but worth it!Hope you feel better soon.

Kay

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I have, but, not all of the time, IBS and Acid Reflux. I've tried every med for anxiety and depression, each makes me feel worse or does nothing at all. I just feel jittery and uneasy, never quite satisified, moody, I get irritated easily. After being diagnosed wrongly for a few years, my sister was finally correctly diagnosed with Crohns. I want to feel better so badly. Anyone here from Louisiana? Any feedback would make me feel better. I'll at least know someone has heard me, ty, Robin

My way of getting a handle on my diet is to stick to chicken/turkey, beef, vegetables including potatoes, nuts, eggs, goat cheese and little else. It's a bit like Atkins but including potatoes, and without the heavy fats/dairy. Or like South Beach without the dairy. I'd suggest you read both those diet books for ideas. Generally I have eggs for breakfast, chicken or beef and side dishes for lunch and dinner. Snacks are a banana, nuts, maybe a Larabar.

My doctors suggest I avoid any grains at all, including rices and pseudograins, soy, sugars, dairy, pork... So I eat very few things - but it's still a guessing game at times. Today I tried a goat milk yogurt, and I think the sugars got me. I'm blown up like a balloon. However, I rarely ever get the IBS cramps and nastiness I had before I went gluten free.

I was on antidepressants for awhile, but I don't think they helped. I went off cold turkey, which was a BIG mistake, messed up my brain chemistry and I was wonked out for a couple months.

hth somehow? Lori

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I had been dx'd as allergic to dairy and wheat from a diet test as an infant, but only off them for a few months. I went gluten and casien free in November, and i've been amazed at the difference. Within a week, 90% of my intestinal symptoms were gone. About 6 weeks in to it, I realized i hadnt taken exedrin in a month, and it used to be 3-4 times each week. My depression and anxiety started to ease about 2 months in to the diet.

So expect great things . . but be patient. There are worse things . . . i'm now on a diet so restrictive I can only eat 25 foods . . so you surely can do this! You can even find vegan chocolate if you look hard!

Good luck

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    • Hi Matt,  Thanks for taking the time to reply!  I completely agree haha.  Thanks for the links - I'll give them a read over!  I think it was a mixture of the first time travelling with being gluten-free and the added bonus of the language barrier, it made me dread meal times when usually food is the first thing I think about when travelling to new places! Again, I think the planning element was also a factor, not being able to walk past a nice bakery without walking in - why do most Berlin train stations have bakeries in everyone?!?! THE SMELL!!!  Haha, good excuse! Could have used that in the hotel restaurant (arrived late the first night) and the only avail dish was a dry chicken Caesar salad (literally 3 thin slices of chicken, 5 cherry tomatoes and a plate of lettuce).  I am I'll give the website a look over too - thank you! My app's with my consultant are every 6 months, basically was just sent away with no info/advice given and feeling the struggle now that reality has set in that this is for good!  Hope you are well! 
    • Gluten is a protein smaller then blood,bleach does not kill it as it is not a germ. I would replace scratched pans. baking dishes, tubaware, wooden utensils, colanders, etc. Throw out crumby condiment jars and any non gluten-free spices and condiments. Cast Iron can be saved and some metal utensils by putting in your oven self clean cycle, 500F will destroy the protein. I always tell people easy ways to get started on new cookware, nordicware microwave cook ware, omelette makers, steamers, rice cookers, grilling plates (do not forgot the splatter cover), This way you can have a cheap and easy meals, a new crockpot and use crockpot liners is great for soups, I suggested a combo rice cooker/crockpot/steamer as a great investment. OH if you want a nice clean safe prep area/counter/eating place mat, look up freezer paper/butcher paper. I did a post on where to get it in bulk awhile back. But laying it out is perfects, and makes clean up a breeze. Foil sheets in baking dishes works great for a extra precaution but if you have any with baked on stuff or scratched look at getting new ones. PS took me over  months to start feeling much better. Sometimes the improvement is minor and you have to think back to the worst you had. It does improve but normally big changes are after a year.
      https://www.celiac.com/gluten-free/topic/91878-newbie-info-101/
      https://www.celiac.com/gluten-free/topic/118842-freezer-paper-for-safe-prep-surface/?tab=comments#comment-979071 https://www.celiac.com/gluten-free/topic/120402-gluten-free-food-alternative-list-2018-q1/  
    • It sounds like your hives resolved.  I had a six month bout with them.  Antihistamines really helped.  My doctors are not sure if Mast Cell or autoimmune is the root cause.  
    • My kid has Raynauds.  It freaks her classmates out.  She wears shoes and wool socks all year round and we live in a warm state.  It is autoimmune.  She manages it by layering, turning up the heat, use lots of blanket throws.   I have Hashimoto’s and celiac disease.  So, having multiple autoimmune issues is common.  
    • Well, you do need to replace some things because they are too porous or damaged to remove gluten.  Things like old wooden spoons, scratched non-stick pans, toaster, colander, sponges, etc.  Honestly, the list is long, so try getting a few celiac books at the library or Amazon.  Consider reading through the Newbie 101 thread under the “Coping section”.    You should see some minor improvement soon.  It does take time to heal.  Most  around here will say it takes a year!  
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