• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Looking For Help About Terrible Nausea
0

8 posts in this topic

Hi, all, this is my first post. First, I just want to say thank you--reading through all of your posts makes me feel not so alone...so thank you SO much.

Here's my story: I was diagnosed with IBS at 20, after several years of "weird" stomach issues (occasional nausea and diarrhea). I was put on Levbid and felt 100% better. 5 years later, I started feeling just awful this past September--constant diarrhea and nausea, which led to weight loss (I'm 5'5 and I now weigh 100 pounds because the nausea is so bad--not good). In November I was diagnosed with celiac disease through the blood test. I'm a very anal person, so I've been very strict with the diet since. Started feeling A LOT better, but still no weight gain, but now the past week I'm nauseous 24/7...any ideas on what it could be? I have an appointment with my GI in two weeks (earliest I could see him) and an appointment with an allergist in a week (maybe it's new food allergies? though I'm barely eating anything due to nausea and I STILL feel bad!).

Thanks for any input or help you can provide!

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I suffered from nausia for nine years so I know what you are going through. {{Comfort Hug}}

The best bet I guess would be to see those doctors, but in the meantime, maybe ask your doctor for some Compazine to ease the nausia until you see them. It comes in pill or suppository form. I have taken it for nine years, which is NOT a suggestion. I can't wait to stop taking it. But it does help. It has a generic form which is just as good called prochloraperizine.

I know how terrible nausia is. I avoided eating when I was 20-21 because it was so bad that I went down to 98 pounds and I was 5'5. Just the mere thought of food would set me off. But compazine helped immensily.

I hope you feel better! ;)

0

Share this post


Link to post
Share on other sites

Thank you so much for your reply; I can't believe you've been nauseous for nine years--I'm so sorry. I've been dealing with severe nausea for a week, and I'm already super depressed and upset, so I can't even imagine nine years.

I'm a big chicken about taking new drugs because my stomach is so sensitive--do you have any side effects on Compazine? Thanks for suggesting it! It's nice to know that there's something out there that will help with this nauseousness.

0

Share this post


Link to post
Share on other sites

So is mine. ;) My tummy is so sensitive to medication but Compazine had no side effects with me, minus a little drowsiness the first couple of times I took it, but believe me, it wasn't bad compared to nausia that I get. Compazine is about the strongest anti-nausia drug you will find. At least that's what my educated doctors tell me. It wipes it out. Believe me. It will probably also help with the diareah becuase it has a small constipatant factor with it. Not enough to block you up completely though. I used to call Compazine my best friend. But now I have been on it so long, I am wanting to be completely drug free. If only the nausia would completely leave so that I could do that. Hope you feel better soon! Keep me posted with what happens. :)

0

Share this post


Link to post
Share on other sites

This might be a stupid question for the writer of this post so please pardon if you are a male (I didn't catch your gender)...but if you are indeed female have you ruled out pregnancy?

I'm sure you have if you're a woman but I just wanted to check. When I feel sick that's the first thing my doctor/friends ask me.

0

Share this post


Link to post
Share on other sites
Ads by Google:


Actually, I get this question a lot whenever I go through these bouts of nausea; nope, not caused by pregnancy.

0

Share this post


Link to post
Share on other sites

Is the nausea all the time or mainly after you eat?

If it is when you eat try taking enzymes before, during, and after your meal it helps alot with digestion and absorption of food and the level of nausea that I get now is 10 times better.

:) Hope you all feel better

0

Share this post


Link to post
Share on other sites




The nausea is pretty much all the time, though it is worse after I eat. I'm seeing my gastroenterologist in a week, so I'll have to ask him about the digestive enzymes--it sounds like they do wonders for some people. Thanks for the input!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,330
    • Total Posts
      935,523
  • Member Statistics

    • Total Members
      64,992
    • Most Online
      3,093

    Newest Member
    Trailblazer
    Joined
  • Popular Now

  • Topics

  • Posts

    • I feel the same way! Newly diagnosed (gluten-free since July 1) and never had major GI symptoms mostly neurological issues and other very random stuff. So no red flags to tell me, "You just glutened yourself!" Or at least I haven't identified them yet. I'm not sure if I'm feeling better or not yet. I do have more energy but lots of anxiety and random symptoms that might be celiac related... but who knows. I'm just not sure if this is what "feeling better" is yet. I can't imagine what that is like... or will be like. And I keep reading about people "getting sick" when they are glutened but that is so vague. For me, I'm not sure I'll know if I've actually been glutened or not. I feel like I'm extremely careful but I'm not sure if I'm being over the top, or if I'm doing it right, or not enough and need to do more. I'd just like to get to a nice gluten-free baseline and note what that is like so that I can compare how I used to feel and how I might feel if glutened so that I'll know! Sorry, didn't mean to hijack your thread and provide no answers. I can just relate, that's all.
    • Last check(last fall sometime) my b12 and folate were fine. He did check my iron and it was fine. My potassium is technically normal, but lower than my cardio wants(I'm on q med that depletes it). Last time I had a full and extensive panel run was years and years ago. I recall my copper being high(but no one ever retested it), vit d and a couple others were low. I have tested positive for labs used to evaluate malnutrition, but it's been q couple of years since they've done those. Just going to put it on the back burner for now I guess. Can't afford to lose much more weight, but they tend to get more serious the lower my BMI goes(not on purpose, I'll have periods where I can gain a bit because I'm not vomiting a lot. Past two days I've been throwing up again after I eat.) Maybe my next colonoscopy will finally show something useful.  It's just 3 years this time and I've been arguing about my gut for 18 years now so what's a little More? 
    • Re. gorilla munch - Made with corn, says gluten free on the box, I don't know why it wouldn't be. It's quite yummy. Corn pops and Post golden crisp used to be my favorites, before celiac.
    • I buy the Chex cereals( except wheat). I had recently been buying Puffins from Barbara's bakery but got a very unsatisfactory answer to my question about where they source their oats so I have decided to stop buying them. See below.... "Thank you for your recent email about the oat flour in our Puffins cereal.  We appreciate the time you took to contact our company.

      Approximately 90% of our ingredients are sourced from North America. However obviously there are some crops that do not grow here, and items that are not manufactured here. In those cases, we source from other areas, mainly UK, EU and South America. Regardless of where the supplier is located, we have a very robust Supplier Assurance Program that ensures that we purchase only from approved, high quality suppliers. 

      We thank you again for your comments and hope you continue to enjoy our products.  If, at any time, we can be of further assistance, please don't hesitate to contact us again."
    • Hey guys!  I have been suffering from NCGS for almost a year, and have recently been diagnosed with IBS.  Although I was finally getting used to the gluten free routine, this has been really hard to get used to.  I'm currently having a major flare, so I'm off pretty much all fodmaps (although mainly beans, dairy, nuts, and gluten). Additionally, my stomach can't handle more than a 1/2 cup portion per meal, and even then, I'll occasionally have pain after eating.  Does anybody have simple, fast meals that they could share? As if this isn't restrictive enough, I'm also allergic to eggs, so I'm pretty much living off smoothies, rice, and allergy free chicken sandwiches.  I know this is pretty restrictive, but I thought that if anybody could help, it would be you guys.  Thanks!  Claire 
  • Upcoming Events