• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Nausea
0

45 posts in this topic

I definately feel worse after I eat something that my body can't tolerate! I get the whole body thing going on...migraine, muscle pain, fatigue, light headed, and of course the horrible sour and painfully bloated tummy!!

I just stopped at Whole Foods and found a Ginger-Peppermint tea. I'm having now! Let' see how it works for me. Doesn't taste that bad either....I think I like it. it's got a little kick to it. maybe it will quite down my aching tummy.

have a great night.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi Kenda,

I just read your post about your Actonel experience! Boy....maybe it IS the Actonel. I thought I was doing better with the muscle pain and then it started to get worse last week. Just around the same time I started Actonel. I took my first dose about 10 days ago and my second does this past monday. Yesterday the body pain really started to get bad and this morning I could barely drag myself out of bed. Today I actually had to take the day off and stay home. I feel so "fluish". My gut started to really feel bad this week. When I took the Acotnel on monday I was already having stomach problems so when the pain continued I didn't think it was because of the Acotnel. Was your stomach pain immediately after taking the pill or did it take a little while? Yesterday was terrible with stomach pain and this morning I actually woke with a sore stomach! I've been drinking camomille tea as I thought the ginger may have been too harsh. Not sure what to think anymore?

how long did it take for you to feel muscle pain? Was it muscle soreness or was it more. I feel like I have a bug?

Thanks for shedding some light.

0

Share this post


Link to post
Share on other sites

Hi mel, i was just reading over these posts, and I have a lot of the symptoms, especially the rapid heart beat. I dont know why that happens, but I have been figuring out that I get dizzy every day, the rapid heart beat, upset stomach, all of it. I am also desperite. I am so tired of being sick. I want to try the enzymes as well, but, does anyone have any specific help for the dizziness? I just hate having to deal with it, and miss out on life...

0

Share this post


Link to post
Share on other sites

I'm not sure why you are getting dizzy> Are you lightheaded? Maybe you are not eating enough or maybe your blood sugar gets low?

Foe me the rapid heart rate only starts after I eat something that has an ingredient that my body can't handle. It's sort of like an allergic reaction...I start feeling sick, weak,heart races, stomach, head and muscles ache.

I don't feel dizzy on a normal day. i get these symtpms when I ingest gluten or something else that i shouldn't have. It also happens if i eat soemthing with a lot of preservatives.

I just started taking enzymes and don't have a lot of feedback for you other than I felt a lot of noises and gurgling and things moving around. i also had a lot of gas. In a way that's good at least it got out!

I hope you feel better. Keep looking for answers and working with your body to feel the best that you can! I am still doing that and have a lot of challenges as well.

0

Share this post


Link to post
Share on other sites

Mel:

I know what you are saying, it seems this disease goes on and on. I take Bently at night and that seems to ease my stomach a little bit.

One interesting thing happened, I was put on steroids for another reason and for the first time in 2 years my stomach was calm.

Does anyone have any thoughts on this? I had read before that with refractory sprue a person would take the steroids. I don't know if I have that or even how I would be tested for it. I remember the doctor was going to put me on steroids 2 years ago but I was afraid they were like the ones sports players use.

Interesting theory so any thoughts would be appreciated.

Thanks

0

Share this post


Link to post
Share on other sites

Have you considered the chicken as the problem?

Here in the UK wheat is often used to plump up chickens - don't know if this is also the case in US.

0

Share this post


Link to post
Share on other sites
Mel:

I know what you are saying, it seems this disease goes on and on. I take Bently at night and that seems to ease my stomach a little bit.

One interesting thing happened, I was put on steroids for another reason and for the first time in 2 years my stomach was calm.

Does anyone have any thoughts on this? I had read before that with refractory sprue a person would take the steroids. I don't know if I have that or even how I would be tested for it. I remember the doctor was going to put me on steroids 2 years ago but I was afraid they were like the ones sports players use.

Interesting theory so any thoughts would be appreciated.

Thanks

The steroids doctors use are corticosteroids - not anabolic (like athletes have been known to use) - and are fairly common, though not to be treated lightly. I've had to take them a number of times for asthma, in 10 day bursts. (That's long enough to turn me quite b%$@#y, but that's not a side effect that everyone has.) I believe steroids are sometimes used to treat Cronh's (though I'm not sure about that)...

0

Share this post


Link to post
Share on other sites

Even if wheat is indeed used to "plump" up chickens, it does not carry through to the meat. This is not a concern.

richard

0

Share this post


Link to post
Share on other sites

Oh, dear Mel. I do understand. Here is what I do when I have your trouble.

For at least 24 hours, stay on a clear liquid diet. You may have to make it longer according to how badly your gut is irritated. You will know if you move up too quickly. Gradually add in a little rice that you have fixed yourself and know for certain is gluten-free. You might also try some potato soup if you do not react to dairy or some potatoes boiled in gluten-free broth if you do react to dairy. KEEP IT SIMPLE AND EASY TO DIGEST FOR SEVERAL DAYS. Gradually move up the diet list. If you have a problem, drop down a level. I know this seems as though it will take forever, but you have to allow your belly time to heal up. It will be shorter in the long run.

About that chicken...be sure that it is not enhanced with any broths or anything. It should say on the package. Many of the chicken out there and even some of the beefs and porks have fluids added to enhance flavors (though I am privately convinced that it is more because water weighs more than meat and it increases the price).

Hope you and others can use this info and get to feeling better.

0

Share this post


Link to post
Share on other sites
Try taking some enzymes. Enzymes help your body to absorb the food and help with digestion. Enzymatic Therapy has brands that say right on the bottle what they are free of. Probiotics are good too.

Do these also help with the distention or bloating? This is a major problem with me along with the nausea.

0

Share this post


Link to post
Share on other sites

If the cause of your distension and bloating is a sluggish digestive system they will help.

Kenda

0

Share this post


Link to post
Share on other sites

Yes it will help with bloating and other things that have to do with your digestive system. If your digestive system is causing these symptoms enzymes will help. Probiotics will as well. :D

0

Share this post


Link to post
Share on other sites

That is definitely good news!!

0

Share this post


Link to post
Share on other sites

Very interesting. I am always nauseus, and I figured it was just my "delicate constitution." (lol) I agree that enzymes definately help, and so does Lactaid. I've cut way back on the dairy, but if I'm starving and that's what is available, I chew a lactaid and that helps. I've used the Peppermint drops when I've had bowel cramping. Actually, the enteric coated peppermint pills work even better, at least for me. But you're right, no matter how careful I am, no matter what I eat or do not eat, I am often nauseaus. It is very frustrating. And the funny thing is, chicken is a big trigger. I wonder what it is about poultry. I am very careful not to buy one that is basted or has fillers but it still will make me feel icky. I've been reading about other types of food allergies, and some people are allergic to poultry and eggs. It makes me wonder what other things are triggers for me.

0

Share this post


Link to post
Share on other sites
Hi Richard

You said 'Even if wheat is indeed used to "plump" up chickens, it does not carry through to the meat. This is not a concern'

My intention was not to imply that the meat could be affected by being grain fed, but rather that poultry sold in supermarkets can be 'plumped' up with hydrolised wheat protein - its always best to read labels to check for these additives.

0

Share this post


Link to post
Share on other sites

OK guys, i just got back from the weekend and read a lot of your responses. I went to see a new GI dr this weekend in NJ where I will be moving back to in about 3 weeks. He seemed very compassionate and was not dismissive at all. I guess it was also good to have my husband with me. I seem to get a different reaction from doctors when I have him with me.

I discussed my blood results and attempt at gluten-free diet for the past 2-3 months. He told me that if I was feeling better to stick with it and that when I moved there next month he wanted to meet with me again. He also said that we may want to do a biopsy and that even though I would be gluten-free for about 3 months the fact that I am still reacting and having problems could mean that I am still ingesting gluten accidentally and the biopsy may show some damage. Especially if this has been going on for a long time. It said that it could take up to a year to heal and see some signficant results. He also gave me Zelnorm for the IBS but told me to cut it in half and try to go to using it once a day instead of twice. He didn't want to put me anything else as he feels that people that have celiac disease are more sensitive to meds.

WE talked about fibro, chronic fatigue and all the wonderful things related to auto immune problems. of course he encouraged getting out...which I do every day but he wants to see more exercising....which I will try to do.

I think he is right about gluten sneaking in there........I get it occassionaly with foods when I eat out and with meds that I take. Today I took half a percocet because I threw my back out and my gut is sooooooooo irritated and bloated. Here we go again. I just can't seem to get it together and then I get so angry with myself.

I have another appt with him next month and we'll discuss how I am progressing.

I asked him about my endoscopy from 6 years ago and he said if the dr was not looing for celiac disease he could have missed the diagnosis. He may not have gone down far enough for a biopsy. I also told him that my GI dr at the time never even mentioned gluten...so I don't htink he was looking.

Thanks for all the support......gotta go now. Not sure which is worse.....the lower back pain or the sowllen irritated gut!

0

Share this post


Link to post
Share on other sites

Mel-That's good that you found a doctor that is listening to you and not being dismissive of things. I think it is true about your husband coming along and a better response. Before I was diagnosed I had to go to the GI doctor and they couldn't take me for 3 months(when my mom called) when my dad called and told them I really needed to get in I was in there 2 days later!! They take it more seriously I think I'm not sure. I hope everything goes well and that you feel better than you are now :D

0

Share this post


Link to post
Share on other sites

Hi Mel:

I was reviewing my gluten free drug list and I don't see percocet on there? I see vicodin Lortab, demorel, fioricet and codeine. I am not sure about any other pain meds.

I hope this helps!

Sally

0

Share this post


Link to post
Share on other sites

Since I try to use as many generic medications as possible due to the cost difference, I have found the at only way to be certain is to contact the individual manufacturer. Some of the same drugs made by different companies are gluten-free/not gluten-free according to the manufacuring process. I keep a separate tab in my notebook to track the ones I have called. When I went gluten-free, I found that I just could not get it under control. Turns out one of my primary neurological meds was laced with gluten and was just contributing to the problem.

0

Share this post


Link to post
Share on other sites

Thanks for the responses. I checked percocet and didn't see it either on the gluten free drug list. So I'm thinking that it probably DID have it in there. I started a new post somewhere to see if anyone knew if it was gluten-free or not.

The manufacturer lists the ingredients and it contains corn starch but then also pregelatinized starch. Not sure what that is....but maybe that's where the gluten is.

I woke with my gut still feeling irritated and sore... so someting upset it. OK....time for a little camomille.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,378
    • Total Posts
      935,771
  • Member Statistics

    • Total Members
      65,070
    • Most Online
      3,093

    Newest Member
    Catseyez
    Joined
  • Popular Now

  • Topics

  • Posts

    • Just thought of something else.  Have you tried cream of rice cereal?   When I was at my worst, I'd have this a few times a day to settle my stomach. 
    • The full celiac panel includes: TTG IGA TTG IGG DGP IGA DGP IGG EMA IGA   You can either have a gastroenterologist order the full celiac panel plus whatever else they typically test for, or you can order your own test at a site like walkinlab.com. At walkinlab.com it's called the celiac comprehensive test and costs $298.00 (not covered by insurance). Then if any one test comes up high you can give it to your gastroenterologist so they can do an endoscopy. The blood draw is done at your nearest Labcorp. Personally I'd make an appointment at the gastro so they can order their other blood tests and just insist on the full celiac panel also. There's any number of things it could be, not just celiac. If you don't get diagnosed you probably won't stick with a 100 percent gluten free diet for the many months required to see if it works. Good luck in your search.
    • You could certainly try.  Just remember that, if the mix doesn't have xanthum gum, you may need a little.  
    • Maybe the 20 mg. was too strong for you and increasing symptoms?   I have a very low threshold for most meds, and do better on child sized doses.   If you tolerate the 10 mg., that may be the way to go just to get symptoms under control and get stabilized.  Or maybe 10 mg. every other day, if that works. I read that food intolerance symptoms can take 24 to 48 hours to show up.   Can you think of what you were eating in the week before all this started?   I have always used dairy to settle my stomach, so until I figured out the dairy intolerance I was using a small glass of warm milk whenever my stomach was upset.   It provided immediate relief, but caught up with me hours later.   It was kind of hard to believe that milk was the cause when it was so effective in immediate symptom management.    I had also increased chocolate, coffee, and peanut butter right around the same time.  They don't seem to be intolerances (or maybe they are in huge quantities!), but they were irritants, so I needed to avoid them to get things to settle down.  Now that I'm approaching the 3 month point and starting to do better, I have been able to drink coffee with soy milk to buffer, have a little chocolate, and sample some peanuts without much distress.  Perhaps the hardest part of all of this is the time it takes (why forever?!), and how limited one's diet must be for so long in order to stabilize.  I was so sick of eating the same thing for so many weeks, that I started dreading the next meal.  I agree that symptoms and recovery become a blur.  I started making notes on a calendar so I could be more objective and accurate in looking back to assess my symptoms, what I'd tried, and progress.  Otherwise, I just couldn't tell what really did and didn't work.   What seemed like a week ago was really 2 or 3 ... I know you know what I mean! Do follow up with your doctor as need be.  I find that GI docs aren't that helpful for this sort of thing as it's minor in the general scheme of GI things.  My PCP basically told me it was trial and error, as it's different for each one of us.  He could only guide me in meds.   
    • I am sorry that you are all having to go through this. I know all too well the neuro issues she is going through. The world seems so hopeless under that gluten cloud. But it does lift.  There isn't much a neurologist is going to be able to do except to encourage her to be as strict as possible.  It would be a good idea to have your GP or GI do a vitamin and mineral panel if that hasn't already been done. We do sometimes need supplementation while healing as some nutrients do have an impact on the nervous system function. What I find helps me the most is knowing that it is the gluten and it will pass. It is a horrible feeling when it is happening and is hard on ones loved ones.  All you really can do to help her is to remind her that it is the gluten that is making her feel so bad. Try to provide distractions and understanding. If you haven't already do read the Newbie 101 thread at the top of the Coping section it has a lot of good info for you.  These episodes will come less often as accidental glutenings become less frequent. Ask any questions you need and feel free to vent on the tough days.
  • Upcoming Events