• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
1 1
deesmith

Swollen Lymph Nodes

Rate this topic

Recommended Posts

Anyone else with celiac have swollen lymph nodes sometimes that you think are just from the celiac? I know that some other autoimmune diseases can cause them, such as lupus. So I was just wondering.

I have swollen lymph nodes in my neck. They've been there for almost 3 months. And have not gone away. The doctor ruled out any kind of infection and didn't seem concerned about anything else. I called back twice last week and I managed to get an appointment for next Tuesday for further diagnostic testing.

Just wondering if anyone has had them.

Thanks.

Dee

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


As far as I know, swollen lymph nodes are always an indication of an infection somewhere. Obviously, your doctor can't have ruled out every kind of infection if he hasn't found the cause yet.

You should be concerned about the swollen lymph nodes, and your doctor should be as well!

I had swollen lymph nodes frequently when still eating gluten. Of course, I would have had an inflamed intestine, and probably an inflamed stomach as well.

Share this post


Link to post
Share on other sites

Afew times ive been to the doctors and they have said i have swollen lymph nodes, yet i didnt have a sore throat or infection that i knew of.

Share this post


Link to post
Share on other sites

I had swollen nodes for years, in neck and groin mostly. Doctors always attributed it to my then undiagnosed DH and the lesions from that. I do know they have finally gone down but it did take a long time gluten-free before they did.

Share this post


Link to post
Share on other sites

My lymph nodes are swallon right now too. They seem to get that way when I'm run down. Also a change in seasons always takes it's toll on me. The way I'm feeling right now is if I don't rest and take it easy I'll end up getting a cold. So I'm planning on resting this weekend.

When my kids were small and I go in for a doctors check up the doctor would always say that they were swallon. He would say to me, Tell your husband to help you out and get more rest. ;) I think my husband thought I was making it up.

Gail

Share this post


Link to post
Share on other sites
Ads by Google:


Anyone else with celiac have swollen lymph nodes sometimes that you think are just from the celiac? I know that some other autoimmune diseases can cause them, such as lupus. So I was just wondering.

I have swollen lymph nodes in my neck. They've been there for almost 3 months. And have not gone away. The doctor ruled out any kind of infection and didn't seem concerned about anything else. I called back twice last week and I managed to get an appointment for next Tuesday for further diagnostic testing.

Just wondering if anyone has had them.

Thanks.

Dee

Share this post


Link to post
Share on other sites

Well, I am in the same boat you are..I had lymph node removal to rule out lymphoma. they still do not know what is going on..other than no lymphoma. It is very possibly you may have a one of many underlying conditions that is or can be associated wtih celiac disease. I guess you need to see if you are posing other symptoms. (night sweats, fevers, rash etc)

Share this post


Link to post
Share on other sites
Anyone else with celiac have swollen lymph nodes sometimes that you think are just from the celiac?

I've had swollen nodes for years, since I was kid (40+ years). For years it was mostly in my neck and groin. Several years ago I began getting deep, painful, cystic abscesses in my face. That was one of the things that finally drove me to the next county to find medical care that cared. I just couldn't stand having my face torn up any more.

Once I went off gluten, my face cleared up, and I've had hardly any abscesses. I'm just getting over a miserable round of bronchitis, so my glands are swollen somewhat, and I've got some inflammation going. There is undoubtedly a connection between the systemic autoimmune response of celiac disease and the swollen glands.

Share this post


Link to post
Share on other sites

I have had swollen lymph nodes in my groin area for years. My doctor's explanation varies from time to time; the last time he said it was because I had mononucleosis when I was a teenager (he had it too, and has chronically swollen lymph nodes, as well). Once you have mono, the virus stays in your body forever.

Of course, I'm not sure if this is what's going on with me. It may have something to do with the celiac and always having internal inflammation somewhere.

Share this post


Link to post
Share on other sites
Well, I am in the same boat you are..I had lymph node removal to rule out lymphoma. they still do not know what is going on..other than no lymphoma. It is very possibly you may have a one of many underlying conditions that is or can be associated wtih celiac disease. I guess you need to see if you are posing other symptoms. (night sweats, fevers, rash etc)

Haven't been on here for a few days!

I am a little concerned. I had night sweats, but that was whenever I was glutened. The night sweats have pretty much disappeared now that I've been gluten-free for a while. It sounds silly, but I hate to wait and see if other symptoms show up. The swollen lymph nodes are still there. They don't come and go. I realize it could just be an autoimmune relation, such as with Lupus (people with lupus or RA can have swollen lymph nodes. So the person who wrote about the inflammation connection is probably correct.) But I just wish my doctor could rule stuff out and come to the conclusion that it's just related to the celiac.

Also, when I went gluten free at first I thought for sure I'd loose weight. I cut out a lot of sweets and all that fattening food. I was gluten free for over a year and never even lost 1 pound! I was soooo depressed about that. But this month I've lost about 10 or 12 pounds. I'm very happy about that, but also a little concerned. And it's not because I'm trying. All I do is sleep. So there's another concern. I can't seem to make it through the day past 2:30. I'm so exhausted-- you know, like when you're glutened. But I don't think I'm having cc issues either. I don't know.

Thanks for your replies. I think everyone here is right-- there's definitely an autoimmune connection.

Share this post


Link to post
Share on other sites


Ads by Google:


Haven't been on here for a few days!

I am a little concerned. I had night sweats, but that was whenever I was glutened. The night sweats have pretty much disappeared now that I've been gluten-free for a while. It sounds silly, but I hate to wait and see if other symptoms show up. The swollen lymph nodes are still there. They don't come and go. I realize it could just be an autoimmune relation, such as with Lupus (people with lupus or RA can have swollen lymph nodes. So the person who wrote about the inflammation connection is probably correct.) But I just wish my doctor could rule stuff out and come to the conclusion that it's just related to the celiac.

Also, when I went gluten free at first I thought for sure I'd loose weight. I cut out a lot of sweets and all that fattening food. I was gluten free for over a year and never even lost 1 pound! I was soooo depressed about that. But this month I've lost about 10 or 12 pounds. I'm very happy about that, but also a little concerned. And it's not because I'm trying. All I do is sleep. So there's another concern. I can't seem to make it through the day past 2:30. I'm so exhausted-- you know, like when you're glutened. But I don't think I'm having cc issues either. I don't know.

Thanks for your replies. I think everyone here is right-- there's definitely an autoimmune connection.

Share this post


Link to post
Share on other sites

Your lymph system is the "great custodian" of the body. Always cleaning crap out. It could be that they are moving toxins out. You can help them along by doing rhythmic exercise like a mini trampolin or even walking helps.

Share this post


Link to post
Share on other sites

I am going through an incredibly painful swollen lymph node problem recently. It hadn't occurred to me that it could be celiac related! But who knows? It's in my left groin and it's so painful, worse when I sit or drive, at times so bad it has brought me to tears. I've been going through some skin cancer issues, and had a questionable lesion on my left shin, so I went to have that biopsied...thought for sure it would come back positive and that would be the cause! Before the results I could not endure the pain and I went to my rheumotologist, she said not lupus, osteoporosis or joint related and thought it had to be related to the skin lesion, rx'd pain relievers and heating pad. Biopsy was precancerous. ??? The swelling is still there, the pain has been a bit better the last 2 days, but then again, now I have rx pain meds! I believe I am pretty meticulous with my diet. I can't even trace any cross contamination. Although I have noticed looking a bit bloated and feeling gassy, so maybe it really could somehow be abdominal inflammation in some way. That would be the closest lymph nodes, I think...

Thanks for any input and for letting me vent...

d.

Share this post


Link to post
Share on other sites

I have been gluten free for three years and I had never *noticed* any neck swelling... but recently at a routine appointment they noticed my neck was swollen. Thyroid ultrasound and thyroid blood work was good. I went to my primary care doctor and she did some blood work. Slight elevation in platelets, elevated C reactive protein, somewhat anemic. Going to GI doctor tomorrow to get some more input into this. Tracing my steps, I bet I cross-contaminate myself way too often as the husband and I eat out too much. I guess we will see....

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

1 1

  • Forum Statistics

    • Total Topics
      108,947
    • Total Posts
      943,634
  • Member Statistics

    • Total Members
      67,295
    • Most Online
      3,093

    Newest Member
    Kristenmc33
    Joined
  • Popular Now

  • Topics

  • Posts

    • It sounds like your hives resolved.  I had a six month bout with them.  Antihistamines really helped.  My doctors are not sure if Mast Cell or autoimmune is the root cause.  
    • My kid has Raynauds.  It freaks her classmates out.  She wears shoes and wool socks all year round and we live in a warm state.  It is autoimmune.  She manages it by layering, turning up the heat, use lots of blanket throws.   I have Hashimoto’s and celiac disease.  So, having multiple autoimmune issues is common.  
    • Well, you do need to replace some things because they are too porous or damaged to remove gluten.  Things like old wooden spoons, scratched non-stick pans, toaster, colander, sponges, etc.  Honestly, the list is long, so try getting a few celiac books at the library or Amazon.  Consider reading through the Newbie 101 thread under the “Coping section”.    You should see some minor improvement soon.  It does take time to heal.  Most  around here will say it takes a year!  
    •   When I woke up from my Endoscopy and was told I definitely had celiac disease the first thing I asked my doctor was do I need to get all new kitchen stuff? He assured me that I did not, and as long as my pots and pans and everything else was washed after being used to cook gluten I would have no problems. Well, I'm 10 weeks into my gluten-free diet and still feeling crappy as ever.  I have not been eating out unless the restaurant is 100% gluten-free (I'm lucky there are several near me).  I am very careful that everything I use to cook my food is thoroughly cleaned at home, but is this really enough?  Did you guys need to replace most kitchenware in order really avoid being cross contaminated?   I'm curious to get some opinions before I spend a bunch of money on new/separate stuff.  Thanks!  
    • They have all given you good advice. Like Ennis_Tx said this is not medical advice. Just some observations. Ennis_Tx mentioned already a good B-complex. But people who have Perncious Anemia low B-12 have "Pens and Needles' feeling in their extremities. Mine was much more pronounced when sleeping. . . while sleeping my nerve ending would go to sleep. This would wake me from my sleep.  I would shake them awake/loose much like a leg that had fallen asleep while awake.  We have all felt that feeling before except the whole side of body's nerve ending would tingle/fall asleep enough to wake me from my sleep. Once taking a homocysteine tablet (B6,b12 and folic acid) tablet call FABB for the abbreviated ingredients under doctor's supervision this "pens and needles' went away. This also happened in my finger and toe tips while awake as if I had pinched a nerve in my back. These sensations are now in remission. Also if you think it is Rynaud's then try Niacin or Niacinamide.  It is a natural vasodialotor and the 'warm sensation" people take when using Niacin especially in a work out supplement is Niacin they add to enhance athletic performance for body builders.. . . because this opens capillaries approx. 10 % more allowing more air into the muscles thus improving their work out. This flushing goes away after a couple days of using Niacin.  The Niacinamide form does not flush the way the Niacin form does but provides the same benefit. Both Niacinamide and Magnesium each lower blood pressure approx. 10% each this way.  But if BP is a real problem for you  take the Homocysteine tablet mentioned above or just Folic Acid by itself. My BP is now normal after taking Folic Acid because it controls' how/what triggers constriction in our blood vessels thus effectively controlling BP. These are some times that I have used to improve my circulation. *** again this is not medical advice just things that have helped me with similar issues.  I hope this is helpful. 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. posterboy by the grace of God,
  • Upcoming Events