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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Lipid Storage And Celiac
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:( Is it possible to have Lysosomal (Lipid) Storage Disorders along with Celiac ? Lipid storage disorders are usually deadly and kill in childhood or infancy,but I wonder if a person can have a less severe form of it along with Celiac ? It's when fats build up in the wrong places like organs and the brain. One is called Gauchers Disease another is called Niemann-Pick Disease. A few days ago I began to feel I had fat in my ACHING BRAIN AND MY LIVER and I wondered if it's a possiblity. I also felt this in December when I inquired about it from a referral place.These conditions usually affect Eastern European Jews,and some populations in Nova Scotia,and Spanish Puerto Rico that's what I read online-but they can affect anyone it it said.
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Well, the brain is supposed to be mostly water, but of the solid portion, apparently a fair amount is fat. The liver is important in the digestion of fats though. As I recall, it has something to do with the fact that the liver produces bile acids, which aid in the digestive process.

I'm curious though, how it is that you "feel" this build-up of fats? It might help if you can describe how your brain and body feel. There may very well be some food (or substance within) that is causing you the trouble.

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Well, the brain is supposed to be mostly water, but of the solid portion, apparently a fair amount is fat. The liver is important in the digestion of fats though. As I recall, it has something to do with the fact that the liver produces bile acids, which aid in the digestive process.

I'm curious though, how it is that you "feel" this build-up of fats? It might help if you can describe how your brain and body feel. There may very well be some food (or substance within) that is causing you the trouble.

Well,the dictionary describes Celiac Disease as a fat malabsorption disease,so maybe the fat piles up in celiac brain or something,maybe its possible. I'll look into it and update ya.

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Well,the dictionary describes Celiac Disease as a fat malabsorption disease,so maybe the fat piles up in celiac brain or something,maybe its possible. I'll look into it and update ya.

Fat malabsorption is when the body passes fat out of the system without it being processed. It is not that the fat goes to areas where it shouldn't. I would suggest that you consult with a neurologist if you think you may be having some kind of brain related issues. Also simple blood tests can be done to check for a 'fatty' liver or liver damage. There is something we call brain fog when glutened that can make it hard to think, is this the 'fatty brain' feeling you are referring to? If so it is a part of celiac disease and will go away after the gluten antibodies are out of your system.

I also noted in your signature that you mentioned you need to get the TTG. Do be aware that you need to be on a full gluten diet for at least a couple months before the test is done. False negatives are also not uncommon.

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Lipid storage diseases are not associated with celiac disease, and if you had a true lipid storage disease it would have been apparent a long time ago. Even if it were asymptomatic for some outstanding reason, if would have been picked up by a CBC. If you feel like there is something going on in your body, then please find a doctor who will run some tests for you. I would make sure they include a CBC and a liver function panel.

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    • Hi Michael and welcome The celiac diagnosis process can be a little confusing. Some time ago I tried to put together some info and links that may be of help:    The key point would be to stay on gluten until you and your doctors are satisfied that celiac has been excluded. In your case that may include another test with a more complete panel as CyclingLady says above. If you go gluten free independently during this time you risk invalidating the results and adding to uncertainty. The second suggestion would be that should you succeed in eliminating celiac as a diagnosis then you have nothing to lose from trying the gluten free diet. I tested negative on blood and endoscopy, but removing gluten resolved or greatly improved a whole load of symptoms including anxiety, depression and that feeling of not being right that you outline above.  I say greatly improved because I can still suffer from anxiety or depression, as anyone can, but if I do, they're nowhere near as severe as they were when I was consuming gluten.  In the meantime, one thing you could do is to keep a food journal to see if you can track any relation between what you eat and how you feel. It's good practice for if you later try the gluten free diet and you never know what you may learn.  This is a good site full of friendly help and advice. I hope you get the help you need  
    • “I was coming here before I was diagnosed with celiac disease, but after, it was one of the few places I could go to since they had gluten-free items,” ... View the full article
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    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
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