• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Do I Belong Here? How Do I Cope?
0

3 posts in this topic

Hey all,

I 've been lurking in the shadows here for a while and am now desparate enough to post.

I've been thru the blood tests and they are negative. Awaiting biopsy results from the small bowel biopsy test. But my GI doesn't think I have it. But I have all the symptoms--can't eat large portions (no more than a cup of anything at a time), constipation, lactose intolerant (my whole life), I know I am wheat intolerant, gut cramps, intenstine cramps, the WORST bloating I have ever had that refuses to go away and now I'm starting with nausea. I've been trying to follow the gluten-free diet and haven't gotten any relief. My GI said I "probably" have IBS but didn't see anything concrete. I have cut out all the junk and work out 3x/week. I don't drink, smoke or do drugs. I am a vegetarian. It's to the point of I think I've gone crazy b/c there's techically "nothing wrong."

So, what have you tried? Any food plans you'd recommend? Tips on IBS?

Thanks for your help. It's great to know I'm no longer alone.

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Hi and welcome to the boards!

First of all you are not crazy and apparently something is wrong as you should not feel that kind of abdominal pain.

Do not get discouraged if your biopsy / blood test come back negative. Sometimes it takes time for a disease to show up in the blood or damage your villi. It also depends on how many biposies the doctor takes and if gets the area that is damaged.

How long have you been gluten-free? Are you sure you are 100% gluten-free? Sometimes it takes a few weeks/months to see a huge improvement (in some people). Also there is a chance you could have other intolerences in addition to gluten.

Here is a link that may help you become 100% gluten-free, I would also stick to the basics, nothing fancy.

Safe and Forbidden Food and Ingredients ** this list has all the things you may not think about looking for on labels**

gluten-free food list ** must have adobe to view this link **

I hope you feel better soon. Feel free to ask any other questions you may have. Take care :)

0

Share this post


Link to post
Share on other sites

i'm sure you're doc is trying to rule out other things as well, right? Maybe you have another kind of intestinal disorder.

Hopefully they will find out what is wrong and help you!

We all know how you feel. And, it takes awhile for your symptoms to go away. Don't get disheartened if you don't feel better right away. I read that for some people it can be like, a year or two (let's hope that's not us!).

But be vigilant about it and hopefully you will feel better.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,346
    • Total Posts
      935,632
  • Member Statistics

    • Total Members
      65,026
    • Most Online
      3,093

    Newest Member
    lcook9@my.wgu.edu
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hope it proves of use  The Umberto Volta interview is particularly interesting and the case study from England also...
    • Following a gallbladder surgery, I could not get my digestive system back to normal.  After several months of constant diarrhea, I went to see the gastro dr. and told her my problems. I also mentioned that I had a sister, brother and nephew with Celiacs.  She said, "I'm almost sure that's the problem".  I, like you, did not want to go back to eating gluten so I did the gene test but it was not positive.  I learned it is not always an exact test.  It came back with Crohns which so far I have no symptoms.  The Endoscopy  indicated Hpylori, CDiff, and one other bacteria.  After I took all the meds to clear my body of these bacterias, I was still having  some symptons of diarrhea and found that I thought I was clear of all gluten but I had a long way to go. Throwing away a wooden cutting board my dad had given me, lipstick, lipgloss, makeup, handcream, plastics in the kitchen, pans that had a scratch, any item in the pantry that had any of the items with starch that may have gluten and the list goes on and on.  I'm still reading labels but I definately can tell a difference as I have eliminated more items that I had no idea were harmful.  This website has been a life-saver for me.  Thank You so much for your wealth of information.   Linda Fortson    
    • Just wanted to pipe in that my hair started going gray at 19. Started coloring it immediately and decades later, still doing it. I had the guts to go completely without coloring in my late 40's. i was fully gray by then, I used a wig during the hair regrowth period. Then one day I started again. And I'm a bit hypo myself but I have no idea if that had anything to do with it. My mom didn't start going gray till she was 50 but my dad started when he got polio at age 20. He was fully gray in his 40's. there's this one beautiful black woman on a tv show in the morning I watch sometimes with the disabled woman I assist, who has partially gray hair, and it is gorgeous on her. It's a cooking show that has several chefs on it but I have no clue as to what anyone's name is cause the sound is always low and we are doing other stuff!
    • Thank you! That was the thread I already found and am reading my way through.
  • Upcoming Events