• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Dapsone
0

8 posts in this topic

I have been on Dapsone for my DH for a while, and I finally had weaned myself off of it about a month ago... however I ate something, I don't know what, and broke out, and i started taking it again. However, I also noticed a couple things that have been really bothering me in association with Dapsone. For the longest time while taking Dapsone, I had no problems... then I had the liver problems and had to go off of it. However, after my liver straightened up and I started taking it again, I (along with my girlfriend) noticed that I get really moody when I'm on Dapsone. Is there a proven correlation or has anyone else experienced this? Again, it didn't do this until after I went off it for about a month (I was itching like crazy though). When I started taking it again, it was like I was always depressed, and when I finally weaned myself off it, I felt like a different person. I was never angry or depressed or anything like I had been. However I started taking it about a week ago again, and I feel horrible right now, like really depressed for no reason and feeling kinda worthless and I get irritated and angry very easily too... like I have a short fuse. I never used to be like this until a couple months ago and I wasn't merely a week ago when i wasn't on Dapsone. It's bothering me really bad because i even KNOW that I shouldn't be feeling like this, I just do. It bothers my girlfriend for obvious reasons too. I am trying to quit taking it again because I honestly believe that it makes me feel better emotionally. But I do wanna know if anyone knows if that is a possible side effect, or if I am just using the medicine as a copout. Thanks---

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:

I've never heard of this as a side effect but you vcan do a google search and find them or ask your pharmacist for a list if side effects.

richard

0

Share this post


Link to post
Share on other sites

Weird you mention that, I seem to have been having a similar problem.

Out of interest how did you know you had liver problems, from tests or did you become ill?

0

Share this post


Link to post
Share on other sites

If you're taking dapsone, your doctor should be doing regular blood tests and liver panel. I never had a liver problem but my white cell count was way off at first.

If you haven't gone gluten-free you need to.

richard

0

Share this post


Link to post
Share on other sites

I think a lot depends on how much you arev taking.

Some people when they start take like 200MG a day. Currently, I take 25mg (1 pill) every day or every other day). If I stop taking dapsone, the DH will come back - it always does -- and yes, I have new pots and pans, gluten-free toiletries and I rarely eat out -- for some reason, it doesn;t go away.

Anyway, I have been on it for 8 years (albeit a low dose) and my CBC has always returned normal.

For what its worth, when I used to drink and take 50 mg of Dapsone, I had moody issues -- but I always viewed it as stress, being hungover (colllege days) and working in a restaurant..

Who knows?

BTW< what is your dosage?

0

Share this post


Link to post
Share on other sites
Ads by Google:


I normally take 50mg a day. Sometimes less sometimes more but an average of 50mg. I have not had any blood tests at all and have been taking it for about 5 months. I have considered getting blood tests but never got round to it as I work up to 70 hours some weeks. I should really get some tests.

I am gluten free but still seem to get some itching once in a while even when I have only eaten food items that I know to be gluten free. I honestly think half of it could be in my head and dapsone these days is a placebo. As they say the mind is a very powerful thing.

Interesting you mentioned the alcohol and mood problems. I went out drinking last night and I have been feeling moody/depressed all day. Could be down to the fact my skin is itching due to my yeast allergy. Drives me f**king mental all the food allergies I have, I just wish I could eat and do what I want just like 99% of other people out there.

0

Share this post


Link to post
Share on other sites
I normally take 50mg a day.  Sometimes less sometimes more but an average of 50mg.  I have not had any blood tests at all and have been taking it for about 5 months.  I have considered getting blood tests but never got round to it as I work up to 70 hours some weeks.  I should really get some tests.

I am gluten free but still seem to get some itching once in a while even when I have only eaten food items that I know to be gluten free.  I honestly think half of it could be in my head and dapsone these days is a placebo.  As they say the mind is a very powerful thing.

Interesting you mentioned the alcohol and mood problems.  I went out drinking last night and I have been feeling moody/depressed all day.  Could be down to the fact my skin is itching due to my yeast allergy.  Drives me f**king mental all the food allergies I have, I just wish I could eat and do what I want just like 99% of other people out there.

<{POST_SNAPBACK}>

0

Share this post


Link to post
Share on other sites

<{POST_SNAPBACK}>

Dude, working 70 hours a week and dealing with a hangover is depressing all in itself - never mind the whole gluten-free thing. I try my best to maintain the diet, gave up on boozing and take about 25mgs of dapsone a day. Been doing this for over 5 years, my skin stays clear and I would never characterize myself as depressed - a little grumpy here and there, but nobody's perfect...

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      106,108
    • Total Posts
      928,972
  • Member Statistics

    • Total Members
      63,508
    • Most Online
      3,093

    Newest Member
    Samm
    Joined
  • Popular Now

  • Topics

  • Posts

    • Thanks for pointing the date out .
    • Thyroid disorders are common with those who have celiac disease.  Being hypothyroid can cause fatigue.  Anemia is another cause for fatigue and is very common for this with celiac disease.  Have those two issues been ruled out?  
    • So I have started my daughter on a magnesium citrate supplement.  I also took a does the first night so I have an idea of its effects.  (background info: about a month ago she started asking for tums about once a week close to bedtime for acid reflux)   So the first night I noticed that it really bothered my stomach in the sense that it felt like I had a lot of stomach acid as a result.  I had no heartburn etc. but a definite feeling of "burning" in my stomach.  We both took it right before bed.  The next day she reported the same feeling - that it "upset" her stomach.   I cut the dose in half and also gave it to her earlier in the evening.  But tonight she reported "heartburn" after drinking it.   Is this an indicator of low stomach acid?  I realize that she should NOT be taking a Tums if that is the case but I can't tease out from what I am reading if this heartburn is an indicator of LOW stomach acid or LOTS of stomach acid.  Any thoughts?
    • Thanks Ennis_TX! That's what I was hoping to hear I've never been a big protein powder user even pre-diagnosis despite being a fairly high level endurance athlete, so my awareness of what's out there is low. I've always preferred "real food," however, I was trying to find a protein powder because I have some extended job-related travel coming up, and wanted a shelf-stable, safe protein source. I like that this one only has no flavouring agents/nutritional additives and sunflower seeds are an inherently nutritious real food.  The price for this powder is actually pretty good in my area as the company is based in Vancouver/Bellingham, which is where I live. I don't much care if the taste or texture is horrible as long as it doesn't make me sick!  Just wanted to make sure that this was the case. Thanks for the hemp protein suggestion as well.
    • You're right, RMJ!  Food additives are definitely my reason for eating whole foods! Lol I'm allergic to Sulfites used as preservatives or antimicrobial agents in foods.  Long ago, Sulfites used to be added to meats to keep them pink and fresh looking, but that practice was banned.  However, those little moisture absorbing pads under some cuts of meat are allowed to contain Sulfites.  I found that I reacted to meats packaged that way.   Ennis, I wonder if that could be a possible reason for your reaction to meat.  Have you had Lyme disease?  Some people who've been bitten by infected ticks develop an allergic reaction to meat.   Curious Kitty
  • Upcoming Events