• Ads by Google:
     




    Get email alerts Celiac.com E-Newsletter

    Ads by Google:



       Get email alertsCeliac.com E-Newsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Cd & Exercise
0

52 posts in this topic

Kaiti I think your are probably right...a combination of not getting enough carbs & protein can sap your energy. I thing I have taken in the past is Endurox...although now, I am waiting for the company to contact me regarding gluten-free status of the product. It combines carbs and protein in a 4:1 ratio for rapid rehydration and rejuventation. There is a gluten-free product called Carb=BOOM I just ordered that others who exercise frequently may want to try.

I think priming your body is vital to being able to perform and sometimes supplementation is necessary for those of us on the go and don't have time to eat 10 small meals a day :D

0

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


Interestingly enough, during a "gluten episode", my stomach tends to feel better when I'm running than when I'm just sitting around (perhaps because blood is directed to the leg muscles instead of the stomach??) - Anyone else find this to be the case? Afterwards, however, it can be just as bad as before running (or sometimes worse).

Yes, I find this to be absolutely the case. And I thought the same before, it is, because the blood is NOT in the stomach or guts, but somewhere else. And before my diagnosis, I tried to work out as much as I could, because when I was working out I almost never had any pain. But afterwards then, I always had a lot of pain (or sometimes even worse than before as well). Now I'm all better since going glutenfree. But sometimes (very rare though) I still have a little stinging in my guts where the pain was before. Oh well, i think, I'm just adjusting.

Hugs, Stef

0

Share this post


Link to post
Share on other sites
Does anyone who races or particpates with a group wear Celiac related clothing or work to bring awareness about celiac disease? I wear a Gluten Solutions jersey, but that's it (oh and I talk about it), anyone else have "athlete tested" ways of promoting awareness?

Yes, I'm planing a Sweater and/or T-shirt for our travel team. That will have the team-name on the back and on the front something like: "sponsored by Stef G...glutenfree". I don't know, still working on it. I wanted to put it in a rhyme though. But at the moment i'm really busy with finishing all our team suits first. I will give you guys the Pic-Url, when the suits and/or the celiac awareness clothes are done. It will be quite nice, I'm sure :lol: .

Hugs, Stef

0

Share this post


Link to post
Share on other sites

I had almost no energy before I went gluten-free. Now I can walk for 1 or 2 hours a day and ride a bike also. Before going gluten-free I could barely do any of these things. When i don't get to exercise I have less energy the next day.

Ianm

0

Share this post


Link to post
Share on other sites

I'm finding it a real challenge to do any excercise at all. I get really short of breath, and my balance isn't good at the best of times, but if I'm tired :rolleyes: ...when aren't I tired? ...I'm worse.

My heart races all the time too. I have a faster than normal heartrate. I can't remember exactly what the rate is, but I'm over 60 beats per minute sitting down.

I get a weird feeling just above my heart quite often. It's hard to descibe. Sorta like my heart is weary. Does that make sense?

Sorry for taking over this thread at this point. I'm a bit worried about myself. My doctor isn't giving me a lot of answers. I think he thinks I'm a bit of a hypercondriac (sp??) . :(

0

Share this post


Link to post
Share on other sites

i exercise at least six times a week, (training for a half marathon) i love running and i do totally fine, you just have to make sure you're getting enough carbs and protien, my doctor put me on a protien supplement. and it helps

0

Share this post


Link to post
Share on other sites
I'm finding it a real challenge to do any excercise at all. I get really short of breath, and  my balance isn't good at the best of times, but if I'm tired  :rolleyes: ...when aren't I tired? ...I'm worse.

My heart races all the time too. I have a faster than normal heartrate. I can't remember exactly what the rate is, but I'm over 60 beats per minute sitting down.

I get a weird feeling just above my heart quite often. It's hard to descibe. Sorta like my heart is weary. Does that make sense?

Sorry for taking over this thread at this point. I'm a bit worried about myself. My doctor isn't giving me a lot of answers. I think he thinks I'm a bit of a hypercondriac (sp??) .  :(

Hey Maggie, I know the being short of breath and balance problem real good. I had that in my "end-stadium" so to speak, before I got my diagnosis. Since going glutenfree however it got better and better everyday. But when i'm sitting down, I have something around 60, too. Sometimes more and sometimes (very seldom though) less. And I still do now after being glutenfree. And with ingesting gluten I do have heart problems, too. But a rate around 60 while sitting is fine. And I have that weird heart feeling, too, sometimes. It's really weird, I can't describe it either, but I guess I know what you're talking about.

Hugs, Stef

0

Share this post


Link to post
Share on other sites

Stef, thanks for that. I feel so useless at times. I've only been gluten-free since December 1st 2004, so I guess it's still very early days, and as you said, it improves.

It's good to know people know what it feels like.

Thanks for the encouragement. :)

0

Share this post


Link to post
Share on other sites

Hello Maggie,

if you started in December with your glutenfree diet and your like I was, then around now it should be much better. It took me like three month, too. I started with the glutenfree diet end of July and around September/October I already felt much better and in December I haven't had any heart problems at all any more.

Hugs, Stef

0

Share this post


Link to post
Share on other sites

By the end of the year you should be feeling better than you ever have before. The first three months you won't feel that much better because you body is trying to heal and clean the poisons out. In another three months you should really start feeling different. Patience is required but it will be worth the wait.

Ianm

0

Share this post


Link to post
Share on other sites

Yeah, Ianm is right. You "poisoned" your body all these years, you can't expect that it's better in two weeks.

Hugs, Stef

0

Share this post


Link to post
Share on other sites

Boy, I'm tired out just READING about all this exercise!!! :lol:

If you count running after four kids, including four year old twin boys exercise, then yep, I exercise 24/7!!!!!! :D

Karen

0

Share this post


Link to post
Share on other sites

I'll hold onto those thoughts, Steph and ianm. This past few days especially, I feel really wrung out. So I'll try and look to the future and see that light at the end of the tunnel.

:huh::)

0

Share this post


Link to post
Share on other sites

If you have not been active in a while or tend to get out of breath, you might want to try stretching exercises such as Pilates. We also have a therapy tub (a hot tub if you don't have a doctor's note for it). We had fibromyalgia so badly that initially exercising was very difficult. The hot tub really helped and now we have begun the initial Pilates program. There are several out there that are similar. They can be order off the TV, internet, or at HSN.

0

Share this post


Link to post
Share on other sites

Yes, it can be tough, if you didn't do much for a while. Even if you actually DID do something for a while it can be tough. I'm the best example. And the last couple of days I had my celiac student with fibro also standing in the gym and being real tired because all of that. A couple of weeks since diagnosis she was good now. And thursday she came to the lessons and complained about being extreme fatigue and short of breath and condition. I told here it sounded to me like she ingested gluten accidentaly. And then she said, yeah, she remembered questioning some food the day before. And at the weekend it just got worse. And yesterday she stood in the gym and couldn't do some kicks with her right leg anymore, because she "overdid" a muscle. So she has muscle fatigue, too. Just like me. That's how it can go, even if you work out like a nutball. So take it easy at the beginning. ;)

0

Share this post


Link to post
Share on other sites

Maggie,

I could have written your post ... your symptoms sound so similar to mine. Low energy, rapid heart rate, and that funny feeling (almost like an awareness of it beating in a empty drum?) I have never been able to get energy from exercising, it usually makes me feel sick. I am taking the words of advice from the experienced celiac disease folks "that it will get better".

I was diag. Nov 2004, and sort of watched what I ate until a month ago. So, I am really only a month gluten-free and waiting for the energy .... I am going out today to look into supplements to take to help as well.

The rapid heart rate I have is a result from taking beta-blockers for migraines for 25 years and now my normal/resting heart rate is around 95. I now take the same beta-blockers to keep the rate below 100! If I had know migraines could be a symptom for celiac disease I would have checked it out sooner. :angry:

Blessings to you,

Laura

0

Share this post


Link to post
Share on other sites

Laura

I had high pulse and low blood pressure when standing and my heart felt like it was racing and I would get so tired. They found out I have Graves Disease which is Hyperthyroid. You may want to have your thyroid checked it runs with celiac alot. My doctor told me there are rarely any celiacs with just celiac.

0

Share this post


Link to post
Share on other sites
;):):P How many of you guys and gals jog? I am thinking of trying to start it again
0

Share this post


Link to post
Share on other sites

There is no way in the world that I could jog at this time. OHHH even thnking about it makes me feel ill. (I am going to take Kati's advice and have the doctor check thyroid issues.)

There is a cool web site about running and it has an agenda "From couch potato to 5 K in -------- I forgot how long" I tried it when I wasn't symptomatic and did ok.

I just do not do well with exercise. Also, forgot where it is, but I remember I found it in a search using couch potato and 5K. :(

Good luck, my hubby runs @5 miles a day and he loves it. Get good shoes and a buddy to run with. B)

Blessings

Laura

0

Share this post


Link to post
Share on other sites

I jog for about a mile mostly. When I don't have my daily excerise I get cranky :lol:

0

Share this post


Link to post
Share on other sites

Boy can I relate. In fact I find these posts so comforting to know I was not alone. I hadn't read much when I first looked into celiac disease about being short of breath and was panicked something else was wrong with me!

In the beginnings of my gluten-intolerant symptoms, I was so fatigued and short of breath walking up a short flight of stairs it was insane. My fiance was terribly worried, I couldn't make it through half a shopping trip at Sams Club without feeling completely wiped out. He'd take one look at me, recognize that dazed look on my face and say "We need to go don't we?" Anyhow, I am happy to report being gluten-free has resolved that. Not right away, bt with time it has. In fact I have a lot of energy back and am trying to exercise regularly. Even running. (Its just a matter of getting back in the habit, not because I can't.) I do struggle with the normal getting back into shape woes and building my lung capacity.

So take great comfort knowing you're not alone, and that it does improve. But as a safety precaution I'd have those other lovely medical issues looked into such as you stated your thyroid etc. Better safe than sorry. Because there are other health issues that cause these symptoms. Fortunately I've had everything tested and ruled out int he process of trying to find a cause of digestive issues. Good luck on resolving your issues and hopefully you'll feel like your old self soon!

0

Share this post


Link to post
Share on other sites

Hi there!

I'm a marathon runner & was diagnosed in August, 2004. My main problem before going gluten-free was anemia - got so bad that my skin tone changed (i.e., no "rosy cheeks") not to mention that I often had to walk up hills. After going gluten-free & taking iron pills, I ran my personal best marathon in October (yahoo!).

Although it's more difficult to "refuel" nowadays - at races, for example, the organizers often provide bagels for breakfast & sponsor a pre-race pasta dinner, etc. - if you're careful, there's lots of runner-friendly stuff you can still eat (e.g., some flavors of Balance bars, dried fruit, GU, trail mix,... are some of my favorites). Of course, as a runner, you have to make sure you eat lots of carbs (i.e., "high energy" food). Just do the pre-race pasta dinner with rice noodles...

happy trails!

0

Share this post


Link to post
Share on other sites

I walk at least a couple of miles a day, but most people say, too slowly.

I've just joined a gym attached to my work place and I was 'inducted' on two bikes, a walking machine and a cross-trainer. Looks fun, and simple, and not strenuous. Was out of breath trying it.

Not putting enough muscle on when young and malabsorbing is probably something to do with it.

0

Share this post


Link to post
Share on other sites

p.s. the new avatar is NOT me practising for "tossing the caber", in fact it bears no resemblance to me whatever!!!!!

;)

0

Share this post


Link to post
Share on other sites

This is a response to all you who exercise. I have been diagnosed as a celiac for about three years. In the beginning I continued to exercise (Jazzercise), sometimes three or four times a week. Just lately I have found myself sometimes short of breath, so I have tried to cut back. But, I really like exercising, it makes me feel healthy. I enjoy this group so much. It's just great.

Dick's gal

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      107,346
    • Total Posts
      935,622
  • Member Statistics

    • Total Members
      65,026
    • Most Online
      3,093

    Newest Member
    Natasha927
    Joined
  • Popular Now

  • Topics

  • Posts

    • Hi! I was officially diagnosed a couple of months ago now but I have been gluten free for about 4 months since my endoscopy. However, in the last month I have noticed some worrying post diagnosis and treatment symptoms. My appetite has shrunk enormously. I used to be able to eat bowls and bowls of food and still be hungry, I could consume food even when full and I was constantly snacking. I understand over eating is a big part of celiac disease before going on a gluten free diet but food is such a huge part of my lifestyle. This last month I feel as though I have lost myself a bit as huge parts of my character like my love for food, huge appetite and my non fussy nature have all been turned upside down. I could easily not eat any snacks in a day now and not have to have all my meals. I thought I might have lost weight so I weighed myself on the same scales I did a couple of months ago. I am a young tall girl and was 10 stone for the last year at least. In the last few weeks I have lost half a stone which is 7 pounds and am now 9.5 stone. This is not intentional and I did not aim or want this to happen so I am concerned about any continued lack of appetite and weight loss in relation to my health. Therefore, I am going to weigh myself each week and make sure I am eating all three meals. If it continues I'll visit the doctor. Also, I am noticing fatigue still which was a huge part of my pre diagnosis symptoms. I get to a certain point in the afternoon where I feel like I need to go home and rest because I can no longer continue. I have no stamina and it is restricting my freedom, which I feel has already been taken from me as a result of this diagnosis that came at a frustrating point in my life which was a huge nuisance. Finally, I am also finding it a bit of a struggle to get my head around the whole thing still and to understand what it means for me and my life. I am very worried and scared that it will impact me not just physically but mentally and socially and it scares me. I guess this was more me getting all this off my chest and into the open, if anyone has any advice or feedback I will be hugely grateful.
    • I've lost 3-4 pounds.   It surprises me, as I would have expected to lose more, considering how limited my diet has been,  how sick I was since early May, and now walking 35 to 45 min. after dinner.   I think it's the increased gluten-free bread and shortbread cookies.  I've eaten more of these as they settle my stomach and are safe when I'm not sure what else will work.   I think I may also be having more sodium, so there may be a bit of water weight. I am actually doing better.   I've been on Famotidine 20 mg., 2x daily for about 9 days, and added Vit D a few days ago.   I've been able to drop one of 4-5 stacked pillows at night, and will try dropping one more tonight.   I am down to Tums (1500 mg.)  around 3-4 a.m. for mild heartburn / upset stomach, and again when I get up.   Not much else, maybe occasional simethicone.     i tried returning to a salad at dinner, just lettuce, tomato, and onions, but seemed to have more trouble overnight, so quit.  I'm mostly eating an egg with toast, well cooked sweet potatoes/mixed veggies, tuna, some salmon, hamburger, chicken, Ian's fish sticks, bone broth, Schar's breadsticks and shortbread, some soy milk or macadamia milk, and the bakery gluten-free bread.  
    • Ebetta posted this 6 years ago ... not sure she/he will respond
    • Welp, according to the lady at the gastro's office, my tests were all "fine" and I don't have cancer or celiac. I asked for a copy of the report so hopefully that will happen. I guess I will follow up with my family practice doctor and see what they think I should do next, but I am not going to go back on gluten again. My eye doctor is concerned about an inflammatory condition in my retinas, that is rapidly advancing over the last year and thinks that anything I can do to decrease inflammation should be done. So to me, that means sticking with gluten free and lots of vegetables, especially the leafy greens. Also need to figure out why my liver enzymes are elevated. This is the third time in the last 9 years according to my old labs. I've gone over all my supplements and my one medication (compounded thyroid) to make sure they are all gluten-free. My plan is to live like I have celiac disease from here on out. My only dilemma is what to give people as a reason why I can't eat the food they make for me. For now, "Gluten makes me deathly ill" is going to have to be good enough. thank you all for the help and advice! I've found a wealth of information here and am currently reading Dr. Fassano's book and a couple of different threads on this forum that are incredibly helpful.
    • Hello ebetta! Can you tell me have you found any other or even better drugs to help you with gastroparesis? 
  • Upcoming Events