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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Hair Loss
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9 posts in this topic

Did anyone else experience hair loss / scalp problems as a result of Celiac Disease? It's not falling out so much anymore but it's not really growing in leaps in bounds either. I've been on the recovery trail for just over six months now and I'm still experiencing dry scalp and limp hair.

Just wondering if anyone has any treatment ideas / supplements that helped or if anyone lost hair and had it come back? <_<

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Have you had your thyroid checked? Thyroid disease can be associated with Celiac and a symptom of that can be hair loss.

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I did have hair loss in the begining when I was really sick. My Dr said it was due to lack of protein and the fact that I was losing so much weight. I dont see the hair coming out as much any more ...gluten-free since Feb04 ..... but its also not growing back <_< Thankfully I had thick hair to start with.

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I have both hair loss and scalp problems. The hair loss I know is at least partially attributed to my hypothyroidism, but I am also sure it is from vitamin deficiencies also. I have found that the shorter I keep my hair, the less hair that falls out.

Karen

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My doctor recommended taking biotin (along with patience) to help hair growth. Fyi: an average adult can lose 60-70 hair strands a day as a part of natural shedding.

Also for scalp issues, check your shampoo, conditioner, and any other hair products (sprays, gels) for wheat proteins.

Once I eliminated those products I noticed a big difference on my scalp - no longer as itchy and flaky.

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I've not been diagnosed yet but have all the symptoms of celiac disease and just to let you know I had the same thing. It was worse when I couldn't figure out what was making me feel sooo sick and I was still eating a lot of gluten. But now that I'm limiting it I haven't been losing as much hair.

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I use all Pantene hair products which I know is gluten-free. I still have the hair and scalp problems though.....

Karen

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Hello;

A big cause of hair loss is a lack of vitamin B 12! This is also common amoung Celiacs. My youngest daughter was loosing a great deal of hair until she started taking B 12 shots. Her hair has grown back nicely. My levels aren't quite so low, although I'm on a pill supplement. I had some hair loss, but it didn't come out by the handful like my daughter's did.

Have you doctor check your B 12 level, it's a simple blood test. :)

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About 2-3 months before my diagnosis I was losing more hair than normal. I think hair loss in celiacs is a result of vitamin/mineral malabsorption due to villi damage in the small intestine.

Once I started the diet it stopped.

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    • Good advice Ennis!  I would add baking and freezing some gluten-free cupcakes to have on hand, so that she is never left out.  Be sure to read our Newbie 101 tips under the coping section of the forum.  Cross contamination is a big issue,  If the house is not gluten free, make sure everyone is in board with kitchen procedures.   Hopefully, your GI talked about the fact that this AI issue is genetic.   Get tested (and your TD1 child).  TD1 is strongly linked to celiac disease.  About 10% of TD1's develop celiac disease and vice versa.  Get tested even if you do not display any symptoms.    http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/
    • What does weak mean?  Like you squat down and and you can not get back up?  Or are you fatigued?  When you said blood panel, was your thyroid tested?  Antibodies for thyroid should be checked if you have celiac.  So many of us have thyroid issues.  
    • We are not doctors, but based on the results you provided, you tested negative on the celiac screening test.  You could ask for the entire celiac blood panel to help rule out celiac disease.  The other IgA that was high?  It normally is given as a control test for the TTG IgA test (meaning if the celiac test results are valid).  In your case, the TTG IgA test works.  Outside of celiac disease, you might have some infection.  Discuss this with your doctor as he has access to your entire medical file.  I would not worry about it though over the weekend!  
    • See: http://www.cureceliacdisease.org/faq/can-a-skin-biopsy-for-dermatitis-herpetiformis-dh-confirm-celiac-disease-or-is-an-endoscopy-still-needed/ Take a copy of that with you or mail it to the doc. How many endoscopic biopsies did they take? Those with dh tend to have patchier damage than "normal" celiacs.
    • Ironictruth, I think that is a very insightful thought. since different antibodies present for different body systems all the ways gluten affects the body is still not well understood. Here is a case of presumably someone who had the gut damage of a celiac but also had neurological damage. http://www.nature.com/nrneurol/journal/v3/n10/full/ncpneuro0631.html entitled "A case of celiac disease mimicking amyotrophic lateral sclerosis" so it has happened in the literal but since this is not well understood people don't make the connection today. I would also point you to this hindawi article on the "Lesson's learned from Pellagra" but I am afraid we haven' learn't yet. https://www.hindawi.com/journals/cggr/2012/302875/ notice specially the 2.1 section clinical feature of pellagra and all the neurological symptom's once associated with a Pellagra patient. quoting "The neurological manifestation did not stop there because other degenerative conditions, such as an amyotrophic lateral sclerosis-like picture, were described, with fasciculation of the tongue and upper and lower motor neuron signs. Cerebellar syndromes occurred and vertigo was frequent. Headaches, sensory and pain syndromes, epilepsy, and involuntary movements were noted as well as sleep disturbances. Cord lesions were also seen, as was optic atrophy, so there were multiple sclerosis (MS), like variants." which tells me doctor's don't recognize pellagra today when they see it because they haven't seen it in 75+ years. ***this is not medical advice but read the hindawi journal on lesson's learned and I think you will see yourself in their many descriptions of all the way Pellagra presents itself to doctor's and patients still suffering today and you can see why it (like celiac) is hard to pin down today because it presents in so many ways it can be soo overwhelming and since vitamins are not a focus anymore today (especially b-vitamins) that today I believe we are doomed to repeat history's lessons unless the current generation learns again all the ways pellagra presents itself today. good luck on your continued journey. posterboy by the grace of God,  
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