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Anyone Around 60 Years Old Or Older?


Del

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darlindeb25 Collaborator

I'm not sure which one of you lives in Hawaii and said, you have the ocean all the time! I live on the east coast, on Long Island, I too have the ocean all the time, and I never tire of it. I wish I had a home overlooking the ocean, I just love living here. I swear I was a mermaid in another life! :P My mother has always hated water, my daughter hates water, very strange to me. To me, it's the most tranquil place in the world to be. When I first moved here, over 3 years ago, I walked the beach every Friday morning, sometimes on Sunday's too, all year long. Now my neuropathy argues with me and it's much more difficult, my feet and hips just can't take it. Another thing that celiac disease has given me!

Well gfpaperdoll, I am happy to see that I am eating pretty well for my arthritis! ;) Dairy has never been a problem for me, thankfully. I did give up all red meat 3 yrs ago, no nightshades for over 2 yrs, no cruciferous veggies, no oatmeal for 8 yrs, along with gluten-free, no shellfish, no grains mostly 2 yrs, completely now for 3 mos (cut out my rice cakes), and I went decaf in March too. I have been feeling much better and have lost 40#. I was glutened by a medication in January, which made me sick for 8 weeks, at least, which also kicked my metabolism back into working, it had not been working for maybe 3 yrs. So, I guess getting glutened could be considered a blessing! :rolleyes: I will be seeing a new neuro on the 16th, so maybe things are looking up, finally!

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gfpaperdoll Rookie

Hi Deb, I as so glad you gave up those rice cakes!!! I bet you are feeling better!! :) Amazing how we can lose weight when we just get rid of foods that are bodies are having problems with - not that we have a problem liking that food!!!!

mushroom, you can eat the occasional orange - it does not affect the joints as bad as the orange juice - which is too much of a concentrated sugar - someone explained this to me one time - but I forget the details & sequence of reactions that end up in joint pain.

oh - I am allergic to beef even tried the chemical free stuff but it was not grass fed. I think grass fed is healthy... grass fed beef retains its good ratio of omega 3 I think it is - anyway the good stuff - but when you feed cows grains & give them antobiotics & hormones all that is lost. Really you are better off not eating the stuff if it is not grass fed.

High Fructose corn syrup is deadly because it is such a concentrated sugar & it clogs up your arteries (along with gluten), a glue & sticky stuff & you got artery problems...

sorry if I missed something - I will post again later - got to run...

lets see if I can keep this somewhere in the topic. I love the ocean & live near Galveston, Texas - The Gulf Coast - of course the water is a nice dirty brown & not good to dip your toe inbecause of all the germy microbes, & the sharks, sting rays & stuff like that. I do love to go to Belize whenever I can - very beautiful water there - you can see 100' down as clear as a glass of drinking water - & probably a lot more pure!!!

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Betty in Texas Newbie

I am 56 and was diagnosed at 52 and I am 100% better than I was I just wish I didn't bloat everyday in the evening. Igained 40 Lbs after going gluten free. I don't understand I tryed cutting out other things but it did't help. I did't bloat much before I went gluten free. I think my sistem is very senctive If I know I am going some where in the evening I try not to eat much that day becauese I don't want to look like I am going to have a baby. I never want to go back the way I was very sick. I don't under stand how my body picked up 40 lbs after giving up all the carbs and sweets. I have not eaten any thing out of a box in 5 yrs my husband said I should not have a weight problem he thinks I don't eat enough I have been riding my bike about 4 miles a day and still haven't lost a pound I don't eat any of the special gluten free food and the breads I figure I don't miss it so why start putting more calories in my system. I did buy me some ceral rice chex it has no sugar and gluten free. Thanks for listing we need to talk about ourselves sometimes because nobody else doesn't seem to under stand us except my daughter and my 3 grandkids and my wonderful Husband of 38 yrs have a great summer

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mushroom Proficient
Hi Deb, I as so glad you gave up those rice cakes!!! I bet you are feeling better!! :) Amazing how we can lose weight when we just get rid of foods that are bodies are having problems with - not that we have a problem liking that food!!!!

mushroom, you can eat the occasional orange - it does not affect the joints as bad as the orange juice - which is too much of a concentrated sugar - someone explained this to me one time - but I forget the details & sequence of reactions that end up in joint pain.

oh - I am allergic to beef even tried the chemical free stuff but it was not grass fed. I think grass fed is healthy... grass fed beef retains its good ratio of omega 3 I think it is - anyway the good stuff - but when you feed cows grains & give them antobiotics & hormones all that is lost. Really you are better off not eating the stuff if it is not grass fed.

High Fructose corn syrup is deadly because it is such a concentrated sugar & it clogs up your arteries (along with gluten), a glue & sticky stuff & you got artery problems...

sorry if I missed something - I will post again later - got to run...

lets see if I can keep this somewhere in the topic. I love the ocean & live near Galveston, Texas - The Gulf Coast - of course the water is a nice dirty brown & not good to dip your toe inbecause of all the germy microbes, & the sharks, sting rays & stuff like that. I do love to go to Belize whenever I can - very beautiful water there - you can see 100' down as clear as a glass of drinking water - & probably a lot more pure!!!

Hi Deb and gfpaperdoll:

I know what you mean about the water. I grew up with mountains but then we moved to the beach and I preferred that. When we came back to NZ five years ago we built a house overlooking the harbour, and now when I look out my windows I see nothing but water and mountain. It is wonderful and has kept my sanity through this sorry saga. It is so soothing. The harbour and the mountain look different all the time and I never tire of just gazing out. We have the same thing at Lake Tahoe, and ah, sweet summer to get rid of the winter blues of July and August.

Laughing out loud thinking of the extreme effort I went to when I first came down here trying to find corn syrup to make a pecan pie--everyone kept asking me to do that. So I finally brought some back with me but still have this bottle sitting in my pantry. It does seem to be an ingredient in a lot of sweet stuff.

Deb, I was interested in what you said about your hips. A few months ago my hips just more or less gave out on me overnight, wouldn't lift me up the stairs so I have been hauling myself up using the handraii. They got better for a day and then went away again. Slowly they seem to be regaining some strength so I can go down without two-footing, but not up yet. My rheumatologist couldn't explain it, and I sure can't. I don't have pain in them per se, although the right one feels like it wants to dislocate, and I cant stand on one leg, that's for sure. Strange....

In our little Village Market in Incline they get free-range organic beef from Oregon, and I have no problem eating that. I agree about the hormones and antibiotics, but then you almost have to go veggie to avoid those--oh, the chicken!! So hard to find free-range here. Someone else I read avoids shellfish; it has such good other things, why is that??

Betty, I agree that it is strange to have gained so much weight gluten-free. There must be something you are eating that does not agree with you to make that happen and make you bloat. I would first cut out the Chex and see if that made any difference since that is something new for you But once we get rid of the gluten other things feel free to make their nasty presence felt; it's almost like, well now that that darned gluten is out of the way it is my turn, deal with me!. By all means keep talking to us as everyone here is a wonderful listener and I would probably die if I did not have this place to vent and share and get advice. No one understands like someone who has been there.

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Del Rookie

Hi Betty....

We do need each other....really helps to know what others our age are going thru.....and that they have finally seen the light at the end of this tunnel we're all in!!!

Have you tried giving up others foods, such as, milk, soy, etc. That might be causing your bloating problems. Seems when we get the gluten out of our systems something else pops up!!!

Good hearing from you!

Del

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Betty in Texas Newbie

All of you are just wonderful people I think celiacs are the best group of people maybe it is what we had to go thru all are most of our life .

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Del Rookie

]

Betty....

I couldn't agree with you more!!! This site has been a lifesaver for me!!!

Take care!

Del

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Welda Johnson Newbie

Hi,

My name is Welda, and I'm here to tell you that we do heal! I am 63 years old and have had symptoms of Celiac since age 8, when I started having asthma. No one ever mentioned Celiac throughout the years, but by 1963 I was told I would be bedridden by the age of 25 if I didn't have all the scratch tests for allergies and then the shots to "desensitize" me to whatever I proved to be sensitive to. I did the tests and the shots, but nothing helped. During the 1970s I started trying natural foods and by 1982 I began to eliminate foods to see what happened. I learned that all grains and all milk & dairy were culprits for me. However, it took hospital stays, spending my income on doctors, specialists and medications, and lots of times of depression and despair before I finally was blessed in 2001 with the news that the allergies I had were called "Celiac." I had gone for a colonoscopy after my father died of colon cancer, and the nurse saw the notations I had made on my entry chart and said, "Oh you have Celiac!."

"I knew there was a name for it," I said. I went home and got on the internet and found this site. I had already eliminated the foods I mentioned, but added egg whites & yeast to the list after testing them on myself, then began reading labels and ingredients interminably, in order to avoid the slightest trace of things to which I was intolerant (I learned that casein, whey, maltodextrin and modified food starch also made me wheeze, so I stopped those). I switched to soy margarine and Vegennaise mayo and that helped too.

Skip aheat to the year 2007: I was still wheezing after eating meat, poultry or fish. I started a vegan diet! I lost 20 pounds, and now at five feet tall I weigh 100 pounds, sleep 8 hours a night, walk five miles a day on the treadmill and outdoors with my doggy, and have plenty of energy to spare.

As a retired teacher I'm studying for a Real Estate Broker's License, writing books on San Diego County Indian history, gathering inventory to open a Cowboy's & Indians Store, and keeping busy with family and friends. I've written a booklet entitled, "Grandma, Can I Eat This?" centering on my grandson's experiences with Celiac, as well as a recipe book featuring Celiac menus. I keep thinking of it as "Man Does Not Live By Bread Alone," but know that a better name will probably pop up.

So, I will attest to the fact that we are so blessed to be living with Celiac, since it seems we eventually end up becoming healthier than the general population, and become examples of a new way of living and being, always ready to help someone else who learns they have this condition.

I hope that we all become the best that we can be. Welda@att.net

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Welda Johnson Newbie

Hi,

My name is Welda, and I'm here to tell you that we do heal! I am 63 years old and have had symptoms of Celiac since age 8, when I started having asthma. No one ever mentioned Celiac throughout the years, but by 1963 I was told I would be bedridden by the age of 25 if I didn't have all the scratch tests for allergies and then the shots to "desensitize" me to whatever I proved to be sensitive to. I did the tests and the shots, but nothing helped. During the 1970s I started trying natural foods and by 1982 I began to eliminate foods to see what happened. I learned that all grains and all milk & dairy were culprits for me. However, it took hospital stays, spending my income on doctors, specialists and medications, and lots of times of depression and despair before I finally was blessed in 2001 with the news that the allergies I had were called "Celiac." I had gone for a colonoscopy after my father died of colon cancer, and the nurse saw the notations I had made on my entry chart and said, "Oh you have Celiac!."

"I knew there was a name for it," I said. I went home and got on the internet and found this site. I had already eliminated the foods I mentioned, but added egg whites & yeast to the list after testing them on myself, then began reading labels and ingredients interminably, in order to avoid the slightest trace of things to which I was intolerant (I learned that casein, whey, maltodextrin and modified food starch also made me wheeze, so I stopped those). I switched to soy margarine and Vegennaise mayo and that helped too.

Skip ahead to the year 2007: I was still wheezing after eating meat, poultry or fish. I started a vegan diet! I lost 20 pounds, and now at five feet tall I weigh 100 pounds, sleep 8 hours a night, walk five miles a day on the treadmill and outdoors with my doggy, and have plenty of energy to spare.

As a retired teacher I'm studying for a Real Estate Broker's License, writing books on San Diego County Indian history, gathering inventory to open a Cowboy's & Indians Store, and keeping busy with family and friends. I've written a booklet entitled, "Grandma, Can I Eat This?" centering on my grandson's experiences with Celiac, as well as a recipe book featuring Celiac menus. I keep thinking of it as "Man Does Not Live By Bread Alone," but know that a better name will probably pop up.

So, I will attest to the fact that we are so blessed to be living with Celiac, since it seems we eventually end up becoming healthier than the general population, and become examples of a new way of living and being, always ready to help someone else who learns they have this condition.

I hope that we all become the best that we can be. Welda@att.net

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Del Rookie

Hi Welda.....

You post was just what I needed!! Thanks!

I was gluten-free eleven months ago yesterday....and I'm feeling good!!!

Del ;)

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YoloGx Rookie

Wow, thanks for your story Welda! I am so glad to hear you are finally feeling so well and having a productive life at last.

I am on that road too though there are days I still get CC'd at this point and then feel pretty tired and achey even with all my enzymes etc. At least however I now avoid getting D and ill.

But overall I feel so much better!

Someone else here asked about Dandelion and Marshmallow or Slippery Elm I think. Dosage varies, however if you are taking the capsules its best to follow the instructions and take them 3 times a day--that's usually one or two caps 3 times a day.

However if you make a tea, lightly boil 1 rounded tablespoon of the Dandelion root per quart of water. Ditto with other ingredients like Yellow Dock or Oregon Grape root. I often also add Pao de Arco since I have long term candida overgrowth or some kind of fungus. Pao de Arco also helps with regularity--as do Yellow Dock or Oregon Grape--both of which also act as intestinal purifiers and help as whole system restoratives.

Dandelion Root is excellent for the liver and kidneys. It helps detox while at the same time adding back potassium.

This whole combo especially when taken with Cleavers (here its just 1 tsp. per cup of water, usually just 3 times a day) helps to reduce inflammation in the joints. I don't advise taking Cleavers at first by itself since it will stir up a lot of muck in your system and could cause a reaction without the Dandelion and other herbs to help elimination.

Marshmallow Root and Slippery Elm soothe and heal and get rid of inflammation in the stomach and intestines; Marshmallow Root also is good for the urinary tract and kidneys. Slippery Elm is better if your system runs a little hot; marshmallow root is better if you run a little cold and mucousy. Again usually 2 tsp. a day is all you need, 1 tsp. at a time. Caps are easy since making a tea gets a bit lumpy. I often take the powder and just mix it with water. Could be good in a smoothie too.

However with Slippery Elm you can actually make a gruel out of it--slowly put a small amount of water with 1 tablespoon of slippery elm and mix with a whisk, then add up to one cup of water and keep whisking. Put in pot on a slow boil, stirring relatively frequently for 5 to ten minutes. You can add cinnamon if you like. My ex swears by this when his stomach and intestines hurt, his body aches which all creates a bad mood. Can't quite figure out why (lol!).

If you do have low Adrenals and low blood pressure, I suggest you take licorice root fairly regularly with the above mixture. You can just add it to your brew (though watch out since it will cause it to froth and boil over easily --so turn it all down). Or you can take caps or even add it to your food as a kind of condiment. Its suggested you go off it every 10 days or so so as not to raise the blood pressure too much.

This going off a strong herb every 10 days or so also good advice for most detox herbs though I think Dandelion is supposed to be pretty safe however I like to alternate all the stronger herbs just because. This is why I list alternate herbs.

During alternate weeks however you could use Milk Thistle (otherwise known as Silymarin) instead of Dandelion. Milk Thistle however doesn't give itself to water so don't bother boiling it. Best in caps. Silymarin is in the most effective form. Milk thistle cleanses and helps restore the liver and thus also helps reduce inflammation in general.

Hope this helps!

Bea

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darlindeb25 Collaborator

Oh mushroom, I'm so jealous--I would love your view!!!!

Yeah Del, celiac's are nice people. I find all people who suffer diseases are usually very strong and usually very compassionate--we are the stronger people, in many ways!

Now--Betty in Texas--we need to help you. It sounds to me, as someone else stated, you have another intolerance that you just haven't figured out yet. Maybe dairy, soy, corn, etc. It's harsh, but some celiac's are finding they can't eat any grains, I can't. I feel so much better with no grains. For you though, I would start, maybe with dairy. I never had to give up my dairy. After going gluten free, the first 3 yrs or so were great, then my soy intolerance jumped in. Soon, corn became a problem, then tomatoes, potaotes, which are nightshades--I can't eat any cruciferous veggies, like cauliflower, broccoli, cabbage, etc--I do not eat any raw veggies, I find just a few cooked carrots is more than enough. Then I had to give up rice, red meats, and shellfish.

I eat chicken breast, some fish (cod, talipia, tuna), green beans, peas, cottage cheese, apples, applesauce, peaches, pears, I still enjoy my peanut butter, if only on a spoon. I do not live to eat, I eat to live. As I stated, I do not use anything with high fructose corn syrup, no sugars, other than natural sugars, like in the fruits. I do still drink decaf coffee and decaf tea. I do not drink soda's, haven't in 4 yrs probably. Of course, I drink water. I take a good multiple vitamin (Nature Made Woman +50), Ester C, and 3000mcg of B12 3x a week.

Tell us what you do eat, maybe we can help you figure this out.

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Welda Johnson Newbie

Thanks Del & Yolo. I'm glad you're both feeling better. Welda@att.net

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home-based-mom Contributor
I'm not sure which one of you lives in Hawaii and said, you have the ocean all the time! I live on the east coast, on Long Island, I too have the ocean all the time, and I never tire of it. I wish I had a home overlooking the ocean, I just love living here. I swear I was a mermaid in another life! :P My mother has always hated water, my daughter hates water, very strange to me. To me, it's the most tranquil place in the world to be.

Isn't it amazing who ends up together in life? My mother, who I swear would get sea sick on a water bed, married my dad who was half Norwegian and had salt water in his veins! Being an aerospace engineer, he moved us from the Montana prairie to Seattle to work for Boeing. He loved it the Puget Sound area. All 3 of us kids loved it. My mom thought otherwise! :P

To me the ocean is soothing - I have never lived too far from it. I would think such a stress reducer would contribute towards healing.

I haven't been at this long enough to heal totally, but I do know that as I am on a collision course with 60 I think more and more about the aging process. I definitely intend to exit this world in better health than either of my parents did. They were miserable at the end. I would prefer to be like my paternal grandmother - healthy for 98 years, sick for 3 days. Period. :D

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Del Rookie

Thank you, Welda!!! It's people like you that help us all know there are better days ahead!!!

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YoloGx Rookie
Thank you, Welda!!! It's people like you that help us all know there are better days ahead!!!

I know for me personally I am doing better than I ever did. I still have my off days but they are fewer and fewer depending on how successful I am to avoid trace gluten or some other source of poisoning. And when I don't feel so great (from some stray whatever) I take extra enzymes and pro-biotics, make myself a mash of dandelion etc. tea, go for a walk and/or do yoga and then do (feel better that is).

Longevity runs in my family too. It seems it often goes with celiac -- amazingly enough from what I have read. That is of course if one is avoiding the gluten, and even not sometimes. But not avoiding it makes all those years a torment leading finally into glaucoma and dementia.

I am trying to turn it around for my mother of 93. Her DH came back plus with it memory loss a little over a year ago. I can always tell these days when she has been exposed to gluten since then she gets fresh red outbreaks plus her face turns white and pinched not to speak of her short term memory gets ridiculously worse. And her eyes and the area under them turn red! Danger danger is what I say to that!

She is much better when I keep her active and on diet. It is hard slogging though at times since in part she believes me and in part she doesn't. She was one of those people in her generation that got treated early for "sprue" (at age 4 when she first got DH and was failing to grow) and overall carbohydrate intolerance back in the 1920's. She was some part of a study group in fact in San Francisco.

It was presumed she grew out of it by the time she went to college theoretically. However she didn't notice she was getting anxious and spaced out, she had to cuss and push herself just to keep moving otherwise she would just drop and she had a tendency to have hypoglycemia, low thyroid and at times depression. She got nerve ganglions on her wrists and sometimes her ankles which I think is also a possible sign. I used to get that too as well as my 2 sisters who also have celiac. My mother also always had weak eyes and now has incipient glaucoma.

Nevertheless she is still strong as a horse especially now she is mostly on a non gluten diet--but this really has only been since November after my sister Peggy amazed me with her regeneration (at age 66 by the way!!) being off all gluten--up on top of her rental property house with a power sander!! After having had weak joints for years!!

Even now Mom's avoidance of gluten not total since I have yet to replace her lipsticks etc., though each week we make progress and I throw out and replace more stuff --plus I have to watch my other sister the nurse who still brings Mom things that have gluten in them as some minor ingredient. Its a slow learning curve around here it seems!

Today I had Mom slogging paint buckets out of the truck and into the garage for our rental property business while I organized the space inside the garage and put together some shelving. She lifted about 10 five gallon paint buckets by herself. Yeah I showed her how to use the hand truck, however she lifted them up out of the truck and onto the table in the garage. Later on she skimmed the pool. How's that for strong?!! She is all of 5 foot 3". She is also just as limber as ever -- another positive for celiac. We might get sore joints from gluten but we don't tend to get "stiff" as we age.

I am learning that I have to get Mom to do projects however or she will just sit and vegetate. Fortunately she wants my direction; a real turn about from the past. It seems my mother would rather work than play but is too befuddled to know what to do without direction these days. Its so amazing, I can hardly get over it. I am glad however since this place is just too big for me to take care of by myself--since we live here on several acres in the woods there is always something that needs taking care of.

For myself I am looking forward to quite a few productive creative years at last at age 58 no longer ill all the time like I was previously most of my life -- despite taking care of myself as much as I possibly could using what I thought was a good diet and herbs. Now I think it will overall be plus plus!! despite the occasional difficulty or set-back that life tends to bring from time to time.

Bea

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Del Rookie

Hi Bea.....

Loved hearing about your Mother!!!! Sounds like, with lots of prodding from you, she's having a wonderful life!

Thanks for telling us about her.

I hadn't heard that people with Celiac are prone to long lives....for several different reasons I've often wondered if my great grandmother had Celiac....she lived to be 104 and from all I've heard she was VERY active everyday of her life!

Have a great day!

Del

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YoloGx Rookie
Hi Bea.....

Loved hearing about your Mother!!!! Sounds like, with lots of prodding from you, she's having a wonderful life!

Thanks for telling us about her.

I hadn't heard that people with Celiac are prone to long lives....for several different reasons I've often wondered if my great grandmother had Celiac....she lived to be 104 and from all I've heard she was VERY active everyday of her life!

Have a great day!

Del

Thank you Del! After writing that I thought to myself, there is a story in here somewhere. Maybe I should develop it!

It really could be that your grandmother did have celiac; I've read this observation of people with celiac having longevity several places, including scientific articles--and certainly have observed it. I think it relates to the Old Hunter Gatherer genes. Apparently back in the day people used to live longer and overall were healthier before grains were introduced.

The trade off is with the grains the human race could settle down and build houses they could live in all year and then grew a village and then a town etc. even though they had shorter lives and didn't grow to be as tall.

However I think some folks with Celiac (assuming their symptoms aren't too bad) still live to be quite old even if with certain annoying difficulties if they are not avoiding gluten.

The good news is that even for the rest of us who have Celiac more severely, we have the real potential on diet to avoid and/or overcome many of the common degenerative diseases. We are after all from hardy stock--pre-civilized man. In my opinion this is why many of us are go getters once we no longer have to struggle to get to square one. Its in our genes. We have to move around and do things to be OK and in fact often love it.

When I was younger but had already figured out some of what I shouldn't eat, I still didn't know I had celiac and still suffered by getting sick a lot and had constant body aches and pains despite my extensive herbal knowledge. However I wasn't going to die early from my condition like I very likely would have otherwise from kidney disease and skin cancer.

Now that I know about Celiac and trace glutens, all that seems to be over with for the most part. Thank the Heavens! People like me get to have a life finally! I am thus very much looking forward to my sixties as a period of liberation. Its so opposite the general population, however, so be it!

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darlindeb25 Collaborator

Home-based-mom, when I stand on the beach, it clears my head. Salt air is wonderful for that, there is nothing more cleansing for your lungs, than the salt air. When I was able to go there every week and walk the beach, my headaches were so much better. I live on the south shore, maybe 3/4 of a mile from the Great South Bay's shoreline--I love a windy day. I'm like a beagle outside, with my nose in the air!

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Del Rookie

Morning Bea....

I agree with you....maybe you should develope the story of your mother!!! Not only is it inspiring, it might get others to avoid gluten....which I think would be beneficial to many!!!!

I'm the prayer chain manager/chaplin on a Fibromyalgia board and I've really be letting them know how much better, at least 85% better, my Fibro is since going gluten free!! Some of them probably wish I'd just shut up but others have stated they are going to try it!!

Let's see...they say our fifties are the new thirties so I guess the means when I hit my new fifties I'll be a healthy, active 70!!! Come on...it's possible!!! LOL

Take care....

Del

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Welda Johnson Newbie

Hi all,

This is the first time I've heard about Celiac in connection with long life, but I'm intrigued because my great-grandfather lived to be 98, my grandma 96, and I now have an aunt who is 98, all from my dad's family, which is where I think the Celiac originates. I'd love to hear more about this theory, since I definitely see my ancestors as role models, and envision a long life with health and happiness now that I am on a gluten-free, milk & dairy free, egg whites & yeast and meat-free diet. Thanks for the info. It is good "food for thought." Welda

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YoloGx Rookie
Morning Bea....

I agree with you....maybe you should develope the story of your mother!!! Not only is it inspiring, it might get others to avoid gluten....which I think would be beneficial to many!!!!

I'm the prayer chain manager/chaplin on a Fibromyalgia board and I've really be letting them know how much better, at least 85% better, my Fibro is since going gluten free!! Some of them probably wish I'd just shut up but others have stated they are going to try it!!

Let's see...they say our fifties are the new thirties so I guess the means when I hit my new fifties I'll be a healthy, active 70!!! Come on...it's possible!!! LOL

Take care....

Del

Hi Del,

Yes, this fibromyalgia link to gluten seems I agree to be quite strong. My older sister had what was considered fibromyalgia. She is the one who convinced me to avoid all trace glutens (3 years after I told her about my belief we had celiac--she went with it even further than I had!).

This last fall I saw up on top of the roof of her rental with a power sander of all things! Years ago she couldn't even lift her babies! And it was always a struggle with her knees and other joints.

I have had similar problems with my elbows and neck etc. Going gluten free as well as avoiding other allergens has made a huge difference (despite the down side of becoming more reactive to trace amounts of it). The detox herbs plus exercise and yoga help me with the rest. I now am almost completely pain free unless exposed to gluten or some other toxic item.

Bea

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YoloGx Rookie
Hi all,

This is the first time I've heard about Celiac in connection with long life, but I'm intrigued because my great-grandfather lived to be 98, my grandma 96, and I now have an aunt who is 98, all from my dad's family, which is where I think the Celiac originates. I'd love to hear more about this theory, since I definitely see my ancestors as role models, and envision a long life with health and happiness now that I am on a gluten-free, milk & dairy free, egg whites & yeast and meat-free diet. Thanks for the info. It is good "food for thought." Welda

Hi Welda,

I agree it really is inspiring. I think of it as finally getting to be who I am thankfully after all these years of suffering. Its kind of like youth in old age. I even have a clearer mind and a better memory by going off all the trace glutens etc. Pretty weird but wonderful, eh? The other good thing is that with the experience I already have I can use the energy wisely rather than just squander it as someone more youthful might.

I do wonder if there have been any studies on this, or if its all just anecdotal, though as I said various scientists have noted it. Might be fun if someone did a survey.

Bea

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Del Rookie

Hi Bea....

I can easily imagine your sister using power tools now when before she couldn't even lift her babies, let alone a power tool!!

I'm constantly amazing my husband but what I can easily do.....he was used to having to do a lot of things for me....now he watches me do those very same things! Now basically the only time I know Fibro is still lurking in the background is when there's a storm in the area....then it let's me know it's here!!!!

Did you gain weight as you began to heal? I lost 47 pounds, very quickly, but now as I'm healing I'm starting to gain weight....kinda flustrating!!!! Oh well!!!!

Hope you're having a good day!!!

Del/aka Elaine

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gfpaperdoll Rookie

I think that some people when they get older they "just figure out" some things that they cannot eat. My grandmother lived to be 89 & watched her diet her whole life & was never overweight. She was an Irish red head.

Then I know a lady that her sister has dx celiac & she probably has it to... & their mother lived to be about 110 & lived alone until she was 96 or so, she slowly lost her hearing & eyesight but had her keen sharp mind to the end. Some university was studying her longevity...

An aquaintance of mine from 11 years ago called me - she is 83 (Irish) & has been ill... well I visited her etc. & then about 3 days later, which was yesterday, I called her at lunch time to see how she was doing & she was almost crying because she had the stomach cramps & diarrhea so bad. I said "well what did you eat for breakfast" she had two waffles (those frozen things that go in the toaster!!). It seems when she first started getting sick 3 years ago that she had a pizza every day. she does not like to cook (I think common with people that food makes them sick)

She has panic attacks, anxiety, depression, weepy emotional, swollen feet, stomach pain, diahrrea or constipation, nerve damage in her shoulder & upper back neck, & that is it. I mean besides almost starving to death & probably having no villi she is healthy as a horse. Of course I checked the meds that she is on - one might not be gluten-free & the meds are just for the above symptoms & also the meds side effects are the same as her symptoms.

I took her dinner Friday night, steamed carrots, rice, steamed chicken - she ate some of it. This morning for breakfast she had two scrambled eggs & a tomato, then at 10:30 she had some more of the chicken & carrots. I loaded her & her walker in my truck & took her to farmers market - She was so thrilled to get out of the house & had a blast - We were cool & wore our sunglasses!!! she was pooped out when we got home - but she made it fine. By then it was 1:30 so she finished off the chicken & I gave her some cantelope, grapes, & strawberries. You know she bought the strawberries while I went to get the car - I forgot to get her handicap hanger, I am a rookie!!!! anyway, she called me this afternoon later & she had a small tummy ache - I think it was the strawberries. I had a bad reaction a few weeks ago & I think it was the strawberries that I got at the same place & took in my lunch. I saw a thread about strawberries on here...

Anyway, this evening she had half a container of gluten-free soup that I had left - I cleaned out her kitchen & she gave eveything away to her friends. She had also eaten more strawberries, before she got the tummy ache. I've to go back over there tomorrow & double check the refrig & freezer. Also, taking some soup I made.... She had visitors today & they could not believe how much better she was acting!! She said they kept commenting on it. well she is better today because I cut her off of all gluten & dairy. & she was saying tonight that she might give up coffee, tea & colas - like me :)

She is very mentally alert & jokes despite being on some drugs. Of course the good news is that she is probably not absorbing most of them - the balancing act will come in a few weeks, if she continues to improve & starts absorbing her food she might have to have the doses lowered or go off a couple of them. & 1 is addictive... & sure you can guess that she was taking NO vitamins - go figure...

I think the only thing wrong with her is she has undiagnosed celic & would have died from it... She has lost a lot of weight in the past three years - I mean she is really a classic case of symptoms...

There sure isn't anything wrong with her appetite now!!!! Not bad for 1 1/2 days gluten-free. B)

Oh, of course the son that has not visited in 3 months will be going to her house tomorrow & I will be going over to meet him!! hehehe I am sure her 80 year old friend called him & said - you better check on your mother she just gave away all her bread, crackers, cereal & flour... :rolleyes::rolleyes:

I told her she will probably outlive me & I think she really might...

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      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
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      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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