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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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TURTLES too!!!!!!! I called a few months ago and the woman, very sweetly, told me not only are they gluten-free but that they know we Celiacs need some goodies. Turtles way back used to be run by DeMets,

most recently by Nestle but now apparently sold bk to DeMets. I love them and have had no problem

with them. She also told me that they've rec complaints about the cashews in them (previously the

only nuts were pecans) and are planning on changing bk to only pecans. Their toll free # listed on the package is the # I called which I don't have handy. I'm having trouble finding Turtles "out of season"

(non holiday like Christmas) in the big box......found one at a super Walmart and small packages at

Walgreen's but that's about it. Got to go.....hope this give you another yummy goodie!.........Angel :rolleyes:

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Turtles are indeed yummy! Glad you found some that you can eat!

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I ate some this past Christmas with no ill effects. Pretty good stuff.

best regards, lm

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Soo awesome!!

This thread is almost 5 years old. Product ingredients change in that amount of time. Check the ingredients yourself before eating.

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Here in Canada, they are still sold under the Nestle brand, and are gluten-free.

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I just saw DeMet's Turtles in the check-out aisle in Giant Supermarket and was wondering if they were gluten free....THEY LOOKED SOOOOO GOOD.  Glad to hear that THEY ARE!!!!  Will buy some next time I go to the market - THANKS!!!!  :-)

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I just saw DeMet's Turtles in the check-out aisle in Giant Supermarket and was wondering if they were gluten free....THEY LOOKED SOOOOO GOOD.  Glad to hear that THEY ARE!!!!  Will buy some next time I go to the market - THANKS!!!!  :-)

PLEASE! Check the ingredients. They may still be gluten-free but the original thread is 2008, then a response a year ago that they are gluten-free in CANADA. Ingredients are not always the same. But, it's pretty simple. Just read the ingredients.

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Because I love nuts+chocolate+caramel combinations I wrote them tonight asking for updated allergy info.  Will post when I get a reply.

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I eat turtles all the time and never have any problems besides wanting more :P

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I eat turtles all the time and never have any problems besides wanting more :P

Ugh I have to stop reading this thread, I really want chocolate now! :o  The nutrition info i read on the website looks like the are okay, I am looking forward to their response to my email, I have a good feeling! :D

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You people have to stop this! I NEED to believe all these goodies have gluten in them! My thighs and butt do not need turtles and gelatos and Snickers and flavored pretzels, etc! How am I supposed to lose weight ? OMG! All of my favorite things are gluten-free! :)

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Sorry about the incoming chocolate craving Kareng... finally heard back from my email to them!

 

"Thank you for contacting DeMet's Candy Company regarding your inquiry.

 
While our TURTLES products do not contain gluten, they are not processed in a facility that is gluten free. We perform full allergen cleanings between production runs, however there is a slight chance that the product may contain traces of gluten. If you have any further questions regarding our products, feel free to contact us, we are more than happy to assist you."
 
So Shared facility, good cleaning practices, Id eat em.  Hmmmm maybe I should run to the store right now....

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So Shared facility, good cleaning practices, Id eat em.  Hmmmm maybe I should run to the store right now....

Shared facility with Good Manufacturing Practices. That works for me. I have to limit my consumption due to sugar content, but I don't worry about gluten in Turtles. Suddenly, I have this craving...

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An update Allergen information now says processed in a facility that also processes wheat. I was just about to eat one and my spidy senses said check.

I am so sad I guess I'll have to go buy Pixies I believe they are still ok.

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    • Apologies for my over-reaction.  As the shampoo exposure was only for a couple week or so, I doubt any lab tests would have indicated exposure. Unfortunately, since I didn't have the antibodies, I can only rely on my symptoms to tell me if I've been exposed. I'm fortunate enough that eliminating gluten (and dairy) from my diet completely fixed my problems. I have had no lingering systems, and now that I have been gluten free for a while, when I do get gluten I have a very clear reaction (and a distinct reaction to dairy) that follows a fairly predictable timeline. This has accidentally been tested a couple of times. For example, early on before I was better at reading labels I grabbed some cookies at the grocery store that I thought were gluten free (the company produces both a normal and gluten-free version, and this was before I learned to avoid shared facilities). I had grabbed the wrong bag but I didn't figure it out until about a week of feeling crappy had passed and I went searching for a culprit. Things like this have happened a couple of times, where I accidentally did a blinded experiment on myself. The symptoms are consistent, and resolve once I remove the offending item. So when I recognized my symptoms as the result of gluten, I went looking for a culprit and I found the shampoo and conditioner. I removed them and then I got better.  My problems are largely systemic. I wouldn't be surprised if I don't actually have celiac but some other immune mediated reaction that hasn't been defined, but calling it celiac is the best way to get people to take my needs seriously (which I'm sure you understand). Unfortunately, my problems don't seem to fit into any particular diagnostic bucket, so I've learned not to rely on the official medical terms and just go with what works. I'm lucky to have had doctors who think the same way, else they might have told me that I didn't need to go gluten free once I failed to show clear-cut celiac. Maybe I'm pre-celiac, maybe it's the much maligned NCGS, or it's all related to leaky gut (I am eagerly awaiting the FDA approval of larazotide so that I can get a doctor to give me some, I think it might do me a lot of good). All I know is that when I went gluten and dairy free it literally changed my life.  In general it seems that gluten exposure causes a generalized inflammatory response. I get some inflammation in my gut that manifests as reflux, acid indigestion (what I call "fake hunger"), and a little bit of urgency and unpredictability with regards to bathroom needs, but if that were the only problem, I think I could live with it. I also get headaches, brain fog, my depression/anxiety gets triggered to a scary degree, arthritis, muscle aches, and then, the clincher, muscles spasms in my upper back and neck that have been known to lay me out for a couple of days while I wait for the muscle relaxants to help me heal. The muscle spasms, arthritis and brain fog are the most recognizable and are usually what cue me in that I got glutened, especially the spasms.  Again, sorry for being oversensitive. I should have known better, since this is such a supportive community.  
    • I appreciate your point. However, constancy of my celiac symptoms indicates that I have had the disease for at least three years - while I have never experienced any food allergies in that time. Although I will keep an eye on any emerging allergies, I believe my current fatigue is due to nutritional deficiency, because the only exogenous change in my life style has been the transition to gluten free diet.   Yes, I certainly need to keep a food diary. Thanks again for the advice.
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